Jump to content
Acne.org
Search In
Find results that contain...
Find results in...
LionQueen

Positive Accutane Experiences

Hi Guys!

So I’ve finally decided to tell my story and bear with me; it’s a long one. I ramble. Hopefully somebody will read it and maybe find some comfort knowing somebody in a similar situation had a good experience. I mean, that is what this site is for right?!

Right, so I’m 24, I’m from England, I love the colour purple (the colour, not the book), I hate potatoes, I worship Jeff Buckley and this is my brief experience with Roaccutane

Before I start rambling, I want to explain a few things. I finished my ’16 week course’ of Roaccutane (60mg/per day) 3 weeks ago. I realise that my skin may still change for better or for worse but I’m not too concerned with that, I just want to talk about my experience on the drug and the results I am experiencing now. I know that people’s bodies work differently and so this is just my experience, it’s not universal. The thoughts that I express are not gospel they are just how I viewed the whole thing.

I first developed acne when I was around 12 or 13. I mean at that point it was the odd spot here and there. I was this crazy tomboy running around playing football and listening to Nirvana so it didn’t bother me. Spots would come, one at a time, hang out for a bit and leave. It was only when I was in year 9 (British school system, I dunno, 14/15 years old) when things got so much worse. My face was ridiculously oily and red and there was massive inflamed acne. I started feeling so self conscious that I missed a lot of school and felt like I lost out on opportunities that came my way which led to more resentment and self pity. I mean I think most of you guys would agree, its hard enough being at that age (actually at any age) with all the angst and social pressures and alienation and I dunno just massive existential crises and then add to the mix the feeling of being hideously flawed and unattractive- not much fun.

Anyway I didn’t grow out of it. It carried on, at times getting mildly better but then getting worse again. I used every medicated skincare product available, here’s a brief brand run down; Clearasil, Clean and Clear, Oxy, Neutrogena, Some store brand stuff like Boots, Superdrug, The Body Shop and I’m sure there’s more I’ve chosen to block out of my memory. I also tried doing nothing. I tried drinking lots of water (thinking it was some magic magic cure) I took herbal supplements and vitamins, I went to this Chinese herbal clinic place where they gave me bags of tea (at the reasonable price of £80 per pack costing me my Glastonbury festival tickets that year!...yes, fun times ) This tea tasted like, well ok actually I can’t comment because I couldn’t drink it without physically throwing up everywhere! Money well spent. Anyway basically what I’m trying to convey is that I tried every superficial thing and fad I could find.

At this stage you’re probably wondering why I didn’t go see my doctor! Well to be honest while I was at school, I was still told I would grow out of it, I mean I was 17 and had bad acne; not considered shockingly uncommon. The odd thing about it was that even though I knew that acne was common at that age, I still felt so alone (watching Dawson’s Creek didn’t help. 20 year old flawless people playing 15 year old flawless kids!...Damn them! ) anyway so year I did go to the doctor when I was about 18. He prescribed me the antibiotic oxytetracycline (which I bet many of you are intimately familiar with) and wow it worked wonders. Zero side effects and stunning results....for like 6 months, It couldn’t sustain itself. In the next couple of years i tried erythromycin and the rest of the cycline gang as well, sadly, all with limited results.

For the next few years things just continued on in the same way; no real change, yo yoing between antibiotics and feeling utter despair. So just before last Christmas (2008) I started wondering if I was gonna ever grow out of it. I mean I was 23 and I had been on some form of medication to treat acne since I was 18 and nothing had really worked. I knew there was no actual cure ‘cure’ but I also knew that something had to change. I had been on acne.org quite a few times in the last couple of years, browsing through forums and galleries and just reading everyone’s experiences. This is actually when I had first heard of Roaccutane but I had never thought about taking it because all I seemed to hear was how it was the most agonising experience of peoples lives. Anyway around Christmas time I thought I’m seeing the doctor and I’m gonna be honest and candid and just tell him how hard this is and demand something else! He said he would refer me to a dermatologist. This is something no doctor had ever said before so something already felt quite promising; something different, something new.

