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  1. Hello everyone! I've decided to start tracking my progress with spironolactone. I've been on it for around two months now and it's already worked wonders for me. I've struggled with very severe cystic acne for a long time now and spironolactone is the only thing that's given me obvious results. Other things have helped improve my situation, or relieve pain, but spironolactone has changed my life. I know two months is a small period of time to take spironolactone and can be hard to judge whether or not it's working yet, but I know for a fact it is working for me. I still get mild cysts that last for a few days, but I've only had four so far since starting. Compare that to my usual 10+ active cysts from before, this is a miracle! Even better, I've been told that the longer you're on it, the better it gets! So hopefully spiro gets me completely clear within the next 3-4 months. I just wanted to maybe post progress photos for you guys. I hope my skin will continue to get better, but don't be surprised if there's still ups and downs. Spiro is something you definitely have to give time to work and at this point I'm willing to wait another few months for it to work fully. I really wish I took before photos, but I was so disgusted by my skin when I first started it that I never thought I'd have an after photo to compare it to, because I never thought it would get better. But I'm taking photos now. My skin definitely isn't perfect, and still has a lot of healing to do but hopefully my dermatologist gives me something for the old red spots. I go in tomorrow and I'll definitely post if I'm given anything else. Here's my skin as of today. I'm thinking I'll post once every week, so I'll see how much my skin changes by next Sunday. By the way, most of these red spots on my face are from old cysts, but some are from a mild breakout I had after my period earlier this week. (Btw I covered my eyes lol)
  2. 4 weeks (left side)

    From the album Spironolactone

    1/17/18
  3. 4 weeks (right side)

    From the album Spironolactone

    1/17/18
  4. 3 weeks (left side)

    From the album Spironolactone

    1/11/18 No new cysts on left side since starting.
  5. 3 weeks (right side)

    From the album Spironolactone

    1/11/18 Couple new cysts on right side.
  6. Spironolactone Personal Log

    I've been a fly on the acne.org wall for a while now, and have decided to make my presence known and *hopefully* catalog a story of progress on Spironolactone that can eventually give hope to others. I'll also take any words of encouragement, if you got 'em. The going is rough right now. My story: 28 year-old female. Typical hormonal cystic acne, I suppose I fall at "moderate." History: For about a decade I was on mainstream birth control that, without my knowing it, was controlling all acne. I then developed a sensitivity to high-hormone birth control pills; they started to cause constant nausea and eventually vomiting and I had to switch to a low-dose hormone. A few months into that and huge cysts started appearing on my face (about the age of 26). Apparently, the low dose birth control pills are not enough to control the acne. For 1.5 years, I took doxycycline and it worked! It really worked. And then, almost one day, it stopped working. I tried to find a cure on my own for a couple months before breaking down and going to the dermatologist. Currently: I started taking Spironolactone about 6 weeks ago. I started at 50 mg a day for one month, and two weeks ago we upped it to 100 mg a day. During the first month I had some promising results. Cysts stopped appearing, and eventually those that I did have faded, but some smaller problems were still sticking around. But then, about ten days ago. . . I just don't know what happened. I have had an eruption across the entire lower half of my face, and cysts are beginning to return. I am so discouraged because I was just starting to breath a sigh of relief, and now it seems like my acne is worse than ever! Like I said, I've been around these message boards for a while, and I know that my experience is not unique. Others have spoken of break-outs several weeks into the treatment, and then eventual "magic" at about 3 to 6 months. I'm hanging in there. But, (and I know I don't need to tell you guys this) this really sucks.
  7. 2 weeks (right side)

    From the album Spironolactone

    1/3/18
  8. 2 weeks (left side)

    From the album Spironolactone

    1/3/18
  9. 1.5 weeks (right side)

    From the album Spironolactone

    12/31/17 Happy NYE!
  10. 1.5 weeks (left side)

    From the album Spironolactone

    12/31/17 Happy NYE!
  11. 0 -> 1 week (left side)

    From the album Spironolactone

    12/19/17 -> 12/27/17
  12. 0 -> 1 week (right side)

