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Posted
13 minutes ago, Colinboko said:
People have recovered from several different methods including TRT.. 

stop telling people to forget about certain things when it could be their personal key. We’re all different, otherwise all the recoveries wouldn’t be so all over the board...

IMO = In My Opinion 

I'm not telling him anything, I'm giving him 'my opinion' based on what I know. Loads of people have tried TRT on the PFS forums with almost no success. You stand a good chance of shutting down your own testosterone production going on it, so once you're on, you're potentially on it for life. It increases the risk of stroke, blood clots, hormonal cancers etc. 

Everyone is on their own essentially, so if you want to get on TRT, then go for it. That guy asked for some advice, so I've given him some based on 'my opinions'.

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Posted (edited)
44 minutes ago, Colinboko said:
People have recovered from several different methods including TRT.. 

stop telling people to forget about certain things when it could be their personal key. We’re all different, otherwise all the recoveries wouldn’t be so all over the board...

Nothing can be discarded. We may all think Accutane is the sole responsible for our body changes, but if we don't do anything required to improve ourselves we will never be sure of that.

A healthy lifestyle and diet/workout routine carefully devised (especially to increase testosterone) might not fix things as they once were before the treatment, but can at least mitigate the Accutane side effects in the same way that someone with psychological problems and depression has their libido affected and is treated for it. A lot of things can decrease testosterone and as you all know low test means low libido, fatigue and other cognitive problems.

What we should be concerned is in eliminating anything else that can be affecting our health and we haven't discovered or taken care yet.

I am going to ask another endocrinologist (and also a urologist) to perform these further blood tests (LH, FSH, DHT, etc.) and a spermogram.

Male hypogonadism can have these symptoms in adulthood:

Erectile dysfunction
Infertility
Decrease in beard and body hair growth
Decrease in muscle mass
Development of breast tissue (gynecomastia)
Loss of bone mass (osteoporosis)

It can also cause mental and emotional changes. As testosterone decreases, some men may experience symptoms similar to those of menopause in women. These may include:

Fatigue
Decreased sex drive
Difficulty concentrating
Hot flashes

I don't think I have this disease, but it won't hurt to be absolutely sure.

@tanedout TRT is out of the question in my case. I don't want a commitment for the rest of my life, and a total testosterone of 4 is considered normal and don't need this sort of procedure. That's why I'll try other stuff to increase naturally. Besides the lack of libido I don't think I had all the other symptoms of low test. Edited by Perene

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Posted (edited)

.

Edited by Duperele

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Posted

You got it all figured out Duperele. Brilliant analogies.

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Posted
3 minutes ago, macleod said:

You got it all figured out Duperele. Brilliant analogies.


Yup, ignorant guy! Will change his opinion if he goes on this drug and gets to 'join the club' and enjoy the side effects which are not on 'the leaflet'.

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Posted (edited)
6 hours ago, Perene said:

Nothing can be discarded. We may all think Accutane is the sole responsible for our body changes, but if we don't do anything required to improve ourselves we will never be sure of that.

A healthy lifestyle and diet/workout routine carefully devised (especially to increase testosterone) might not fix things as they once were before the treatment, but can at least mitigate the Accutane side effects in the same way that someone with psychological problems and depression has their libido affected and is treated for it. A lot of things can decrease testosterone and as you all know low test means low libido, fatigue and other cognitive problems.

What we should be concerned is in eliminating anything else that can be affecting our health and we haven't discovered or taken care yet.

 

Oh yea? Is that it? Just out of curiosity, have you been through all 580 pages of this thread? Have you been through all of the pages on PFS forums? Did you really just reiterate rhetoric that has been posted a million times before?

The reason I am derailing your education train is because the libido issues of Isotretinoin & Finasteride have been looked at thoroughly by many sufferers, some of which I know personally, who hold degrees in law or accounting. If you want to encourage or motivate yourself, I understand, but what is this "we need to do this this" "we can't assume it's solely Accutane" bit about? 

It sounds as if you had problems before Accutane. Many of us didn't.
 
3 hours ago, tanedout said:

Yup, ignorant guy! Will change his opinion if he goes on this drug and gets to 'join the club' and enjoy the side effects which are not on 'the leaflet'.

