Jump to content
Acne.org
Search In
Find results that contain...
Find results in...
JeffreyB

Accutane Aftermath!!!

Recommended Posts

I believe people should be properly warned about the dangers of this drug. I think that many poeple on this forum believe that these awful side effects will not happen to them. I do not blame them because most of them are pretty young and acne is causing them severe distress at 'this' moment. However, wait until they see the effects of this drug down the road.

Thus, I wanted to reiterate a bit of my story. I was prescribed Accutane (40 mg a day X 5 months) for mild acne. At this point, I was one of the top five highest paid male models in the world and traveling extensively. I would always have one or two pimples on my face, which really bothered me. My derm 'told' me that Accutane was the cure all for acne and that with my very mild acne I would have a 99% chance of having the perfect skin I had always wanted. It sounded too good to be true and now I know it was.

During my treatment my skin cleared beautifully within the first month. I was told to remain on the drug for the next four months to 'ensure' that the acne would not ever come back. Thus, I followed my dermatologists orders believing he knew best. What I was not told was that the mild side effects I was experiencing during my course could persist after the course or even get worse, which is exactly what happened.

About a month after my five month course the side effects that I considered 'worth it' while on the Accutane started to get even worse. I had the awful side effects of severe lower back pain, dry lips, dry eyes, fatigue and extremely dry skin. My skin is now covered daily with eczema, which I never had before Accutane. I cannot even put my face in the water during a shower because it is so sensitive and fragile. I continue to have a 'red' face and now have welts and cracked skin due to the dryness. Thus, it sucked all of the 'good' oil right out of my skin. On top of this, my skin has remained itchy to the point where it is difficult to even sleep at night. This has been 24/7 for the last two years since Accutane.

Some of you might say that I did this to myself, but I too trusted my dermatologists when he said that these side effects would disappear once I was off Accutane. It is now two years post my Accutane treatment. I have seen numerous doctors, dermatologists, homeopathic specialists, etc. and no one can help me. Need less to say, but this ended up killing my career in modeling. My agency said that the clients I had contracts with feel sorry for me, but nevertheless the business has to roll on.

Lastly, before Accutane I had 'zero' medical problems 'ever'. I may be one of the unfortunate 1% that Accutane harms, but what if it's you next. Of course I never thought this could happen to me. How could someone be on top of the world, making tons of money, have a wonderful job traveling the globe, have great friends and family and have something as devastating as this happen to them?

Please know that this happens much more often then people on this particular site would like to admit. I encourage everyone to yahoo or google Accutane Action Group Forum and spend a couple of hours reading thousands of other stories like mine. I wish everyone the best. I did not post this to scare people, but rather to let it be known that this poison can destroy lives. I am 29 years old now and leading a completely different and painful life.

God bless!!!

JB

Share this post


Link to post
Share on other sites

I'm sorry you're going through this. But in my humble opinion, I think for a few mild pimples your dr. gave you too many mgs for too long. If i'm not mistaken, I think 20 is the lowest.

I also think if anyone's going to go through Accutane, it's best to go to a dr. that has given this to many ppl. Your dr. didnt sound as if he's experienced enough. This is why i'm a little hesitant on going on Accutane. I found a good dr. but he moved too far. :(

I hope you can find a cure for your side affects.

Google eczema. There should be treatments for that.

Share this post


Link to post
Share on other sites
I may be one of the unfortunate 1% that Accutane harms, but what if it's you next.

The same goes for any other drug, car accidents, random homicide .. endless list.

-----

And if you took tane because of 1 or 2 pimples then you and your derm are idiots.

Share this post


Link to post
Share on other sites

Well, it's not his fault that he believed a medical dr.

Jeff, did you get cystic acne before? Because that's the type of acne Accutane is for.

Share this post


Link to post
Share on other sites

I have to say that I do not appreciate it when people on this forum or other medical doctors blame the 'victim'. I went to supposedly one of the top dermatologists in the United States. You're right, I did not have cystic acne. However, I was told that this was the drug to 'cure' my mild acne forever. He told me that he had prescribed this drug hundreds of times in his career and never had any problems, which I found out later was not true. I was also told that this was the drug to cure all types of acne (mild, moderate, cystic, etc.)

