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Posted
I did not feel anything, it's been 5 days since I stopped taking it and I did not feel exactly anything, it seems that my libido has decreased even more so now that I stopped, it only served to make me fucking that **** even more, I was hoping for it .. .

I will wait another 2 days, if nothing happens I will take it for another 25 days

 

my hair still falls when I pull with my hand a little

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Posted (edited)
The old RoAccutane Action Group forum in 2004:

http://web.archive.org/web/20041231044438/http://www.xsorbit1.com:80/users/davec/index.cgi

This appears to be the most complete image, but there are sporadic pages missing.


More recent posts are archived up until ~Oct 2005
http://web.archive.org/web/*/http://ragforum.com/

. Edited by Dubya_B

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Posted

who here has focused solely on clean eating and regular exercise to attempt to get rid of their problems? has it worked? cognitive improvement?

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Posted
2 minutes ago, Iamme. said:

who here has focused solely on clean eating and regular exercise to attempt to get rid of their problems? has it worked? cognitive improvement?


I’ve been doing mostly a vegtable diet for 4 months and joint pain has gone away and stools are way better. Still have the dry skin and hair. You have to fix the gut which can take time. 

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Posted
8 hours ago, Colinboko said:
Shared this before

Found it interesting because I suffer weight gain and slight gyno. 

Heart health after tane is an interesting area that may hold some info. Could the erectile dysfunction, the fatigue, excess sweating, varicose veins, breathlessness etc that many of us suffer be due to altered blood flow?? Possibly.....and could it be linked to the heart?? Quiet possible I think, so definitely an area worth investigating as much as anything else.

Best of luck to all in 2018 - “year of the earth dog”, may it be a year of balance and fairness for us all - the scales are surely due to tip in our favour after all we’ve endured!!!!

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Posted (edited)

That's interesting, I dunno if its nerves or blood flow, but i have the same issue with my limbs falling asleep much easier post tane and even have spasticity with my hand (can't open it) when leaning on my elbow or in an awkward position. Also, in the cold I'll get Raynaud's phenomenon (white fingertips) which suggests it could be circulation issue.

http://the-medical-dictionary.com/raynaud_s_phenomenon_article_2.htm

Raynaud's is closely related to connective tissue diseases like scleroderma. It is also linked to angina and migraine suggesting a generalized defect that predisposes arteries in many regions to vasospasm. Hair loss is another less-known problem associated with Raynaud's. More recently, accelerated destruction of platelets and release of agents such as serotonin or thromboxane A2 have been proposed as causing vasoconstriction in some patients with Raynaud's phenomenon.

Raynaud's is caused by cancer chemotherapy drugs (such as bleomycin) and certain other chemicals. Nervous and muscular system damage by radiation treatments may also lead to the disorder.

Edited by macleod

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Posted (edited)

Just as the accutane enters your skin cells it also enters every other cell in your body, including braincells. Therefore there are so many side effects, having a dry brain or digestive system is really no good. Might it be that the body is generally dehydrated?

Edited by Duperele

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Posted

I was diagnosed with Raynaud's Phenomenon BEFORE Accutane.
I also have one leg that is slightly longer than the other one, again this was before Accutane.
I have Crowded lower teeth as well that maybe could have used braces.
The first is vascular, the second is bone related.
Depending on what you guys are dealing with, I want you to think long and hard if you had any signs of anything going on before 
Accutane, that than a drug like this could have greatly exasperated. 



 

On 12/28/2017 at 6:02 PM, guitarman01 said:

low FSH

Looking at this and luteinizing hormone, these are involved in fertility in both men and women.
 

Androgen Deprivation Therapy Induces Vitamin K Loss in Men with ...

... of a luteinizing hormone-releasing hormone agonist and a nonsteroidal antiandrogen, bicalutamide. Serum total testosterone levels were measured at 3 months to confirm reduction to a castration level (<50 ng/dl). Monitoring was continued until the start of bone targeting therapy using bisphosphonates and/or vitamin K2.
 

Vitamin K and the Nervous System: An Overview of its Actions

by G Ferland - ‎2012 - ‎Cited by 63 - ‎Related articles
Mar 2, 2012 - Specifically, Gas6 has been shown to prevent gonadotropin-releasing hormone neurons from undergoing serum deprivation–induced apoptosis, an effect mediated by the extracellular signal–regulated (ERK) and the serine/threonine protein kinase (Akt), the latter being a downstream component of the ...


 
Gonadotropin-releasing hormone. ... GnRH stimulates the synthesis and secretion of the two gonadotropins—luteinizinghormone (LH) and follicle-stimulating hormone (FSH)—by the anterior pituitary gland.

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Posted
16 hours ago, Iamme. said:

who here has focused solely on clean eating and regular exercise to attempt to get rid of their problems? has it worked? cognitive improvement?

See FCHawk's posts - he has recovered.

He was  interested in TBI connection - see the video someone just posted.
Look up Dr Mark Gordon in other youtube discussions.
We have a way to contact him but don't know if he will reply.

