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can i get a new life please

If you ever had a kid put on him accutane immediately

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On 10/8/2021 at 2:45 PM, can i get a new life please said:

I have a similar complaint like yours. When i go outside for 30minute or so my scars looks absolutely worse but when im in home they look okay-ish.

It likely has to do with the damage to the layers, pores, and whatever other physiological things going on. Environments, stress, sweat, and many other things can trigger it from mild to severe. I remember my face looking dishoveled or even disfigured weirdly throughout the day or through hot weather or weird long durations.  I've experienced it for over a decade. It's not fun especially if you have commitments. I think the saddest part is most doctors literally either don't care, treat it like it's minor or a joke. That irks me constantly. I'm pretty sad about the whole thing but I've accepted it. Have to kind of live with it best we can at this point. 

 

 

 

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9 hours ago, harmlessboy1441 said:

It likely has to do with the damage to the layers, pores, and whatever other physiological things going on. Environments, stress, sweat, and many other things can trigger it from mild to severe. I remember my face looking dishoveled or even disfigured weirdly throughout the day or through hot weather or weird long durations.  I've experienced it for over a decade. It's not fun especially if you have commitments. I think the saddest part is most doctors literally either don't care, treat it like it's minor or a joke. That irks me constantly. I'm pretty sad about the whole thing but I've accepted it. Have to kind of live with it best we can at this point. 

 

 

 

its no way to live tbh. it sucks.

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5 hours ago, NagarNikku_ said:

True

 

6 hours ago, JudgmentPuzzleheaded said:

its no way to live tbh. it sucks.

 

It's not easy, especially during flare ups, because I'm personally always worried and stressed. When I wake up sometimes I wonder if I'll have a terrible/flared day or if things will be generally pleasant. It's definitely not a good way to live. Society requires commitments all the time. In the afternoons usually it's worse for some reason.

Speaking from a position of experience, I told every form of doctor for 15 years and they either have no clue or don't care. Acne scaring and the lingering effects is a very complicated thing that requires more study and understanding. There's subsets of effects they don't even have a clue about.

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A harmless teenage skin disorder can truly destroy the essence of life of some people. Unfortunate and unfair. 

No proper treatment, except isotretinoin which can essentially destroy the quality of life in some people as well, with long term side effects, and some unfortunate people get permanent long term side effect. 

Then the leftover lifelong scars, there to bother until death. 

Odds against almost all of us.

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18 hours ago, harmlessboy1441 said:

It likely has to do with the damage to the layers, pores, and whatever other physiological things going on. Environments, stress, sweat, and many other things can trigger it from mild to severe. I remember my face looking dishoveled or even disfigured weirdly throughout the day or through hot weather or weird long durations.  I've experienced it for over a decade. It's not fun especially if you have commitments. I think the saddest part is most doctors literally either don't care, treat it like it's minor or a joke. That irks me constantly. I'm pretty sad about the whole thing but I've accepted it. Have to kind of live with it best we can at this point. 

 

 

 

If it had to do with the damage to the layers, pores, etc. the whole scar forum would be suffering from the same issue, everybody with extensive scarring, but it is not the case. so it is less likely to be due to the damage. What you describe is a classic case of advanced rosacea, present over a decade as the skin begins to age and exacerbated by chronic stress, environmental factors like sun, cold weather or wind, irritation, burning sensation centrofacial - front cheeks, nose, forehead - classic rosacea. The reason why you didn't respond to rosasea treatments before could be because it takes many months and the right treatment to see imrpovement, and, what I personally think is more probable, your condition has already so advanced that it cannot be properly addressed just by lifestyle changes and topical medication. When the tiny blood vessels have already dilated, only a laser could remove them temporarily, the usual topicals (apart from metronizole) cannot achieve this. You also need to seek ways to manage the stress because chronic stress will worsen your skin, treatment or no treatment. Also, I don't know who prescribed you a steroid-based topical but it in itself can cause irritation and steroid-induced rosacea, you need to tell your doctor you used the cream at all costs. I hope you find a good derm who will help you. I would look for one with yeras of experience and good reviews from actual people because unfortunately many derms are not good at what tehy are doing. 