Thus, I want to let it be know that this drug can cause severe side effects after a complete course. I had impeccable skin while on my five month course and put up with the mild side effects. It was only after my course where everything got perpetually worse and worse. This follows the same idea where certain people on Accutane do not see improvement or 'clear' until after they have finishes their course.

To say I am an idiot for trusting a well-known, educated doctor I believe is unfair. I was directly told that the mild side effects I was experiencing while on the drug would completely go away when I finished my course. Thus, instead they got worse. This has happened to many more people then myself.

Lastly, I am thinking about going public with my story. I think a face needs to be put behind the horrors that this drug can cause. Especially when the world sees the before and after. To all those that Accutane has worked for, I am incredibly happy. However, my story has the right to be heard as well.

JB

Share this post


Link to post
Share on other sites

thank you for sharing your story Jeffrey B.

and you are right, both sides of the issue deserve to be heard.

Good luck to you!

Share this post


Link to post
Share on other sites
I have to say that I do not appreciate it when people on this forum or other medical doctors blame the 'victim'.

I don't appreciate when people who took Accutane call themselves a victim, like someone held a gun to their head and made them take the pills.

What you are is a gambler. And you lost despite very good odds that you would win. Unfortunately, somebody has to lose. Sorry that had to be you.

Share this post


Link to post
Share on other sites

Feel really bad for you, I fucking hope it doesn't work out like that for me.

I don't know what to say :( Its all fucked up.

I may be one of the unfortunate 1% that Accutane harms, but what if it's you next.

The same goes for any other drug, car accidents, random homicide .. endless list.

-----

And if you took tane because of 1 or 2 pimples then you and your derm are idiots.

Share this post


Link to post
Share on other sites

im on 40mg a day for 4 mounth and i have cyctic acne on my necback and face.....

to high a dose for a couple of zits....

Share this post


Link to post
Share on other sites

I have to say that I do not appreciate it when people on this forum or other medical doctors blame the 'victim'. I went to supposedly one of the top dermatologists in the United States. You're right, I did not have cystic acne. However, I was told that this was the drug to 'cure' my mild acne forever. He told me that he had prescribed this drug hundreds of times in his career and never had any problems, which I found out later was not true. I was also told that this was the drug to cure all types of acne (mild, moderate, cystic, etc.)

Thus, I want to let it be know that this drug can cause severe side effects after a complete course. I had impeccable skin while on my five month course and put up with the mild side effects. It was only after my course where everything got perpetually worse and worse. This follows the same idea where certain people on Accutane do not see improvement or 'clear' until after they have finishes their course.

To say I am an idiot for trusting a well-known, educated doctor I believe is unfair. I was directly told that the mild side effects I was experiencing while on the drug would completely go away when I finished my course. Thus, instead they got worse. This has happened to many more people then myself.

Lastly, I am thinking about going public with my story. I think a face needs to be put behind the horrors that this drug can cause. Especially when the world sees the before and after. To all those that Accutane has worked for, I am incredibly happy. However, my story has the right to be heard as well.

JB

Your dr. was very wrong to give you that much mgs....heck even to give you something you didn't even need! How the hell did he pass as a derm? :doh:

Mild acne and that much mgs. Maybe you can take action against him. Just something here doesn't sound right. Doctors like him are the reason why this drug has SO much bad hype. :wall:

And make it uneasy for those who need it, take them.

Don't give up on your condition, hopefully you can find someone that can help you. Good luck.

Share this post


Link to post
Share on other sites

I have to say that I do not appreciate it when people on this forum or other medical doctors blame the 'victim'.

I don't appreciate when people who took Accutane call themselves a victim, like someone held a gun to their head and made them take the pills.

What you are is a gambler. And you lost despite very good odds that you would win. Unfortunately, somebody has to lose. Sorry that had to be you.

