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dont_do_it

my terrible accutane experience

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I made this account in the hopes of convincing at least one other person to not make the mistake of taking this drug.

First, I am a 25 year old male and in (or at least was) good health. I have dealt with acne since around the age of 15 or 16. I tried so many different things over the years: topicals, antibiotics, diet changes, vitamins, doing nothing, etc and I couldn't find anything that worked very well. It was always sort of at bad end moderate, but then at one point last year it just inexplicably became many times worse and started scarring (which really depressed me) which is why I used accutane.

I did a 4 month course of 20/20/30/20 and it has been almost 6 months since I have finished. I will say this, it did work to get rid of my acne. My skin is now >95% clear and I occasionally get a small blemish which pretty much goes away on its own. I have 2 or 3 small scars from during the course, but they're small and seem to be improving on their own.

During the actual course, I had only a few typical side effects. I had chapped lips, an occasional minor back pain (which very well may have been from other things) and some hair shedding. Also, the oil in my hair almost completely disappeared (prior it would get pretty oily just overnight).

It was after within the month or two after the course was over though, that the real problems started. Guys, do not risk this risk. I am now experiencing ED and I can assure you it is absolutely because of this drug. While I can still function, erections are not as strong as they used to be, they are difficult to obtain (prior, it was difficult for me not to obtain one if I was within 10 feet of an attractive woman), they go away quickly, and libido is severely diminished. At some point after it started, I experienced a brief recovery period but the problem came back.

Some people will tell you that it's psychological, but it's not. For one, before I took accutane and even when my acne was at my worst and it depressed me, I never had this problem. Second, I have had a complete loss of nocturnal/spontaneous erections, if my problems were psychological then at least these would still be occurring. Third, this started after my course was over and after I stopped thinking about accutane ( I also didn't think/worry about this as a side effect, it just happened).

The only hope I have is that this is temporary. Within the last few weeks my hair started becoming oily again and shedding less, so I am praying that this means my body is slowly returning to normal.

I need to reiterate, side effects may not appear until after your course. Side effects may not appear until after your course. Side effects may not appear until after your course.

I made the mistake of thinking that I could take the drug, and just drop it if the side effects became too bad. But as I said, during the course my side effects were practically non existent (aside from hair shedding, which I don't care about anymore anyway; if you think hair loss is scary, I can tell you it is absolutely meaningless compared to sexual dysfunction). It wasn't until after it was done and I thought I could go on my merry, acne free-way that ED appeared.

Guys (and girls) do not take this drug. Especially if you're still a teenager, your body is still changing and you have a good chance of just outgrowing your acne. I would, in a heartbeat, take my horrible acne back to have the rest of my body back to normal.

If you do take it, statistically speaking it is very unlikely that what happened me will happen to you. But it's not worth the risk. You could be throwing away the best experience life has to offer (not to mention you may get other severe side effects that I don't have) . I thought I could just take the drug and finally get on with a normal life afterward. The problem is that now I don't have much of a life a get on with.

Honestly, too, when you have this problem it makes care much less about the rest of your life. 10 months ago, I thought at this point I would be ecstatic and going out more and enjoying life more with clear skin. Now my skin is petty darn good and I don't even give a ****. Nearly every waking moment I'm hoping that my body will keep going back to the way it was and that I can put this behind me. Trust me, you do not want this.

Some people may post in here and try to say that my problem was not caused by accutane, but from something else. Well, it was and I can say this with 100% certainty. This doesn't happen to many people, but it can happen, and it can happen to you. Do some research and you'll see that my experience is not unique. Or better yet, just leave the accutane posts altogether and put the thought of using this drug out of your mind for good.

Edited by dont_do_it

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You are not alone man. I have been dealing with the same problem 10 years after taking Accutane, and yes, people will tell you Accutane did not cause it. Just remember that you are not the only one and pray that your body returns to normal. Just consider yourself somewhat lucky that you didn't also get the other major side effects. Along with ED, I also have chronic fatigue and extremely sore joints (just to mention a few). As far as the ED goes, google a doctor named Pezzi. He wrote an online book and in there mentions Accutane induced ED. This won't help you with curing your problem, but it will show you that you are not alone (if that helps any). Good luck.