 

 

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2 hours ago, NagarNikku_ said:

A harmless teenage skin disorder can truly destroy the essence of life of some people. Unfortunate and unfair. 

No proper treatment, except isotretinoin which can essentially destroy the quality of life in some people as well, with long term side effects, and some unfortunate people get permanent long term side effect. 

Then the leftover lifelong scars, there to bother until death. 

Odds against almost all of us.

Yeah. I'm still on low dose accutane to stop getting active acne even in my mid twenties. i tried coming off and cysts come back. accutane also dries out/thins your skin and makes you look older and scarring worse. plus it even reduced my hair quality a bit. literally every direction i could go in sucks. it's so not fun to walk outside and have worse skin than people in their 60s and 70s. I look about 5-10 years older than my age also due to accutane skin drying + hair thinning + collagen destruction from scars.

 

Literally if I only had 1 genetic difference (not being prone to cystic acne), my life would have been so different and amazing. I remember when I was 13ish i started getting acne way worse than all my class mates in school and my confidence went to poop. now, more than 10 years later, my skin quality is still shit, and i am permanently psychologically and literally scarred from this disease. 

3 hours ago, harmlessboy1441 said:

 

 

It's not easy, especially during flare ups, because I'm personally always worried and stressed. When I wake up sometimes I wonder if I'll have a terrible/flared day or if things will be generally pleasant. It's definitely not a good way to live. Society requires commitments all the time. In the afternoons usually it's worse for some reason.

Speaking from a position of experience, I told every form of doctor for 15 years and they either have no clue or don't care. Acne scaring and the lingering effects is a very complicated thing that requires more study and understanding. There's subsets of effects they don't even have a clue about.

Yeah I also noticed my scars look a lot worse if i ever drink, or eat poorly for a day, or get bad sleep, or ANYTHING. so i have to live like a monk. great way to live, totally joyless. 

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4 hours ago, harmlessboy1441 said:

 

 

It's not easy, especially during flare ups, because I'm personally always worried and stressed. When I wake up sometimes I wonder if I'll have a terrible/flared day or if things will be generally pleasant. It's definitely not a good way to live. Society requires commitments all the time. In the afternoons usually it's worse for some reason.

Speaking from a position of experience, I told every form of doctor for 15 years and they either have no clue or don't care. Acne scaring and the lingering effects is a very complicated thing that requires more study and understanding. There's subsets of effects they don't even have a clue about.

I put tret on my skin rn and gave another look on my scars. I didnt know they were this bad these scars always dissapointing me just give me a break and let me live my life, fuck this shit man.

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2 hours ago, Scarredfacee said:

If it had to do with the damage to the layers, pores, etc. the whole scar forum would be suffering from the same issue, everybody with extensive scarring, but it is not the case. so it is less likely to be due to the damage. What you describe is a classic case of advanced rosacea, present over a decade as the skin begins to age and exacerbated by chronic stress, environmental factors like sun, cold weather or wind, irritation, burning sensation centrofacial - front cheeks, nose, forehead - classic rosacea. The reason why you didn't respond to rosasea treatments before could be because it takes many months and the right treatment to see imrpovement, and, what I personally think is more probable, your condition has already so advanced that it cannot be properly addressed just by lifestyle changes and topical medication. When the tiny blood vessels have already dilated, only a laser could remove them temporarily, the usual topicals (apart from metronizole) cannot achieve this. You also need to seek ways to manage the stress because chronic stress will worsen your skin, treatment or no treatment. Also, I don't know who prescribed you a steroid-based topical but it in itself can cause irritation and steroid-induced rosacea, you need to tell your doctor you used the cream at all costs. I hope you find a good derm who will help you. I would look for one with yeras of experience and good reviews from actual people because unfortunately many derms are not good at what tehy are doing. 