Hi Jeffrey B,

I'm very sorry about the ordeals you're going through. I know it's tough! I only hope it gets better and better for you as the days go on. I know it will! I know where you're coming from. I grew up in Miami, Fl. I just recently moved from there. I had high hopes of modeling only to never go through with it because of my skin problems. I just didn't feel like putting myself through torture just to hear the modeling agencies remark about my skin problems. I'm a softie so it would've hurt to be flat out rejected.

I don't think it's fair really for people to say things such as "you did it to yourself," "you knew what you were getting yourself into" and other things such as that to Accutane patients that have experienced terrible results. We all know how terrible it feels to suffer from acne, feeling insecure, having important relationships strained, ruined and having lack there of. Therefore, I can't criticize anyone, either a very mild acne patient to the most severe of acne patients, that take this medication in hopes of having a beautiful complexion once again. I feel very sad for those that take this med only to have negative results. Why make them feel even worse?!

Like you, I'm a very mild acne sufferer meaning I only suffer from several pimples on my face at a time. It's not cystic acne by any means, but it's there, troublesome, persistent and self esteem killing. You can tell by looking at my face that I have troublesome skin, or that I've always had it. My red marks tell its story. I've been dealing with acne for years and it just never goes away. So, my derm put me on Amnesteem, 40 mg's a day, like you except for 6 months. What led me to ultimately look towards taking this medication is when I watched my neighbor with her children. She's young like me, has two beautiful children, and she was outside with them. She watched them play, ride their bikes while waiting for her hubby to return home from work. She had no make-up on! Just her hair in a pony, perfect skin and shorts. I watched her for a minute or two feeling really sad thinking I just might be a bad mommy because I would feel so insecure going outside without make-up, or making my children wait a million years so I could look presentable just to take them outside in the front yard. Plus, not to mention looking presentable for my husband. I don't want my children's playtime to be second to my skin problems!

Yes, I've heard that Accutane should only be prescribed to the most severe cases of acne, for cystic acne patients. However, where does this leave patients such as myself, patients that suffer from only mild acne yet very persistent, and from super excessive oily skin? I've tried a lot of topicals only to have abused my skin, burning my skin, making my scars more red, my face looking so tired as if it's been through a hell of a time. I might not have cystic acne, but I do want to rid my face from acne. So, I turn to Accutane in hopes of helping to get a lot of my self-esteem back.

Therefore, God forbid, if I unfortunately experience bad and lasting negative side effects because of this drug, I don't think it's fair for people to just imply things such as, "Oh well! You did it to yourself! Suffer with it!" Yes, we take the drug, knowing what *can* possibly happen. Acne patients will try most of anything to try and gain back their beautiful skin, self esteem, feeling of normalcy again. Therefore, we look upon Accutane as our possible happy pill.

Therefore, whether we're mild acne sufferers or severe acne sufferers, acne really dampens our mode, our happiness, our self esteem, that's why we're taking meds for it and we're on acne.org... to try and find some light in this unfortunate situation. And if God forbid Accutane doesn't agree with our bodies, it's not our fault for taking it, we shouldn't tell people stuff like "It's your fault! You knew what it could do for you!" Actually, it's not our fault. It's in our genetic make up to feel pretty inside and to feel wanted by others. We're just trying to be happy with our skin, feel great about it and love it once again!

Thank you JeffreyB for sharing your experince with others. But I'm still taking Accutane! :):)

Share this post


Link to post
Share on other sites

what was wrong with his story?

Hey, JB, sorry that shit happened to ya man, so do you still suffer from side effects other than the eczema?

oh the modeling part?

Share this post


Link to post
Share on other sites

I'm sorry for your dear. If you feel the need to public, go ahead because everyone with acne needs to be aware that this drug should be their last resort, and only cystic acne sufferer should use it. Your doctor should be ashamed for giving you accutane if you only had a couple of pimples. You should sue the bastard. But i know that we all listen to our derms in the beginining of this struggle. I was given a bunch of antibiotics that did nothing and messed up my digestive system, and at the end he gave me accutane. Fortunately i cleared up and now i only get very mild acne. But dear keep in mind that the side effects may linger for a couple of year and then go away, i hope you well.

