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Posted (edited)
On 4/16/2016 at 7:58 AM, Ruvik said:

New bad news

Today I was visited for my severe sexual sides from accutane by a urologist-andrologist in northern Italy, he says he sees penile fibrosis. I doubt this can explain accutane effectsany of you have similar diagnosis?

He prescribed me 2 exams, unfortunately, the months of waiting are so many, I will not have them made before summer

Penile Fibrosis from accutane. This can include the artery becoming hard and stiff or thickening. 
He didnt have low testosterone. 
Propecia can cause this same side effect.
Merck’s controversial hair loss drug Propecia (generic: finasteride) has been linked to penile fibrosis, a serious sexual disorder which is also known as Peyronie’s disease. ... Signs and symptoms of Propecia-induced penile fibrosis may include excessive curvature of the penis ... Edited by guitarman01

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Posted (edited)
1 hour ago, TrueJustice said:

Cool - thx!!

So I like to compare approaches, if people are finding a cure through Finasteride does that put to rest any theories on recovering via Vit K supplementing??
Not that anyone ever said a full recovery can happen via K but why bother going down that path when apparently there’s a full cure down another....

Just asking those who know a thing or two!!

I like to see it as a hardware vs software approach.

hardware = receptor theory / fin / Ella pill / Ru486 / water fasts

Software = Vitamin K / Diet / Vit d etc

hardware is ofcourse riskier, imagine it like putting a new graphics card in your computer because the old one got overclocked and burned but the motherboard doesnt support the new one. Youre pretty fucked and the situation is even worse.

software is tweaking the old overclocked and burned graphics card to try and restore to its old standards. But with supplements you only go to a certain point and imo something like Vitamine K will not fix a chemodrug big guy MVP like Accutane. 

Ofcourse, according to theory alot of software things should fix us, but it never did. Hell, a multi vitamin should restore is because the body should balance itself out right?
I look more into nootropics like semax and piracetam because they promote neurogenesis in the brain.
rick simpson oil was by far the best thing i tried and i believe i regained alot of life motivation because of it.
but one of my biggest asset was menory, its fucking gone right now because im fucking tiredbALL the time. 

So give me the hardware approach, end of 2018 i will have my life back. 
January ill do a small round of fin to deprivate my receptors and make th m active again.

Lets take this thing down. Its been too many years and ive tried every supplement there is.
Im going hardware.

good luck everybody, may one of us fix this shitter once and for all

P.s. As u can see im not that guy who knows a thing or two, i dont have the concetration and energy to back it up scientifically. But i done with the software approach, it didnt bring any good in the last 10 years so im moving on Edited by Walden Rev

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Posted (edited)

This is what i'm mainly trying to accomplish first and foremost looking at vitamin k2 mk7.
I'm trying to "push" blood flow.
I'm trying to push blood flow so you never get light headed, brain fogged, dizzy, fatigued, or have lack of good sense of space in your environment. This is number one. Number two i'm trying to ease vascular constriction. This can be that "head pressure" pale skin, lack of saliva, dry eyes, kidney problems, gastric problems, ED. Im basically trying to strengthen the blood vessels to push good blood flow to regulate the vascular system.

Now you can look at heart rate variability and how it can affect erectile function.
 

Heart Rate Variability in Men with Erectile dysfunction

Purpose

The objective of this study is to investigate alteration of autonomic nervous system (ANS) activity in patients suffering from erectile dysfunction (ED) by comparing parameters of heart rate variability (HRV) between men with ED and healthy subjects.

Conclusions

Patients with ED exhibited different HRV parameters compared with normal controls. This suggests that the patients with ED may have some kind of imbalance in the ANS and it may be possible that general imbalance of the ANS is one of the causes of ED. Thus, HRV analysis may give valuable diagnostic information and serve as a rapid screening tool to evaluate altered ANS activity in patients with ED

Looking at k2 mk7 this could be a possibility to treat. It might depend on dosage and/or duration. Those further out from accutane could be more affected.

@Walden Rev If someone was to take this seriously, or look at properly, I would like to know the exact dosage and duration of mk7  (even brand if you recall, because they are all different) you have taken. Also if you were taking anything else along with it at the time. Thanks.

