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ClearDreaming

Question To Everyone In The Uk

Hi guys, I'm a long time lurker, but new poster on the boards.

Basically I have a lot of questions about accutane perscriptions in the UK. My doctor is horrible and I don't feel comfortable asking her a lot of these as she blew me off last time (not to mention that my next appointment is ages away)

My doctor told me that to be referred to a derm I HAD to have been on 2 antibiotics for 6 months otherwise she would blow me off. But she made a big point of saying 'IN SHEFFIELD' (Where I currently am). I just wondered if anyone knew what the 'rules' were in Bristol. As I'm at uni I live between the two places, and in another 6th months I'll be back there. I just don't see the point in jumping through hoops if It turns out I have to jump through a different set down there an I've just wasted a load of time.

I'd also love to hear everyone experiences with getting accutane in the UK. I'm currently going through the NHS route, but my mum said she is happy to pay for private treatment if it's quicker, I have no idea how that works though, do you have to get insurence and do that for everything? Or can I go private just for my acne?

As a brief acne history, I started getting spots at about 15, wasnt too much of a big deal, but it keeps getting worse and worse as I get older. I was in Yasmine bc for ages which is meant to help, but it didnt, my skin didnt get worse when I came off it. Now I have moderate acne on both sides of my face and I get some cysts. Basically nothing has worked and Its just getting worse, I'm already 23 and I just want to go on accutane to clear it so I can get my self confidence back (I feel like I just hide at uni and don't do half of the things I'd love to). Confidence is going to be a big thing for me as I really need to find a perminent job next year and my degree is in a professional, male dominated area.

Hope you guys can help :)

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Hey, I'm also trying to go down the NHS route for Accutane for mild persistent acne and oily skin...

I finally decided to ring my doctors surgery on Friday and was lucky to get an appointment with my GP later that afternoon. I took in a big list of things I've tried, such as Benzoyl Peroxide, Retin-A, Tretinoin, creams, lotions and a 1 month course of Lymecycline (antibiotic).

We discussed my acne for about five minutes and he concluded that there wasn't any point in trying anything more topical so he stuck me on Erythromycin. I mentioned Roaccutane and he said that he would want me try the antibiotics first and if I would still like a referral to see a dermatologist then he would refer me without hesitation.

I'm making an appointment in about two weeks time to go back there and ask to be referred to a dermatologist to hopefully get Roaccutane. I have a good argument lined up so fingers crossed all goes well.

In your case, It might be worth making an appointment with the surgery in Bristol and seeing what they have to say.

Good luck! Hopefully we'll both be clear by the end of the year.. :)

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Hey,

My doctor also put me on Erythromycin, I took it for 2 months and didnt see any change, but then again she put me on Cerazzette birth control as well which said might make my skin worse (which of course it did) . I assume it is Erythromycin she will give me for the 4/5 months of antibiotics I have left in the 'required' period. It just all seems like such a stupid and slow system. My old doctor was much nicer and suggested she would refer me to the derm practically straight away, but then she retired.

I'm going to go to the walk in centre in Bristol when I go home for easter, I'm not sure if you can make appointments if your not registered eusa_think.gif . What a pain.

Good luck to you too! It'd be soooo nice if we were both clear by the end of next year!

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Hey, welcome aboard! smile.png

I'm in Sheffield as well and it does seem as though things vary from one city to the next. That being said, my doctor gave me different information. He said that the dermatologists in Sheffield wouldn't see me if I didn't fit set criteria - that my acne be severe, cystic, and unresponsive to other treatments. In other words, no chance! The other doctors at the surgery echoed that so I took them at their word. I looked into going private but the places nearby wanted the referral from the doctor so I'd still have hit a brick wall regardless of whether I went NHS or private. Good that you've been told different though, sounds like the odds aren't stacked against you and at least if you play the game, you'd be able to get that referral after doing the other medications. Certainly better than an outright refusal isn't it.

I don't think there are set rules at all to be honest. I mean, they'll have guidelines and all, but it sounds like it's down to the luck of the draw as to whether or not they think it's worth it. Some patients have found they could add more weight to their case by talking of the impact acne has on their confidence and things like that. It's been a major issue for me from 13 and I'm now 26. Even though it was only ever moderate acne at worst, I couldn't handle it and it's cost me such a lot during that time. Even when I talked about all that stuff, it still didn't matter because I still didn't fit those criteria. But, if I were you, I'd make a point of mentioning that emotional side of things whenever you can because there's every chance it might strike a chord with the doctor.

smile.png

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I think it's unlikely with my doctor! She's one of those ones who looks sceptically at you every time you say anything! That said, she did tell me to come in without make up next time (Ha! No chance) So I'm going to take in some photos and my sob story and hopefully I'll get a referal early, if not I'm seriously considering trying another dr just to see if they agree with her.

