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DaniJ

Has Anyone Experienced Noticeable Hair Loss On Spironolactone?

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Hi everyone,

I know this thread is very old, but I am experiencing a similar problem.

I have been on Spiro 50mg for 7 months, my acne completely cleared but my hair has been thinning for about 4 months.

I have just read that hair loss is a side effect of Spiro, which confused me as I too thought it was prescribed FOR hair loss.

I was wondering, for all of you who have experienced this, has your hair grown back?? Is it temporary, or perminent??

I would so appriciate it if you could take the time just to quickly tell me what your experience has been! I'm very distressed :(

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Hi everyone,

I know this thread is very old, but I am experiencing a similar problem.

I have been on Spiro 50mg for 7 months, my acne completely cleared but my hair has been thinning for about 4 months.

I have just read that hair loss is a side effect of Spiro, which confused me as I too thought it was prescribed FOR hair loss.

I was wondering, for all of you who have experienced this, has your hair grown back?? Is it temporary, or perminent??

I would so appriciate it if you could take the time just to quickly tell me what your experience has been! I'm very distressed

Sorry you're experiencing hair loss. I know how upsetting it can be :(

When I stopped spiro it took about 6 months for the hair loss to slow down, and then it slowly started to grow back. If you have any more questions just let me know!

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Hi - I hope someone comes across my post since this thread is so old..but I am searching for answers...

Was prescribed Spiro (100 mgs) about two years ago and had great results about 5 months in. Just under a year of my initial start date I noticed my hair seemed different. Blood tests always came back normal. Finally another 6 months later I realized my hair really was thinning and brought it up to my Derm. He said it was stress. Well it kept thinning and I finally stopped taking Spiro in October since that was the only common denominator when it came to the timing of my hair loss. It's now March and I'm not seeing any changes. Did anyone who stopped Spiro because of hair loss have success with it growing back? How long did it take?

Thank you so much for reading and responding I feel really lost and depressed about this.

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Hi - I hope someone comes across my post since this thread is so old..but I am searching for answers...

Was prescribed Spiro (100 mgs) about two years ago and had great results about 5 months in. Just under a year of my initial start date I noticed my hair seemed different. Blood tests always came back normal. Finally another 6 months later I realized my hair really was thinning and brought it up to my Derm. He said it was stress. Well it kept thinning and I finally stopped taking Spiro in October since that was the only common denominator when it came to the timing of my hair loss. It's now March and I'm not seeing any changes. Did anyone who stopped Spiro because of hair loss have success with it growing back? How long did it take?

Thank you so much for reading and responding I feel really lost and depressed about this.

I had success regrowing my hair after spiro. I was on a very low dose (25mg) and it took 6 months or more for it to stop falling out. My hair is much thicker now.

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I was taking spirolactone for hormonal chin acne.  I stopped taking it in Jan. and now have major hair loss..I didn't even know it was connected with hair loss!..I HAD a TON of hair..I've lost about half of it...could this be from stopping the spirolactone? ...should I hang tight or get back on it?  starting to see my scalp:(

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It could be absolutely connected.  It's hormonal so it has that ability to mess with hormones.  Ironically enough, Spiro is used to regrow hair. I would not recommend getting back on though.  Eat healthy and consider testing your hormones and filling those deficiency gaps.  Maybe biotin?

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On 10/26/2013 at 1:32 PM, DaniJ said:

 

Yay I'm so happy for you! My hair loss has really calmed down A LOT. Everyday it seems to get better.

Just now, Trinitytx said:
On 10/26/2013 at 1:32 PM, DaniJ said:

 

Yay I'm so happy for you! My hair loss has really calmed down A LOT. Everyday it seems to get better.

I'm stressing so much over this. I'm losing soooo much hair and have anxiety for the first time. :(
On 3/27/2015 at 10:50 AM, paigems said:

I had success regrowing my hair after spiro. I was on a very low dose (25mg) and it took 6 months or more for it to stop falling out. My hair is much thicker now.