I saw my dermatologist at Christmas, 2008; Dr Jones. I had gone to see him with an open mind. I read everything I could on Roaccutane before I had gone because I was sure that’s what he would prescribe. I was scared, I mean everything I read described the side effects as some kind of horrendous black plague, I mean people would write about how they felt pain and discomfort, their skin and hair; just everything. I’m not really someone who is afraid of medication or drugs or trying new things but this made me wonder. I read it made their skin worse, insanely dry, it would be red and peel off and God, I read about people talking about being paralyzed, losing an eye, being enduringly physically scarred and every possible calamity inflicted upon them! So justifiably, this was quite a hard choice to make.

So at my first appointment with the derm, I shared some of these fears and concerns. I think what my main concern was if any of this was worth it, whether I needed such drastic action. I was under the impression I had, what would be called, ‘moderate acne’ (using acne.org lingo here) but I was shocked and pretty pissed off when I asked the derm for his diagnosis and he said ‘moderate-severe, yes its pretty severe’ Now when I think severe, I thought of something else. I had acne and it was bad but more than anything it was just persistent. I felt that was my problem, not its severity but apparently both were my problem. He explained there was Roaccutane or laser treatment. The laser treatment he felt was less ‘permanent’ He explained that whilst Roaccutane has some severe side effects, it has the best chance of ‘curing’ acne. It was, medically, the only ‘curative’ drug’ for the treatment of acne. He did not seem alarmed by the side effects and told me to get a good moisturiser and lip balm and just relax. He explained that in the last five years he has treated hundreds with Roaccutane and only one decided he couldn’t cope and wanted out. He also told me very few people come back for another course and if they did need another course that usually did it. After some tears and going back and forth in my head I got a prescription for Roaccutane 60mg a day. The course would last 4 months (16 weeks)

I waited a few weeks before starting, just because it was Christmas and I was spending it with my boyfriend and there were parties and gigs and I thought if it was going to get worse than this is a bad time. I started on the 31st of December (seemed fitting, with a new year and all) I was very aware, the first few days that I was taking this potentially life altering drug with allegedly catastrophic side effects... Legal ofcourse!

Within the first week I felt my skin and lips get drier but I quite liked it. It wasn’t uncomfortable. I moisturised and used a lip balm and that was about it. In the second week I broke out more; 3 new spots, I was disappointment but also not surprised or disheartened by it. By the end of the second week the new spots had cleared up. By the time the first month came to an end, I actually forgot I was taking the medication and just routinely took my three pills (20mg each) as if they were vitamins and just forget about it.

In the next 2-3 months my skin cleared up remarkably. Not a single new spot and all the old ones had gone. Yes some red marks remained but they were manageable. I would apply a little concealer and foundation here and there and I was set. Infact most days I would go out to lectures and around town with not a stitch of make up because even the red marks got lighter. It was only in week 14(out of 16 weeks) that I broke out with 2 new spots on my chin. I got really nervous and rang the derm! (Yes, maybe a tad dramatic!) He assured me that towards the end of treatment my skin may act up but it should clear up, if it doest we can extend the treatment on a lower dose. But fortunately, the spots disappeared within 3 days and it’s been smooth sailing since. I mean I’m sure that during stressful times or I dunno my time of month, I will break out and that’s fine. Its natural, it’s normal. I’m human but I don’t think I should have to put up with constant, persistent acne. I love having clear skin, it sounds so corny and trite but it’s made such a difference to my confidence. I really wouldn’t say I’m superficial or particularly in to my appearances. In fact I loath conceited people and I wouldn’t say I’m attractive at all but I’m happy that I don’t suffer from this anymore. It’s only been three weeks since I finished Roaccutane and its been great since, red marks still remain but my skin has no new spots and it feels so smooth and soft. I’m so pleased with the results and the course. I would do it again if I had to because I didn’t feel like I was doing anything. As I said at the start of my whole long-winded thing; everyone’s bodies are different so it’s possible that I’ll suffer from acne again or Roaccutane will work or won’t work but all I know is, this time, at this moment it was a success and I’m content.