Share this post


Link to post
Share on other sites

First, I am not trying to scare anyone. I am stating the facts about what Accutane has done to my body. It has left me with horrible eczema on my face and neck. My skin is now so dry that it hurts to wash it even with cold water. I have to moisturize, but even this is now painful. My face is now beet red and my eyes are very dry. This is nothing to laugh at or make fun of.

I cannot believe the people here when I am just looking for a little help or support. To not believe me or make light of my situation I feel is awful. What if you are left with Accutane's side effects? Would you want the support and /or help of others? It's one thing to not give a shi* about me, but don't say I do not have a right to get better or that I did this to myself. Especially since I took this drug on a doctor's recommendation. I didn't even know what Accutane was at the time, nor was I given a list of potential side effects, problems or conditions that may be associated with this drug.

Lastly, I do appreciate the kind words of those of you who actually care and have expressed these sentiments. Once again, I know I am in the small minority that this happens to, but what if it was you?

Thanks!

JB

Share this post


Link to post
Share on other sites

JB, i'm sorry that it happened to you. May God bless you.

and to all the haters out there, give this man a break,sure it's easy to judge, but what if it happens to you, then who are you to judge, put yourself in the man's shoe.

Share this post


Link to post
Share on other sites

You know, I can't help but think of that old saying "if you don't have anything nice to say, don't say anything at all".

Some of you need to seriously grow up! If you can't provide some support, just stay out of the thread.

Share this post


Link to post
Share on other sites

Jeff... Ok. I'm not saying that you aren't a model.. But, I just don't know about your whole story. Something doesn't pan out. I have some contacts in the biz (I used to do makeup and hair-and as an indepedant contractor I have worked with some agencies and a couple new designers. I also worked fashion shows through Aveda. I don't like telling people that because it usually means they try to hit you up for contacts and peepshows. lol and unfortunately, I cant help anyone so I usually don't talk about that part of my job.) ANYWAY...I was just wondering what your name is? You shouldn't mind giving it because afterall..you were one of the top 5 male models.. So obviously your name is out there. And that would mean any one of us could Google you and find some of your work, no? That'd be pretty cool because then we really could see some Befores..and you could post some Afters.. and we can judge for ourselves. I just find it really interesting because there are usually only a handful of "top male models" in the world at one time or another.. because male modeling is not extremely prevalent.. so maybe I knew of you? (I follow all the trends and movement of people/face trades because it helps w/ my own part in the business. So, If you really were a top guy, I more than likely have seen your work.) What designers/companies did you work for??

I realize I sound hostile in that paragraph.. but seriously, I have my doubts about the validity of your story. I don't deny that Accutane may have caused some eczema and various problems for you.. but what did you do during your course? Did you moisturize, drink plenty of water, get enough rest, etc etc etc? I have dealt with eczema on my hands for years (not anymore) because of all the chemicals I touch daily, not to mention always having my hands in water..and if I moisturized incessantly.. it goes away. I dunno.

Regardless of all that nonsense.. I hope you feel better. I understand the feelings you are going through and you shouldn't blame yourself for this whole disaster. You were under the care of a derm, and he should have given you better instruction during your course. There are alot of things you could do to ease the side effects you mentioned. Supplements, eye drops, penetrating moisturizers, etc. With all the money you said you were making, I'm sure you could afford lush treatments and such. Well, take care of yourself now.. try to fix what you can, and learn to live with what you can't. Time heals most things.. and the body is an amazing thing that could potentially repair itself as these side effects are not life threatening to you, and they might just randomly go away (hopefully) someday.

Share this post


Link to post
Share on other sites

I am like many people on this thread, suffering from mild acne that is persistant...except I had(notice HAD) large pores and oily skin. They are now shrinking and shrinking and I was shocked...because I was told Accutane is the only drug that shrinks pores.

So I went to the holistic/diet thread...found a candida diet and I can honest-to-God say that it is working like a miracle. It is a diet that follows low-carb (as in low sugar), no alcohol, and a dairy free diet through supplements like oregano oil and garlic along with probiotics. This approach is much more natural and has very few side effects and none of the side effects like accutane. Bryan, who is a member, scoffed at me for believing in this diet...but it's working like a charm. What's best is that you do not have to follow the diet forever, but for a couple of months. I suggest people read that thread thoroughly...it costs you no money (it basically requires a not too complicated diet change), and the supplements are on average of around $20/month...and you do not need to take these supplements forever. Just google "Candida overgrowth" and find out for yourself...being open-minded is the best thing for my skin.

