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On 5/16/2019 at 12:48 PM, TrueJustice said:

After stopping Accutane 17 years ago, one thing I have noticed is I have never had the cold or flu, the worst case will be, I will have the sniffles for a few hours (symptoms before a cold or flu) and then it dissapears.

I have not had e flu shot the last 17 years and I have stayed next to many people with the flu and cold plus kiss my girfriend many times while she has a cold, yet never got it. Has anyone ever experienced this ?

It happend to me as well but in my case it started around 20years after roaccutane. My last flu was the A influence, i was sick for one month but since then... I get a flu today... and tomorrow I´m fine, after sweating it whith fever at night

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22 minutes ago, Francisco..Blanquez said:

What about activated carbon? I have been having this for about 3 month and I fell much better. I have no arthritis pain already. Having no meds or suplements. No gluten and no sweet flavors diet (sometimes is dificult....)

As an update, my low level in B12 and folic acid was confirmed, as in every one who had roaccutane. B12 around 300 (250 to 900), folic acid around 5 (4 to 40)

Thanks for update. Low B12 so common.

 

Prevent h.pylori and raise B12. Lactobacillus reuteri?

 

Anyone tried it? Success? Opinions?

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My thoughts are, get a hold of both the bad bacteria and fungus first.

After that hit the good bacteria and replenish the body.

Thx for raising though as I need to ask my kinesiologist about a good probiotic 

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14 hours ago, Calcified said:

Anyone tried it?

Hey what's going on with your calcification? Where is this located at? What test diagnosed this?

Thanks

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Truejustice -

Yes, eliminate bad and replenish with good.

 

Guitarman01 -

Tendon insertion calcification. Xray. 

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Has anybody who been on this drug that experienced hair loss, that’s on head, eyebrows and eyelashes. Did any of youse lose your hair all over your face all together? Or did it eventually grow back. 

So far my experience from this, even 3 months post accutane is its given me a receding hairline which still has not stopped receding, I’m losing hair on my eyes brows and eyelashes too. 

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I'm sure most people still have eyebrows, eyelashes and beard hair, maybe talk to your dermatologist, how high was your dosage?

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On 6/10/2019 at 4:31 AM, Calcified said:

I'm sure most people still have eyebrows, eyelashes and beard hair, maybe talk to your dermatologist, how high was your dosage?

It was 30mg. I only took it for three weeks, but my eyebrows are slowly thinning and I’m loosing hair on eyelashes too. 

Theres nothing my dermatologist is doing, she’s shrugging it off as an coincidence. I have submitted a yellow card form 

https://yellowcard.mhra.gov.uk/ it’s where you report side affects on medications. (UK) maybe everyone should do it. This drug should be removed from the table. 

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On 6/9/2019 at 10:31 PM, Calcified said:

I'm sure most people still have eyebrows, eyelashes and beard hair, maybe talk to your dermatologist, how high was your dosage?

mine thinned and the thickness never came back.

 

11 hours ago, Owen2000 said:

Theres nothing my dermatologist is doing, she’s shrugging it off as an coincidence.

Same with mine. he told me to go see the dr that invented rogaine and said its not the accutane.

someone on here not too long ago was all concerned about copper.

Powerful research tool uncovers link between gut microbiota and copper

https://www.ucalgary.ca/utoday/issue/2019-03-18/powerful-research-tool-uncovers-link-between-gut-microbiota-and-copper

Scientists at the University of Calgary have found that the gut microbiota can change how animals metabolize copper, a trace nutrient vital to everything from normal development to cell function, as well as many metabolic processes.

Strong evidence was found that interactions between microbes and the host regulate the entry of copper into the cells of the large intestine,

Although copper is an important micronutrient in the body, “it is also potentially toxic to cells, so the body tightly regulates it,

There are many more bacterial cells inhabiting every human body than there are human cells, says Vicentini. “There is a lot of research focusing on microbiota now, and how the bugs in our gut are regulating our physiology, involving every aspect of our body,” he says.

i think we finally broke the forum

 

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Thx Guitarman for that copper study - great info that I’ve emailed to my kinesiologist today.

Many of us have copper issues, I’m curious where my levels are at after all the work I’ve done on HPA axis - I may have to get another hair mineral analysis test to be sure as the copper blood tests were never conclusive done a few years ago!!

I do know that there’s a big relationship between copper/zinc/Iron - I’ve been hitting the Zinc & Iron pretty hard over last 3-4 months in clearing bad bacteria and fungus etc so curious if it’s stabilised the copper issue or not.