    From the album Spironolactone

    12/19/17 -> 12/27/17
  13. Hi all. So here I am, still fighting my acne.... I recently got a second referral to a dermatologist in the space of three years having had all hell break loose on my face with cystic acne after making the silly decision to come off my Dianette pill (which I'm now back on again but my acne has only continued to get worse so far). Last time I went to the dermatologist three years ago they refused to prescribe me isotretinoin even though my skin clearly needed it because of my history of mental health problems including depression. I'm scared that they're going to say the same thing again this time around and the irony is that last time their refusal to prescribe me anything to help with my awful skin sent me completely suicidal so I decided I need to go in with a back-up plan this time. The Dianette cleared me up really well in the end, but only after like two years, and I can't cope with my skin being this bad for that long again, it's completely ruining my life (as in I'm not even leaving the house again and my career is in tatters...) So I've been looking into Spironolactone and seen that it has really good reviews with a lot of women with my kind of profile on here (ie. women in their 20s with hormonal cystic acne). I've also found some clinical trials (both from the US and one from an NHS Trust in Lancashire) that again show really positive results and I plan to take to the appointment with me. The issue is that although I know it's quite regularly prescribed in the US I've yet to find anyone who's managed to get it prescribed to them by the NHS in the UK outside of this one trial. I know that as it's off-label it would have to be prescribed by a consultant dermatologist, but I was just wondering if anyone has had any success in getting an NHS dermatologist to prescribe them Spironolactone? I'm really keen to try it, especially as a ) my acne is clearly hormonal and b ) they seem so reluctant to let me take isotretinoin. Anybody able to give me some hope that this could be achieved? I have until 20th January to formulate a game plan! Thanks in advance.
  14. Hi, I am new to this thread. I started taking Spironolactone for hormonal acne about a month ago. I took it for about ten days but then I felt so winded and weak and started bleeding (like a period- sorry if TMI). So I stopped taking the medication. Well ever since then, I have had spotting/bleeding for about 8-10 days and then it stops for a week and then comes back. I believe my hormones were thrown out of wack. How long until they level out? Anyone have experiences with this? Any feedback is appreciated. I have derm apt but its not for a few days and I’ve never been irregular so it’s making me a little anxious
  15. Spiro - stopped working.