Takes the already paved high road by talking down to people that are down and out affected adversely. Educating those beneath him when he knows dick all about isotretinoin. A drug off label marketed to millions of teenagers (mild to moderate acne) by a 180 billion dollar company in multiple continents. But smarty pants Mcgee has it all figured out. Must tell the people what the raw deal is, from his perch, high above lesser men. Edited by macleod

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Posted

Regardless of whether one was to choose TRT or not, how would it work if there is atrophy of the Hippocampus at play with us victims??

Can we please explore this before another 100 pages pass, enough of us have tested hormones to now assume for the most part they are within range give or take a few people, we’ve got to assume it’s the mechanism that controls hormones not the hormones themselves. 

Im not going to say TRT won’t provide relief but I’ll bet my bottom dollar once again it’s not the source of the problem.

I don’t know if the Hippocampus can be repaired but it’s the question we need to continue to ask, at least find out what we can!!

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Posted (edited)

@macleod When did I say that was it? You are not listening to me: I clearly stated that when we visit ANY DOCTOR it doesn't matter what we discover about the side effects of Accutane, they will always think something else has caused what ails us. 

And they aren't wrong in any way. Most people who take Accutane don't follow to the letter the warnings of what not to do during treatment, or had healthy lifestyles before or after. Most of them had depression, or some disease they don't even know.

What seem "obvious" to you it's precisely what should be repeated millions of times and printed/read every single day. Here's a fact that doesn't need further study: most HUMANS are idiots. The doctors and patients. That's why we can't pinpoint what is really affecting us.

I stated that everything ELSE should be important because it is and it will help a lot to prove that it's Accutane that caused it. 

I said I always had a good health and did this treatment with no oversights. So what's wrong with me (or at least what I think it's wrong due to Accutane's interference)?

Loss of libido.

This is what I was complaining about, and I consider a miracle (due to how bad this drug is) this was the only side effect lasting to this date.

Do you have any idea how many things can affect sexual desire and performance? 

So what I am suggesting? Do a lot of tests to discard possible diseases you don't even know you may have.

Get a second opinion and don't restrict yourself to a dermatologist, check with doctors from other specialties.

I said we can't discard anything that lowers testosterone, I remember a few years before this treatment I started changing my diet to a healthier one and consuming (for example) dairy products... which some say that lower testosterone. Funny thing is that when I had more weight I had a healthier libido, which is also due to less fat in my current diet. So after all these years ingesting milk I'll try something else, like coffee, not to mention supplements which can be prescribed when I check next month with a nutritionist if my diet is adequate.

You on the other hand seem to ignore that all these little things combined can impact someone like me in the same way Accutane did from 2011 onwards. Really, I never thought in 6 years that treatment was responsible for my loss of libido. I only thought about it months ago and was lucky to find these reports.

Not even once that thought crossed my mind because I was already hinting BEFORE that I wanted to go this path of not caring about sex/masturbation or women.

That just proves it's very complicated to assign blame to this drug and if you really knew me you would be in serious doubt. I said that a year later my libido increased, I had depression and it was gradually reduced. How do you expect me to think Accutane causes sexual dysfunction? All this time I thought this was psychological.

@Duperele

"Didn't you guys read the leaflet?"

The manufacturer, just like all doctors who prescribe this drug, claim to be unaware of such adverse effects, which are often disregarded due to lack of conclusive evidence that proves things like long-term sexual dysfunction. The leaflet never warned anyone of this side effect and anyone here knows that proving that a drug can cause something of this magnitude is like visiting North Korea and trying to convince everyone that was brainwashed there since birth that a real world exists besides that one concocted by the "great leader". It would be quicker to convince your wall instead of all these "zombies", no matter how much compeling evidence you have.

They won't listen and there's too much at $take.

In my case and many others I only did the treatment because conventional ones weren't helping with my back acne. They were only a waste of time and money.

I am sure if I had followed these same "health tips" posted before or waited a few years the acne would be long gone by now, however no one told me the "obvious" which is now annoying @macleod. All these doctors and manufacturers only care about making money.

They don't care in any way about the truth.

"It is rather stupid to demand this drug being taken of market. It is a cruel drug, but some people do really need it because their acne is so damn severe. It is a last resort drug, and i should be only taken by people who have SEVERE SEVERE acne, like acne that does not only affect their apperance but also hurts and makes life harder." 

I would agree with that statement if doctors/manufacturers and pharm companies were held accountable for distributing this drug for people who may cure themselves another way or had the option to wait for a few years to see if their acne would subside. Instead you seem to suggest it's never their fault, only the layman who take leaflets at face value.