Or anyone else that has taken mk7 if you have looked at this extensively, if you could tell me dosage and duration.
So im not wasting my time. Thanks again. 

Edited by guitarman01

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Posted (edited)

Now Foods mk7 k2.
solgar k2 

but honestly, i like your theory and i really think you should pursue this road but im taking a different one.

copper should have fixed us in 2016 according to the theories
blue ice should have fixed us in 2015
active b complex with co factors in 2016
manganese in 2017
NAG in 2016.

i just dont believe i return to the doctor and say “i fixed my dick, my memory, my lower back, my hair loss with 3 months of vitamin K”
message to all the accutane sufferers around the world: 3 months of Vitamin K will fix 10 years of accutane horror. 

This is why i go hardware.


P.s. I was taking Glandular alongside of it

https://www.iherb.com/pr/36220?rcode=TZK823

Edited by Walden Rev

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Posted
27 minutes ago, guitarman01 said:

This is what i'm mainly trying to accomplish first and foremost looking at vitamin k2 mk7.
I'm trying to "push" blood flow.
I'm trying to push blood flow so you never get light headed, brain fogged, dizzy, fatigued, or have lack of good sense of space in your environment. This is number one. Number two i'm trying to ease vascular constriction. This can be that "head pressure" pale skin, lack of saliva, dry eyes, kidney problems, gastric problems, ED. Im basically trying to strengthen the blood vessels to push good blood flow to regulate the vascular system.

Now you can look at heart rate variability and how it can affect erectile function.
 

Heart Rate Variability in Men with Erectile dysfunction

Purpose

The objective of this study is to investigate alteration of autonomic nervous system (ANS) activity in patients suffering from erectile dysfunction (ED) by comparing parameters of heart rate variability (HRV) between men with ED and healthy subjects.

Conclusions

Patients with ED exhibited different HRV parameters compared with normal controls. This suggests that the patients with ED may have some kind of imbalance in the ANS and it may be possible that general imbalance of the ANS is one of the causes of ED. Thus, HRV analysis may give valuable diagnostic information and serve as a rapid screening tool to evaluate altered ANS activity in patients with ED

Looking at k2 mk7 this could be a possibility to treat. It might depend on dosage and/or duration. Those further out from accutane could be more affected.

@Walden Rev If someone was to take this seriously, or look at properly, I would like to know the exact dosage and duration of mk7  (even brand if you recall, because they are all different) you have taken. Also if you were taking anything else along with it at the time. Thanks.

Or anyone else that has taken mk7 if you have looked at this extensively, if you could tell me dosage and duration.
So im not wasting my time. Thanks again. 


If you do have time, you seem to have alot of energy to digg deep (thats what she said). Check out the thread which Tanedout started.

there are some great theories abiut progestins and receptor regulation

https://hackstasis.com/threads/accutane-recoveries-using-finasteride.119/

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Posted

im about to start low dose accutane (under 20mg, most likely 10 mg/day) 

how much were u guys on and for how long?

the 60mg+ camp seem to have it worst



 

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Posted (edited)
9 minutes ago, pimple pimp said:

im about to start low dose accutane (under 20mg, most likely 10 mg/day) 

how much were u guys on and for how long?

the 60mg+ camp seem to have it worst



 

I did 10mg/day and I feel like I'm one of the worst on here. You've probably heard this but don't do it. Don't play with your mental and physical health. You think life's hard now? Accutane never even solved my acne problem and now, well acne is one of my least concerns. You ever try a chromium picolinate + cinnamon supplement? Only thing besides accutane that has ever helped my acne in a significant manner. Edited by Togg

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Posted
4 minutes ago, Togg said:
I did 10mg/day and I feel like I'm one of the worst on here. You've probably heard this but don't do it. Don't play with your mental and physical health. You think life's hard now? Accutane never even solved my acne problem and now, well acne is one of my least concerns. You ever try a chromium picolinate + cinnamon supplement? Only thing besides accutane that has ever helped my acne in a significant manner.


you were on 10 mg only/day for how long? thanks

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Posted (edited)
2 hours ago, Walden Rev said:

If you do have time, you seem to have alot of energy to digg deep

This is right on the surface. You dig too deep you might never come back up for air.
Im noticing some things on here I didnt notice before.
People have absolutely gone down the rabbit hole because they know something has happened or is happening to them but they dont know what.
Let me give you an example. This is just a random post from phoenix rising.