    Hi. I am at my wits end with this. I have been on Spironolactone 100mg for almost 5 years. Along with Beyaz, for a little over 8. I had large cystic acne, within a few days of starting Spiro, it just flattened all my acne, and it just stopped. It was a miracle. My hair wasn't oily anymore, my life completely changed. Now, I am 25 years old - and within the past several months all of my acne is coming back, this time on top of cysts + medium & under the skin pimples. They will not stop, around my hairline, forehead, a little on my cheeks and the big area is my freaking chin. My skin is mildly greasy, extremely inflamed (my laugh lines are deep and red) and new zits pop up literally every couple hours. My hair is so greasy, clean hair lasts about 6 hours. I eat very well - I don't do dairy, I don't like meat, I stay away from grain. Although I absolutely know no matter how PERFECT I ate, my skin would not change - this is hormonal, 100%. I've researched it all - foods allergies, foods to stay away from, foods to take, studied hormones, supplements, natural topical treatments. I've tried just washing my face with water. I've tried Doxycycline, I've tried different diets. I CAN NOT TAKE IT ANYMORE. I do not leave my apartment, I work from home. It is painful, and maddening and I have already went through all of this once, I can't believe I have to go through it again. Why would Spironolactone stop working - yes resistance possibly. And if it has, will stopping the Spiro HELP or HURT? I know there are at least a MILLION variables that could be the case but I haven't drastically changed anything for this to happen. Is the most obvious to me the actual problem, that my body has changed - and BC & Spiro are now working against me. PLEASE. Has this happened to someone else, your Spironolactone has quit on you after being on it for multiple years - and if yes, HOW did you fix it again. - Sara
  16. Hi guys! I just went to my 3 month Dermatologist appointment last week. This was my first time there since I got prescribed my medications. She ended up telling me we probably didn't need to reschedule and I am guessing that is because she really thinks I am on a good treatment plan. No, I still am not clear. I have seen definite progress and reduction in acne, but I still get pimples pretty often. I still have small pimples on my forehead, a couple nasty ones on my right cheek, and some random ones in other places. It is much improved, but I still would say I have acne and not a few pimples. When I went to my appointment, she said we could up the dose if my blood pressure was at a healthy number. I was textbook perfect for my blood pressure three months in. I upped my dose to 150 MG from 100. I am confident this will knock out my acne completely by Month 6... I hope sooner! She gave me the option of adding a new topical or an antibiotic to speed up the process. I am proud of myself for saying NO. One month ago I would have for sure taken her up on that. I am trying to learn patience and I think I can wait this out. One month ago, I would say my acne was significantly worse. I am so so happy I hit the 3 month mark. This is when the work should really start kicking in. I have been saying lots of positive affirmations and learning a lot about myself dealing with acne again. I have finally tried to see a positive side to this. I now know that my boyfriend still loves me with bad acne, I am still beautiful and strong, and I know that quitting my birth control was a big reason for my acne returning. Speaking of birth control, I love my Orthto Tri Cyclen. I feel so happy and stable compared to the Nuvaring. I am in the middle of my second pack of the pills, and I have had a pretty small initial breakout. My emotional stability was worth the switch. I can't wait to see how this combo continues to work in the next 2-3 months. I can do this!
  17. Hi there! I am a 21 year old with previously thick hair trying to figure out what's going on. No females in my family have ever pre maturely lost their hair. Ive had acne all my life, so my derm prescribed me Spironolactone 50mg and generic yaz which seemed to be helping my acne. About 8 months after starting spiro, I noticed my hair thinning and the texture changed completely. I had always had a lot of hair, so when it came out in the shower or on my brush I was never concerned. And I never had clumps come out or anything. After getting many blood tests done, my endocrinologist told me my testosterone levels were high and that was the sole cause of hair loss. He basically said there was nothing he could do but increase the spiro dosage to 200mg. So I've been on 200 mg, yaz, saw palmetto, fish oil, and biotin for the past 6 months, but my hair loss is getting worse. Im wondering if anyone might have any thoughts on whether the spiro and yaz together couldve caused the hair loss initially? My moms testosterone levels are high like mine, and her hair is incredibly thick. My endocrinologist just says that my initial dose of spiro 50mg was helping to slow the inevitable hair loss that was in my future. And I'm frustrated that increasing the dosage has only made it worse after 6 months. Again, no clumps falling out, just a very wide part and the back of my scalp showing through my hair!! Anyones thoughts or experiences would help. It's been a hard year. Thanks!
  18. Day 1 on Spironolactone

    Day 1 of taking 100mg a day. Not taking it with birth control. A handful of cysts but A TON (hundreds) of clogged pores that don’t show up too great in the photos. Oily beyond belief all over face.
  19. Post #4: 2 months

