Jump to content
Acne.org
Search In
Find results that contain...
Find results in...

Recommended Posts

I'll bear it in mind. However, I've managed to overcome the fatigue, emotional blunting with no help from doctors already. I'm 95% of the way there with my gastric issues now, again no help from doctors. Now the sexual dysfunction + ED are fading too, once again without the help of doctors. All the doctors have wanted to do is either tell me I'm a hypochondriac or shove drugs down my throat.

I don't have time to rule out 'everything', that would literally cost 100's of thousands of pounds. If you have research to suggest this is parathyroid related, post it up (more convincing than 'they have the same side effects', because if we were judging by that alone everything is problematic). I will have a look over it and make a decision from there. Currently what I'm betting my money on is 5AR inhibition as it is comparatively well researched and makes sense in explaining the sexual side effects.

I can't remember your name, but the MS sufferer this might be handy for you:

http://link.springer.com/article/10.1007/s00213-004-2084-3

Dubya is still being a boss and doing his research. He mentioned MS and accutane can both alter allopregnanolone levels and might be the cause of 'some' of the related sides. He's just sent me this study showing 'the green' can actually increase alloprgnanolone which may be why smoking up can improve symptoms. I can't seem to access the full transcript currently as for some reason my laptop does not like Springer journals -_-

EDIT: This would explain why benefits can be seen without high CBD I would imagine.


Edited by Crank92

Share this post


Link to post
Share on other sites

I'll bear it in mind. However, I've managed to overcome the fatigue, emotional blunting with no help from doctors already. I'm 95% of the way there with my gastric issues now, again no help from doctors. Now the sexual dysfunction + ED are fading too, once again without the help of doctors. All the doctors have wanted to do is either tell me I'm a hypochondriac or shove drugs down my throat.

I don't have time to rule out 'everything', that would literally cost 100's of thousands of pounds. If you have research to suggest this is parathyroid related, post it up (more convincing than 'they have the same side effects', because if we were judging by that alone everything is problematic). I will have a look over it and make a decision from there. Currently what I'm betting my money on is 5AR inhibition as it is comparatively well researched and makes sense in explaining the sexual side effects.I can't remember your name, but the MS sufferer this might be handy for you:

http://link.springer.com/article/10.1007/s00213-004-2084-3

Dubya is still being a boss and doing his research. He mentioned MS and accutane can both alter allopregnanolone levels and might be the cause of 'some' of the related sides. He's just sent me this study showing 'the green' can actually increase alloprgnanolone which may be why smoking up can improve symptoms. I can't seem to access the full transcript currently as for some reason my laptop does not like Springer journals -_-

EDIT: This would explain why benefits can be seen without high CBD I would imagine.

I will swing by later with my research. Please tell me what you need in regards to it and I'll do my best to provide it (as far as research on symptoms or lab levels go etc. ) Pursuing this diagnosis saved my life in many ways so hopefully I can give back.

Share this post


Link to post
Share on other sites

Has anyone ever looked into the connection between accutane and lupus? I've exhibited a lot of symptoms of lupus. One that bothers me lately is frequent, paintful sores inside my nose/nostrils. My nose can become inflamed and it's really uncomfortable. I see that's a symptom of lupus too. I do exhibit the rest of them as well.

Otherwise I suppose winter dryness is the more likely explanation. Reactions to food or gut problems related? Any good remedies for nose sores? hah

edit: does anyone else get inflammation or puffy eyes after consuming eggs? I just ate some and im wondering if I shouldn't be.... (also added goat cheese)

Edited by volcom3453

Share this post


Link to post
Share on other sites

What happened to the post? 69 pages disappeared

lupus and other auto immune disease is when the body cells became too toxic and flushed away by the immune system. Correled ofc with a lack of true nutrients.

Edited by anonyy

Share this post


Link to post
Share on other sites

What happened to the post? 69 pages disappeared

lupus and other auto immune disease is when the body cells became too toxic and flushed away by the immune system. Correled ofc with a lack of true nutrients.

Which pages are missing? Looks like the entire thread is intact.

