Jump to content
Acne.org
Search In
Find results that contain...
Find results in...
ucfguy3

Suggestions for Recurrent Misery? Please...!

Recommended Posts

Hello,

Every six months or so, I break down and come to this board searching for advice. I usually get a handful of responses. If anyone can relate to my experience, please help me.

I'm now 23, and have had complexion problems since I was 14. I have been on six courses of Accutane. I've gone to 8 dermatologists, 1 research hospital, 1 infectious disease specialist, 3 family doctors, 1 allergist, 1 internal medicine doctor, multiple aestheticians, and several walk-in clinics to try to resolve my problem. I've been on every antibiotic possible, probably at least 5 times or more for certain ones. I've tried every topical possible, all the retinoids, BP, SA, other acids, light therapy, and strange things recommended on this website. I've also tried extensive diet modifications, and vitamin supplements. My family has easily spent tens of thousands of dollars to try to remedy my situation. Two times, my acne evolved into gram-negative folliculitis and was so bad pictures of me were used in a teaching college for new doctors.

My skin problems come in waves. I'll attach two pictures to show you what I mean. Sometimes my skin is flawless (and somehow never seems to severely scar) and other times my skin is so inflamed I lock myself in my room for weeks at a time.

Right now, my skin is pretty bad again. I have two giant, watery pus oozing things on my cheek, and countless inflammed folicles, which emit hard pus deposits every few hours. It's like they're unhealable wounds and they just won't go away. I also have a giant boil on my back, with a giant red circle around it. My doctor has me on a newer antibiotic called Solodyn, which is basically just time-release minocycline, which I have been on probably 10 times. This medicine has horrible reviews online and seems to not really work for anyone, only cause liver enzyme damage and permanent drug-induced lupus - great! Also, even if this drug does begin to work (I've been on it a month), once I stop I'm sure the problem will only come back worse than before, as that's what tends to happen with antibiotics. No doctor is going to put me on a 7th course of Accutane.

If anyone has some suggestions, I would be most grateful, as this has substantially ruined my life for the past almost 10 years. I'm currently washing with a betadine wash (Iodine) and a hibiclins scrub. I also put betadine on topically when I sleep. I'm taking the antibiotic Solodyn, and I'm taking vitamins A, C, E, D, Zinc, Iron, and some others.

post-53454-1257966349_thumb.jpg

post-53454-1257966483_thumb.jpg

post-53454-1257966529_thumb.jpg

post-53454-1257966553_thumb.jpg

post-53454-1257966349_thumb.jpg

post-53454-1257966483_thumb.jpg

post-53454-1257966529_thumb.jpg

post-53454-1257966553_thumb.jpg

Edited by ucfguy3

Share this post


Link to post
Share on other sites

Hello :)

I can definitely relate. I can't say I've spent quite that much money looking for a solution, but then again, I've lost track. Oh and if anyone else reads this, if you happen to have any advice for me, I'd appreciate that as well. My issues started when I was 14. I started getting acne really bad across my forehead, nose, mouth, and chin. I attributed it to puberty and bought all of the usual creams, washes, spot treatments, etc. that were sold over the counter. What realllllly miffed me, was that both of my sisters had perfect ivory skin and would only get a zit like right before their pd. Meanwhile, I had a whole farm on my face. So, (I'm a female) I went to my GYN and found out I had ovarian cysts when I was 15. He put me on the pill (Ortho Tri Cyclen) which I stayed on till I was about 20. It never made the acne go completely away, but it reduced the number and the severity. During this time, I still used all the creams, topicals, etc. When I was 20, I wanted to try and go off of the pill, because I wasn't comfortable being on it for as long as I had. I never did get anymore cysts, but the acne has been getting significantly worse over the past 8 years. I actually went back on when I was 24 for a year, but had some pretty bad mood swings and quit again. I'm currently 28 years old, have been dealing with this crap for almost 14 years, and have no idea what to do. The acne has actually changed over the years too. I no longer get it in the T-zone, and now get cystic acne on the lower cheeks and across my jawline. I went to the derm, and all they did was put me on a zillion rounds of antibiotics which did absolutely nothing except create some pretty annoying "female" problems. I refuse to get accutane because of the damage it can do with regard to side effects. So, here I sit with blackheads, whiteheads, and inflamed zits. I have a GYN apt. coming up and am going to break down and ask for another prescription for the pill, however I know it will only reduce not eliminate my acne. To make matters worse, I have scars now, which no one will touch till my acne is gone completely. I'm seriously thinking about requesting Spiro in addition to the pill, but have no idea if my doc. will prescribe it. It's just really frustrating when you see all these doctors and they either A. Treat it like it's nothing big, or B. Don't seem to know what to do about it. So, I don't really have any advice, but I can definitely tell you that you are not alone and we are all in this together.