To finish, I just want to say that during those 16 weeks I thought about keeping a Roaccutane Log or some kind of weekly update like many people on this site but I consciously made the decision not to. I appreciate that for many people that sort of thing helps but I decided not to scrutinize my body in such detail while on the drug because in my opinion if you do then you may start finding things to call ‘side effects’ I think, (and again this is just how I view it) sometimes we experience these placebos that we are convinced is caused by a drug or whatever we want it to be. I certainly don’t mean to undermine anyone’s side effects or experiences, I mean obviously it’s important to be aware of how you feel in case you start experiencing something abnormal or perturbing so that you can tell your doctor but at the same time I don’t think it’s a good idea to reduce everything disconcerting to Roaccutane. It’s like you have the leaflet and then you have list of’ possible’ side effects and then you’re convinced you’re experiencing them all. Obviously, things like severely dry skin or lips are visible and you can feel and so may be are more obvious but just slightly direr skin or peeling lips which if you weren’t on Roaccutane you may have overlooked or put down to cold weather or whatever...I don’t know if this is making sense. I guess what I’m trying to say, very inarticulately, is that my humble advice is if you decide to take Roaccutane, then just take it and don’t let your life revolve around it. If you feel something particularly bad then think about what it could be like for example, if you have a headache don’t just think ‘Roaccutane is giving me a headache’ maybe you’re dehydrated or under some stress of sleep deprived. If you can’t figure it out and its continual then yes perhaps it is a side effect and maybe you can talk to the doctor or find a way to cope but don’t go looking for side effects and that’s why I didn’t keep a log I really don’t mean to be horrible but some websites and forums out there can be a bit extreme, yes its a strong drug not be taken lightly but it seems like people reduce everything bad in their life to it and use it as an excuse ‘I failed my math test and I ate too many hamburgers and got fat – Its all because of the evil of Roaccutane!’Ok that was a slight exaggeration but hopefully you guys understand what I mean. I just took my medicine, fortunately had a great time (just some dry lips) and before I knew it, it was over. Yeah In the first couple of weeks I was checking my face and looking for results but before long I just didn’t care.

Anyway I won’t bore anyone anymore. I registered today to tell my story. I have this horrible flu (Maybe its the Swine flu, or maybe its a delayed reaction to the Roaccutane, yeah!?.No?! aaah im silly) anyway so I’ve been in bed watching The Back to the Future trilogy and typing away. I wish I had the flux capacitor, I would back and tell my 14 year old self that this is all gonna pass and none of it matters anyway!

Thanks for reading guys and I Wish you all well with whatever treatment you are on or decide to try or even if you try nothing. I just wish everyone lots of success and joy and pineapples! If anyone wants to ask any specific questions about my little experience then ask away. I’m happy to help in anyway. (ooh that rhythms)

Lots of Love xxxx

Ps. I hate pics and I don’t have many where I’m looking at the camera or not blinded by a flash (my friends love that flash!) but I might put some pics up. I don’t have any pre Roaccutane pics around, but I may put some recent ones up where I assume I have some make up on but I think you can maybe still see the results. Something like that x

wow thanks so much:) your such and inspiration to me...:)i've been reading through the bad side effects of accutane and told myself not to do it...but i got so desperate in finding a cure and knewing that accutane is my only hope i decided to see some of the positive effects of accutane and thank god i came across your story...cause it gave me a sense of hope that i can and one day will cure my acne thank you so so much...i enjoyed reading your journey with accutane:)

Share this post


Link to post
Share on other sites
Hello hello!

Well it has been a while since I haunted the org but I wanted to come back and share my experience....

About a year ago i started - most predictably - to break out pretty badly again.

For almost a decade I had struggled with acne and had been on endless antibiotics, used every otc product going, as well all the prescription creams, gels etc numerous times. And still the return of my acne was as certain as death and taxes.

I got offered accutane at 17 and I wish to GOD I had done it then - instead of being so scared of the side effects. I listened too much to the horror stories of others instead of using my own judgement and doing what I wanted. The next 7 years of torture could have been avoided...but I prefer to not dwell on that so much!

Anyways when it got bad again about a year ago I had had the last straw. I finally decided to risk it and take accutane.

I finished it about 3 months ago and have been clear since. It wasn't easy though - the sideys were hell. Painful and embarassing is an understatement. LOTS of vaseline and moisturiser, and dry peeling scaly skin and hair loss. My face and lips were so painful at times I couldn't laugh or smile or kiss my fiance. Literally I could NOT smile! And my skin was always red and flushed post box red under fl.lighting - not good in an office! I still go red easily now even just being warm or after washing - but I am EXTREMELY pale anyways!! Buuuut...7 months of that mini hell was worth it i feel to be break out hell free now! I can't emphasise enough how acne ruined my adolescence and shaped me into the insecure and low self esteemed being I am today. I just wish I'd done it all those years ago and things would be so different for me today.