 

 

I agree, I don't think this is to do with the damage of the pores or the scarring. I've spoken to plenty of people who have zero scarring but have damaged their skin barrier through harsh topicals and have similar side effects .It sounds more like a barrier issue resulting in some kind of rosacea or dermatitis. Whether this was caused by the accutane or topical treatments I'm not sure. 

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2 hours ago, JudgmentPuzzleheaded said:

Yeah. I'm still on low dose accutane to stop getting active acne even in my mid twenties. i tried coming off and cysts come back. accutane also dries out/thins your skin and makes you look older and scarring worse. plus it even reduced my hair quality a bit. literally every direction i could go in sucks. it's so not fun to walk outside and have worse skin than people in their 60s and 70s. I look about 5-10 years older than my age also due to accutane skin drying + hair thinning + collagen destruction from scars.

 

Literally if I only had 1 genetic difference (not being prone to cystic acne), my life would have been so different and amazing. I remember when I was 13ish i started getting acne way worse than all my class mates in school and my confidence went to poop. now, more than 10 years later, my skin quality is still shit, and i am permanently psychologically and literally scarred from this disease. 

Yeah I also noticed my scars look a lot worse if i ever drink, or eat poorly for a day, or get bad sleep, or ANYTHING. so i have to live like a monk. great way to live, totally joyless. 

I relate to you so fucking much. 

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11 hours ago, Jackson1234 said:

I agree, I don't think this is to do with the damage of the pores or the scarring. I've spoken to plenty of people who have zero scarring but have damaged their skin barrier through harsh topicals and have similar side effects .It sounds more like a barrier issue resulting in some kind of rosacea or dermatitis. Whether this was caused by the accutane or topical treatments I'm not sure. 

Yes. the damaged skin barrier with irritation can be caused by steroid topicals, Accutane, harsh skin care or all of the above on top of genetics  - many people develop skin sensitivities after their 20s as the skin gets less resilient. It's difficult to say whether it's acne/ rosacea/ dermatitis-exzema but good derms usually can tell them apart. Dermatitis is more around the mouth, eyelids and on other body parts as well and responds to steroids/ isn't exacerbated by them. 

The problem is not all derms are good and treat rosacea like acne or dermatitis. One derm told me acne and rosacea cannot exist simultaneously, it's either the one or the other( complete BS) and prescribed alcohol-based topical ( which makes rosacea worse). Needless to say I didn't comply and healed my skin with creams suitable for rosacea.

Anyways, what I wanted to say it that hypersensitivity and the damaged skin barrier are treatable as long as you find a good dr and the right treatments/ products for you. The problems might not go 100% away but still a good degree of improvent is possible.

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On 10/10/2021 at 5:59 PM, Jackson1234 said:

I agree, I don't think this is to do with the damage of the pores or the scarring. I've spoken to plenty of people who have zero scarring but have damaged their skin barrier through harsh topicals and have similar side effects .It sounds more like a barrier issue resulting in some kind of rosacea or dermatitis. Whether this was caused by the accutane or topical treatments I'm not sure. 

No, I almost never took harsh topicals except for a few days. 

 

14 hours ago, Scarredfacee said:

Yes. the damaged skin barrier with irritation can be caused by steroid topicals, Accutane, harsh skin care or all of the above on top of genetics  - many people develop skin sensitivities after their 20s as the skin gets less resilient. It's difficult to say whether it's acne/ rosacea/ dermatitis-exzema but good derms usually can tell them apart. Dermatitis is more around the mouth, eyelids and on other body parts as well and responds to steroids/ isn't exacerbated by them. 

The problem is not all derms are good and treat rosacea like acne or dermatitis. One derm told me acne and rosacea cannot exist simultaneously, it's either the one or the other( complete BS) and prescribed alcohol-based topical ( which makes rosacea worse). Needless to say I didn't comply and healed my skin with creams suitable for rosacea.

Anyways, what I wanted to say it that hypersensitivity and the damaged skin barrier are treatable as long as you find a good dr and the right treatments/ products for you. The problems might not go 100% away but still a good degree of improvent is possible.

