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RAW RED LIPS - PLEASE HELP

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(@sailee12)

Posted : 07/19/2018 8:52 am

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This is when my lips began to peel 

Hi! 

Im on a week and a day of accutane (generic brand)... and the first layer of my lips just peeled off ! Like completely... my lips are BLOOD BRIGHT RED and swollen... I feel like this is even worse than super dry chapped lips? I have tried a million chapsticks Dr dans.. everything. My derm even prescribed me 2% cortisone.. but I think he thought my lips were dry because they aren™t flaky or peeling anymore they are just super uncomfortable and it™s hard to eat because they are so so so RAW. I did research and I swear I haven™t seen anyone else™s lips look like this ???? 

Im praying to god that someone can help me out with this because I don™t want to lower my dose. I started right at 60mg (which I was    nervous about).

I used 
auqaphor, dr and cortibalm, blister ultra hydration, neosporin night cream, Vaseline lip therapy... EVERYTHING. 

:( please help ABC7D62E-D437-4FF5-AEDB-FEE14E87DE94.thumb.jpeg.07f62eb85da8634d1d4f6bc35757bab1.jpeg

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(@lacnez)

Posted : 07/20/2018 8:40 am

Did any of the lip balms have SPF in it? similar stuff happened to me and turned out to be a sunburn, apparently our lips are more sensitive to sun than our skin. The skin will come back but I did notice that my lips have remained pretty red sensitive after the fact, but I'm almost done so I can live with it.

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(@sailee12)

Posted : 07/20/2018 11:29 am

@Lacnez Thanks for replying to me.

Yes, they have SPF 15 and i applied it ALOT. I know that™s not much but I also stay out of the sun :(
 I work inside all day and then get home late so I™m at work, in my car, and then at home. 
what did you do to help your lips recover ? How long did it take? I just started so this is pretty annoying and uncomfortable. I dont think I can put up with this for a month let alone 4-6 more ! 
 

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(@sailee12)

Posted : 07/20/2018 11:45 am

Attached are photos from the very first moment I noticed them beginning to peel or become red. Then followed by the peeling photos I already sent above and then more recent photos of my lips at their current state.  (So sorry for the DISGUSTING photos.. I know they™re up close and personal and flash doesn™t help ahahah) 

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(@lacnez)

Posted : 07/21/2018 10:40 am

I just applied aquaphor all over a few times a day and it eventually healed. Listen to your derm use the cream and it should clear up, plus its early days the body is adjusting I'm sure in the coming weeks your body will adjust and your lips will be normal, DRY but normal haha and if anything you'll see your derm in three weeks and im sure they'll help you out.

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(@sailee12)

Posted : 07/23/2018 4:52 pm

SOO.. my lips began to become pink again and feel better.. and today 2 days later they began to peel again. Wtf is this.. I have blisters all around the rim of my lips. What is going on.. why am I the only person this happened to lmao wtf.

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(@sailee12)

Posted : 08/08/2018 1:44 pm

Just thought Id update just in case anyone else had this issue. I used neosporin on my lips which I have used for several years prior to accutane. Because your skin becomes more delicate and absorbs a higher percentage of product.. I developed contact dermatitis and had a severe allergic reaction all around my lips where I placed it. (Couldve been the hydrocortisone Im staying away from that too but my derm said it was the neosporin most likely) I was prescribed anti inflammatory steroids and my dose was lowered to 40mg a day - UGH.

Seriously. I wouldnt wish this on anyone.. its been a week and a half and still not fully healed.

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(@sailee12)

Posted : 08/30/2018 1:10 pm

Update - theyre still not healed. Still scaly and flaky.

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(@francescabs)

Posted : 03/15/2019 12:01 am

Hi, im so relieved i found someone with the same problem ive been dealing with. Im on a 20 to 40 mg dince a few weeks and its been 2 days that my lips feel raw and extremely sensitive. What helped you at the end because i could never deal with this forever.Help !

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(@sailee12)

Posted : 04/05/2019 5:39 pm

@FrancescaBShi ! Im not sure if this is too late but nothing really helped. I lowered my dosage from 60 to 40 and my lips were way more tolerable. It was A BREEZE after !! Just lower your dose and power through its worth it !

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(@sailee12)

Posted : 04/05/2019 5:57 pm

I used aquaphor and warmed it up before applying ! I also think I used lanolin. I couldnt apply anything in a solid substance but I needed something that provided a protective barrier so that I could smile and talk and not allow my lips to touch

Warmed it up between fingers

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(@lydigkor)

Posted : 05/07/2020 7:28 pm

Hey my lips are like that for a week now and my doctor told me to put fusicort on. They got a little better but the redness and itchiness is not going away. Also i stopped accutane.

Can you please tell me what should i do? (Also my country doesn't provide Aquaphor)

 

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(@rawblisteredlips)

Posted : 05/18/2020 8:53 am

hi, I just started taking acnetane, I™m on 20mg and my lips are the exact same as yours. Please tell me they get better after a few weeks/months - I just need some motivation :( 

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(@agg3627)

Posted : 08/02/2020 10:36 am

Hi everyone, Im about to complete one month on accutane. My lips were chapped so I applied Dr Dans Cortibalm which has hydrocortisoneand minutes later my lips got a little swollen and filled up with small bumps or tiny blistersjust like these,they are clear and are the color of my lips. Any idea as to why this happened, what I can do about it, is it serious, and how long do they last? Is this temporary? Any one else experience this? Thank you for your help in advance!!! Im on 40 mg of isotretinion.

On 5/7/2020 at 8:28 PM, lydigkor said:

Hey my lips are like that for a week now and my doctor told me to put fusicort on. They got a little better but the redness and itchiness is not going away. Also i stopped accutane.

Can you please tell me what should i do? (Also my country doesn't provide Aquaphor)

 

Same thing is happening to me, any luck?

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(@azul)

Posted : 02/02/2021 2:34 am

So, I am on my 2nd month of only 20mgs a day of isotretinoin and one month of swollen lips, with the same little blisters and a lot of pain. I have been to normal dr and to the derm 5 times on the last 30 days. I've been told probably allergic reaction.  Took medication. Nothing happened.  Then told a virus. Took 2 courses of antivirals and that worked but they came back. Finally saw the derm who prescribed some fatty whatever expensive cream for 6 months twice a day, so far no good, it's been 4 days. 

If anything should improve and I would let you know...

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(@purplequeen)

Posted : 05/06/2021 9:37 pm

I literally have the same problem. My lips just keep peeling and everytime they get wet they turn white and the layer of skin just falls off to reveal raw skin. Did anyone get anywhere with treatment?

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(@josesilva2166)

Posted : 03/18/2024 1:33 pm

Hello. I am having the same issue. The red layers is exposed and the skin gets white and wet when I use patroleum jelly. I dont know what to do. Pls help

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