"You people that had mild to moderate acne have no right to say that this drug should be taken of market, it's your own fault.  You should have been more careful."

Yep, our fault. We are the villains here, not people who dedicated their entire lives studying to become doctors and should know better before authorizing such treatments (at least in my case I had to follow some procedures which no other drug bought anywhere had, so you can't even accuse me of purchasing and using at my own risk), not multi billion dollar companies with obligations to remove their own drugs from the market if their side effects are bad enough or if there's something not fully known such as ED and low libido as a result of it...

Really?

Next thing you are going to say is that Roche and others should not even care about investigating anything, only us, the idiots who trusted this drug would work as intended.

"And don't tell me it's the doctors fault, "My dermatologist said there would be no side effects".  Would you take antidepressants for mild headache when the doctor would say there would be no side effects? Why would you take accutane for mild acne when the doctor said there would be no side effects."

OK, fine. I won't trust any doctor. So who should I trust? Roche? Google? You?

Acne.org, a website that I only discovered yesterday after 2 decades since I started using the internet?

I had no obligation to know s.hit about any of this. And no one here had or HAVE. If you think we should be specialists then only well-informed people should take any medicine, and all the others should shut up and die, since they are all ignorants especially of things they couldn't possibly know.

"I admire you people, those who try repair the damage done, this is a fantastic community. But those who moan about how bad the drug is and that it should be removed are simply silly. Amputating arms can save peoples lives, for example in case of severe infections. If you go and amputate your arm because of a cut on your finger and the moan about how amputating arms should be illegal and complain about how living with one arm is hard. Isn't that stupid?

I am really sorry for people with severe acne that took it and now have those side effects, life can really be cruel... But if you had like 5 zits on your face and messed up your body, then it's hard to really be sorry for you."

The patient is never to blame if he did ALL THE PROCEDURE as prescribed by the doctor and the leaflet you are talking about. I would agree that IT COULD be our fault if we didn't do something we were told, by the doctors and the leaflet.

For example: a pregnant woman can't take this drug and this is clearly stated there. If she does (provided the information is there written in clear and precise words) then she assumed the risks.

Have you ever heard of the hippocratic oath? Iatrogenesis?

Apparently not...

Edited by Perene

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Posted
10 hours ago, tanedout said:

Yup, ignorant guy! Will change his opinion if he goes on this drug and gets to 'join the club' and enjoy the side effects which are not on 'the leaflet'.
In Sweden where i live they have about 70 side effects mentioned on the leaflet. Including things such as "Diabetes" "degradation of muscles" "Inflamation in the liver" "increased body hair in women" "depression" "fatigue" "diverse bone defects" they even write than you can have "feelings of being sick". They literally mention everything, so if i would go on the drug i would be really suprised if i got a side effect not mentioned on the leaflet.

I will probably take the drug, but then im aware of what im going into, and i won't moan about how horrible it is.

Here you have a link to the leaflet. (of course it's in swedish) under number 4 you have all side effects.
https://www.fass.se/LIF/product?userType=2&nplId=20120306000024
 
7 hours ago, Perene said:

@macleod When did I say that was it? You are not listening to me: I clearly stated that when we visit ANY DOCTOR it doesn't matter what we discover about the side effects of Accutane, they will always think something else has caused what ails us. 

And they aren't wrong in any way. Most people who take Accutane don't follow to the letter the warnings of what not to do during treatment, or had healthy lifestyles before or after. Most of them had depression, or some disease they don't even know.

What seem "obvious" to you it's precisely what should be repeated millions of times and printed/read every single day. Here's a fact that doesn't need further study: most HUMANS are idiots. The doctors and patients. That's why we can't pinpoint what is really affecting us.

I stated that everything ELSE should be important because it is and it will help a lot to prove that it's Accutane that caused it. 

I said I always had a good health and did this treatment with no oversights. So what's wrong with me (or at least what I think it's wrong due to Accutane's interference)?

Loss of libido.

This is what I was complaining about, and I consider a miracle (due to how bad this drug is) this was the only side effect lasting to this date.

Do you have any idea how many things can affect sexual desire and performance? 

So what I am suggesting? Do a lot of tests to discard possible diseases you don't even know you may have.

Get a second opinion and don't restrict yourself to a dermatologist, check with doctors from other specialties.