    So today marks two months on Spiro. I recently went on Minocycline 100mg to combat the persistant breakouts I've been having since week 4, and my dermatologist prescribed me Tazorac and Aczone, which are really helping (much more than the Retin-A, which I think was just too rough for my sensitive skin). I'm feeling hopeful now that I'm taking minocycline and have been good about taking all the medications at the same time every day. I feel less self conscious about my active breakouts and the overall texture of my skin has definitely improved. My whole family tells me my complexion is worlds better but I still haven't seen enough improvement to be satisfied - but I'll hang in there. Hopefully by 3 1/2-4 months I can reassess and see some changes.
  20. Hi guys. I have officially completed 2 months of 100 MG of Spiro. I am still looking just as bad. I notice a lot of ups and downs. One week I swear it looks much better and the next week I have a bunch of new pimples. I am sick of feeling the acne on my face and not wanting to look in the mirror. I am sick of plastering my skin with drying gel. It is exhausting. I also have started to take Anti Depressants. My mental state keeps worsening as my acne doesn't improve. I have tons of small pimples on my forehead, despite my Clindamycin use. It helps, but not enough. I have like 3 or 4 big pimples on both sides of my cheeks. -I had to switch from the Nuva Ring to Ortho Tri Cyclen. It is generic but it says right on it that it also treats moderate acne. I have taken this in the past when I was on Accutane and it kept me clear for awhile I feel like. I am hopeful this combination will be good. I really liked the Nuvaring, but the combo with Spiro was making me extremely emotional and I had a severe panic attack that I believe was from the Nuvaring. I used it in the past and it worked super good but now that I have acne again, the second time around hasn't been so great. I know it isn't supposed to help acne, so I think it am making the right move going back to my original Ortho Tri Cyclen. I haven't felt any emotional affects like I did on the NuvaRing. I really hope this isn't going to cause an initial breakout switching, because it already looks bad. I felt cloudy in the head until I switched to Ortho Tri Cyclen. It wasn't fun. I have been on the pill for 5 days now. It caused me to get my period a full week early, and that might be why my skin looks especially bad today. -I am hopeful this medication will work. I just keep missing out on social events because I am so insecure. I just want this to be done with. I am so frustrated. My appointment with my dermatologist is near the end of October. I remember her saying I might not be clear by then. It will be the 3 month check up. I haven't been there since I got prescribed it. It is frustrating seeing people say it cleared them up in 1 month because I have had my initial breakout well over 2 months. I saw a few Youtube success stories, from girls with worse acne than me, getting clear at 6 months. It is so hard to wait that long. I don't have severe acne, it is more moderate. I feel like mine should clear up faster than that. Will someone comment and tell me how long it took them? I was hoping I would be back with a positive update. I am still going to keep moving forward and give it the full 6 months before I think about quitting. I hope I will get my dose raised at the appointment, or it will be clear by then? My birthday is November 29th and I will be devastated to not have clear skin by then...It is possible but also could very well not happen. Please comment! Support is always welcome!
  21. Hi gang! My background: Lurker for close to 10 years, almost as long as I have had acne. I am a mid-20s college student raising a sibling. In other words, I have no time. I want to look presentable, though. This is why clearing my skin naturally is so important to me. I also don't wear makeup.. so it's magnifies the issue. I'm a hard INTJ, if you dig MBTI. That means I'm typically anxious and tense, which I'm sure is a big part of my acne. BCP (Yasmin) cleared my skin in my teens. Went off of it because of some of the possible side effects, then went on Spiro, which worked perfectly. However, I want to heal my body. I don't want to be on medication forever. Both my parents have adult acne, so I could be looking at hard cysts on my face with other inflamed red rolling hills until I hit menopause. I was going to do Accutane, but stopped when I realized I would have to go back on Yasmin (i.e. my skin would be perfect on yasmin so I doubt the accutane would cure me.) I am using the Neutrogena light therapy mask right now. It is helping but I doubt it will help as much as I need. I eat a diet of chicken, vegetables, and glucomannan/oat fiber (non-soluble fibers that fill you up and pass right through.) I have always had chronic constipation, so I take Miralax. When I don't take it, the inflammation gets worse. I have noticed that if I eat a ton of vegetables, my skin can get inflamed. This worries me. When I don't eat, or eat tiny portions to keep myself from starving, acne is reduced. But how can I sustain that? It doesn't seem possible. I know tanning and sweating/working out have helped in the past, but on this diet I have no energy to work out. I am scared of how hungry it would make me. No, not anorexic. I'm 5'6 and ~140. If you have read this far, my heartfelt thanks. I am so grateful for this community. Acne is such a difficult disease to deal with in the modern world-the shame, I mean. MY QUESTION: Is there anything else I can do for my acne naturally? Should I just suck it up and go back on Spiro?