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I also want to add something, as I left this out and it's just as important as the rest. I feel like I'm also losing my sense of what sex is like and how it made me feel to be with someone that I really cared about; it's something that I can't relate to or remember anymore. My memories don't really even give me an emotional response anymore. The only way I can try to to explain this better is with an analogy; from what I understand, when a person loses his vision, he can still see pictures in his mind/dreams for while, but eventually that goes away and dreams become sounds only.

Well, that's what I feel like, I feel like I'm slowly losing a sense. I no longer get that hard to describe feeling in my stomach when I'm around a girl that like, I simply just don't feel anything. I can look at woman and objectively determine that she's attractive, but it doesn't give me the emotional and physical sensations that it used to. Sort of like how you can just look at a sunset or the stars and just feel that they're beautiful, there's no objective reason why.

About a year ago I was really bummed out for a while about a girl that I wanted but couldn't be with and at that time all I wanted was for that feeling to go away. Now I would give anything to feel that kind of sadness again.

Edited by dont_do_it

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Accutane is something I regret deeply.

I only took it for 3 weeks (40mg/day) yet it affected me quick. From the first pill I started losing my acne, and my hair. I also developed dark bags under my eyes that are still darkening months after those 3 weeks... my eyes are very dry and red...

This shit can affect you psychologically, and physically. Is it worth it? I don't think so.

Edited by iRyRy

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Exactly how long ago did you take it? If it's only been a few months I would try not to lose hope just yet, give it a little more time.

Accutane is something I regret deeply.

I only took it for 3 weeks (40mg/day) yet it affected me quick. From the first pill I started losing my acne, and my hair. I also developed dark bags under my eyes that are still darkening months after those 3 weeks... my eyes are very dry and red...

This shit can affect you psychologically, and physically. Is it worth it? I don't think so.

Edited by dont_do_it

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You said your problem is not psychological, then doctors can easly find your problem with simple test, have they done that? you should damaged veins and or valves then. and if your having those mental problems what have to done to seek help? and dont tell people not to take it, they are smart enough to read the side effects, even though the side effects are not common at all.

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and dont tell people not to take it, they are smart enough to read the side effects, even though the side effects are not common at all.

I am sharing my story. And my experience could have just as easily been great like it is for most people, and I could have come one this board recommending accutane and posting about how good it is. But that didn't happen.

The fact is that sexual dysfunction (for men) is not well known as a side effect, but there are reputable studies which recognize it as a risk. As I said, I experienced only minimal side effects the treatment (and had no sexual dysfunction during the course), but this happened after the course was over. I think most people don't realize this but it's important that they do. You would think if something bad were to happen to you, it would happen while you were actually taking the drug and you would then know to stop right away and prevent any problems. Unfortunately it doesn't always work this way.

Anyways, since you're on this board I can only assume that you are (or were) using accutane or you're thinking about it. I'm not going to try to change your mind, but I really hope you don't have a bad experience like this one or others.

Edited by dont_do_it

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does any one know the science behind accutane and ED? Low testosterone could cause it, but Accutane is not supposed to lower hormone levels. I heard someone mention damged valves and or veins?? Is that a possible side of accutane, damaged valves in the penis? I'v been on for a month now with amazing results and only chapped lips. I see you only used 30mg. The doc wants me on 80 for 6 months.

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wow im really changing my mind because i am reading too many bad side effects.

this is one of the worse for us men... im stll a teen still a virgin n with acne i can get laid but witout a boner it isnt possible.

i hope u get back to a normal body.. if u do let us alll know

and also have u tried like viagra or somthin?

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If you are still a teenager I would doubly recommend that you stay away from this drug. Your body is probably not done growing and you have a good chance of even just outgrowing your acne all together.

I haven't tried anything like viagra and I don't think I would want to. I still have a slim hope that my body is slowly reverting to normal and I'll try to keep this thread updated.

wow im really changing my mind because i am reading too many bad side effects.

this is one of the worse for us men... im stll a teen still a virgin n with acne i can get laid but witout a boner it isnt possible.

i hope u get back to a normal body.. if u do let us alll know

and also have u tried like viagra or somthin?