I said we can't discard anything that lowers testosterone, I remember a few years before this treatment I started changing my diet to a healthier one and consuming (for example) dairy products... which some say that lower testosterone. Funny thing is that when I had more weight I had a healthier libido, which is also due to less fat in my current diet. So after all these years ingesting milk I'll try something else, like coffee, not to mention supplements which can be prescribed when I check next month with a nutritionist if my diet is adequate.

You on the other hand seem to ignore that all these little things combined can impact someone like me in the same way Accutane did from 2011 onwards. Really, I never thought in 6 years that treatment was responsible for my loss of libido. I only thought about it months ago and was lucky to find these reports.

Not even once that thought crossed my mind because I was already hinting BEFORE that I wanted to go this path of not caring about sex/masturbation or women.

That just proves it's very complicated to assign blame to this drug and if you really knew me you would be in serious doubt. I said that a year later my libido increased, I had depression and it was gradually reduced. How do you expect me to think Accutane causes sexual dysfunction? All this time I thought this was psychological.

@Duperele

"Didn't you guys read the leaflet?"

The manufacturer, just like all doctors who prescribe this drug, claim to be unaware of such adverse effects, which are often disregarded due to lack of conclusive evidence that proves things like long-term sexual dysfunction. The leaflet never warned anyone of this side effect and anyone here knows that proving that a drug can cause something of this magnitude is like visiting North Korea and trying to convince everyone that was brainwashed there since birth that a real world exists besides that one concocted by the "great leader". It would be quicker to convince your wall instead of all these "zombies", no matter how much compeling evidence you have.

They won't listen and there's too much at $take.

In my case and many others I only did the treatment because conventional ones weren't helping with my back acne. They were only a waste of time and money.

I am sure if I had followed these same "health tips" posted before or waited a few years the acne would be long gone by now, however no one told me the "obvious" which is now annoying @macleod. All these doctors and manufacturers only care about making money.

They don't care in any way about the truth.

"It is rather stupid to demand this drug being taken of market. It is a cruel drug, but some people do really need it because their acne is so damn severe. It is a last resort drug, and i should be only taken by people who have SEVERE SEVERE acne, like acne that does not only affect their apperance but also hurts and makes life harder." 

I would agree with that statement if doctors/manufacturers and pharm companies were held accountable for distributing this drug for people who may cure themselves another way or had the option to wait for a few years to see if their acne would subside. Instead you seem to suggest it's never their fault, only the layman who take leaflets at face value.

"You people that had mild to moderate acne have no right to say that this drug should be taken of market, it's your own fault.  You should have been more careful."

Yep, our fault. We are the villains here, not people who dedicated their entire lives studying to become doctors and should know better before authorizing such treatments (at least in my case I had to follow some procedures which no other drug bought anywhere had, so you can't even accuse me of purchasing and using at my own risk), not multi billion dollar companies with obligations to remove their own drugs from the market if their side effects are bad enough or if there's something not fully known such as ED and low libido as a result of it...

Really?

Next thing you are going to say is that Roche and others should not even care about investigating anything, only us, the idiots who trusted this drug would work as intended.

"And don't tell me it's the doctors fault, "My dermatologist said there would be no side effects".  Would you take antidepressants for mild headache when the doctor would say there would be no side effects? Why would you take accutane for mild acne when the doctor said there would be no side effects."

OK, fine. I won't trust any doctor. So who should I trust? Roche? Google? You?

Acne.org, a website that I only discovered yesterday after 2 decades since I started using the internet?

I had no obligation to know s.hit about any of this. And no one here had or HAVE. If you think we should be specialists then only well-informed people should take any medicine, and all the others should shut up and die, since they are all ignorants especially of things they couldn't possibly know.

"I admire you people, those who try repair the damage done, this is a fantastic community. But those who moan about how bad the drug is and that it should be removed are simply silly. Amputating arms can save peoples lives, for example in case of severe infections. If you go and amputate your arm because of a cut on your finger and the moan about how amputating arms should be illegal and complain about how living with one arm is hard. Isn't that stupid?

I am really sorry for people with severe acne that took it and now have those side effects, life can really be cruel... But if you had like 5 zits on your face and messed up your body, then it's hard to really be sorry for you."

The patient is never to blame if he did ALL THE PROCEDURE as prescribed by the doctor and the leaflet you are talking about. I would agree that IT COULD be our fault if we didn't do something we were told, by the doctors and the leaflet.

For example: a pregnant woman can't take this drug and this is clearly stated there. If she does (provided the information is there written in clear and precise words) then she assumed the risks.