It sucks that they just blanket said no to you like that! I understand that its a harsh drug and they worry about giving it out to people, but I really do think it should be down to the patients choice. The nhs sucks, thats the opinion i've come round to during all of this.

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Well, it was suggested to me that if I'd visited the surgery during those times when my acne was at its worst, they'd have seen what was going on and might have considered things differently. That's obvious and makes complete sense, of course. I mean, if I walk in there saying my acne's bad but there's next to nothing to be seen, they can only justifiably go on what they can see at that time. I could never bring myself to go when it was bad. I never even left those house during those times so it was unlikely that I'd go and sit face to face with a doctor while they checked it over! So although I can appreciate how difficult it might be for you to face them without makeup, that could actually do you a favour. Worth considering at least. If not, certainly take pictures with you to back up what you're saying. I never did that and it could turn out to be the deal-breaker.

I know what you mean about the NHS. Well, I understand how you feel. I was pretty angry at them because it was only because I'd be refused. Generally speaking, I've never had issues with the NHS and I certainly appreciate the fact we get free health care. It's just that those times when they're not flexible with treatments are the times we remember most I suppose. Although, there are a number of Accutane user here who went down the NHS route and they seem to have done fine with it so I may be in a minority. Maybe some of those people will drop by to add to this. If not, I'd suggest having a look at the Accutane log section and checking out the logs of UK users.

:)

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Yeah is there anyway of pinpointing UK users? I have to say I've found the blog and gallery section of the site pretty difficult to navigate.

I have to say your probably right about the bad times being the ones we remember, I've had problems with the doctors I go to here, but thats about it. Thankgod we do have a health service! I cannot fanthom living somewhere I'd have to pay just to see a GP without any choice in the matter.

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A lot of Doctors have their own opinion on things. The first doctor I went to put me on topical after topical after topical before putting me on Lymecycline. She was reluctant to refer me to a dermatologist, even though it was what I desperately wanted, perhaps because she hadn't yet exhausted all the other possible treatments at her disposal. She left the surgery before Christmas last year and I called up another GP, at the same surgery. He was much more understanding with me, and agreed Roaccutane would be the route to take, but he wants me to try this one last antibiotic (I guess it's common procedure before Roaccutane).

Like Paul said, see them when your acne is at its worst, without makeup. That's exactly what I did. I actually didn't even wash my face for 24 hours so I was gleaming with spots, super oily skin and whiteheads. You could call it cheating but it worked nicely in my case :P

None the less, the antibiotics seem to be keeping my skin relatively clear, along with my simplified skincare routine, but my GP doesn't have to know that ;)

Again, go in with a strong argument, make a list of everything you've used topically and orally. Express that your acne is making you upset and depressed and that you've exhausted all possibilities and would like to see a dermatologist. Do this before he or she can suggest using another topical cream or antibiotic.

Once again, good luck!

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Hi guys, I'm a long time lurker, but new poster on the boards.

Basically I have a lot of questions about accutane perscriptions in the UK. My doctor is horrible and I don't feel comfortable asking her a lot of these as she blew me off last time (not to mention that my next appointment is ages away)

My doctor told me that to be referred to a derm I HAD to have been on 2 antibiotics for 6 months otherwise she would blow me off. But she made a big point of saying 'IN SHEFFIELD' (Where I currently am). I just wondered if anyone knew what the 'rules' were in Bristol. As I'm at uni I live between the two places, and in another 6th months I'll be back there. I just don't see the point in jumping through hoops if It turns out I have to jump through a different set down there an I've just wasted a load of time.

I'd also love to hear everyone experiences with getting accutane in the UK. I'm currently going through the NHS route, but my mum said she is happy to pay for private treatment if it's quicker, I have no idea how that works though, do you have to get insurence and do that for everything? Or can I go private just for my acne?

As a brief acne history, I started getting spots at about 15, wasnt too much of a big deal, but it keeps getting worse and worse as I get older. I was in Yasmine bc for ages which is meant to help, but it didnt, my skin didnt get worse when I came off it. Now I have moderate acne on both sides of my face and I get some cysts. Basically nothing has worked and Its just getting worse, I'm already 23 and I just want to go on accutane to clear it so I can get my self confidence back (I feel like I just hide at uni and don't do half of the things I'd love to). Confidence is going to be a big thing for me as I really need to find a perminent job next year and my degree is in a professional, male dominated area.