But back to not dwelling.

I will say though, that there have been negative consequences....unfortunately I was stupid and over exercised my joints during my treatment. This has left me in pain which is very extreme some days. My neck, spine, lower back, knees, elbows, ankles, wrists......sometimes I can't sleep because they ache so bad. I can't walk for miles like I used to, I can't use my treadmill instead I use a trampoline (cos I can't not exercise at all - I like to punish myself I guess!) A lot of this is my fault though, so I try not to moan too much to my partner although I'm sure he wouldn't agree lol. I take a lot of pain killers and I take glucosamine and msm (when i remember) and hopefully I won't feel like an OAP forever!!!

Overall I wish I had listened to my heart and braved through the drug back then instead of wasting all this time and life. I feel so incredibly good about myself - finally! I just got a fringe which I was always too scared to do before cos of my skin and I have never felt so good about myself and my skin (It is NOT perfect!) but I finally feel beautiful and confident again and good enough for anyone!

Sorry for rambling but I hope this helps those who are on the fence like I was for all those years!

xx

P.S I should really address the mood changes - yes I experienced low mood and depression but I am prone to that anyway. There are the well known links to suicide with this drug and this is one of the reasons I declined it - because my dad had committed suicide a few months before I got offered it. I was so depressed because of my skin anyway that I worried about what I 'might' do on this drug after what dad had just done. Well, the reality is that had I taken it I would have experienced a happier mood once my acne cleared and before any serious scarring, I just didn't think of it like this until now. This doesn't go for everyone - I'm just saying this is how I feel about myself personally. My mood lifted at the end of the treatment cos my acne had cleared. I have admittedly have felt suicidal before but this drug never pushed any of these thoughts to the forefront.

Thanks for reading this essay! lol :) Feel free to pm me if you want to ask anything at all. x

:angel:

Oh my you are extremely beautiful you didnt even need the accutane to feel good about yourself...:)

Share this post


Link to post
Share on other sites

Friendly reminder: Please read the original post and stick to the guidelines when submitting to this thread.

Share this post


Link to post
Share on other sites

Accutane got rid of my moderate long-term acne. I used to have these big, painful, antibiotic and cosmetic-resistant cysts that made me feel like I was worth nothing. I got on Accutane, and with the exception of extremely dry lips I cured my acne painlessly.

I am so thankful I went on this drug. Nothing else had worked until Accutane.

Share this post


Link to post
Share on other sites

Moderate/Occasionally cystic acne sufferer...too many years!

On Accutane for 4 months, 40mg per day.

Side Effects: Skin Dryness/Peeling

My experience with Accutane was very positive overall. It made my acne slightly worse at first, but not significantly worse, in my experience. Then my skin cleared up! The dry skin was definately present, and I had to be very consistent with moisturizing. The dryness was the worst around my mouth, and often I would put vaseline on the area before bed. With dryness comes skin peeling, which can just be awkward in public. To manage this, I would make regular trips to the bathroom to just check up, and rub away any peeling skin in the middle of the day so it wouldn't flake off when I was talking to someone, or something! This was not really that inconvenient, just a precaution to manage the dryness.

And that's basically the only side effect I had to deal with. After I stopped Accutane my moderate acne eventually came back (Accutane is not a cure, after all) but I no longer get cysts. For people with bad cystic acne, this can really help you and change your skin. For people with just moderate acne, it will help while you're on it, but you will probably see a lot of that come back once you're off it again. Just discuss it with your doctor and see what their suggestions are.

Overall, my experience was definately positive. I mean, a little dryness and peeling can happen anyway...not to downplay the effects of Accutane--that's the dryest and the peely-est I've ever been, but it's small price to pay, and its easily managed with simple changes to your routine.