"This might be from aromatase inhibition, and not necessarily good. Be sure you are getting above optimal absorption of zinc, manganese and glycine, consider perhaps even adding glucosamine/chondroitin/collagen/gelatine whatever you tolerate and have enough nutrients to better absorb/metabolize. Manganese is needed more than usual for those who take high doses of B1."

^I see a little bit of insanity in this. 
Looking on that forum you linked I see people trying to cure themselves from post ssri by taking low dose ssri. Its because they dont know what else to do.
Its all so messed up. If you're all about trialing fin, at least I guess we would have another opinion we could trust.
Just like someone else recently stated about accutane though, sometimes sides dont show up for quite some time later and then it might progress.

Also, none of this came from me.

copper should have fixed us in 2016 according to the theories
blue ice should have fixed us in 2015
active b complex with co factors in 2016
manganese in 2017
NAG in 2016.

  Edited by guitarman01

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Posted (edited)
44 minutes ago, pimple pimp said:


you were on 10 mg only/day for how long? thanks
3 separate 6ish month periods, separated from each other by a month or two. Looking back though, every time I discontinued the medication, I got sides of post accutane syndrome (bad sleep, anxiety, depression, disassociation, etc.). I just didn't realize it because I attributed these things to other things. For example, during my first discontinuation, I was experiencing very severe disassociation (as well as poor sleep and depression), but attributed all of this to weed use (which can also cause/exasperate psychosis like symptoms). It wasn't until the second time I discontinued the drug for a month or so that I learned about post accutane syndrome, but I thought it was just people being crazy. Once back on the drug I felt better. Learned my lesson after my third time on tane though. Realized I have had a lot of 'ailments' creeping up on me throughout my accutane usage, thought it best to discontinue the medication for good, just to be safe, even though I hadn't reached the standard accumulative dosage. Then all hell broke loose. No one else is probably gonna answer here to you. Around here (in this thread of mayhem) this drug has ruined lives. I hope you understand that. There is too clear a pattern of symptoms and accutane usage among these 500+ pages now. It may not be likely to happen to you, thats just what I thought too. But it is real, your really rolling the dice. Edited by Togg

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Posted (edited)
14 hours ago, macleod said:

same old nonsense throughout the years. back to gut health. question is, who keeps making new accounts just to continually spread false hope and disinformation that side tracks actual research. gut health is important, no doubt. but not the cure all, clearly.

The gut lies at the center of our problems. no one here on this forum gives it enough time, as everyone wants a quick fix.  It can most definitely take many months if not years to restore a gut. Everyone just has to trust the process and stop being so down all the time!! Everyone on this forum who has recovered has fixed their gut/digestion.  Many researchers believe gut imbalances are at the root of many diseases, such as autism, anxiety, depression, and the list goes on! Believe me, I was in a dark place three months ago, but I didn't give up, and now I'm on the way to recovery. The biggest part of all of this is mental toughness. You have to be willing to continue your regimen no matter how you feel, and you will come out better than ever on the other side. We need to stay positive and stop saying that we're all fucked for life. Edited by Accutane: The Recovery

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Posted

Many researchers = a couple naturopaths I know

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Posted
4 hours ago, Walden Rev said:

Now Foods mk7 k2.
solgar k2 

but honestly, i like your theory and i really think you should pursue this road but im taking a different one.

copper should have fixed us in 2016 according to the theories
blue ice should have fixed us in 2015
active b complex with co factors in 2016
manganese in 2017
NAG in 2016.

i just dont believe i return to the doctor and say “i fixed my dick, my memory, my lower back, my hair loss with 3 months of vitamin K”
message to all the accutane sufferers around the world: 3 months of Vitamin K will fix 10 years of accutane horror. 

This is why i go hardware.


P.s. I was taking Glandular alongside of it

https://www.iherb.com/pr/36220?rcode=TZK823


I dunno just yet with Finasteride?

I'm more inclined to take Testosterone first up, I was offered to do this about 18 months ago by a GP who said it was a bit low, this was around the time I was looking into gut health, I ended up following what my gastroenterologist wanted to do, put myself in hospital for a day and did all tests and found nothing really except reflux issues which I'm now on top of through medication 

Id like to look at Testosterone in new year for the nagging tiredness and overwhelming irritability I face every single day now for 20 years.