  22. Hello everyone, I have a question that I have searched the internet for and have not really found a solid answer. Perhaps there isn't one, but I would love any advice I can get. I have been on Diane 35 and 100 mg of Spironolactone for over a year now to control my acne and other PCOS symptoms. My skin has cleared completely. I am in LOVE with my new skin and I am not willing to give it up. Here is my question, I think the Diane 35 is making me very moody, and no one in my house is happy with this. I would really like to stop the Diane 35 and stay on the Spiro. My question is: Will the Spiro alone be able to maintain my clear skin? Is it likely that any of my acne may come back after stopping the Diane? Or will the spiro keep it away? Any thoughts or experiences please! Thank you!!
  23. HI everyone! I started 50 mg of Spiro in April of 2016. My skin seemed to have an initial breakout for only a week or so but I can't completely remember since it was almost two years ago. By Augist of 2016 though my skin was clear and that lasted until June of 2017. I am increasing my spiro dosage today to 50mg twice a day. And I am just wondering how anyone's skin in similar situations reacted? How long was your IB? Currently, my skin is definitely tolerable. I have one pimple every day. Sometime's I'll have a couple and sometimes I will have none but I want to get back to having consistently clear skin. I say this because there isn't much of a purge that should be happening underneath the skin because I have already been on spiro long term. Any comments or recommendations are greatly appreciated! comment edit share save hide delete nsfw spoiler
  24. Hi Everyone, I am on 100mg per day and my periods are coming every 22-24 days. I used to be regular and have a period every 27 days like clockwork, but I had horrible cystic acne, so I was put on spironolactone, and after several of months increasing the dose I finally cleared up, but then I suddenly began having irregular periods. The shortest cycle was 18 days. I have the paraguard, so I prefer not to take a BC pill if I don't have to. My libido and weight are perfect right now and I don't want to screw that up by taking progesterone and estrogen. However, I was recently prescribed Aygestin (norethindrone) 5mg 2x per day to take the week before my period should start for 5 days, and this worked for me. My period came 3 days after stopping the Aygestin. I was wondering if anyone else has tried this regimen? Did it work for you and did you have any adverse side effects? Were your periods lighter or heavier? Thanks!
  25. IM DESPERATE FOR ANSWERS HELP!! i took sprio 2 years ago GAINED 15 pounds ( that went straight to my thighs) in a month and broke out in hives!! Now today they weight ive gained still wont budge in my thighs and i still work out 5 days a week and eat pretty healthy!!! I dont know how to get the weight off!! Im thinking that sprio messed up my hormone levels now i cant lose weight!! so about 2 years ago i started taking spironolactone for my acne. I was 16 at the time and had very bad acne. Not cystic acne but lots and lots of bumps and pimples all over my face. Since middle school ive had pimples here and there. Ive never had a clear face. But starting high school freshman year it starting getting bad and then sophomore year my face was pretty clear?? then junior year was the down fall. My face was so gross just never ending bumps and yes i caked my face with makeup because im very self conscious about my acne. i was getting sick and tired of constantly waking up hours before i had to go to school just to do my makeup. plus i was a cheerleader so i had get ready for comps and my face would make me so upset. So after many many tears, it was time to go to a dermatologist to get a another opinion other from my normal doctor. ive tried almost all topical gels and what not and nothing worked for me. So went to the dermatologist and they prescribed me spiro i think just 50 mg. So i started taking it and started to see good results. My face was clearing up. But since i had to where a two piece uniform all of sudden i was like whoa..... i saw pictures of my self and i looked huge. Like puffy. ( forgot to mention i was always pretty thin and ate pretty healthy, and worked out about 5 days a week). So i weighed myself and im sure i went from like 130 and toned to like 145 and puffy and bloated looking. i mean i didnt really mind because was my face clear. BUT THEN I BROKE OUT IN LITTLE HIVES. like sometimes it would be on my shins or then my arms. then like giant scratch hives on my back. they would pop up then go away. and when that started happening. I WAS DONE WITH TAKING IT. & ps. i hate putting things in my body & not knowing what it does. so that freaked me out. then i had the worst probably break out i ever had . and i actually had a couple cystic pimples. it was so painful and frustrating!! after that point in time my face slowly started getting better but not clear. so months later that weight i had gained came off a little but still the weight in my thighs wont budge. 2 YEARS LATER and still i work out 5 days a week and i still cheer and my thighs WONT slim down. and i still weigh around 135-140. But my face is way clearer than it was. i think that since im 18 i passed through my worst hormonal stages?? i think i figured out my acne is hormonal. i do still get the occasional breakout. I WANT TO KNOW WHY MY BODY WONT LET THE WEIGHT LEAVE ME!!! ive read hundreds of comments about weight gain and spiro!! YES IT DOES MAKE YOU GAIN WEIGHT!! I want to know did the sprio make my estrogen level raise?? do i need to increase testosterone?? something about estrogen dominance?? aldosterone receptors?? what could of possibly be damage from taking sprjo for 1-1/2 months!!! did i have an allergic reaction from it because of the hives i got?? and how long does it take for it to get out of your system!! I NEED ANSWERSSS my doctor did not have a clear one.