Paige, do you feel recovered now? I need positive stories, I am so upset.
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On 10/24/2013 at 5:38 PM, DaniJ said:

 

I'm sorry this happened to you too! You're lucky your derm actually acknowledged this side effect. Mine completely denied it. Your symptoms sound almost identical to mine. I have had a very itchy scalp and my hair doesn't feel like it used to. On top of that, my scalp has been really sore around the crown of my head. It feels like I hit it on something several times. I can't decide what is worse either. I feel your pain. I just couldn't see myself continuing this drug because I know hair loss has NEVER happened to me, and it's really embarrassing :/. At least with the acne, maybe there are other options.

 

I am curious to know how long it will take for the acne to return.

dani, how are you doing? This describes me right now and I am so upset and stressed. 
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On 4/4/2016 at 10:53 PM, runnergirl719 said:

I was taking spirolactone for hormonal chin acne.  I stopped taking it in Jan. and now have major hair loss..I didn't even know it was connected with hair loss!..I HAD a TON of hair..I've lost about half of it...could this be from stopping the spirolactone? ...should I hang tight or get back on it?  starting to see my scalp:(

:(

Any changes? 
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I went on spiro for acne about 2 years back . It cleared it immediately . Left it after 6 months as I experienced some thinning on my hair . after 2 months hair started falling in clumps . I went back on spiro at 100 mg and started getting period every 18 days . My hair got brittle and week and kept shedding through the next 10 months however my part was filled . I weaned off from spiro since jan . So far my shedding is a bit better but my hair have terrible thinned specially at the part in front.  I had long black hair and now only 30 percent of my volume is there . Any advices or experience by anyone pl share . This has caused me immense stress . Did. Ur. Hair grow back and did the frontal thinning of scalp fil in . Also my texture is all dry brittle and wiry ... Don't know what to do . Pl share ur success and positive stories .
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Hi!

Can someone please help me? I went on Spirix 1,5 months ago, 100 mg for my PCOS and im shedding alot of hair. I stopped taking it. Should I expect the shedding to stop anytime soon? Im so scared, i usually have long, thick hair :(
Would be so happy if someone answered! 

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I have been also in the same boat.  I quit Spiro 5 months back and my hair shed alot specially during my period cycle.  I have diffuse thinning and specially on the top front scalp is very diffuse and see thru.  I have been applying serums and having vitamins and herbs now but no relief yet. Infact I dont knkw weather to jump back to Spiro or wait it out and see. Anyone who has been thru this what was there experince .Did the hair grow back and after how long.  I am very depressed and consumed so someone pl help 

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On 10/22/2013 at 9:53 AM, paigems said:

I had the same experience with spiro and also with yaz and yasmin. My hair got so thin on spiro, and continued to fall out until a few months after I stopped taking it. Thankfully it grew back! We're not alone; I've seen a lot of other people complaining of the same problem.

hi Paigem 

My hair was thinning on Spiro and when I left it stated shedding in clumps. My doctors pug me. Back on. Spiro in a double doze of 200 mg.  My hair got super dry and scalp just didn't need washing for ten days or more . My silky hair turned to dry brittle and flyway but I was always having regrowrh during this time. Then I left Spiro and for the last 6 minfhs my hair are thinning rapidly all diffuse hair and I feel so miserable.  My hair is fragile and falls and tangled and dry.  What should I do.  How long did it take for u to get your hair back and did u have thinning specially frontal when u left Spiro.  Pl advice 
 
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I too am now sporting the “Spiro comb over.” Seriously, I lost half my hair on it. Clear skin and a combover, anyone? I’d take a few zits any day. Also, i had to pee about every half hour. Awful. I’m off it now and my hair stopped falling out. 

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I'm a 40 yo female and have been struggling with cystic acne for about 10 years. I started taking Spiro back in Aug. (it's now Nov.). Spironolactone cleared up my painful, ugly cystic acne within two weeks. My rosacea has also been clear since I've been on spiro. My breasts went up about a cup size with added monthly tenderness. I am so thrilled with the results. My skin is perfectly clear, I no longer have to constantly worry about covering up my ugly, painful, sometimes bloody cysts. However, within the past couple of weeks, I've noticed severe hair loss. I have lost almost 50% of my hair! I used to have super thick, full, below shoulder length hair (I used to get frequent compliments on my beautiful hair). After being on spiro for almost three months, my hair is now thin, dry, brittle and fine, and my scalp hurts, tingles and burns. I'm scared to wash it, brush it, or wear it in a ponytail or a bun. It falls out excessively in the shower, when I brush it and even while I'm just sitting at my desk at work or home watching tv. I'm now terrified it won't grow back. I stopped taking spiro three days ago and have an appt. w/ my derm in two days. I'll post again in a few months with an update on my regrowth. I'm not sure why hair loss is not listed as a side effect or why my derm didn't discuss this possibility with me. Good luck to all of you. I'm glad that you've shared your stories here. It makes me hopeful that my hair will grow back (hopefully leaving the acne behind).  