I just don't know enough about the safety of Finasteride or exactly what it will fix.......If you're like me I have about 10 major things going on at once, Fin may only fix a few whilst Testosterone may fix up the big issues around tiredness and weak muscles etc, might even help with sleep!

 

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Posted

^ True... just wondering how you can put yourself in hospital for a day to get all tests done?   How did you get admitted etc?    What setting (emergency or something else?)

I would never play around with drugs like Fin.   One guy reversing his side effects to me doesnt justify (yet) going on a dangerous drug like that.


Thanks!

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Posted

Sorry not exactly a hospital but a clinic that does colonoscopy and gastropathy tests all day long. A Gastroenterologist clinic to be precise. You spend the day there as they put you out for an hour or so to check everything out with the special cameras.

Got a referal from GP to see a gastroenterologist, with him I booked in months later to do the tests - they went in both ends and took pics, you take picoprep all weekend prior to be fully cleared out so they can take a good look, check you out for any sinister stuff that might be going on....for me the biggest issue besides just being "taned" was major reflux ( take Pariet for that )

People are saying to us toughen up its all to do with gut health, I've said this many times, a gastroenterologist will only be concerned if something sinister is found like a tumour or a growth, they will offer you nothing in the way of improving gut health, you will get more by seeing a naturopath or talking to your local chemist.

Ive done it all and I'm still fucked, and I can take any concoction given to me and will always see it through...... as I said I've done it all. Other than Vit K, if someone has some groundbreaking info on improving gut health I'm all ears but spare me the toughen up bullshit.....

If we believe what's been written about tane, that some have gotten brain damage or worse yet bowel cancer, are we suggesting the difference between that and sound health was simply cleaning up gut health??
Not that we all have those issues but come on, there's more going on than just an imbalance with our gut health surely?

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Posted
4 hours ago, pimple pimp said:

im about to start low dose accutane (under 20mg, most likely 10 mg/day) 

how much were u guys on and for how long?

the 60mg+ camp seem to have it worst


You see this thread, and you're still considering going on this poison?! Are you insane?

10mg/day for 30 days for me. Suffering from persistent side effects 7.5 years later. Some people have permanent sides from a single pill. Stop trying to convince yourself it'll be ok - it's not worth the gamble - just don't go near this stuff. 

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Posted (edited)
3 hours ago, tanedout said:

You see this thread, and you're still considering going on this poison?! Are you insane?

10mg/day for 30 days for me. Suffering from persistent side effects 7.5 years later. Some people have permanent sides from a single pill. Stop trying to convince yourself it'll be ok - it's not worth the gamble - just don't go near this stuff. 

thanks for the response man i appreciate it. again i will find a low dose where i see improvement but no sides..like i could end up taking as little as 10 mg/week theoretically..

im going to be real with u bro. acne has legitimately fucked my life. not gonna go detail but it has ruined me relationship wise, socially and economically.  aside from going to work (btw i am basically shat on and given no respect purely bc of my face) i am completely isolated. ive tried everything and by jan 1st it will have been 4  years. i am desperate and will quite literally do whatever it takes....

these are the supps ill also be taking;
d3 5000 iu/day
astaxanthin 12 mg and 400 iu vitamin e to mitigate PUFA soybean oil in the accutane
k complex thorne x2 caps
b 100 complex by zehler 
magnesium glycinate 400-600 mg/day
zinc and manganese

  Edited by pimple pimp

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Posted (edited)
12 minutes ago, pimple pimp said:

thanks for the response man i appreciate it. again i will find a low dose where i see improvement but no sides..like i could end up taking as little as 10 mg/week theoretically..

im going to be real with u bro. acne has legitimately fucked my life. not gonna go detail but it has ruined me relationship wise, socially and economically.  aside from going to work (btw i am basically shat on and given no respect purely bc of my face) i am completely isolated. ive tried everything and by jan 1st it will have been 4  years. i am desperate and will quite literally do whatever it takes....