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does any one know the science behind accutane and ED? Low testosterone could cause it, but Accutane is not supposed to lower hormone levels. I heard someone mention damged valves and or veins?? Is that a possible side of accutane, damaged valves in the penis? I'v been on for a month now with amazing results and only chapped lips. I see you only used 30mg. The doc wants me on 80 for 6 months.

I've read some articles/theories on it and it doesn't seem like it's very well understood. But one post I read elsewhere said that a guy experiencing this problem tested for low testosterone levels.

Several sources seem to suggest that you lose your ability to obtain erections of neurological origin. Which, from what I understand, means roughly this: you can use still manual stimulation to obtain an erection, but it will actually take some effort and it probably wont be anywhere near as enjoyable. But, you know how when you're around a girl that you fancy, and you just instantly have all these urges and can't help but having a raging hardon that wont go away until you do something about it or very intently focus on something else? Well those are the types of erections that you wont experience anymore. Another example might be something like smelling a perfume that reminds of her and getting an erection from that. Basically, your penis is now like a machine that you have start up every time rather than its own entity that just spontaneously does whatever it wants or, rather, reacts to all different sorts of sensory stimuli.

I'll have to do more reading, as I'm not sure if I'm entirely correct in my interpretation of the articles; and what I've read so far hasn't been very detailed. Though, I can say that what I wrote above describes my current situation pretty accurately.

Edited by dont_do_it

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Well you acutally are telling people not to take it from your bad personal experience, and you still didnt even say the cause of your ed, i'm guessing you didnt even get any tests done. thanks. i took accutane little over 3 years ago, no bad side effects, hope yours are just temporary, but your not a doctor nor do i think you even been to one to get tests done for your ed, or you would know if its physiological or physical, and theres easy horomone tests ect, too.

and dont tell people not to take it, they are smart enough to read the side effects, even though the side effects are not common at all.

I am sharing my story. And my experience could have just as easily been great like it is for most people, and I could have come one this board recommending accutane and posting about how good it is. But that didn't happen.

The fact is that sexual dysfunction (for men) is not well known as a side effect, but there are reputable studies which recognize it as a risk. As I said, I experienced only minimal side effects the treatment (and had no sexual dysfunction during the course), but this happened after the course was over. I think most people don't realize this but it's important that they do. You would think if something bad were to happen to you, it would happen while you were actually taking the drug and you would then know to stop right away and prevent any problems. Unfortunately it doesn't always work this way.

Anyways, since you're on this board I can only assume that you are (or were) using accutane or you're thinking about it. I'm not going to try to change your mind, but I really hope you don't have a bad experience like this one or others.

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you have my sympathies, OP.

dont' even bother explaining to people like jacobden. unless he suffers, he won't understand. i never thought i'd get side effects. but i did. i wish you the best!

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In life, every decision we made carry a certain risks. It is the same with accutane. Most knew beforehand that accutane is capable of inflicting severe side effects but yet most choose to take the risk for the sake of looking good. There bound to be some who are lucky enough to get away without experiencing a single side effect, whereas some aren't so lucky and in turn have to live with permanent side effects.

I am not trying to be a naysayer here but sometimes I do feel that people need to blame themselves if bad things happen since we are the one who makes every decision in our lives be it good or bad outcome.

Take me for example. I knew it immediately that I do not need accutane when the doctor offered it to me because all I had were just two pimples. But yet I chose to say yes instead of no for the sake of seeking perfection and not having to deal with acne ever again. I must admit that I did blame the doctor at first but I could have declined his suggestion of accutane but I didn't.

We all know human beings are selfish. Take Jacoden and I for example. Had Jacoden suffered from severe side effects then he would have being one of the sufferers and lambast what accutane had done to him. On the otherhand, had accutane gave me the perfection that I was seeking for, then I will be praising how great accutane is and so on.