Have you ever heard of the hippocratic oath? Iatrogenesis?

Apparently not...

Yes you should not trust a doctor to 100 % Percent, if you are about to take such a drug you should always read about it by yourself. I do not say you are the villians. My point is that this drug has saved so many lives, people who had severe acne that left horrible scars and haunted them for years. Would you like the drug taken away from those people?

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Posted (edited)

No, no one has said that they want to take the drug away from people. It is an argument you made up in your head Duperlele. Most of us know that it is an effective drug and should be treated as a last resort. Maybe 2/10 on this thread want the drug banned completely for the suffering they or a loved one has endured.

It is very easy to manipulate people, especially the older generation who listen to any doctor, and young ages 14-20 who listen to anyone.
Your education is not needed on this thread when people have already been affected adversely.

Edited by macleod

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Posted
4 minutes ago, macleod said:

No, no one has said that they want to take the drug away from people. It is an argument you made up in your head Duperlele. Most of us know that it is an effective drug and should be treated as a last resort. Maybe 2/10 on this thread want the drug banned completely for the suffering they or a loved one has endured.

It is very easy to manipulate people, especially the older generation who listen to any doctor, and young ages 14-20 who listen to anyone.
Your education is not needed on this thread when people have already been affected adversely. It is very cowardly.

Yes and i do not blame anyone who's not saying that the drug should be banned. I have watched this forum for a while and some people say that.

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Posted (edited)
28 minutes ago, Duperele said:
In Sweden where i live they have about 70 side effects mentioned on the leaflet. Including things such as "Diabetes" "degradation of muscles" "Inflamation in the liver" "increased body hair in women" "depression" "fatigue" "diverse bone defects" they even write than you can have "feelings of being sick". They literally mention everything, so if i would go on the drug i would be really suprised if i got a side effect not mentioned on the leaflet.

Those side effects weren't listed when the majority of people took the drug. Depression and the black box warning wasn't even listed pre 2008 and Roche fought the FDA as long as they could.

In fact, they were only added because of people complaining of said side effects. Each side effect you see, more than likely someone suffered before they listed it. So, your argument is only for the present time. Not for those who took it before 2015.

Do you even know how many malformed babies were born before they realized Accutane was a teratogen and they came up with the iPledge system.
  Edited by macleod

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Posted
2 minutes ago, macleod said:

Those side effects weren't listed when the majority of people took the drug. Depression and the black box warning wasn't even listed pre 2008 and Roche fought the FDA as long as they could.

In fact, they were only added because of people complaining of said side effects. Each side effect you see, more than likely someone suffered before they listed it. So, 1. that is a moronic statement 2. your argument is only for the present time

Do you even know how many malformed babies were born before they realized Accutane was a teratogen and they came up with the iPledge system.
 
Big guy here. So brave.
 
3 minutes ago, macleod said:

Those side effects weren't listed when the majority of people took the drug. Depression and the black box warning wasn't even listed pre 2008 and Roche fought the FDA as long as they could.

In fact, they were only added because of people complaining of said side effects. Each side effect you see, more than likely someone suffered before they listed it. So, your argument is only for the present time

Do you even know how many malformed babies were born before they realized Accutane was a teratogen and they came up with the iPledge system.
 
So brave.
 
It's not brave at all... It's just hard to live with severe acne.

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Posted

 

4 minutes ago, Duperele said:
It's not brave at all... It's just hard to live with severe acne.

I understand. in some cases it is necessary. i have edited my posts.

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Posted
3 minutes ago, macleod said:

 


I understand. in some cases it is necessary. i have edited my posts.
Yes. When you have 4 golf ball sized purple cysts on your face and your teacher asks who beat you up, it might be necessary, but if someone has 3 whiteheads and 2 more on the back, well then it's maybe not necessary, it will be a trade they will be making, perfect skin for your health.

Yes sorry i did not mean to offend you people, i just think we should be more careful, and not blame a drug that might be a miracle drug for some.

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Posted

I haven’t seen that leaflet in years listing side effects!!

Does it still say.......... “may cause dermatologists to be ignorant and prescribe unnecessarily ruining young lives”

Is that still on there??

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30 minutes ago, TrueJustice said:

I haven’t seen that leaflet in years listing side effects!!

Does it still say.......... “may cause dermatologists to be ignorant and prescribe unnecessarily ruining young lives”

Is that still on there??

Dermatologist are not gods who know everything and are perfect. They are humans that are ignorant and greedy for money (many of them).