Share this post


Link to post
Share on other sites

Hi everyone,

I have spent the past 1 1/2 researching for 6-7 hours a day 7 days a week trying to figure out what Accutane has done to me and everyone else. I am not going to go into detail about everything as it would probably take a whole day to explain everything I've read and how it all connects. However, I do want to touch on a few things I have recently discovered and am extremely curious about. I have noticed a few common things among the people who have gotten better:

Focused on nutrition (raw foods, juicing, alkaline vs acidic)

Healing/ Cleansing the liver

Accutane is processed by the liver and excreted through the bile. However, bile gets recycled time and time again, prolonging the time Accutane is in the body. This puts and end to the people who say it is out of our systems in a month. I read a post about someone who juiced for a month and all their symptoms went away only to come back 5 days after eating normal foods again. I think that is because once they started eating the bile began getting excreted and reabsorbed in the intestines thus causing their side effects again. I have also realized that Accutane causes alot of side effects that are similar to Thyroid problems. That being said it is well known that Accutane is very hard on the liver which is aside from the heart, the most important organ in the human body. The liver is even in charge of converting 60-80% of the inactive thyroid T4 hormone into the active T3 hormone. I also did some research on people who have hypothyroid or hyperthyroid. One thing that connects is in the people with hypothyroidism there experienced moderate relief from liver cleanses such as health raw foods, coffee enemas, and other various things. I am by no means saying that the connections I have made are correct but I personally believe that there is a connection between Accutane, the liver, conversion of thyroid hormones, and our side effects. It is well known that thyroid disorders often go undetected due to the medical fields last of knowledge and/or testing. Curious if anyone else has ran across similar things as I have. I don't claim to be a genius and don't want to argue with anyone if they disagree. I just want to get better and have my life back so please refrain from bashing my ideas unless it is in a positive manner and will help us all get better.

Also,

I personally believe no matter what your side effects are we are all suffering for the same reason, our bodies just express it in a different manner such as hair loss for one person and muscle pain for another. The body works as a whole, every organ depends on each other, especially the liver.

The thing that has helped me the most has been juicing/ raw food with coffee enemas and a few supplements like TUDCA, B Complex and Niacin with rebounding to help my body in any way possible. The only thing that sucks is that when I go through a rough time I go crazy on processed foods, thus erasing my progress. I say that because when I juice fast I can feel the Accutane being processed by my body (liver) and made into bile to be excreted when I eat or do a coffee enema.

Thanks everyone, I pray we all find a finally answer to our problems.

Share this post


Link to post
Share on other sites

There are people who have had lupus like symptoms or drug induced lupus from Accutane or other drugs. I can say that Lamarr basically had lupus induced from Accutane and when hit the fan for me about 5yrs ago now I had a speckled ds antibody and tested positive for another test for lupus, but the others came back fine. I had sores in my mouth and nose, flushing, hair loss etc. However, low thyroid can cause severe dryness and sores, diabetes and mineral and vitamin deficiency also.

Share this post


Link to post
Share on other sites

There are people who have had lupus like symptoms or drug induced lupus from Accutane or other drugs. I can say that Lamarr basically had lupus induced from Accutane and when hit the fan for me about 5yrs ago now I had a speckled ds antibody and tested positive for another test for lupus, but the others came back fine. I had sores in my mouth and nose, flushing, hair loss etc. However, low thyroid can cause severe dryness and sores, diabetes and mineral and vitamin deficiency also.

You say you "had" it. What did you do to recover or lessen the side effects such as the sores?

Also I have had difficulty swallowing for a couple years now. Throat always feels clenched. Could this be a sign of parathyroid tumors and thus hypoparathyroidism?

Share this post


Link to post
Share on other sites

What happened to the post? 69 pages disappeared

lupus and other auto immune disease is when the body cells became too toxic and flushed away by the immune system. Correled ofc with a lack of true nutrients.

Which pages are missing? Looks like the entire thread is intact.

I tought i saw 300 or 301 page 2 days ago, my bad.

Edited by anonyy

Share this post


Link to post
Share on other sites

Has anyone ever looked into the connection between accutane and lupus? I've exhibited a lot of symptoms of lupus. One that bothers me lately is frequent, paintful sores inside my nose/nostrils. My nose can become inflamed and it's really uncomfortable. I see that's a symptom of lupus too. I do exhibit the rest of them as well.

Otherwise I suppose winter dryness is the more likely explanation. Reactions to food or gut problems related? Any good remedies for nose sores? hah

edit: does anyone else get inflammation or puffy eyes after consuming eggs? I just ate some and im wondering if I shouldn't be.... (also added goat cheese)

Apparently some have actually tested positive for automimmunes like lupus or sjogrens. I had symptoms that seemed like they fit with nearly all of them, but I had a complete autoimmune panel run on my blood and everything came up negative. I even had a lip biopsy done for sjogrens, which also came up negative. If you have the time/money, I believe it's important to get the tests done if for nothing else than your own peace of mind, and at most because you may actually have one or (potentially) more.

After that, you can rejoin the ranks here with more things crossed off the list and focused on other possible causes/benefits.

I am currently awaiting a full metabolic test that will hopefully indicate any liver/kidney issues as well as the PTH/calcium test for hyperparathyroidism. Will post once I have results.