For anyone who is experiencing other bad side effects besides dryness, I would think you should decrease your dosage. I know a lot of doctors like to increase people's dosages gradually to try and nuke the acne away, but the fact is that for most people, Accutane will not be a cure, and some newer studies have shown that larger dosages don't actually help more. Also, some people, after taking an initial major course, decrease to taking just a few pills per week, and this has also be shown to possibly be effective as a maintenance possibility. Basically what I'm trying to say is that a higher dosage might have more cons than pros, and you shouldn't feel bad if you have to take a lower dose to get rid of some side effects, because it might work just as well.

Share this post


Link to post
Share on other sites

Yo

I havnt been on here for a long time, but I've just got 2 new spots and that reminded me to come on here and tell you about my experince.

I'm 22 male and live in the UK. I had really bad acne so I went on accutane on the 31st of January 2009.

I went to the dermatologist at Kings college hospital, they were ok but it was kinda annoying that I saw a differnt doctor each time I went, I didnt feel like they could judge my progress properly by reading somebody elses notes. I also often had to chase up my appointments as they just didnt send them to me.

I started out on a low dose aswel as some sort of steroid drug that was meant to prevent the IB (I think this worked as I didnt have any massive flareups).

After a month I came off the steriods and they upped my dose of accutane. I had all the usual side effects of accutane, dry lips, hot flushes and aching back. I also used to take a cod liver oil tablet with my accutane to slow the release into the bloodstream.

I took my last pill on the 16th of September. So my whole course was 8 months.

I've now been off the pills for 6months and my skins still pretty good. Yeh I still get the odd spot, but who doesnt? The only differnce is that when I get one I worry that its all coming up again, but it hasnt so far. Right now, I've got 3 spots on my face and I'm very happy with that compared to before!

To maintain my skin I use Cetaphil and moisturize with Simple moisturizer.

Thats about it, I hope this helps some of you, I know how bad it can be to have really bad acne, but it gets better!

I dont really visit this site often, but you can PM me on facebook if you wanna ask any questions. My names Oli Kingston, I'm in the Brighton network.

Share this post


Link to post
Share on other sites

I'm a 20 year old male, that had moderate acne. I went on accutane in Sept. It made me break out horribly until about month 4. I've been completely for two months and now I've been off it for two weeks and I'm starting to notice very small whiteheads. It's worrying me so much, I just pray it doesn't get worse. If it doesn't get worse I'd say I had a positive experience. Just don't want to break out again. Negative effects - eczema, chapped lips, headaches, depressed.

Share this post


Link to post
Share on other sites

I am so happy to writing on this forum right now. Seven months ago I was reading through all of these stories hoping i'd get to write one in the future. Hoping I wouldn't have to write a post in the negative experience forum. Hooray!

So I am a 15 year old girl who has struggled with acne since maybe seventh grade. It seemed I was the only person at my middle school who had to deal with acne at the time, which really sucked. So I get to high school and my skin doesn't look that bad. It was actually perfectly clear for most of first semester. Then second semester, my whole forehead was covered with little bumps, and I was getting whiteheads on other parts of my face too. Then summer came and I started getting huge cysts on my cheeks and on the sides of my chin. And my skin was super oily. To be honest, I would pick at them just cuz i'm really OCD-ish, and was stupid. So my friend's mom told my mom about a dermatologist her son had gone to. And how her son went on this miracle drug Accutane.

So after eight weeks of waiting. (my derm forgot to register me in i-pledge until after i already waited four weeks) i got to start accutane in september!

For those eight weeks i had been prescribed epiduo, some antibiotics, and tazorac, and clindagel.

My accutane experience went really well. I had no IB (hooray), but my skin did get really dry. My hands were the worst. They got bright red and cracked, and it was horrible. I had some minor joint pain. My back hurt a little for the first couple months, and my knee.

The worst side effect by far though was dry eyes. They got SO RED. I looked like I cried constantly, or was doing drugs. They hurt so bad. I used to be scared to use eye drops, but accutane forced me to get over that fear because they hurt so bad.

Another side effect was some slight depression. I don't know for sure if this was accutane or not though. I am a high school student who gets straight A's and has a lot of stress. But for many days in a row i would just break down crying in my room. But like I said, i don't know if this was accutane or not.