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On 22.12.2017 at 3:49 PM, Justdry said:

The problem with answering this question is the fact that i neglected to moisturize or use face wash for about 6 years so my skin became increasingly dry over this period until I had scales and it was pretty much f'ed, I always blamed accutane for it but i think it's because of the poor skincare routine post accutane. 

I now use a pH 5.5 soap free face wash, use starflower oil on my face at night and moisturizer during the day. I don't currently have any noticeable dryness but the damage left behind is almost crippling. My face still feels dry and tight after washing until i apply something to it but i darent leave it without moisturizer anymore so i'm not sure what it'd be like if i left it.

Adding Vitamin A in the form of cod liver oil to my routine is definitely helping to heal the skin barrier but i think this is just going to be a hell of a long process. My face looks and feels oily to the touch even late in the day now, but i'm not sure if that's the moisturizer or what. It used to be at it's driest at the end of the day. 

I really do think that avoiding vitamin A for so many years is NOT the right thing to do - I've literally noticed no negative effects since taking cod liver oil and like i said in my previous post, this is the horniest i've felt in years but i don't know if that's a coincidence. 

For the past year I had also developed a dry penis head - however, since taking cod liver oil it has started to go and isn't anywhere near as dry as it had gotten. 



Thanks for the further explanation. How does you skin react to sunlight? Do you burn very fast? Do you experience any changes compared to your pre-accuntane skin?

 

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It's actually quite funny, after everything I've been through, and learned about the drug, I don't blame my dermatologist one bit.  He is an old man, probably retired now, and just so ignorant, but he has no idea and it's quite funny. Even if they do find the mechanisms of action in 20 years and it turns out to be risky and harmful, he probably still would convince himself he is a good doctor. You know how old educated men can be.

I think what hurts the most is finally realizing after 30 years that life is about manipulation of others. That society is designed to take advantage of other people. I blame growing up in the suburbs, sheltered and naive to realize. I think that is why I am so angry all the time. I am fighting within myself to convince myself that there is good in the world. And really Roche is just one of thousands of corporations in the world. It is an unwinnable battle. Money by any means necessary.

You know its funny. The things I have learned over the years. Did you know that Pfizer scientists created Viagra for cardiac issues originally, it was the erection side effect that they realized they could market to millions more peoples (similar to accutane). They hired a PR company to invent the term or disease "erectile dysfunction." There are only two countries in the world that pharmaceutical companies can hire advertising firms, and this is the U.S. and New Zealand.

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Posted
8 hours ago, Duperele said:

In Sweden where i live they have about 70 side effects mentioned on the leaflet. Including things such as "Diabetes" "degradation of muscles" "Inflamation in the liver" "increased body hair in women" "depression" "fatigue" "diverse bone defects" they even write than you can have "feelings of being sick". They literally mention everything, so if i would go on the drug i would be really suprised if i got a side effect not mentioned on the leaflet.

I will probably take the drug, but then im aware of what im going into, and i won't moan about how horrible it is.

I'm not spending much time on this.
The drug is still on the market for you to take.
So if you want to take it, take it.
Your doing some moaning about it yourself.
I was wondering where your post came out of the blue to inflame things here, then I see.
Most of your post leading up to this you talked about how dangerous Accutane was,
now you might be forced to take it and you want to justify it. 
Your in the wrong place for that. This particular thread is not for you.
For a lot of us Accutane was not justified. (you could be a exception) 
Accutane should remain as a last option resort for those that need it, but it has a history of being over prescribed and that's not the patient's fault.

Those side effects you just listed depending on what's going on might not be temporary.
Some could be considered serious enough to increase risk of mortality.  

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Posted (edited)

I contacted Kevin Pezzi this week and he sent for free an ebook (PDF) called "The Science of Sex" with tips to enhance libido and in it he talks a bit about this topic from Accutane causing permanent loss of libido. He asked me not to distribute it, but he will send for free if someone asks by contacting directly.

https://www.acneeinstein.com/accutane-side-effects-perspective/ (in this link more people talk about this matter and claim there's no cure)

http://www.erbook.net/accutane.htm (in order to ask for the ebook you need to visit this link):
http://www.myspamsponge.com/send.php?handle=erdoc

Before that create an account here http://www.myspamsponge.com/reg1.php so you can fill the username form. I even sent a link to my 1st post in this forum for him prior to receiving the ebook.