Share this post


Link to post
Share on other sites

Let me tell you guys....you're not alone in this misery....I've been through this nightmare for almost 13 years now and it has definitely affected my self esteem and over all quality of life....i had suicidal ideations because of this disease.....There will come a time, when all these miseries will be over.....Maybe on the other side....I see you when you get there.....See you at the crossroads....Where you wont be lonely.....

Share this post


Link to post
Share on other sites

I have heard of others being on a long term low dose of Accutane. Is that not an option for you?

Have you ever visited an endocrinologist? I'm just asking because I believe that my problems are related to hormonal disorders. I have many symptoms of hypothyroidism and acne can be a symptom of that, too. I'm currently trying to get a referral for an endocrinologist.

I also have symptoms for a female disorder (which wouldn't apply to you -- but might apply to the female who posted a reply) called PCOS. My mother has it and it causes increased testosterone -- and again, acne can be a symptom. It is the excess androgens that are to blame with PCOS.

Good luck! I really hope you can find a solution to your problem.

Share this post


Link to post
Share on other sites

You seem to get pimples in the same spots I do (altho they look different). They are all where I shave my face. I feel like while I have an inherent issue with my skin that makes me prone to acne, the razor blade is making things worst. Of course if I just let my beard grow it's not better as I can't wash my face properly like that.

I need a better razor. Might need to try that too.

Share this post


Link to post
Share on other sites

Thanks everyone!

I've not been to an endocrinologist, but I have had endocrine system tests done which have all come back normal :(

As far as shaving, yes this is true, and I've found that a foil electric shaver (though harder to shave with) is the best option for me.

I've been mixing Betadine Solution (found in the first aid isle) with Olay Sensitive Skin face wash (which gets high reviews on here) and also have been spot-treating overnight with Betadine. This has helped my skin immensely! I recommend this to anyone!

After using the Betadine for a few days, my face virtually cleared. At the same time, though hard, out of desperation I stopped drinking coffee or caffeine. This morning, feeling good, I drank a lot of coffee, and now in the afternoon, my skin has tons of little clogged pores/whiteheads. I've been doing some reading and certain people can't metabolize caffeine properly. and so it causes problems, and often acne. I'm pretty certain this has to be what has mainly contributed to my bad skin for years. I've also been diagnosed with ADD/anxiety, and people with caffeine allergy are prone to experience symptoms that mimic those disorders. Periods where I drank profuse amounts of coffee, tea, and soda, I had the worst skin and worst ADD/anxiety/depression issues.. So no more caffeine, and I'll let you know how it goes.

Hope this sheds some light on other people's issues.

Edited by ucfguy3

Share this post


Link to post
Share on other sites

ALSO, I wanted to say that in the past day I took a melatonin supplement pill, which in the past I've found seemed to cause me to break out terribly. So, in the future, no melatonin, and no caffeine.

Thanks everyone!

I've not been to an endocrinologist, but I have had endocrine system tests done which have all come back normal :(

As far as shaving, yes this is true, and I've found that a foil electric shaver (though harder to shave with) is the best option for me.