Well it's your call, at least you know the risks. You think your life is ruined now, just wait and see what it's like if you're unlucky enough to get persistent sides from this drug - you'll be begging to go back to how things were before. I would try every other option besides this drug, and the dosage is almost certainly irrelevant, it's like a switch being flicked, not something that builds up. I'm not going to go on though, this thread is about trying to get out this mess.  Edited by tanedout

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Posted

How have you been in the last few weeks @tryingtohelp2014? Are the sides still being kept at bay? Gone for good?

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Posted (edited)
"Acutane penile fibrosis, this may include the artery becoming hard, stiff or thickened" as accutane resects our entire body from the outside and inside, and is DHT through 5 alpha reductase enzymes that promote organ oil and hydration , skin, etc., probably that is the cause, can repair for example that most cases accutane and pfs have the head of the penis "dry and with little sensitivity" and dry hair as well, whereas in the penis hair and head are the places with the most 5 alpha reductase enzymes, I still have acne after accutane sometimes, but they are not even the same as they were before, nowadays my skin is extremely dry and my acnes pass fast and are smaller
														
Edited by namelk

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Posted

Hi Guys.  I’ve been too busy to read the forum for awhile and as I’m reading as fast as I can to try to catch up, I’m still probably 50 pages behind, so I apologize if some of this has been hashed over and discarded as useless.

I’ll say this first, because I think it’s most valuable of all I’m going to say.  I saw awhile back that some are willing to try about anything – so maybe someone would try this –  it was mentioned a hundred pages or so back, if it sounds familiar.  I doubt anyone tried it.

Budwig Protocol for Cancer – before you say “we don’t have cancer” read the science behind this and decide if it might help – truly think it might help your bodies absorb and process whatever supplements it is you might be needing.   This is from www.cancertutor.com/Budwig/   I won’t copy and paste much, because I know how I skim stuff when there’s too much.

The cells of our body fire electrically. They have a nucleus in the center of the cell which is positively charged, and the cell membrane, which is the outer lining of the cell, is negatively charged. We are all aware of how fats clog up our veins and arteries and are the leading cause of heart attacks, but we never looked beyond the end of our noses to see how these very dangerous fats and oils are affecting the overall health of our minds and bodies at the cellular level.

Dr. Budwig discovered that when unsaturated fats have been chemically treated, their unsaturated qualities are destroyed and the field of electrons removed. This commercial processing of fats destroys the field of electrons that the cell membranes (60-75 trillion cells) in our bodies must have to fire properly (i.e. function properly).

The fats' ability to associate with protein and thereby to achieve water solubility in the fluids of the living body—all this is destroyed. As Dr. Budwig put it, “the battery is dead because the electrons in these fats and oils recharge it.” When the electrons are destroyed the fats are no longer active and cannot flow into the capillaries and through the fine capillary networks. This is when circulation problems arise.

Without the proper metabolism of fats in our bodies, every vital function and every organ is affected. This includes the generation of new life and new cells. Our bodies produce over 500 million new cells daily. Dr. Budwig points out that in growing new cells, there is a polarity between the electrically positive nucleus and the electrically negative cell membrane with its high unsaturated fatty acids. During cell division, the cell, and new daughter cell must contain enough electron-rich fatty acids in the cell's surface area to divide off completely from the old cell. When this process is interrupted the body begins to die. In essence, these commercially processed fats and oils are shutting down the electrical field of the cells allowing chronic and terminal diseases to take hold of our bodies.

Dr. Budwig discovered that when she combined flaxseed oil, with its powerful healing nature of essential electron rich unsaturated fats, and cottage cheese, which is rich in sulfur protein, the chemical reaction produced makes the oil water soluble and easily absorbed into the cell membrane.

If you find that a possibility, read the CancerTutor page linked above.  This protocol has cured people of all kinds of chronic diseases, not just cancer.  Look around the web – there are lots of testimonials.  It’s really only two ingredients, but very specific brands only, because of the way others are heat treated – flaxseed oil and organic cottage cheese – Here in Colorado I bought them at Sprouts Market.  I’m sure they can be purchased at a lot of places – but MAKE SURE that if you’re going to do it you read the protocol about what brands, etc. are okay, because many just won’t work.  You can’t just mix cottage cheese and flaxseed oil and expect it to work; it has to be mixed properly.  They say use an immersion blender, but I think a Ninja or small food processor works better and faster – as it has to be mixed until completely blended.  I suspect that the ingredients would be easier to find in Europe than here.