Cheers

Share this post


Link to post
Share on other sites

So, finally...i read last 30 pages...and I'm really exhausted from it.

I would like to sum it up :

for hair loss, i need to try castor oil

to heal my body entirely from my side eff. (hair loss, joint stiffness, dry eyes, thin-slow healing skin) i need to make Rick Simpson hemp oil...and take it daily or to try fasting ...or reduce my diet...

As I said previously I'm currently taking dr. Clark anti parasite program (it removes parasites and toxins out of body), which includes 2x liver flush.

When i stopped taking Selenium, my scalp once again developed dandruff and became itchy, so now i wash my hair with La roche posay Kerium DS shampoo and it helps a lot with itchiness and dandruff i recommend it!

I will try this supplement to treat hairloss http://www.vitacost.com/kal-hair-force , it has L glutathion, so maybe it can also help with my eye dryness too.

I'm waiting for my test results for autoimmune disorders, and i will also get my antiTPO check....so i will know for certain what is going on with my immune system..as i said in prior posts...i'm not willing to take anything that goes with recipe...just natural remedies or vit.& mineral supply. I must say that i find it very interesting that almost all of us took doxy or minocycline prior accutane. When i took doxy i had bad stomach cramps one and a half month afther finishing with doxy i started with this poison...accutane just finished me off...9 days were long enough to develop some problems. (sorry for my english, i'm not in the mood for spell checking :D)

Edited by ivmi

Share this post


Link to post
Share on other sites

Hey guys, I stopped accutane almost 5 months ago and ever since then have had fairly persistent hair loss (I posted my situation a few pages back). Oddly enough, about 10 days ago the shedding stopped. This lasted for 4 days and then it started up again. Have any of you hair loss sufferers had this experience?

Share this post


Link to post
Share on other sites

Has anyone ever looked into the connection between accutane and lupus? I've exhibited a lot of symptoms of lupus. One that bothers me lately is frequent, paintful sores inside my nose/nostrils. My nose can become inflamed and it's really uncomfortable. I see that's a symptom of lupus too. I do exhibit the rest of them as well.

Otherwise I suppose winter dryness is the more likely explanation. Reactions to food or gut problems related? Any good remedies for nose sores? hah

edit: does anyone else get inflammation or puffy eyes after consuming eggs? I just ate some and im wondering if I shouldn't be.... (also added goat cheese)

Apparently some have actually tested positive for automimmunes like lupus or sjogrens. I had symptoms that seemed like they fit with nearly all of them, but I had a complete autoimmune panel run on my blood and everything came up negative. I even had a lip biopsy done for sjogrens, which also came up negative. If you have the time/money, I believe it's important to get the tests done if for nothing else than your own peace of mind, and at most because you may actually have one or (potentially) more.

After that, you can rejoin the ranks here with more things crossed off the list and focused on other possible causes/benefits.

I am currently awaiting a full metabolic test that will hopefully indicate any liver/kidney issues as well as the PTH/calcium test for hyperparathyroidism. Will post once I have results.

Cheers

I only had blood tests for srojens (twice) both times negative. I want to get the same tests as you too however.

thanks for the advice!

Hey guys, I stopped accutane almost 5 months ago and ever since then have had fairly persistent hair loss (I posted my situation a few pages back). Oddly enough, about 10 days ago the shedding stopped. This lasted for 4 days and then it started up again. Have any of you hair loss sufferers had this experience?

Did you do anything differently those days perhaps?

Share this post


Link to post
Share on other sites

Has anyone ever looked into the connection between accutane and lupus? I've exhibited a lot of symptoms of lupus. One that bothers me lately is frequent, paintful sores inside my nose/nostrils. My nose can become inflamed and it's really uncomfortable. I see that's a symptom of lupus too. I do exhibit the rest of them as well.

Otherwise I suppose winter dryness is the more likely explanation. Reactions to food or gut problems related? Any good remedies for nose sores? hah

edit: does anyone else get inflammation or puffy eyes after consuming eggs? I just ate some and im wondering if I shouldn't be.... (also added goat cheese)

Apparently some have actually tested positive for automimmunes like lupus or sjogrens. I had symptoms that seemed like they fit with nearly all of them, but I had a complete autoimmune panel run on my blood and everything came up negative. I even had a lip biopsy done for sjogrens, which also came up negative. If you have the time/money, I believe it's important to get the tests done if for nothing else than your own peace of mind, and at most because you may actually have one or (potentially) more.

After that, you can rejoin the ranks here with more things crossed off the list and focused on other possible causes/benefits.