Edited by Max-

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I also want to add something, as I left this out and it's just as important as the rest. I feel like I'm also losing my sense of what sex is like and how it made me feel to be with someone that I really cared about; it's something that I can't relate to or remember anymore. My memories don't really even give me an emotional response anymore. The only way I can try to to explain this better is with an analogy; from what I understand, when a person loses his vision, he can still see pictures in his mind/dreams for while, but eventually that goes away and dreams become sounds only.

Well, that's what I feel like, I feel like I'm slowly losing a sense. I no longer get that hard to describe feeling in my stomach when I'm around a girl that like, I simply just don't feel anything. I can look at woman and objectively determine that she's attractive, but it doesn't give me the emotional and physical sensations that it used to. Sort of like how you can just look at a sunset or the stars and just feel that they're beautiful, there's no objective reason why.

About a year ago I was really bummed out for a while about a girl that I wanted but couldn't be with and at that time all I wanted was for that feeling to go away. Now I would give anything to feel that kind of sadness again.

Dude, is this for real? Don't mess around with us if you're one of those 'trolls' cause that's not funny. I'm seriously contemplating taking accutane, but not if I won't be able to get intimate with girls anymore.

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You said your problem is not psychological, then doctors can easly find your problem with simple test, have they done that? you should damaged veins and or valves then. and if your having those mental problems what have to done to seek help? and dont tell people not to take it, they are smart enough to read the side effects, even though the side effects are not common at all.

Yo dude, don't get joy from other people's misfortunes. I'm pretty sure this guy knows his penis pretty well since they've been together for 25 years, so if it stops working right after he takes a serious medication, then there's probably a correlation.

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you have my sympathies, OP.

dont' even bother explaining to people like jacobden. unless he suffers, he won't understand. i never thought i'd get side effects. but i did. i wish you the best!

John, what side effects did you get. I'm personally very prone to side effects with everything. Is it too risky?

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In life, every decision we made carry a certain risks. It is the same with accutane. Most knew beforehand that accutane is capable of inflicting severe side effects but yet most choose to take the risk for the sake of looking good. There bound to be some who are lucky enough to get away without experiencing a single side effect, whereas some aren't so lucky and in turn have to live with permanent side effects.

I am not trying to be a naysayer here but sometimes I do feel that people need to blame themselves if bad things happen since we are the one who makes every decision in our lives be it good or bad outcome.

Take me for example. I knew it immediately that I do not need accutane when the doctor offered it to me because all I had were just two pimples. But yet I chose to say yes instead of no for the sake of seeking perfection and not having to deal with acne ever again. I must admit that I did blame the doctor at first but I could have declined his suggestion of accutane but I didn't.

We all know human beings are selfish. Take Jacoden and I for example. Had Jacoden suffered from severe side effects then he would have being one of the sufferers and lambast what accutane had done to him. On the otherhand, had accutane gave me the perfection that I was seeking for, then I will be praising how great accutane is and so on.

Wow, you should copy and paste this somewhere. Like seriously though, I think you really described it perfectly. I don't know you, but I like the way you think. You obviously have a good head on your shoulders. I haven't taken accutane, but I think about it sometimes when I get a bad break out, but then I always think that I could be that 10%. Ugh, I dunno, if it was a game of cards, then that would be good odds, but with my health... I just don't know.

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Dude, is this for real? Don't mess around with us if you're one of those 'trolls' cause that's not funny. I'm seriously contemplating taking accutane, but not if I won't be able to get intimate with girls anymore.

I wish I was one of those trolls. My reason for doing this is so that people can read a real story of a person's experience with the drug, rather than just a booklet at the doctor's office. I was really desperate and I made very bad decision because of it.

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Yep so he knows it better than doctors inside and out? right...

You said your problem is not psychological, then doctors can easly find your problem with simple test, have they done that? you should damaged veins and or valves then. and if your having those mental problems what have to done to seek help? and dont tell people not to take it, they are smart enough to read the side effects, even though the side effects are not common at all.

Yo dude, don't get joy from other people's misfortunes. I'm pretty sure this guy knows his penis pretty well since they've been together for 25 years, so if it stops working right after he takes a serious medication, then there's probably a correlation.