I have always believed/hoped that the vaxxed protocol might help. Diet, detox, dupplements and bariatric chambers.
Some include iodine, NAC and glutathione IV.

This article is worth a read:

http://www.glutathionediseasecure.com/ulcerative-colitis-glutathione.html

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Posted (edited)

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent  way unfortunately ,  you have to watch your diet ie vitamin A and retinol to be avoided or at least limited   , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they  are after all permanent .... this board has been officially shut down , by me .

Edited by Gladiatoro

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Posted

The we should at least find anway to seek a law suit of some kind. Roche completely deserves it.

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Posted
I noticed only male users in this forum report about long-term conditions after accutane, is it right?

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Posted
41 minutes ago, Gladiatoro said:

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent  way unfortunately ,  you have to watch your diet ie vitamin A and retinol to be avoided or at least limited   , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they  are after all permanent .... this board has been officially shut down , by me .


Before you shut it down, what are you taking these days to ease the pain??

Any other things like hyperbaric chamber Yoga? :)

You folk in the US should be happy, I heard today you can buy pot legally in California?

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Posted
2 minutes ago, TrueJustice said:

Before you shut it down, what are you taking these days to ease the pain??

Any other things like hyperbaric chamber Yoga? :)

You folk in the US should be happy, I heard today you can buy pot legally in California?
Who gives a damn about pot when our lives are ruined

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Posted

People who are ill, people who have to live with pain etc - that’s who!!!

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Posted (edited)
4 hours ago, TrueJustice said:

Before you shut it down, what are you taking these days to ease the pain??

Any other things like hyperbaric chamber Yoga? :)

You folk in the US should be happy, I heard today you can buy pot legally in California?
Maunawai water the best and purest water in the world , and remember don’t rub your skin unless you want to have a heart attack our skin cell receptors have been permanently messed up.

Trust me I found this out the hard way by rubbing witch hazel on my chest for mild acne . I had chest pain for three days after that coupled with heart populations, so don’t do it.

I must say
whoever masterminded this CHEMO torture deserves a monument in HELL. Edited by Gladiatoro

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Posted
5 hours ago, sirhc30 said:
I noticed only male users in this forum report about long-term conditions after accutane, is it right?

No, we have several women sufferers that check in once and a while on this thread and we get messages from new sufferers every now and then.  They are just more practical and see that this thread doesn't lead anywhere and move on with their lives.

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Posted

Hi guys, im currently 3 months into accutane, anyway im practicing semen retention, but ever since I started taking accutane ive been leaking semen when sleeping ! CAN SOMEONE HELP ME, SEMEN LEAKAGE MAKES ME TIRED, RUINS MY CONFIDENCE, NO ENERGY

IF ANYONE KNOWS ANYTHING PLEASEE TELL ME WHY THIS IS HAPPENING AND WHAT I CAN DO ABOUT IT!! SRLY CONSIDERING STOPPING ACCUTANE EVEN THOUGH ITS CLEARED MY SKIN UP, SEMEN RETENTION IS MORE IMPORTANT TO ME

 

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Posted

^ can any mod delete above post?

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Posted

Your brain fog is caused by depression. 
Every time I hear somebody saying "Accutane caused brain fog", "finasteride caused my brain fog" and shit like that I know that these medications only increased the depression that already was there but kept in check. 

Indeed both Finasteride and Accutane, have as side effects an aggravating of depression symptoms. 

Depression is cased by brain chemical imbalances (neurotrasmitters don't work as they should) and that cause your inability to concentrate, focus, being productive, lack of motivation, lack of energy, difficult to put a sentence together, forgetfulness ecc 

Many people just don't accept depression as a diagnosis, they think they have some hidden secret disease but what they have is just that: depression or major depression. 

Taking antidepressants can somehow improve the symptoms but the only thing that will cure you is fixing what you don't like in your life and that deep down make you suffer. 
Is that acne? Another physical flaw? A relationship? Your family? Work? University? A disease? ecc
Fixing what make you suffer is very difficult and that's why very few people get rid of their brain fog. 

It's crazy how many of you think accutane caused you this elusive disease that no doctor or science recognize....accutane just caused your depression. And depression can be very bad because, if serious, your mental symptoms are similar to the ones of a person with dementia/Alzhaimer and in addition you have the lethargy. 

 

The only true reason why 99% of people develop brain fog: 

https://www.healthyplace.com/depression/symptoms/brain-fog-a-symptom-of-depression/

 

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Posted
11 hours ago, Gladiatoro said:

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent  way unfortunately ,  you have to watch your diet ie vitamin A and retinol to be avoided or at least limited   , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they  are after all permanent .... this board has been officially shut down , by me .

You might be right and I am no longer thinking a cure is possible.
But somehow you have to find a liveable state.
What I would say is that whatever anyone tries, be it TRT or an aromatise inhibitor etc - nothing will work unless you 
have done lots of groundwork e.g exercise, diet and putting right any deficiencies.
If and when the body is ready - it may just be possible to make added improvements with with certain protocols.
I can't see that anyone would disagree - you got to live as clean as possible for as long as possible.