Share this post


Link to post
Share on other sites

JeffreyB, Im really sorry about your situation. And I am shocked that people here would blame you. I was thinking...I had the flu last yr and my doctor prescribed an antibiotic. I took it cus i was sick and wanted to get better. Sure one day when I was bored I read the side effects (which were LONG) but that still didnt stop me from taking the antibiotics. Why would it be any different for medicine for your skin? You wanted to get better and you trusted your doctor. We should not have to second-guess our doctors.

I'm really sorry accutane caused you so much trouble. This story is horrible. im not even a model and i would be really upset if i trusted my doctor, took accutane, and 2 yrs later was still suffering from skin issues.

Share this post


Link to post
Share on other sites

Somehow I think, that side effects like this pass. They are long-term, but we had examples in this forum, that people come here and claim there side effects to be 'life-long' , but they pass after 2,3 sometimes after 5 years, but they pass. Ofcourse sometimes they dont...

Share this post


Link to post
Share on other sites

He went on Accutane because he's one of the top 5 paid models....

Who cares about that part.. did you have to include that? That wasn't necessary at all.

The fact that you have problems on accutane is the point of the thread. Not that you were a model.. Not that you were one of the top 5 paid models in the world. Who gives a shit.

Oh, and if you were one of the top 5 paid male models in the WORLD, then you should not mind telling your name at all.. because it's already out there.

Come on bro. I'm George Clooney by the way. Look me up. *insert sarcasm*

Share this post


Link to post
Share on other sites

He went on Accutane because he's one of the top 5 paid models....

Who cares about that part.. did you have to include that? That wasn't necessary at all.

The fact that you have problems on accutane is the point of the thread. Not that you were a model.. Not that you were one of the top 5 paid models in the world. Who gives a shit.

Oh, and if you were one of the top 5 paid male models in the WORLD, then you should not mind telling your name at all.. because it's already out there.

Come on bro. I'm George Clooney by the way. Look me up. *insert sarcasm*

Thats too much dude. The mans got a problem. He tries to warn us of the side effects that are known to occur. So I dont think its a place for sarcasm. And the modeling part is more for an emotional side of this thread even if its not true.

In conclusion it is really discouraging to read posts like that. However I think only ~40% of all accutane success stories are being posted here because of a single reason- people dont have to come here anymore. Well I at least hope that my words are ture...

Share this post


Link to post
Share on other sites

He went on Accutane because he's one of the top 5 paid models....

Who cares about that part.. did you have to include that? That wasn't necessary at all.

The fact that you have problems on accutane is the point of the thread. Not that you were a model.. Not that you were one of the top 5 paid models in the world. Who gives a shit.

Oh, and if you were one of the top 5 paid male models in the WORLD, then you should not mind telling your name at all.. because it's already out there.

Come on bro. I'm George Clooney by the way. Look me up. *insert sarcasm*

Thats too much dude. The mans got a problem. He tries to warn us of the side effects that are known to occur. So I dont think its a place for sarcasm. And the modeling part is more for an emotional side of this thread even if its not true.

In conclusion it is really discouraging to read posts like that. However I think only ~40% of all accutane success stories is being posted here because of a single reason- people dont have to come here anymore. Well I at least hope that my words are ture...

i think the point the person was trying to point out is that, if this person is lieing about who he is (one of the "top five male models in the industry") then, the validity of the rest of his story (about accutane) is questionable.

"In conclusion it is really discouraging to read posts like that. However I think only ~40% of all accutane success stories are being posted here because of a single reason- people dont have to come here anymore. Well I at least hope that my words are ture..."

i do believe you're right on that. after my acne cleared i didn't visit here anymore, but once it came back i came right back on it.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Personalized Advice Quiz - All of Acne.org in just a few minutes

×