I almost never went/go red, my skin just goes haywire as the day progresses. The best description is my skin becomes infected, pulsates, oily/blotchy, pale, prone to bumps at times or whatever else, scars become noticeable, if i touch or scratch it might be a bump(s). Whether it's rosacea or dermatitis or two others things I have no idea. 

Do you have any suggestions on what to do at this point. You are right that stress, environment and activity in general triggers it. It only feels better when I wash my face by the way over the last many years. Is that indicative of something? 

On 10/10/2021 at 4:17 PM, JudgmentPuzzleheaded said:

Yeah. I'm still on low dose accutane to stop getting active acne even in my mid twenties. i tried coming off and cysts come back. accutane also dries out/thins your skin and makes you look older and scarring worse. plus it even reduced my hair quality a bit. literally every direction i could go in sucks. it's so not fun to walk outside and have worse skin than people in their 60s and 70s. I look about 5-10 years older than my age also due to accutane skin drying + hair thinning + collagen destruction from scars.

 

Literally if I only had 1 genetic difference (not being prone to cystic acne), my life would have been so different and amazing. I remember when I was 13ish i started getting acne way worse than all my class mates in school and my confidence went to poop. now, more than 10 years later, my skin quality is still shit, and i am permanently psychologically and literally scarred from this disease. 

Yeah I also noticed my scars look a lot worse if i ever drink, or eat poorly for a day, or get bad sleep, or ANYTHING. so i have to live like a monk. great way to live, totally joyless. 

When I took accutane it was like a dream. I have super thick hair so some hair loss was awesome not joking I loved that it was thinner. I can totally get how other people might see that as a big downside. I had such oily skin that it was pathetic so when I had dry skin it was better. To be honest I didn't give Accutane much thought because I went from horrendous to normal but I guess some people really do have issues with it. My acne came back like 20-25% after the first course so I did another one. I don't get acne since. I took 40mg doses each time, could the dosage be at issue in getting it to return or not?

Totally agree on the eating, sleeping or anything else. It's a full time job to manage scars, it's unbelievable how they fluctuate depending on every move. It's literally the worst thing in a commitment based society. If I won the Powerball I'd fund research or help with grants for bad cases. It's so overlooked :(

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8 minutes ago, harmlessboy1441 said:

No, I almost never took harsh topicals except for a few days. 

It doesn't have to be harsh topicals, even something as innocuous as a moisturiser can irritate the skin when its hypersensitive. I'm not sure I understand your symptoms: "infected, pulsates, oily/blotchy, pale, prone to bumps at times". What do you mean by infected, and are these bumps filled with any fluid or anything?

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38 minutes ago, Jackson1234 said:

It doesn't have to be harsh topicals, even something as innocuous as a moisturiser can irritate the skin when its hypersensitive. I'm not sure I understand your symptoms: "infected, pulsates, oily/blotchy, pale, prone to bumps at times". What do you mean by infected, and are these bumps filled with any fluid or anything?

The bumps could be 1-2 acne or just a small red irritated bump or two. I never moisturized my face except for the recent few weeks. This problem is like since 2001 for me. Infected as in my face will look infected throughout the day. Blotchy, pale, "uneven", oily, shiny, slightly red maybe depends, pulsating or like swollen looking, things like that. After I sleep for 8 hours it's normal again, if I wash my face it's somewhat normal again, or at least tighter if that makes sense, depending on how bad it got. 

My only guess is dermatitis, broken barrier, and damaged layers in general. 

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16 minutes ago, harmlessboy1441 said:

The bumps could be 1-2 acne or just a small red irritated bump or two. I never moisturized my face except for the recent few weeks. This problem is like since 2001 for me. Infected as in my face will look infected throughout the day. Blotchy, pale, "uneven", oily, shiny, slightly red maybe depends, pulsating or like swollen looking, things like that. After I sleep for 8 hours it's normal again, if I wash my face it's somewhat normal again, or at least tighter if that makes sense, depending on how bad it got. 

My only guess is dermatitis, broken barrier, and damaged layers in general. 