Hope you guys can help smile.png

Well I’ve been on Accutane twice on the NHS and I find dermatologist to be really stubborn; they always try and fob you off with antibiotics or topical treatments. I was once told I would never be prescribed the drug because my skin isn’t bad enough.

Anyway … I got it in the end with a lot of hard work. Take this simple advise, be more stubborn than them, argue your case, always emphasise how antibiotics and topical treatments don’t work, argue how Accutane can hugely benefit your skin because the root cause of your Acne is overproduction of sebum.

Sometimes you need to be the doctor and tell them what your skin needs. Nobody knows your skin like you do.

Good luck.

PS: I wouldn't mention depression when trying to get Accutane, they can be really touchy when it comes to depression.

Edited by aWorldWithoutAcne

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Yeah is there anyway of pinpointing UK users? I have to say I've found the blog and gallery section of the site pretty difficult to navigate.

Erm... no, I don't think so. eusa_think.gif

Best way I can think is use the search box and then go into the advanced search.

I did an advanced search for the terms, 'UK' and 'NHS' in the Accutane logs section and pulled up a number of logs which I hope might be relevant and some degree of help. I'm not entirely sure if they're all NHS cases but if there are some private ones in there, at least it might offer a comparison. Some of these I have followed along the way and some I haven't so I don't know for sure how detailed some are or if they were completed, but anyway, feel free to have a look:

http://www.acne.org/messageboard/index.php/topic/306982-my-face/

http://www.acne.org/messageboard/index.php/topic/300117-this-is-the-day/

http://www.acne.org/messageboard/index.php/topic/311794-smells-like-tane-spirit/

http://www.acne.org/messageboard/index.php/topic/292016-my-isotretinoin-log-d/

http://www.acne.org/messageboard/index.php/topic/304916-10-mgday-log/

http://www.acne.org/messageboard/index.php/topic/299185-accutane-nhs-log-with-pics/

http://www.acne.org/messageboard/index.php/topic/311757-starting-roaccutane-arghhhhhhh/page__p__3220437#entry3220437

http://www.acne.org/messageboard/index.php/topic/311606-here-goes-nothing/page__p__3219413#entry3219413

http://www.acne.org/messageboard/index.php/topic/296736-robs-roaccutane-log-with-pics/page__p__3091286#entry3091286

http://www.acne.org/messageboard/index.php/topic/285387-roaccutane-do-your-stuff-updated-16th-november/page__p__3002013#entry3002013

http://www.acne.org/messageboard/index.php/topic/287979-roaccutane-let-the-magic-beginplease/page__p__3023914#entry3023914

http://www.acne.org/messageboard/index.php/topic/290671-my-accutane-log-aged-38/page__p__3044449#entry3044449

http://www.acne.org/messageboard/index.php/topic/289548-male-25-starting-accutane-im-now-officially-part-of-the-accutane-crew/page__p__3035913#entry3035913

http://www.acne.org/messageboard/index.php/topic/286183-brazes-accutane-log-2011/page__p__3008622#entry3008622

http://www.acne.org/messageboard/index.php/topic/67319-my-roaccutane-diary/page__p__771091#entry771091

http://www.acne.org/messageboard/index.php/topic/277027-2nd-time-round/page__p__2937085#entry2937085

http://www.acne.org/messageboard/index.php/topic/284703-finallymy-long-awaited-logwith-piccies/page__p__2996456#entry2996456

http://www.acne.org/messageboard/index.php/topic/273645-me-and-the-mirror-we-are-going-to-make-friends/page__p__2911597#entry2911597

http://www.acne.org/messageboard/index.php/topic/268409-isotretinoin-accutane-log-time-for-a-new-life/page__view__findpost__p__2869171

http://www.acne.org/messageboard/index.php/topic/251890-yet-another-roaccutane-log/page__view__findpost__p__2737311

http://www.acne.org/messageboard/index.php/topic/245210-the-start-of-the-roaccutane-rollacoaster/page__view__findpost__p__2685687

smile.png

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Oh Thankyou so much paul! Thats a great help :)

@aworldwithoutacne I'll try to push my weight around a bit more! I know that depression can be caused my accutane, I think that's why theyre so strict on it. I'm definitely not 'depressed' though, just pretty damn fed up! If I felt like it was a sure thing after another 5 months on antibiotics I wouldnt even be bothered...maybe I'll point that out too! It's good to know they told you something similar but got around it.

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I thought I'd update since I've had my Drs appt (ok so mainly because there are so few people I can tell about this and it's exciting!)