I've been mixing Betadine Solution (found in the first aid isle) with Olay Sensitive Skin face wash (which gets high reviews on here) and also have been spot-treating overnight with Betadine. This has helped my skin immensely! I recommend this to anyone!

After using the Betadine for a few days, my face virtually cleared. At the same time, though hard, out of desperation I stopped drinking coffee or caffeine. This morning, feeling good, I drank a lot of coffee, and now in the afternoon, my skin has tons of little clogged pores/whiteheads. I've been doing some reading and certain people can't metabolize caffeine properly. and so it causes problems, and often acne. I'm pretty certain this has to be what has mainly contributed to my bad skin for years. I've also been diagnosed with ADD/anxiety, and people with caffeine allergy are prone to experience symptoms that mimic those disorders. Periods where I drank profuse amounts of coffee, tea, and soda, I had the worst skin and worst ADD/anxiety/depression issues.. So no more caffeine, and I'll let you know how it goes.

Hope this sheds some light on other people's issues.

Share this post


Link to post
Share on other sites
I have heard of others being on a long term low dose of Accutane. Is that not an option for you?

Have you ever visited an endocrinologist? I'm just asking because I believe that my problems are related to hormonal disorders. I have many symptoms of hypothyroidism and acne can be a symptom of that, too. I'm currently trying to get a referral for an endocrinologist.

I also have symptoms for a female disorder (which wouldn't apply to you -- but might apply to the female who posted a reply) called PCOS. My mother has it and it causes increased testosterone -- and again, acne can be a symptom. It is the excess androgens that are to blame with PCOS.

Good luck! I really hope you can find a solution to your problem.

Scarlett:

I honestly think it is either PCOS or at the very least hormonal. What's irritating, is that I saw my PCP, (who sometimes I think is a moron), and suggested that I thought maybe I had PCOS. She got this attitude and says, "Well, I can't treat you for that. You have regular periods, you're not overweight, you don't fit any of the symptoms." I told her that I used to fit the symptoms to a "T" (except for the weight thing) and that something was wrong somewhere, I just knew it. She told me to see my GYN and that the only thing he would do is put me on the pill, and walked away. That was literally the end of the apt. So I went to the GYN and he agreed to draw blood. They tested pretty much everything....thyroid, glucose levels, hormones, etc. Everything came back normal. My concern is, how can you tell if you have fluctuating hormones from a single test done at one point in time? And is it possible to have PCOS w/o being overweight? I'm def. going back on the pill because, since I've written my original post, I had a period (not to be graphic or anything) that was the worst I've ever had. I literally had cramps so bad, they woke me up 3 times out of a dead sleep. The only way I could sleep was to sleep on my stomach and even then, I could still feel them. Now, I have NEVER had cramps that bad. So, I'm going back on the pill, but I am going to talk to my GYN about it and see what he says. I'm just....at a loss. I also have no idea if this is related or a symptom or what, but for years (as long as I can remember) I have sweat really bad when I sleep. I mean, I literally turn into a furnace. My b/f has told me that not only will he not touch me when I'm sleeping, but that there have been times he's woke up from being too hot....all because he was under the blankets with me and I literally heated them up. I've heard of a lot of ppl having that problem, but I wonder if it's related to the acne in anyway?

Share this post


Link to post
Share on other sites
I have heard of others being on a long term low dose of Accutane. Is that not an option for you?

Have you ever visited an endocrinologist? I'm just asking because I believe that my problems are related to hormonal disorders. I have many symptoms of hypothyroidism and acne can be a symptom of that, too. I'm currently trying to get a referral for an endocrinologist.

I also have symptoms for a female disorder (which wouldn't apply to you -- but might apply to the female who posted a reply) called PCOS. My mother has it and it causes increased testosterone -- and again, acne can be a symptom. It is the excess androgens that are to blame with PCOS.

Good luck! I really hope you can find a solution to your problem.