I am currently awaiting a full metabolic test that will hopefully indicate any liver/kidney issues as well as the PTH/calcium test for hyperparathyroidism. Will post once I have results.

Cheers

I only had blood tests for srojens (twice) both times negative. I want to get the same tests as you too however.

thanks for the advice!

>Hey guys, I stopped accutane almost 5 months ago and ever since then have had fairly persistent hair loss (I posted my situation a few pages back). Oddly enough, about 10 days ago the shedding stopped. This lasted for 4 days and then it started up again. Have any of you hair loss sufferers had this experience?

Did you do anything differently those days perhaps?

Literally nothing at all. Ate the same food, supplements, etc. I guess I haven't been freed of hair loss quite yet lol.

Share this post


Link to post
Share on other sites

Found a fascinating document today, which includes a detox protocol that has been used with war vets, police officers and drug addicts.

http://www.saunahealthsystems.com/docs/P6_Excerpts_Gulf_War_Study_protocol.pdf

http://scholar.google.de/scholar?start=10&hl=en&as_sdt=0,5&sciodt=0,5&cites=16879065592062380888&scipsc=

basically it is about excercise, niacin and sauna as well as polyunsaturated oil.

Dr. George Yu talks in the following video about pretty much the same protocol.

____

I have looked a little deeper into it, I am a big fan of doing saunas and love charcoal (Dr. Yu is talking about it as well), however, the protocol seems to be linked to Scientology somehow, which leaves a foul smell. For some reason you find studies through google scholar that have been carried out using this protocol successfully at unis as well known as UCLA. Kinda strange. Well, sauna definitly works for me.

Edited by Undergroundwellness

Share this post


Link to post
Share on other sites

Hi everyone,

I have spent the past 1 1/2 researching for 6-7 hours a day 7 days a week trying to figure out what Accutane has done to me and everyone else. I am not going to go into detail about everything as it would probably take a whole day to explain everything I've read and how it all connects. However, I do want to touch on a few things I have recently discovered and am extremely curious about. I have noticed a few common things among the people who have gotten better:

Focused on nutrition (raw foods, juicing, alkaline vs acidic)

Healing/ Cleansing the liver

Accutane is processed by the liver and excreted through the bile. However, bile gets recycled time and time again, prolonging the time Accutane is in the body. This puts and end to the people who say it is out of our systems in a month. I read a post about someone who juiced for a month and all their symptoms went away only to come back 5 days after eating normal foods again. I think that is because once they started eating the bile began getting excreted and reabsorbed in the intestines thus causing their side effects again. I have also realized that Accutane causes alot of side effects that are similar to Thyroid problems. That being said it is well known that Accutane is very hard on the liver which is aside from the heart, the most important organ in the human body. The liver is even in charge of converting 60-80% of the inactive thyroid T4 hormone into the active T3 hormone. I also did some research on people who have hypothyroid or hyperthyroid. One thing that connects is in the people with hypothyroidism there experienced moderate relief from liver cleanses such as health raw foods, coffee enemas, and other various things. I am by no means saying that the connections I have made are correct but I personally believe that there is a connection between Accutane, the liver, conversion of thyroid hormones, and our side effects. It is well known that thyroid disorders often go undetected due to the medical fields last of knowledge and/or testing. Curious if anyone else has ran across similar things as I have. I don't claim to be a genius and don't want to argue with anyone if they disagree. I just want to get better and have my life back so please refrain from bashing my ideas unless it is in a positive manner and will help us all get better.

Also,

I personally believe no matter what your side effects are we are all suffering for the same reason, our bodies just express it in a different manner such as hair loss for one person and muscle pain for another. The body works as a whole, every organ depends on each other, especially the liver.

The thing that has helped me the most has been juicing/ raw food with coffee enemas and a few supplements like TUDCA, B Complex and Niacin with rebounding to help my body in any way possible. The only thing that sucks is that when I go through a rough time I go crazy on processed foods, thus erasing my progress. I say that because when I juice fast I can feel the Accutane being processed by my body (liver) and made into bile to be excreted when I eat or do a coffee enema.

Thanks everyone, I pray we all find a finally answer to our problems.

Talk about niacin, which brand, form and dose do you use? It is also a vital part of the sauna protocol I posted above, supposedly it makes the body release fat in which the toxins are stored, but I am not quite sure. I have had good success with using the sauna, however, I have not gone for 2,5 hours or more as they are recommend in the protocol, but am aiming for that length in the future. Also I never exercised before going into the sauna.

Share this post


Link to post
Share on other sites

@tanedout- You still seeing benefits from the vaporizer?