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I have hair loss and ED and hair loss is 10x worse than ED. I have a hard time leaving my house drowning in my sorrow and quality of life because of it. I'm surprised people can even withstand talking to me, I'm not even human anymore.

I understand my penis is broken for life and I don't even care about that, once upon a time I did but once you realize that hair loss prevents you from even courting the opposite sex your penile problems are the least of your worries.

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arent you african american? shave your head, you wont look like a skinhead

I have hair loss and ED and hair loss is 10x worse than ED. I have a hard time leaving my house drowning in my sorrow and quality of life because of it. I'm surprised people can even withstand talking to me, I'm not even human anymore.

I understand my penis is broken for life and I don't even care about that, once upon a time I did but once you realize that hair loss prevents you from even courting the opposite sex your penile problems are the least of your worries.

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I have hair loss and ED and hair loss is 10x worse than ED. I have a hard time leaving my house drowning in my sorrow and quality of life because of it. I'm surprised people can even withstand talking to me, I'm not even human anymore.

I understand my penis is broken for life and I don't even care about that, once upon a time I did but once you realize that hair loss prevents you from even courting the opposite sex your penile problems are the least of your worries.

First, I'm really sorry for your experience, but I am wondering how old you are? Seriously, hairloss is not that big of a deal unless you're still in your teens; it just takes some time to accept it. Last I read, something like half of all men (and even a non trivial amount of women) have noticeable hairloss and a lot of guys even start losing their hair in their early/mid 20s. And I can tell you that a lot of women don't care if you're bald/balding, and the ones that do care you probably wouldn't want to be with anyways.

Like I said, I experienced some noticeable hair thinning/loss from the drug and I don't even give a **** about it anymore. I would gladly go the rest of my life completely bald (and I'm one of those guys that would look kind of goofy bald) if it would get rid of the ED.

If you're really that upset about hairloss and that unconcerned with ED, I don't know what else to say.

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Folks, please do not be discouraged from taking accutane because of the "experience" of one individual.

I am on my second course of accutane and this entire time I have yet to have hair loss, erectile dysfunction or mood swings. In fact my symptoms are just limited to dry skin on the arms (yes on a 80mg dosage).

As for the original poster, we are all young and invincible (in our minds at least) but you would be surprised how many men develop erectile dysfunction or lose some libido (without ever taking accutane) in their mid / late 20s.

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arent you african american? shave your head, you wont look like a skinhead

I'd rather have hair. I've had people say some rude things about how I look bald.

I have hair loss and ED and hair loss is 10x worse than ED. I have a hard time leaving my house drowning in my sorrow and quality of life because of it. I'm surprised people can even withstand talking to me, I'm not even human anymore.

I understand my penis is broken for life and I don't even care about that, once upon a time I did but once you realize that hair loss prevents you from even courting the opposite sex your penile problems are the least of your worries.

First, I'm really sorry for your experience, but I am wondering how old you are? Seriously, hairloss is not that big of a deal unless you're still in your teens; it just takes some time to accept it. Last I read, something like half of all men (and even a non trivial amount of women) have noticeable hairloss and a lot of guys even start losing their hair in their early/mid 20s. And I can tell you that a lot of women don't care if you're bald/balding, and the ones that do care you probably wouldn't want to be with anyways.

Like I said, I experienced some noticeable hair thinning/loss from the drug and I don't even give a **** about it anymore. I would gladly go the rest of my life completely bald (and I'm one of those guys that would look kind of goofy bald) if it would get rid of the ED.

If you're really that upset about hairloss and that unconcerned with ED, I don't know what else to say.

I'm in my 20's and I feel completely unattractive because of it. Accutane hair loss and normal hair loss are different, Accutane hair loss effects your whole head and spots that are normally resistant to hair loss. I can't even go bald normally.

I guess we're both on opposite ends of the spectrum, I would be happy with ED if I had a full head of hair and you would be happy bald if you didn't have any sexual problems.

It's as if having hair validates my self worth in my world, I don't even know.

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