Scarlett:

I honestly think it is either PCOS or at the very least hormonal. What's irritating, is that I saw my PCP, (who sometimes I think is a moron), and suggested that I thought maybe I had PCOS. She got this attitude and says, "Well, I can't treat you for that. You have regular periods, you're not overweight, you don't fit any of the symptoms." I told her that I used to fit the symptoms to a "T" (except for the weight thing) and that something was wrong somewhere, I just knew it. She told me to see my GYN and that the only thing he would do is put me on the pill, and walked away. That was literally the end of the apt. So I went to the GYN and he agreed to draw blood. They tested pretty much everything....thyroid, glucose levels, hormones, etc. Everything came back normal. My concern is, how can you tell if you have fluctuating hormones from a single test done at one point in time? And is it possible to have PCOS w/o being overweight? I'm def. going back on the pill because, since I've written my original post, I had a period (not to be graphic or anything) that was the worst I've ever had. I literally had cramps so bad, they woke me up 3 times out of a dead sleep. The only way I could sleep was to sleep on my stomach and even then, I could still feel them. Now, I have NEVER had cramps that bad. So, I'm going back on the pill, but I am going to talk to my GYN about it and see what he says. I'm just....at a loss. I also have no idea if this is related or a symptom or what, but for years (as long as I can remember) I have sweat really bad when I sleep. I mean, I literally turn into a furnace. My b/f has told me that not only will he not touch me when I'm sleeping, but that there have been times he's woke up from being too hot....all because he was under the blankets with me and I literally heated them up. I've heard of a lot of ppl having that problem, but I wonder if it's related to the acne in anyway?

A friend of mine had PCOS and was not overweight. She was constantly getting ovarian cysts, and always had acne. From my understanding, acne caused by PCOS has a certain look about it. She ALWAYS had blackheads on her nose, and I've read before that is a sign. Just my two cents.

Share this post


Link to post
Share on other sites

Hello,

What a journey you've had!

I'm 31 (female) and have had acne since I was 13. Was clear from 18-27 though due to birth control pills (no option for you, I know!). Had to stop hormones because the side effects were getting unpleasant and slowly but surely the acne crept back into my life. To the point where, aged 30, in January, I finally started a roaccutane treatment, which brought to light deep, cystic acne on my back and two large cysts on my forehead, one of which took four months to heal and scarred badly. I've had 2 months break from roaccutane, but am back on it again now for 2 months, as it seems the 128mg/kg body weight did not clear me up completely.

I know that post-roaccutane I will need some sort of maintenance regimen (hoping that Dan's regimen might work), but my sister recently found a website for an acne clinic in New York run by Dr. Neal. He claims to have a 100% success rate (with just topical medications and some but no drastic lifestyle changes), and from what I've read he really seems to be a good guy. He had acne himself, which he cured, I think, bringing together conventional western medicine and traditional eastern knowledge (his father is a medic and his mother some sort of alternative health practitioner). If you google 'Dr. Neal' and 'acne' you should be able to find him. He runs acne camps, I think. For me his treatment is too expensive at the moment (and I hope that post-tane, at my formidable age, I should see some significant improvement and be able to cope with just good topicals), but since you seem to already have spent a fortune you might wish to have a look at his website and read his posts, see what you think.

Also, it sounds to me like you should try to stay away from more accutane and antibiotics, or else you will ruin your health. What we have been given to live with is difficult and sometimes very painful, emotionally and physically, but it is something that we can take control of. But, I have come to see that this does not happen from one day to the next and for a while we may just have to accept that our bodies are not as happy as we would like them to be, and that sometimes we have to wait a little bit and not shut down our systems before they even have a chance to balance themselves out. This is what I did, too, for many years, and I've paid the price recently. But I'm on my way out now. I think that the fact that you have taken so many different medications may have something to do with the fact that you are still breaking out.

Good luck for your journey. May you learn a way to live with and liberate yourself from your skin condition.

Share this post


Link to post
Share on other sites
Have you tried Niacin? It's working for alot of people on this board...