My Dr gave me another load of erythromycin and some differin gel BUT also booked me a derm appointment since theres a 3 month wait. So I totally got what I wanted, I'm happy to wait as long as I know something is being done :)

She seemed to be paying a lot more attention this time and I didnt really even have to lead the conversation. I showed her the pictures I took this morning on my phone, so they were bad quality and my skins calming down after a break out right now anyway, but I said that they're all under the skin lurkers and that they scar. My make up is done seriously badly as I was in a hurry this morning so that probably helped too. She said they looked inflamed and booked the appointment straight away.

She also put me on a new contraceptive which means I just walked home carrying the largest prescription bag ever, looking like a right drug addict rolleyes.gif

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ClearDreaming, I'm glad your finally on track to your course. Though your face in your profile picture looks fine, if a little bit too furry perhaps.

I also live in Sheffield. I had an easier time of getting my course though however, as I met the severe, cystic and unresponsive to anti-biotics criteria as mentioned by Paul. I had already had one course of it as well, so the potential side effects and how my body reacts to isotretinion was not an issue. They still made me take at-least two useless courses of anti-biotics, I suppose its a criteria everybody has to meet.

By the way, you may not have to wait for 3 months, as you can ask your doctor to check if there any any derm slots at other hospitals around Sheffield. They don't have to go ringing around hospitals, as appointment slots are accessible on their computers. Thats what I did to avoid waiting an additional two months.

You will have to go to similar efforts when you meet your dermatologist as you did to get your referral. I would suggest you continue to take photos. Had I not taken photos, I would never have got back onto roaccutane, as my skin was the clearest it had been for weeks around the time I had my appointment, which was bloody typical.

Edited by thefloydfan

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Hey I just got prescribed through the NHS and also had a shitty GP - so bad that she wrote a crapy referral about how I probably don't need the stuff.

Either way the derm will be very different, at my first appointment I was given Differin as I hadn't been on any treatment for a while but had another one today and just walked home with a massive box of Roaccutane. Need to take a blood test too and then wait two weeks before I can start so if you can try and get your blood work done before your derm appointment, makes things a little easier.

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I thought I'd update since I've had my Drs appt (ok so mainly because there are so few people I can tell about this and it's exciting!)

My Dr gave me another load of erythromycin and some differin gel BUT also booked me a derm appointment since theres a 3 month wait. So I totally got what I wanted, I'm happy to wait as long as I know something is being done smile.png

She seemed to be paying a lot more attention this time and I didnt really even have to lead the conversation. I showed her the pictures I took this morning on my phone, so they were bad quality and my skins calming down after a break out right now anyway, but I said that they're all under the skin lurkers and that they scar. My make up is done seriously badly as I was in a hurry this morning so that probably helped too. She said they looked inflamed and booked the appointment straight away.

She also put me on a new contraceptive which means I just walked home carrying the largest prescription bag ever, looking like a right drug addict rolleyes.gif

So glad you got your appointment booked! I have an appointment this Wednesday with my GP and I'm taking in my big list of all the prescription medications and over the counter medications I've used, just in case he's forgotten. I've been on Erythromycin for a month now and it has taken down a lot of inflammation but there are still some painful spots lurking around. My aim is to ask for another months worth of Erythromycin and get a referral to see a dermatologist. I'm feeling quite confident about it.

ClearDreaming, I'm glad your finally on track to your course. Though your face in your profile picture looks fine, if a little bit too furry perhaps.

I also live in Sheffield. I had an easier time of getting my course though however, as I met the severe, cystic and unresponsive to anti-biotics criteria as mentioned by Paul. I had already had one course of it as well, so the potential side effects and how my body reacts to isotretinion was not an issue. They still made me take at-least two useless courses of anti-biotics, I suppose its a criteria everybody has to meet.

By the way, you may not have to wait for 3 months, as you can ask your doctor to check if there any any derm slots at other hospitals around Sheffield. They don't have to go ringing around hospitals, as appointment slots are accessible on their computers. Thats what I did to avoid waiting an additional two months.

You will have to go to similar efforts when you meet your dermatologist as you did to get your referral. I would suggest you continue to take photos. Had I not taken photos, I would never have got back onto roaccutane, as my skin was the clearest it had been for weeks around the time I had my appointment, which was bloody typical.

My skin is the clearest it has been in a long time after taking Erythromycin and I have an appointment with my GP to get a referral to see a derm on Wednesday. Typical!

I'm really hoping for the minimum waiting time as possible, hopefully within the 1 month range.

Can you get blood tests taken by your GP instead of at the hospital?

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