After clearing bacteria and fungus I believe we look at viruses next - who knows what they’ll find.......

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I wouldnt think this is too far off from what some of us might be dealing with, and no Im not saying a persons brain fog is early onset alzheimers. 

https://www.forbes.com/sites/robinseatonjefferson/2018/07/25/evidence-mounts-that-germs-may-cause-alzheimers/#ffa20294fc96

In the end it will be microbes—bacteria, viruses and fungus—found to be at the root of all disease and aging, and specifically Alzheimer’s, contends geneticist Dr. Rudolph “Rudy” Emile Tanzi.

“The two biggest threats to healthy aging have had to do with dealing with infection,” said Tanzi, who specializes in Alzheimer’s and the brain at Massachusetts General Hospital (MGH) and Harvard Medical School.  “Think about it. When we increased the lifespan from 35 to 50, it was by covering the sewers. When we increased the lifespan from 50 to 75, it was with the use of antibiotics. Now we are looking for viruses in all of the major life-threatening diseases of our time—Alzheimer’s, cancer, Parkinson’s—and guess what? Infection is now cropping up in all of them.”

It’s one of the reasons scientists in Tanzi’s lab at MGH are mapping the microbiome of the brain—the population of microorganisms, some helpful and some pathological, that exists inside the brain

Named in 2015 as one of TIME100 Most Influential People in the World, Tanzi has published nearly 500 research papers and has received the highest awards in his field, including the Metropolitan Life Foundation Award and Potamkin Prize and the 2015 Smithsonian American Ingenuity Award.

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Really important possibility right here. 

2/3rds of what you take in...

https://www.google.com/amp/s/www.forbes.com/sites/daviddisalvo/2019/06/10/study-our-gut-bacteria-may-be-dismantling-the-pills-we-take-what-you-should-know/amp/

Jun 10, 2019,12:12 am

Study: Our Gut Bacteria May Be Dismantling The Pills We Take - What You Should Know

Researchers tested 271 oral drugs, including the antidepressant Fluoxetine (brand name Prozac), the blood-pressure med Diltiazem hydrochloride (brand name Cardizem), and a cancer drug called Imatinib (brand name Gleevec). They exposed the drugs to 76 dominant bacterial strains from the microbiome, including the common strains Clostridiaand Bacteroides, in lab culture tests.

The results showed that the bacteria metabolized two-thirds of the drugs. Small groups of bacteria targeted some of the drugs, while bacterial armies devoured others.

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5 hours ago, guitarman01 said:

Really important possibility right here. 

2/3rds of what you take in...

https://www.google.com/amp/s/www.forbes.com/sites/daviddisalvo/2019/06/10/study-our-gut-bacteria-may-be-dismantling-the-pills-we-take-what-you-should-know/amp/

Jun 10, 2019,12:12 am

Study: Our Gut Bacteria May Be Dismantling The Pills We Take - What You Should Know

Researchers tested 271 oral drugs, including the antidepressant Fluoxetine (brand name Prozac), the blood-pressure med Diltiazem hydrochloride (brand name Cardizem), and a cancer drug called Imatinib (brand name Gleevec). They exposed the drugs to 76 dominant bacterial strains from the microbiome, including the common strains Clostridiaand Bacteroides, in lab culture tests.

The results showed that the bacteria metabolized two-thirds of the drugs. Small groups of bacteria targeted some of the drugs, while bacterial armies devoured others.

I saw a documentary a while back and the difference between a overweight twin and a thin twin was bacteria. Like the bacteria was dismantling the food.

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If Albert can be this honest the least everyone else they can do is report your side effects.

20 Isotretinoin deaths reported to MHRA just  in April alone.

https://yellowcard.mhra.gov.uk/

 

http://www.adrreports.eu/en/

 

10351165_300448070160232_440477427951843
 

Please help me by sharing this post about the dangers of taking ISOTRETINOIN (or ROACCUTANE) for acne. 
As most of you will know, our beautiful daughter, Annabel, took her own life a month ago. She was 15 years old. We have struggled to make any sense of this as she was a happy go lucky teenager with no signs of depression. However, she was taking the anti-acne drug Isotretinoin where one of the side effects we were told to look out for was low mood and depression which can in very rare cases can lead to suicide. Annabel did not have depression nor did she have low mood. What they didn’t tell us to look out for are suicidal impulses that can come out of nowhere. Since this tragedy happened we have read of many cases of similar tragedies following use of Roaccutane/Isotretinoin. If we had known that these suicidal impulses can come out of nowhere we would never have agreed to her taking these tablets, which we have since discovered were developed initially as an anti-cancer chemotherapy drug. We will never get our Annabel back but if we can ask you to share our story maybe it can help to save a life. Our hearts are broken. We don’t want anyone else to go through the tragic waste of a beautiful young life. PLEASE SHARE

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They updated my file. Im able to view this now. I thought some might be curious, you did have another person that took accutane test positive for this same test.