How many guys on this forum do you think have worked on their basic health issues to the degree that we know is necessary.
You can all argue that you have but if you are honest I  am sure you would agree that  you have not.

Not for one minute am I saying it is easy and for most I really think it is impossible.
It would take a supreme effort and when you all have horrific health issues to deal with it's an even bigger effort to implement all the changes that are necessary and for the years that it would take. Added to that, to see little or no improvements makes it even harder.
Added to that all the negativity and  complete  lack of any recoveries all makes everything completely hopeless.

But what do you do - live a hopeless life or keep trying to improve things.

We have a big problem - hardly anyone reports their side effects,  this is a fact!
Very few are trying to raise awareness about the dangers of accutane so there will be many more victims.
I draw a blank on why any health care provider would prescribe this drug and why the regulators allow it to be on the market.
They say it is the only option for severe acne but does anyone believe that the pharms are looking for safer options - why would they when they are allowed to sell accutane.
 PFS have got studies going on to see what is going wrong but i don't believe they are actually looking for a cure.
Accutane victims have absolutely no researchers investigating accutane on their behalf or trying to find a cure.

We don't even have a helpline group or anything like it - just these hopeless forums.

It will continue to be hopeless unless everyone reports their side effects.
We need to gather case histories.
Strength in numbers will eventually lead to recognition and the need to help accutane victims.

I would prefer not to hear from anyone who says reporting is a waste of time.
It may be a waste of time for you but it might just help other kids in the future.

If I had loads of case histories presented like Toggs and a few doctors to back me up I could go to the highest level and knock on every door
until we have our voices heard.

We need an action group and a helpline to really get the data that is required.
I like to think that eventually there would be orders demanding that something is done about this whole sorry business.

For anyone who is interested you can access reported adverse side effects of any drug.
I have a copy of all reported side effects and I think you would all be shocked at how it reads.
If I recall correctly less than 50 have reported ED and about the same for diminished libido.
About 170 sexual side effects reported in total!
This is the records help by MHRA UK - Roche are obligated by law to share their reported side effects so this would include their figures.
They have never followed up so have no data on how persistent or permanent sexual sides might be.
20 suicides between 2012  - 2014 that's nearly 1 per month.
At least 1 murder if  I recall correctly.

Do any of you really believe that these reported side effects are representative of the true numbers?

Well there we have it - practically nothing being done.
Our only hope at the moment  - Dr Healy's (Rxisk) competition.

Anyone who wants to be part of a focus group please PM me and we will see what we can do.
I am willing to try anything and open to anyones ideas.
Lot's of data surely might help someone bring a legal case one day.
We can only live in hope.

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Posted

This is timely. Just saw this on Yahoo the other day.
https://www.yahoo.com/news/solange-opens-autonomic-disorder-she-153526028.html

Solange Opens Up About Autonomic Disorder She's Been Battling For Months

Although the singer-songwriter didn’t share what kind of autonomic disorder she’s currently fighting, the disorder generally targets a person’s nervous system resulting in problems with blood pressure, heart rate, body temperature and more, according to the Mayo Clinic
http://www.mayo.edu/research/departments-divisions/department-neurology/programs/autonomic-nerve-disorders

AUTONOMIC NERVE DISORDERS

Autonomic nerve disorders (dysautonomia) refer to disorders of autonomic nervous system (ANS) function. Dysautonomia is a general term used to describe a breakdown or abnormal function of the ANS. The autonomic nervous system controls much of your involuntary functions. Symptoms are wide-ranging and can include problems with the regulation of heart rate, blood pressure, body temperature, perspiration, and bowel and bladder functions. Other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness, and cognitive impairment.

 digestion is controlled by the autonomic nervous system. When the ANS malfunctions, the "victim" commonly develops gastrointestinal problems. Symptoms include nausea, bloating, vomiting, severe constipation, and abdominal pain.

Autonomic dysfunction can occur as a secondary condition of another disease process

Testing positive for the acetylcholine ganglionic antibody would show signs of altered nervous system function post drug treatment of 
Accutane, Propecia or SSRIs.

One more person testing positive for this wouldn't be a coincidence because of its rarity.
Looking at big picture, this would be one way of setting things in motion or starting to paint a better picture of what might be going on if something was found here.
Or at least a step.

 

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Posted
16 hours ago, Gladiatoro said:

If you guys think you are going to cure a NUCLEAR attack with a couple of supplements .... think again side effects are just what they are PERMANENT , our bodies have been changed in a permanent  way unfortunately ,  you have to watch your diet ie vitamin A and retinol to be avoided or at least limited   , the chronic cellular dehydration , mental dips , joint pain well some of us are lucky not to have and they  are after all permanent .... this board has been officially shut down , by me .

Completely disagree. I avoided vit A for 7 years and got worse. Now im taking it in the form of cod liver oil im seeing a lot of benefits. 

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