One thing that the ebook says is this:

-  Stringently avoid other things that may decrease the testosterone level or effect (such as phytoestrogens and antiandrogens).

I noticed in my current diet there is no soy, but I was eating linseed, and I believe FLAX or MULTIGRAIN BREADS were there, too. I'll try to find RYE BREAD, which these links say it has less phytoestrogen:

http://thechalkboardmag.com/4-foods-can-cause-hormonal-imbalance
https://forum.bodybuilding.com/showthread.php?t=172017503
http://www.jdmoyer.com/2011/02/15/to-bean-or-not-to-bean-that-is-the-question-legumes-lectins-and-human-health/
https://www.dietaryfiberfood.com/phytoestrogen/phytoestrogen-food-sources.php
https://www.alternet.org/food/4-surprising-foods-packed-estrogen-chemical-linked-obesity-and-sexual-dysfunction
http://mentalhealthdaily.com/2015/04/08/20-foods-high-in-estrogen-phytoestrogens/
http://johnalvino.com/the-natural-way-to-boost-testosterone-levels/
https://www.superfoodly.com/estrogen-foods-list-50-high-phytoestrogen-sources/
https://www.anabolicmen.com/lower-estrogen/

Black beans, protein bars and dried apricots are also part of my current diet, I'll replace the first with LENTILS, and the protein bar I'll see if Whey Protein can be a replacement. Also thinking of replacing skim milk for coffee. Of course all the changes will be reviewed by the nutritionist next month.

P.S. I'll keep the black beans. Found a list with all phytoestrogen foods measured, searching scientific articles:
https://goo.gl/JK8RGj

****
One more reason to get rid of the Whole wheat bread I've been eating (and the protein bars, to be replaced by Whey protein): they contain gluten, which are also the reason why my prolactin levels are high, resulting in low libido, too:

https://www.belmarrahealth.com/19-foods-lower-testosterone-levels/
https://www.glutenfreesociety.org/gluten-protein-alters-brain-prolactin/

Edited by Perene

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Posted
13 hours ago, Duperele said:
13 hours ago, macleod said:

No, no one has said that they want to take the drug away from people. It is an argument you made up in your head Duperlele. Most of us know that it is an effective drug and should be treated as a last resort. Maybe 2/10 on this thread want the drug banned completely for the suffering they or a loved one has endured.

It is very easy to manipulate people, especially the older generation who listen to any doctor, and young ages 14-20 who listen to anyone.
Your education is not needed on this thread when people have already been affected adversely. It is very cowardly.

Yes and i do not blame anyone who's not saying that the drug should be banned. I have watched this forum for a while and some people say that.
I would like to see accutane banned. Doctors are not trained or educated enough prescribe a drug of this magnitude.
Doctors don't believe that accutane causes half the side effects listed but you expect young patients to fully understand that the side effects are real, more likely to occur than not and that they may be permanent.
Let's not forget that they are only up-dating the PIL now to include sexual sides even though they have know about it right from the beginning.
Most importantly and the point everyone seem to miss - the pharmaceutical companies are not looking for safer ways to treat acne because they 
are allowed to prescribe accutane.
If accutane was taken of the market resarch would be under way immediately to find other drugs to treat acne.

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Posted
13 hours ago, Duperele said:
Yes. When you have 4 golf ball sized purple cysts on your face and your teacher asks who beat you up, it might be necessary, but if someone has 3 whiteheads and 2 more on the back, well then it's maybe not necessary, it will be a trade they will be making, perfect skin for your health.

Yes sorry i did not mean to offend you people, i just think we should be more careful, and not blame a drug that might be a miracle drug for some.

No parent or doctor has the right to decide that the risks outweigh the benefits!
Therefore no kid should be put on accutane.
Anyone who is prescribed accutane should be informed of all the side effects, this is not the case at the moment.
Patients are told that accutane is a miracle drug and advised by many dermatologist to ignore the PIL.
You seem to be blaming patients for taking accutane when they only have mild acne - when surly it is the responsibility of the dermatologist 
to only prescribe for severe cases.
Accutane is being over prescribed and the risks are being downplayed.
Roche, the regulators and the prescribers are all acting in a criminal way - killing kids,destroying their mental health and causing them grevious
bodily harm.

Mass destruction - remind you of someone does it?

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Posted (edited)

.

Edited by Modeaa

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Posted

Could someone say about progress in finasteride medication? As I remember there was some people who wanted to try it.

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