Mayo.png.394d0310b039f6874ac43d26db479fcf.png

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Results of the propeciahelp post-drug symptoms survey are now available for viewing here.

 

The report is regenerated daily as surveys are completed.  There will be more reports coming in the future to describe these conditions in greater detail. Stay tuned.

 

Not a surprise that there appears to be a strong overlap in the main symptoms and their level of severity for PAS, PFS, and PSSD, indicative of a single condition. They turned out to be even more similar than expected, which may be due to a standardized survey removing the bias toward discussing certain side effects within each community of patients. For instance, PSSD was considered to only include sexual symptoms until recently.

 

Participation from the PAS community has been very poor considering how many people have taken the drug.

 

We need at least 50 PAS respondents to yield results with sufficient statistical power to be worthwhile.

 

Can anyone who regularly reads this thread and has yet to complete the symptoms survey please explain why they have chosen to not participate?

 

Thanks.

 

A preview of the first page of results:

 

image.png.e0f71ab7671a0be7690f458fe42a0947.png

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On 6/17/2019 at 6:20 AM, guitarman01 said:

They updated my file. Im able to view this now. I thought some might be curious, you did have another person that took accutane test positive for this same test.

Mayo.png.394d0310b039f6874ac43d26db479fcf.png

 

Have you noticed any improvements with bifido probiotics?

 

I have been taking a probiotic with only lactobacillus types and does seem to help.

I'm not sure if it's the bacteria, maybe immune suppression ?

Anyone tried lactobacillus only?

I had a few nights of terrible acid reflux, it was brutal. 

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On 6/17/2019 at 7:22 AM, Dubya_B said:

Can anyone who regularly reads this thread and has yet to complete the symptoms survey please explain why they have chosen to not participate?

 

Thanks.

 I will absolutely have this done by this weekend. Even though I post on here frequently, Im really only spending a few minutes. I know the survey said to set aside an hour. While I think alot of us know about the similarities, it's good to have actual numbers and documentation to back this up. Looking at the activity of this thread, I might look into the pfs forum more so when I have the chance as well.

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On 6/18/2019 at 7:31 AM, Calcified said:

 

Have you noticed any improvements with bifido probiotics?

 

I have been taking a probiotic with only lactobacillus types and does seem to help.

I'm not sure if it's the bacteria, maybe immune suppression ?

Anyone tried lactobacillus only?

I had a few nights of terrible acid reflux, it was brutal. 

here's the thing. To look at this properly these strains need to be looked at on a individual basis. So you got some acid reflux. Was this the body's defense mechanism to what might have been considered a foreign invader? Could good bacteria play a positive role in acid secretion? could over abundance lead to atrophic gastritis that lowers acid production? Ive seen all possibilities unfortunately.

Are we suppose to keep all bacteria at bay, even good bacteria? 

I can say this much. I have tried numerous antibiotics over the years.

amoxicillin, amoxicillin clavulanate, zpac, Levofloxacin, ciprofloxacin?

I never felt better on any of them. id be curious to try a strictly antifungal drug ( i have candida antibodies) to rule that out as well

Ive seen it mentioned in a study, despite nutrient repletion, it did not correct malnutrition.

B. longum was the first to go.

On bifido, I can site numerous examples why this all needs to be looked at on a individual basis.

Serotonin Transporter Deficiency is Associated with Dysbiosis and Changes in Metabolic Function of the Mouse Intestinal Microbiome

https://www.nature.com/articles/s41598-019-38489-8

Bifidobacterium longum CCM 7952 Promotes Epithelial Barrier Function and Prevents Acute DSS-Induced Colitis in Strictly Strain-Specific Manner

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0134050

Effects of four Bifidobacteria on obesity in high-fat diet induced rats

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2904885/

CONCLUSION: The response of energy metabolism to administration of Bifidobacteria is strain dependent. Different strains of Bifidobacteria might drive different directions of fat distribution.

 

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