I've used Nicotinamide/niacinamide for about 6 months now. It worked wonders for about two months, then stopped working :(

Share this post


Link to post
Share on other sites
Hello,

What a journey you've had!

I'm 31 (female) and have had acne since I was 13. Was clear from 18-27 though due to birth control pills (no option for you, I know!). Had to stop hormones because the side effects were getting unpleasant and slowly but surely the acne crept back into my life. To the point where, aged 30, in January, I finally started a roaccutane treatment, which brought to light deep, cystic acne on my back and two large cysts on my forehead, one of which took four months to heal and scarred badly. I've had 2 months break from roaccutane, but am back on it again now for 2 months, as it seems the 128mg/kg body weight did not clear me up completely.

I know that post-roaccutane I will need some sort of maintenance regimen (hoping that Dan's regimen might work), but my sister recently found a website for an acne clinic in New York run by Dr. Neal. He claims to have a 100% success rate (with just topical medications and some but no drastic lifestyle changes), and from what I've read he really seems to be a good guy. He had acne himself, which he cured, I think, bringing together conventional western medicine and traditional eastern knowledge (his father is a medic and his mother some sort of alternative health practitioner). If you google 'Dr. Neal' and 'acne' you should be able to find him. He runs acne camps, I think. For me his treatment is too expensive at the moment (and I hope that post-tane, at my formidable age, I should see some significant improvement and be able to cope with just good topicals), but since you seem to already have spent a fortune you might wish to have a look at his website and read his posts, see what you think.

Also, it sounds to me like you should try to stay away from more accutane and antibiotics, or else you will ruin your health. What we have been given to live with is difficult and sometimes very painful, emotionally and physically, but it is something that we can take control of. But, I have come to see that this does not happen from one day to the next and for a while we may just have to accept that our bodies are not as happy as we would like them to be, and that sometimes we have to wait a little bit and not shut down our systems before they even have a chance to balance themselves out. This is what I did, too, for many years, and I've paid the price recently. But I'm on my way out now. I think that the fact that you have taken so many different medications may have something to do with the fact that you are still breaking out.

Good luck for your journey. May you learn a way to live with and liberate yourself from your skin condition.

Hi Mara! Thank you very much for such a nice reply!

I've always wished there were some sort of hormonal treatment for men, but of course, there are no options there for men.

I'm glad to hear your problems are on their way out. I really hope this is the end for you.

I don't think I could afford to spend much more on skincare problems at this point (and I'm about to also lose health insurance due to graduating college in a month), but I'll definitely look into this Dr. Neal and try to learn more about what he has to say.

I'm definitely learning to just cope with my problems, but of course it's very hard. I'm very resourceful, so I always have this "there must be SOMETHING that will work" mindset, and when things don't work, it's very depressing. There's been a lot of emotional damage done.

I'm really having a lot of success with Betadine Solution. It doesn't prevent too much, but it keeps things at bay.

Thanks again for your response :)

Share this post


Link to post
Share on other sites
So I take it you've had a proper go at Dan's Regimen too?

Oh yes, and it worked well for years.

Now, it doesn't even touch my whiteheads, which just become filled with green pus and never heal. And my skin just gets red and oily and nothing positive occurs.

Share this post


Link to post
Share on other sites

What about Isolaz laser? www.isolaz.com this is different from other lasers as it includes a vaccum suction that pulls out all the gunk.... I've had 6 treatments so far

Share this post


Link to post
Share on other sites
What about Isolaz laser? www.isolaz.com this is different from other lasers as it includes a vaccum suction that pulls out all the gunk.... I've had 6 treatments so far

Wow! That looks really unique. Has it worked well for you?

Share this post


Link to post
Share on other sites
What about Isolaz laser? www.isolaz.com this is different from other lasers as it includes a vaccum suction that pulls out all the gunk.... I've had 6 treatments so far

Wow! That looks really unique. Has it worked well for you?

I just read your post about Isolaz. It sounds like it takes a little bit of time, but in the end it seems to work well.

