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MiseryLovesCompany

A LIFETIME of skin issues & a CURE to good to be true?

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Greeting fellow sufferers!

First off, my heart goes out to all of you. I know the pain and angst involved with all sorts of skin ailments.

Here's my tale: I have had skin issues since I was an infant (I'm now 48). My mother told me I had cradle cap as an infant and my earliest memories include pimples. As I child I had pimples in my arm pits and in my crotch pits. They were always cystic in nature and I spent countless hours squeezing them. I know, yech but it had to be done. As I got older I developed what was diagnosed as Folliculitis. Specifically, small surface pimples on my back, arms and sometimes legs and ass. (sound familiar)

I battled this for years and was even sent home from grammar school once because the nurse thought I had chicken pox. Not too humiliating huh? I suffered with it throughout High School too and wasnt allowed in the swimming pool because of it. Again, only slightly mortifying.

Like most sufferers, it gets worse in summer and clears up in winter. I learned to live with it my entire life. In the meantime, I saw dozens of Dermatologists and took piles of antibiotics and it never ever cleared it up.

When I got into my 40s, it started to get worse! For the first time, it or something seemed to move to my face! I would get these localized large bumps that seemed like hives and itched like hell. And then they would weep and get bigger. Yech again. I also would get cyst like pimples in different areas on my face. I was diagnosed again with Folliculitis - and of course given all the wrong medicines. This has gone on for the last seven years and has caused great heartache and concern. Particularly because I am an actor and the last thing you need is weeping things on your face. My god, it's humiliating.

About a year ago, I discovered the existence of Pityrosporum Folliculitis and I seemed to be the poster boy of it. Excluding the cystic acne I was prone to my whole life, the pimples on my back that I got at summer time clinched it. That and the fact that I never responded to antibiotics.

I've had a great dermatologist for the past few years and 7 months ago, I pitched to her that I would like to try Accutane to once and for all cure me. I was horrified of the reported side effects but really wanted to give a go as a last ditch attempt. So she green lit the prescription and I completed a five month cycle. I had the usual drying side effects, plenty of aches and pains, trouble sleeping but thank god none of the psychological ones. However, it was no picnic and I couldnt wait to finish it!

Concerning my skin, my back completely cleared up by the first month and stayed clear. My face also cleared up to the point where it looks like I am wearing makeup! It was nothing short of a miracle. This was the first time in 48 years I was pimple free! I even rejoiced being able to hug and swim with my two year old daughter. Elation to the highest degree!!

I might also add that a month after I finished the Accutane my eyes started to be extremely light sensitive and I started to be in excruciating pain. I went to an Opthamologist and was diagnosed with corneal ulcerations (that's holes in my eyeballs!). The doctor was furious that I was on Accutane and said I was on too high of a dose. My eyes have healed and my skin is perfect and I am the happiest man in the world!

I even have been having nightmares that I have pimples again - then I wake up and I'm so relieved I could cry.

And then guess what happened three days ago? My back completely broke out again! I was having a very stressful day and by night time I seemed to have a few pimples on my shoulders and neck. Nothing I thought. Then the next day, worse and the next day, even worse. Now I even have four of the super itchy large bumps on my face. Not cystic so I will assume it is part of the return of the Pityrosporum Folliculitis.

My god, talk about a steep fall! I really thought I was cured and I went through hell to get cured and now it's back a mere two months after finishing accutane! Talk about depressing! And I cant afford to be depressed with a two year old who is entering an intense crying faze.

My next course of action is to see my Derm in four days and try the anti-fungal medicine for the first time. I'm hoping I stay cyst free and this is a minor episode but I fear it is back for good. Kind of like the opposite of an old friend.

I'm open to hear anyone's thoughts!!

Best,

Steve

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I'm so sorry you're going through that...!

I hope you find a solution that will help you for good and that's safe and affordable.

My thoughts are with you!

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I'm so sorry you're going through that...!

I hope you find a solution that will help you for good and that's safe and affordable.

My thoughts are with you!

Aw, thanks Pixie.

That was very sweet of you.

Steve

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Wow, MiseryLovesCompany, I'm really sorry to hear about the issues you've been having. It really is a shame that just when you thought you were in the clear, your skin started acting up again.

I hope these boards help you to find a treatment that'll work for you. There's so much information on here, and so many helpful people. If you have any questions or if you need advice, support, or encouragement, don't hesitate to post. : )

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