Interesting. Honestly I'm not sure if it is a barrier issue, dermatitis, rosacea or fungal acne maybe. This sounds like a job for a derm, one that will actually listen and investigate the problem. Maybe the derm can take a skin sample and rule out if its dermatitis or something fungal. Good luck though, I hope you figure it out.

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21 minutes ago, Jackson1234 said:

Interesting. Honestly I'm not sure if it is a barrier issue, dermatitis, rosacea or fungal acne maybe. This sounds like a job for a derm, one that will actually listen and investigate the problem. Maybe the derm can take a skin sample and rule out if its dermatitis or something fungal. Good luck though, I hope you figure it out.

Join the club I have no clue. I tried "Nystatin and Triamcinoclone" for a day recently and my skin didn't tolerate it so I washed it off in 2 hours. That was an attempt at the fungal thing. My skin just didn't tolerate it as in it looked or felt like it was getting worse or aggravating things.

Also, this is another weird quality, and I don't even know if it's stress related, but 8 out of 10 times I get a haircut my face gets super irritated in the same way, as in swollen, infected, irritated, blotchy and so on. I have no clue what the heck hair has to do with it. 

There's no way I'm doing a skin sample on my cheeks. My scarring is too screwed up to even touch it or remove anything at this point, I can't add another scar. Is there any similar test like can I stick my head under a microscope? 

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1 hour ago, harmlessboy1441 said:

Join the club I have no clue. I tried "Nystatin and Triamcinoclone" for a day recently and my skin didn't tolerate it so I washed it off in 2 hours. That was an attempt at the fungal thing. My skin just didn't tolerate it as in it looked or felt like it was getting worse or aggravating things.

Also, this is another weird quality, and I don't even know if it's stress related, but 8 out of 10 times I get a haircut my face gets super irritated in the same way, as in swollen, infected, irritated, blotchy and so on. I have no clue what the heck hair has to do with it. 

There's no way I'm doing a skin sample on my cheeks. My scarring is too screwed up to even touch it or remove anything at this point, I can't add another scar. Is there any similar test like can I stick my head under a microscope? 

That's interesting you mention that. My skin is hypersensitive too and It gets quite itchy and red during a hair cut. I think it must have something to do with the spray bottle and the micro hairs falling on your skin.

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13 hours ago, harmlessboy1441 said:

No, I almost never took harsh topicals except for a few days. 

 

I almost never went/go red, my skin just goes haywire as the day progresses. The best description is my skin becomes infected, pulsates, oily/blotchy, pale, prone to bumps at times or whatever else, scars become noticeable, if i touch or scratch it might be a bump(s). Whether it's rosacea or dermatitis or two others things I have no idea. 

Do you have any suggestions on what to do at this point. You are right that stress, environment and activity in general triggers it. It only feels better when I wash my face by the way over the last many years. Is that indicative of something? 

When I took accutane it was like a dream. I have super thick hair so some hair loss was awesome not joking I loved that it was thinner. I can totally get how other people might see that as a big downside. I had such oily skin that it was pathetic so when I had dry skin it was better. To be honest I didn't give Accutane much thought because I went from horrendous to normal but I guess some people really do have issues with it. My acne came back like 20-25% after the first course so I did another one. I don't get acne since. I took 40mg doses each time, could the dosage be at issue in getting it to return or not?

Totally agree on the eating, sleeping or anything else. It's a full time job to manage scars, it's unbelievable how they fluctuate depending on every move. It's literally the worst thing in a commitment based society. If I won the Powerball I'd fund research or help with grants for bad cases. It's so overlooked :(

I wish I knew more but I also just read dermatology websites. Thought it could be rosacea bc of the location nose, front cheeks and forehead and everything else sounds like it. I also know how much time and trials and errors with wrong topicals/ creams it may take before you see improvement in the skin. But it is def possible.

I think yr best bet is finding a knowledgeable and experienced derm who will figure out what u have and giving their treatment a chance/ time to work. Hope u resolve the issue!

I used to have similar hypersensitity issues and no idea what's going on but I got rid of it now, or at least manage to control it as long as it's not super cold and windy outside but I think everybody would go red in such conditions.

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