I found a place here in Orlando that does Isolaz treatment at 6 treatments for $1,200. Yikes. Maybe they have a student discount...

Share this post


Link to post
Share on other sites
What about Isolaz laser? www.isolaz.com this is different from other lasers as it includes a vaccum suction that pulls out all the gunk.... I've had 6 treatments so far

Wow! That looks really unique. Has it worked well for you?

I just read your post about Isolaz. It sounds like it takes a little bit of time, but in the end it seems to work well.

I found a place here in Orlando that does Isolaz treatment at 6 treatments for $1,200. Yikes. Maybe they have a student discount...

It really works well.... if you look on their website and see some of their media stuff (they have been on many TV shows, featured in newsmagazines, etc) and it is the last resort for alot of people.... It is definitely pricey, my acne was only on my chin area and therefore only cost $100 per laser.... but if yours is all over, it may very well cost more. Why not go for a consulation, usually those are free and what do you have to lose? I was willing to spend the $$ even if it were more, as I had become so depressed/desperate.... Yes patience is key in this acne fight, but you'll know if it's gonna work after the first few times... you'll notice a change in yr skin.... Some people with HORRIBLE acne have been treated succesffully with Isolaz!!

Edited by Jaka

Share this post


Link to post
Share on other sites

Also wanted to add that in the pics, your acne looks to be in one main area.... So it may cost alot less than you think, the price on most websites is to treat your ENTIRE face. You only need to be treated where the acne is. So go for a consultation and get a price quote in person!!

Share this post


Link to post
Share on other sites
Also wanted to add that in the pics, your acne looks to be in one main area.... So it may cost alot less than you think, the price on most websites is to treat your ENTIRE face. You only need to be treated where the acne is. So go for a consultation and get a price quote in person!!

Thanks :) I'm gonna set up an appointment.

Share this post


Link to post
Share on other sites
Scarlett:

I honestly think it is either PCOS or at the very least hormonal. What's irritating, is that I saw my PCP, (who sometimes I think is a moron), and suggested that I thought maybe I had PCOS. She got this attitude and says, "Well, I can't treat you for that. You have regular periods, you're not overweight, you don't fit any of the symptoms." I told her that I used to fit the symptoms to a "T" (except for the weight thing) and that something was wrong somewhere, I just knew it. She told me to see my GYN and that the only thing he would do is put me on the pill, and walked away. That was literally the end of the apt. So I went to the GYN and he agreed to draw blood. They tested pretty much everything....thyroid, glucose levels, hormones, etc. Everything came back normal. My concern is, how can you tell if you have fluctuating hormones from a single test done at one point in time? And is it possible to have PCOS w/o being overweight? I'm def. going back on the pill because, since I've written my original post, I had a period (not to be graphic or anything) that was the worst I've ever had. I literally had cramps so bad, they woke me up 3 times out of a dead sleep. The only way I could sleep was to sleep on my stomach and even then, I could still feel them. Now, I have NEVER had cramps that bad. So, I'm going back on the pill, but I am going to talk to my GYN about it and see what he says. I'm just....at a loss. I also have no idea if this is related or a symptom or what, but for years (as long as I can remember) I have sweat really bad when I sleep. I mean, I literally turn into a furnace. My b/f has told me that not only will he not touch me when I'm sleeping, but that there have been times he's woke up from being too hot....all because he was under the blankets with me and I literally heated them up. I've heard of a lot of ppl having that problem, but I wonder if it's related to the acne in anyway?

I had a similar experience with my ob/gyn -- she spent literally 5 minutes with me and didn't take my concerns about PCOS seriously. I didn't have any problems getting pregnant -- so she just kind of dismissed it as a possibility. Even though some women don't have fertility issues even though they have PCOS.

