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tanedout last won the day on December 14 2017

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  1. It's a drug that has multiple uses, one being for Cushings Disease which I've seen some have been diagnosed with post accutane, and mifepristone is prescribed to lower cortisol. It's only an anti-abortion drug if used in a very high singular dose. Interestingly one of the guys on HackStasis completely cured his CFS when he took it. Check out this study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4969503/
  2. We're all trying to find a solution to these issues (I've been trying for almost 8 years since taking accutane - this thread wouldn't be 15,000 posts long if we had a solution). Check out the links to the forums I posted above.
  3. Ditto! I'm pretty much done with this thread too, 15,000 posts and sadly very little achieved. I think the fact it's a single thread makes it extremely difficult to have consistent and meaningful discussions, especially with all the recent trolling. I would suggest anyone suffering with accutane sides to check these forums instead, where it's organised; http://www.swolesource.com/forum/post-finasteride-syndrome/ https://hackstasis.com/forums/pfs-pssd-accutane.2/
  4. Anyone ever had hormone levels tested via saliva? Ideally serum and saliva as a comparison? I didn't realise that apparently when tested via saliva this measures the amount of the hormone actually delivered via the receptors, so with issues seemingly involving up/down regulated receptors (so things look fine on the bloods, but the body evidently can't use the hormones correctly), this could be significant if it shows up abnormalities; http://www.hormonetests.net/pub/SalivaVsSerum.p
  5. Yep exactly what it was like for me, 10mg/day for 30 days. Dry lips was the only issue while I was on it. I was kidding myself with stuff like 'permanent side effects are rare' too.
  6. This is the whole point you clown, it's totally underreported as CURRENTLY the persistent side effects cannot easily be tested for, so patients are dismissed/doctors left scratching heads why post-accutane users don't respond to the usual treatments for their issues (ED etc) because they no longer respond/react normally to certain hormones. You think everyone is on here for fun, or because they've got a grudge on Roche?! People's lived are ruined by the side effects from these drugs. Who f
  7. Im still suffering from the the sides 7.5 years after 10mg/day for 30 days, but people have crashed after a single pill. Same with pfs. You're very naive if you think you're fine 'under the care' of a dermatologist, we all thought that. Derms aren't magicians, they're just paid to prescribe the stuff which is (currently, but on borrowed time) legal and reassure you that it'll all be fine. If the side effects were your fingers falling off then it would be easy to see if there were issues, but
  8. Can you link the information you found about this said “Baylor” study? http://www.pfsfoundation.org/news/clinical-study-of-post-finasteride-syndrome-launched-at-baylor-college-of-medicine/ The results of the study are not out yet, but due soon according to discussions on forums. Search the forums on propeciahelp, solvepfs, swolesource etc if you want more info
  9. I agree, I think fortunately it won't be too much longer. It's likely to start with Propecia etc as those guys are much more organised and better funded with the Melcangi and Harvard studies already done (some of the guys suffering with PFS have personally donated 10's of thousands), and the Baylor study results due soon (apparently this is also going to state the side effects are believed irreversible), then presumably they'll check for the same markers for people suffering from related condit
  10. For starters 10% is probably under-reported as obviously this is a taboo subject for many people. But how many of these people are suffering from ED as a result of drugs like accutane, propecia, SSRI's etc? Probably a significant percentage I would imagine as a lot of people are still taking these drugs, and they are known to cause ED. Bowel cancer is one of the few things people have been able to successfully sue Roche for regards accutane. Bowel conditions are already on the list of sides in
  11. I'm not 'telling' him to join the club - I hope for his sake he doesn't - the point is you don't get the option. You are at risk of involuntary 'membership' by simply having taken the drug, in any dosage, and the side effects can manifest over time, you are not 'in the clear' if you come off and feel fine after a few weeks. It's not just accutane, it's all other drugs in the same class, finasteride, deca, certain SSRI's etc. These are extremely dangerous drugs and once these dangers are fully
  12. @fingasz you really are clueless! Won't waste anymore time replying to you as you're totally ignorant to the situation people are in here and the dangers of this drug, but maybe you'll get to 'join the club' one day then you can see what it's all about. @mariovitali Assuming a fibroscan shows evidence of NASH is there a recommended supplement regime? I understand you had success with TUDCA and choline (amongst other sups), but have people who have had these scans been able to improve their si
  13. Really, and quote your source for these stats?!.... It's simply what you want to believe.
  14. The persistent side effects start when you stop taking the drug, not while you were on it. I took 10mg/day for 30 days, crashed after stopping the drug and now I'm still screwed 7.5 years later. If you're unlucky enough to get hit with the life-wreaking sides after you stop then see if you still think it's fine to prescribe.
  15. He's dug out some interesting studies, especially with regards to amino acids, and he's definitely made suggestions that help. I take betaine HCI with meals now and this results in a noticeable improvement in mental clarity. One of the PFS guys has seen a decent improvement to libido with l-cysteiine and l-histidine. What works for one doesn't work for the other though, you need to try things personally and notice how you get on, read up on studies and follow discussions on boards like that -