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About ygflkureag

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  1. Yeah, I can see we all have the same problem with the doctors. My blood work showed raised potassium levels, but my GP said the level was most likely to have changed in the transport from the clinic to the hospital where they test the blood, so I guess I'm fine again... I can't fu...ing sleep at night as my limbs are going from numb to heavy to burning hot, I have shortness of breath, my heart skips and jumps (among others), but maybe it's just stress as I'm frustrated it's not going anywhere.
  2. Guys, have you tried Lansoprazole? It's for stomach ulcers, treatment of heartburn and stomach acid control. My GP prescribed it to me to exclude stomach ulcer, acid reflux (I don't have any acid reflux) as I have a pain in my entire upper right abdomen/back. I guess they just don't know what to do with me, as my blood work is normal, and my doctor actually said 'I look too well' to have more serious issues, basically. Now, I don't really want to take it, judging by my previous experience of no
  3. I tried bromelain with quercetin (quercetin is supposed to be good for a leaky gut), but I didn't feel much different after a month and I stopped. The only supplement that I now know was helping me (I stopped it after many months of use) was Glucosamin. I started feeling the joint and back ache again after less than 2 weeks of stopping
  4. A while ago I've read on this forum about people being almost 20 years off accutane who have undergone a surgery for their tendons/soft tissue calcification. Without Vitamin K2, the body cannot direct calcium to the bones where it's needed; instead, the calcium resides in soft tissue (eg. arteries) leading to a combination of osteoporosis and atherosclerosis. I'm not sure whether the soft tissue calcification is caused by accutane though, but it sounds like it in the 2 cases I've read about here
  5. Tells calcium where to go in your body, in layman's terms. Vitamin K2 that is.
  6. True. Dry mouth is the very last thing we worry about, but it needs looking at. I've read horror stories about jaw bone loss, periodontitis, tooth decay on MedsChat. Lack of saliva means that not only we can't pre-digest food, but also dental enamel becomes demineralised and porous, bacteria spreads like mad producing acid and causing cavities. Also, the gum recession. Does everyone suffer from that after accutane? Would grafting the gums be a permanent solution or would they start to recede
  7. Are you stressed or anxious? A strange bitter/metallic/artificial taste at the back of your mouth often comes with great anxiety. I get that when I'm super stressed/busy at work sometimes. Sometimes I think about a kickstarter/crowd funding for a research for accutane victims and /or a proper lawsuit. Not sure though...
  8. True. Re-stablishing your gut flora is extremaly difficult, if not impossible. I have been on probiotics (30 million) for 7 months now, eat yogurt every day, etc. I have even tried to re-colonise the gut with a 3 week course of vsl3 probiotics which contains 450 billion bacteria! Sadly, I didn't feel ANY different. As for liver pain, I started reading about glucosamine and hepatotoxicity. I have a constant, dull liver pain at the moment. I've been taking glucosamine supplement (1000mg) for 6
  9. Has anyone on this forum been, or knows someone, diagnosed with autoimmune hepatitis/liver inflammation? I looked for 5 minutes and found at least 2 people on other forums being diagnosed. This explains a lot of our liver problems and other side effects like muscle fatigue, lack of energy, jaundice, etc. I don't think accutane stays in the body. This drug goes through it, kills off gut flora (like some antibiotics) and causes lots of autoimmune disorders. Crohn's, Ulcerative colitis, rheumatoid
  10. Is anyone experiencing liver/gallbladder pain? Hi guys, sorry to butt in. I've been off accutane for about 9 months now and only took it for 6 weeks. I've had lots of problem come and go, usually on a rotation, stomach problems and muscle ache persist. Recently I started getting a liver ache. Started in a gallbladder area and now it is all over my liver, turning around my rib cage to the back, back hurts as well. I've had liver function test done a few month ago, all normal, and now waiting f
  11. For those with seborrheic dermatitis, as well as the myriad of other problems, try sea salt. It really helps with the flaky, dry skin.
  12. Biology in general is so complex. By comparison, Physics and the mathematics that physicists use, is much more precise compared to the intricacies of biology. If there was to be a breakthrough, it would be by a team of molecular biologists and other scientists all closely working together with doctors and patients gathering data, which would number in the thousands and funding would be in the millions. If it is indeed gene transcription, and somehow we were able to get the research to find the p
  13. He was a chairman of the Accutane/Roaccutane Action Group, but the last update from them is from 2011, so I'm not sure whether it's still going...
  14. For those in the UK, have you heard of Dr. Chow? He was part of the Accutane Regulatory Hearings back in 2000 and has treated many affected by accutane in the U.K. Do you know if he's still treating patients?