Jump to content
Acne.org
Search In
Find results that contain...
Find results in...

Please help me by sharing this post about the dangers of taking ISOTRETINOIN (or ROACCUTANE) for acne.
As most of you will know, our beautiful daughter, Annabel, took her own life a month ago. She was 15 years old. We have struggled to make any sense of this as she was a happy go lucky teenager with no signs of depression. However, she was taking the anti-acne drug Isotretinoin where one of the side effects we were told to look out for was low mood and depression which can in very rare cases can lead to suicide. Annabel did not have depression nor did she have low mood. What they didn’t tell us to look out for are suicidal impulses that can come out of nowhere. Since this tragedy happened we have read of many cases of similar tragedies following use of Roaccutane/Isotretinoin. If we had known that these suicidal impulses can come out of nowhere we would never have agreed to her taking these tablets, which we have since discovered were developed initially as an anti-cancer chemotherapy drug. We will never get our Annabel back but if we can ask you to share our story maybe it can help to save a life. Our hearts are broken. We don’t want anyone else to go through the tragic waste of a beautiful young life. PLEASE SHARE.

 

We believe that some families may not even be aware that their loved one was on or took Isotretinoin before their suicide or they may have know but not connected the dots. It is imperative that isotretinoin suicides during and post treatment are recognised.

If you ever had suicidal thoughts please come forward and discuss your experience.

 

Review in the UK contact the EWG  [email protected]

They are looking at spontaneous suicides, sexual dysfunction and infertility but they want to hear about your whole experience.

This is the first time victims have been asked to come forward - please don't wast this once in a lifetime opportunity to be heard.

We own it to Annabel to speak up.

 

Anonymity guaranteed.

 

Any question please PM me

 

 

 

Share this post


Link to post
Share on other sites

lease help me by sharing this post about the dangers of taking ISOTRETINOIN (or ROACCUTANE) for acne. As most of you will know, our beautiful daughter, Annabel, took her own life a month ago. She was 15 years old. We have struggled to make any sense of this as she was a happy go lucky teenager with no signs of depression. However, she was taking the anti-acne drug Isotretinoin where one of the side effects we were told to look out for was low mood and depression which can in very rare cases can lead to suicide. Annabel did not have depression nor did she have low mood. What they didn’t tell us to look out for are suicidal impulses that can come out of nowhere. Since this tragedy happened we have read of many cases of similar tragedies following use of Roaccutane/Isotretinoin. If we had known that these suicidal impulses can come out of nowhere we would never have agreed to her taking these tablets, which we have since discovered were developed initially as an anti-cancer chemotherapy drug. We will never get our Annabel back but if we can ask you to share our story maybe it can help to save a life. Our hearts are broken. We don’t want anyone else to go through the tragic waste of a beautiful young life. PLEASE SHARE.

 

Share this post


Link to post
Share on other sites

 

 

No, absolutely not!!  

 

We are a campaign group which includes the likes of Tom(life after Accutane) Derek Jones(Dying for Clear Skin) and Dubya.

We campaigned to get the sexual sides added   - the PIL got updated in 2017 and now we are trying to get them listed as permanent. We also want the drug banned for under 18's and better labeling for everyone.

The Expert Working Group is the first opportunity victims have to have their voices heard - please don;t waste the opportunity.

 

If you would like to join our group - even as a non participant please pm Dubya or myself.

 

If you have contacted MHRA to share your experience and or state your concerns would you please make a post to encourage others to do the same. 

I would really hope that every victims on this forum would have made the small effort that might save others from the hell of this drug

 

 

Share this post


Link to post
Share on other sites

Before taking Isotretinoin look at the yellow Card data analysis. Yo can also look up other drugs like Doxycycline (many deaths).

The FDA has a website too where you can look up all reported adverse events of any drug. Remember though that only between 1 and 10% of people will ever report an adverse event. Nearly 1,400 Isotretinoin deaths reported in the US!

Did anyone know before they took the drug that suicidal ideation can persist be permanent and or occur once you stop taking the drug. Was anyone told about the high risk of sexual dysfunction and that this is why so many kids kill themselves once they stop taking the drug(others reasons too of course)? Who knew that the most likely time to commit isotretinoin suicide is up to a year after stopping treatment and that you should be monitored during this time? Does anyone agree that if victims don't tell anyone about their adverse effects and then commit suicide months or years post the drug - then the connection between the suicide and Isotretinoin may never be recognise so there is a very good chance that there have been even more suicides than those we already know about?

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Personalized Advice Quiz - All of Acne.org in just a few minutes


×