Edited by Arbedar
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I only took 25 mg for less than a month.. After that I upped my doze to 50 mg which i took for less than two week before I started noticing my hair coming out (shedding a lot of baby hairs from the shaft which i had never experienced before). I immediately stopped taking spiro as i am very afraid of loosing my hair which used to be long and thick. Now after a month  of being off the drug the hariloss has only increased. I have counted about few hundred coming off in the shower and about up to 500+ when I brush so I am not just imagining it. In addition to that hair just falls off through out the day in my face, arms, floor etc. I have lost about 1/3 of my hair in only one month. I am having panic attacks as i feel so hopeless and scared of where this will go and how long it will last. My scalp has also become very itchy and developed dandruff which I have never had before. My doctor just told me to stop the drug and try rogaine but I'm scared to try it in case it will only make it worse.

I'm really afraid if this is gonna last 6 months will i have any hair left, or worse if it is permanent! My period become very irregular too on spiro, it came twice a mont with spotting in between and it hasn't gone back to normal yet. I'm 27yrs old.

On 7/2/2018 at 8:51 AM, Gia88 said:

I too am now sporting the “Spiro comb over.” Seriously, I lost half my hair on it. Clear skin and a combover, anyone? I’d take a few zits any day. Also, i had to pee about every half hour. Awful. I’m off it now and my hair stopped falling out. 

How long did it take after coming off for the shedding to stop?

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Does anyone have any more updates? I started taking spiro in june, upped the dose in July and started noticing hair loss in late august. At first I ignored it because my skin looked so good and it wasn't bad, but now it's bad enough that I decided to stop today. My dermatologist also said she hadn't heard of this side effect, but it is literally the only explanation as nothing else has changed and i have had every blood test done. Anyone have any updates? If I remember, I will continue to post updates here. I also got very dry scalp and dandruff as a result of the drug, which I didn't realize was caused by this until recently. It seems like we are all having pretty similar experiences. 

Edited by dude97
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On 11/29/2018 at 6:07 AM, dude97 said:

Does anyone have any more updates? I started taking spiro in june, upped the dose in July and started noticing hair loss in late august. At first I ignored it because my skin looked so good and it wasn't bad, but now it's bad enough that I decided to stop today. My dermatologist also said she hadn't heard of this side effect, but it is literally the only explanation as nothing else has changed and i have had every blood test done. Anyone have any updates? If I remember, I will continue to post updates here. I also got very dry scalp and dandruff as a result of the drug, which I didn't realize was caused by this until recently. It seems like we are all having pretty similar experiences. 

hairloss is actually listed as a rare side effect in the package where i live. Some people just don't react well to the drug. I have no explanation for the dandruff and itching (maybe something to do with changes in oil production?) but i have been washing my hair with ketaconazole shampoo for a week it has helped a little bit with the dandruff but still itchy and no effect on the hairloss itself :/  

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Hi,

I know this is already 4 years after the last reaction on this post but I wanted to see if anyone has an update on their experience with spiro. I have been prescribed spiro since 5 months ago (I have pcos and hypothyriodism). The initial reason why I was prescirbed the spiro was due to hair growth on the chin and hair loss. However after taking the drug for 5 months, not only my hairloss didn't get cured but became even worse too bad that people around me are as shocked as I am that I am losing this much hair. I am deciding to get off the medication but from what I read here almost no one had a positive result with stopping the medication.

 

My symptomps are currently: thinning hair specially in the front, excessive hair loss and itchy scalp in addition to the feeling like if someone is pulling my hair.

I would appreciate it if anyone can share any update on what happened after they stopped spiro? 

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