You can definitely be thin and have PCOS. I suffered with ovarian cysts for years and I was very thin in my early twenties (weighed about 100 lbs) and it wasn't from dieting -- I could eat pretty much what I wanted and didn't fluctuate more than 5 lbs. Now, I'm overweight -- but I don't know if that is due to age, having kids or my hormonal issues getting worse over time. Probably a combination of all three. My mom was very thin until she had children, too and after she had kids is when her hormonal trouble started. Doctor's seem to think you have to have certain symptoms to have it -- but you don't even have to have ovarian cysts to have PCOS. It is an adrogen problem. As for the sweating, my mom has a real problem with sweating although hers is pretty much all the time. I have some problems with night sweats and heat intolerance but not as bad as hers.

I decided to see a different ob/gyn. Although I know my doctor is a "good" doctor in terms of her medical knowledge, all the knowledge in the world isn't going to help me if she doesn't listen. So, I've decided I'm just going to have to find someone who will listen and take my concerns seriously. Good luck!

Share this post


Link to post
Share on other sites

Update after going to the doctor today:

I just went back to my dermatologist today. My skin is worse than even, and so tender that I have to take advil in order to calm it down for me to be able to sleep.

The doctor said "let's put you on doxycycline again." I've been on this 20 times and just got off of it a month ago to go on minocycline, which I've also probably been on 15 times. This doctor had me on doxycycline for three months with no positive change. I said no way, and that I'm not going on any antibiotics without culturing. My doctor then said the dreaded words which have led me to go to over 6 different dermatologists in the past 10 years: "Well I don't know what to tell you at this point. We've run the gambit. I guess you have bad genes. You'll just have to outgrow this, probably not until you're 35. Wanna try accutane?" SDLGJLKSJGLDSJ

And no one ever on any side of my family has ever remotely had any complexion problems. My mother is 63 and looks 40 and has gorgeous skin. Bad genes my ass.

So now I don't know what to do. If I choose Accutane (or soriatane, a weaker isotretinoin derivitive with slightly more mild side-effects), this will be my SEVENTH course of Accutane. WHAT. THE. HELL.

I also asked the doctor about Isolaz laser treatment and he said it's a complete waste of money and that the reason he doesn't offer it in his office is that after $1,000+ dollars for treatments, once you stop, the symptoms will come back very quickly. He told me not to bother.

So now I have to decide if I want to do Accutane for a 7th course. I only had success on ONE of the Accutane courses thus far, and was only clear for maybe a month or two before everything came back worse than ever. The other courses just did nothing except make me dry and still broken out, not to mention completely suicidal for years (though maybe it was just the stress of dealing with all this skin bullshit with no change).

Edited by ucfguy3

Share this post


Link to post
Share on other sites

So sorry to hear your update. Was hoping you would have some good news.

I'm just going to throw this out. Probably completely useless, but ...

I had a horrible cystic acne breakout this summer. I went on doxycycline to try to just manage it until I could get in to see the derm. It helped reduce it to the point where it wasn't painful to sleep, brush my teeth, smile, etc (I was using ibuprofen all day long just to be able to cope with normal facial movements -- never mind washing my face, ugh), but it didn't clear it up. Never has in the past and it tears up my stomach anyway. Before I finally got in to get my prescription for Accutane, I got a bad upper respiratory infection. My doctor prescribed azithromycin. It was a 5 day pack (but it works for 5 more days after you stop taking it).

For whatever reason, this antibiotic cleared up my cystic acne up. Completely. None of the antibiotics normally prescribed for acne ever had. They helped a little, but were never a solution for me. I started Accutane a month later, so I'm not sure how long it would last or anything -- but it has been over a month and I haven't yet had a cyst. I briefly considered not taking the Accutane to see if that worked for me -- but, with all the pregnancy tests I had already taken I honestly didn't want to go through that hassle again since I figured it probably wouldn't last anyway.

As I said, probably useless info -- but if you are out of options and you can get your doctor to try it -- maybe it will help. Obviously, I don't know how often you could take an antibiotic like that -- but for me -- any time I can have without breakouts or at least without cysts ... I'll take it.

Good luck! I'm really hoping you'll find an answer to your acne :)

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Personalized Advice Quiz - All of Acne.org in just a few minutes

×