I’m hoping to put both my kids on it.   Which brings me to the next thing I want to say – I saw a few dozen pages ago that the topic was autoimmune diseases.  Interestingly enough, my daughter (never took Accutane) has POTS.  I have had so many people injured by pharma drugs that sometimes I’m not sure what forum I’m reading, it’s amazing the crossovers of symptoms and deficiencies.  So reading about POTS on the Accutane forum was kind of deja vu.  Anyway, I know from researching her problems that you can acquire POTS after a vaccine, a long illness, a traumatic event, probably other ways as well.  Some people don’t know how they got it.  My daughter got it from running cross country dehydrated, led to heat stroke, led to POTS.  You don’t need a specialist to rule it out.  Google Poor Man’s Tilt Table Test  - you’ll need a blood pressure cuff and a bed.  And a friend to catch you if you find that you have it.  ;) If you decide that the Poor Man’s TTT shows positive, consider doing more research instead of just focusing on POTS because there are several types depending on your symptoms. 

@Fchawk

Thank you for your post a few dozen pages back.  I understand your frustration when it looks like no one is paying attention, but I was and I’m sure there are non-posters who are following your guidelines right now.  Others will find it years from now and try it then.  I agree that a TBI can be caused slowly by a chemical.  I would take issue with your comment that SSRIs are okay though.  They do similar sexual damage to Accutane and might open someone up to a whole new host of problems.  Anyone who doesn't believe that, click here: 
 http://ssristories.net/archive/indexb6a1.html?sort=date&p=

That will give @Gladiatoro fodder for his justified rants.  I'm with you, buddy. 

A few quick notes – whoever was complaining of splits around their lips – back on the forums index is another conversation about 1% hydrocortisone cream, available in any drugstore for itch and rash, gives much relief, though it doesn’t cure the underlying problem, of course.  Another suggestion I know from living in a dry state, is poke a needle in vitamin e pills and apply the oil directly to your skin. 

 Regarding an earlier topic of candida, I personally have more experience with that.  A near death accident, lacerated liver, the doctors were fearful of infection, so more antibiotics than anyone should take, left me with recurring candida that strong prescriptions would kill only temporarily.  Candida came back every time with a vengeance – stronger than before – I feared the RX meds were creating a superbug in me.  Went the herbal route and had great success with this product:

http://www.sagewomanherbs.com/store/#!/Yeast-X-150caps-650mg/p/5934234

Finally, an update on my son – he considers his sexual sides (total ED at one time) 80% cured from using about 60 to 75% of the recommended amount  of RSO.  He’s actually pretty satisfied leaving it there for a bit as he is in school and working and can’t tolerate the high or the risk of a drug test.  He says now his most concerning sides are brain fog, depression, anhedonia.  I’m considering just having him take CBD Oil as I think inflammation is a problem and the medical marijuana brochures say that CBD is best for inflammation.  I will also encourage him to follow 
@Fchawk's guidelines.  He has a GP appointment tomorrow to follow up on a blood test from over a year ago.  That test showed high bilirubin and high cholesterol (LDL).  If those numbers are better, I will claim another success for RSO, as I have read it can heal liver disease.   I am hoping to put him on the Budwig diet also, as I believe that will help with neurogenesis in his brain and the rest of his body.

Something that he read about elsewhere (he doesn't read here; I guess he finds it overwhelming) and had some success with for the mental/emotional sides is 5htp.  

 I will forever be grateful to this forum for making me aware of the cause of my son’s problems and for the three or four members who educated us that RSO would help.   So never feel that the forum is useless.  I actually even am grateful for those like @Gladiatoro because they show that this is a place where I can air my frustrations no matter how bad and also where I can blame it all on Accutane without anyone raising their eyebrows and looking at me like I’m crazy.  : )

 

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Posted

Hi just a quick question as any body had a liver ultrasound done as I'm going for one very soon thanks 

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Posted
22 minutes ago, brendan452 said:

Hi just a quick question as any body had a liver ultrasound done as I'm going for one very soon thanks 


Yep, twice, no issues found either time.

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Posted

So if it's all about DHT, are your DHT levels under the scale?

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