Yeah so far so good - It only took a few days for me to notice the benefits. I've found I now feel a bit aroused just from a bit of visual stimulation. It's not like I get a hard-on as soon as I catch a glimse of some tits, but I can feel an increased blood flow down there and a tingly horny feeling that was completely abscent before.

I've also found that when masturbating I've got more feeling there, and definitely the biggest improvement is significantly better orgasim. Previously since tane it was hardly pleasurable really, but now it really feels great.

It's too early to say if the improvements will be sustained, but I'm going to keep vaping until I can get some oil sorted in a few months!

Share this post


Link to post
Share on other sites

I had a bad experience with my infrared sauna , likely I was in there too long 2 hours or so , also infrared saunas penetrate the skin over 2 inches some say 2.5 anyways to make a long story short I reactivated isotretinoin had heart papulations for a day after and was dizzy for a month after , my leg muscles were weak for about a week it was a unpleasant and bizzare experience and reminded me of taking Accutane many years ago same sides but more intense , I was shocked to say the least. Over a months time the side effects dissipated . There is no doubt in my mind this drug does permanent damage.

Perhaps a traditional sauna would be better.

Edited by Gladiatoro

Share this post


Link to post
Share on other sites

Hi guys...i found this on the internet...it really makes sense to me!

I think that i will try with this supplement http://pureformulas.com/bcomplex-plus-120-vegetable-capsules-by-pure-encapsulations.html#sthash.3QGeazRP.qyvcywHL.dpbs after when I'm done with my anti parasite program and liver flushing...they are suggesting it on this site...http://howirecovered.com/active-b12-therapy-faq/maybe it can solve my problem for good...someone attached something about methylation few pages earlier...so I started to investigate...and i found that site...

My selenium is working as always :D but...i want something permanently...i want to forget about accutane forever.

Edited by ivmi

Share this post


Link to post
Share on other sites

Have you ever been tested for your thyroid? I don't know what other symptoms beside hair loss and the sores you mentioned. I had nose and sores mouth. I sometimes wonder if I had drugged induced lupus which can go away. About a year later I had my ds antibody strand tested and it came back negative. I still though can 't take any sulfa or nsaids which lupus people can't take. Though I don't like prescription meds I did at that point get on Plaquenil a anti malaria drug and take b12 and Vit C. I was desperate at the time and in bad shape. I don't take plaquenil any longer though. I also stayed away from any acidic foods. My way of living food wise is very simple.

It also could be from the chronic dryness as when I got dx with type 1 diabetes and started insulin all my dryness, vision and most issues have gone away. I live by Chicago and this winter was horrible. However, a lot of autoimmune issues can have a lot of the same symptoms. Pm if you have any more questions. I was out of town so sorry for the delay in response.

Share this post


Link to post
Share on other sites

Found a fascinating document today, which includes a detox protocol that has been used with war vets, police officers and drug addicts.

http://www.saunahealthsystems.com/docs/P6_Excerpts_Gulf_War_Study_protocol.pdf

http://scholar.google.de/scholar?start=10&hl=en&as_sdt=0,5&sciodt=0,5&cites=16879065592062380888&scipsc=

basically it is about excercise, niacin and sauna as well as polyunsaturated oil.

Dr. George Yu talks in the following video about pretty much the same protocol.

____

I have looked a little deeper into it, I am a big fan of doing saunas and love charcoal (Dr. Yu is talking about it as well), however, the protocol seems to be linked to Scientology somehow, which leaves a foul smell. For some reason you find studies through google scholar that have been carried out using this protocol successfully at unis as well known as UCLA. Kinda strange. Well, sauna definitly works for me.

Here is another paper on the topic titled "Elimination of persistent toxicants from the human body", contains a lot of practical advice and published in Human & Experimental Toxicology:

http://het.sagepub.com/content/30/1/3.full.pdf+html

http://het.sagepub.com/content/30/1/3

Share this post


Link to post
Share on other sites

Just got a call today and they advised that all my labs were normal- metabolic: kidney/liver and parathyroid as well as running all autoimmunes again. Keeps seeming like no matter what gets tested, it comes back normal and "healthy." Back to the drawing board.

Share this post


Link to post
Share on other sites

Hey Nick

I'm in the same boat. The only problems that showed up on lab tests in my early 20's was low T and "high-ish" prolactin, but in recent years all my lab tests have looked pretty good but I'm actually feeling worse.

I always kept my fingers crossed that something would turn-up out of the ordinary so I at least had some indication of what to treat, and ...nothing.

Even treating the symptoms was a bust.

There just plain has to be some (rational) explanation for what is going on and we will find it someday. Hopefully sooner than later.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Personalized Advice Quiz - All of Acne.org in just a few minutes

×