My skin was clear after about 5-6 weeks. With exception to one new pimple at christmas time. I did get a giant cyst on my back though when I only had one week left of treatment, which kind of worried me.

here's my dosage info (and i am 125 lb)

month 1: 40mg

month 2: 60mg

month 3: 60mg

month 4: 60mg

month 5: 60 mg

So now i've been off of accutane for 5 weeks and have had no acne so far. My eyes are just about normal again, and I have no joint pain. My skin is still kind of dry, but lotion works fine. :)

I am worried my skin will get worse again though, just because i'm so young and that my skin was so oily to begin with.

Accutane overall worked great for me!! :)

Edited by dancingreddog

Share this post


Link to post
Share on other sites

I have dealt with cystic acne on and off for most of my life. I had tried everything from creams, antibiotics, spiro (which worked well but read about cancer causing properties so stopped), and birth control (Yaz worked well but has bad side effects too). At age 32 I decided that I would like to have a baby at some point in the future and there was no way I would be able to take any of these acne treatments while pregnant. My dermatologist suggested Accutane and I told her that I would think about it. As a R.N., I have a fairly good grasp of medications and side effects so the thought of taking Accutane scared me to death. I went back and forth for about a month and read way to much on the internet. Eventually my dermatologist convinced me to give it a try and I am so glad that I did. I started with 20mg/2 x day for 2 months and then went to 30mg/2 x day for 4 months (I am 120 lbs). I only had one pimple pop up the first month and then by the 3rd month my skin was as clear as it was when I was a small child. The only side effects that I had were dry lips, slighlty dry skin, and an occasional bloody nose. These side effects were very minor. I can't say that Accutane will be this easy for everyone but for me it was the best thing that I ever did for my skin. I wish that I had done it years ago!!!!!

Products that I used during treatment:

Aquaphor (carry it with you)

Aveno body lotion

Purpose face wash

Purpose face lotion with 30SPF

Aveno SPF 70 if going into sun

Hat if in sun

Saline Spray for nose

Dove sensitive skin body wash

Warning: I used a perfumed body lotion that I had used with no problem before Accutane and it caused my hands to break out with little bumps. Be careful with perfumes because your skin is extra sensitive. Also use hand soaps without perfumes.

Share this post


Link to post
Share on other sites

I was on Accutane for 6 months for my severe cystic acne, I just ended it two or three days ago and I am 100% ACNE FREE! Deffinitly was worth taking and would recommend this to anyone!!! It changed my life for the better!

Share this post


Link to post
Share on other sites

I was on 27~ mg a day for 6 months, my acne was severe, lot of cysts.

Side effects was annoying, those dry lips, and still dry now, red face, muscle, joints pain, and stopped growth, havent gained any weight or height in those 6 months -.-

I am about 70% clear and acne still healing.

Was it worth? Hell yes :)

Share this post


Link to post
Share on other sites

I had always had acne and some cystic acne during my monthly cycle. But right after I turned 26 (Nov 2007) my face broke out insanely...also I would like to say that I also have roscea diagnosed when I was 16. Well anyway went to the Derm and right off she mentioned Accutane which I will say scared the crap out of me. I had already done the research and knew all the side effects. So needless to say I refused. Well I went on for over a year on Doxycycline it helped a tiny bit. Finally went back to the derm..and she of course went back to suggesting Accutane in the nicest way she asked me why I would want to live with my skin the way it was. And I realized that this why MY only chance at ever having clear skin. So fears set aside I did it. And boy was I amazed!! Skin clearer within 2 wks..dry as ever yes , but clear! Yes I know there is the side effects and yes I did have a lot of them... joint aches-the excessive dryness-my husband even said I was more irritable...but on that who knows ;)! Anyway I have been off Accutane for almost 6 mo. now and while my face is still red (due to the roscea..though definetly not as bad and very eassily covered with little make up) I no longer have to worry about ever waking up and looking in the mirror and feeling the way I did! And I know it is different for everyone. I am happy I did it. Wish I would of done it right when it was offered to me instead of waiting a whole year!

Share this post


Link to post
Share on other sites
I had always had acne and some cystic acne during my monthly cycle. But right after I turned 26 (Nov 2007) my face broke out insanely...also I would like to say that I also have roscea diagnosed when I was 16. Well anyway went to the Derm and right off she mentioned Accutane which I will say scared the crap out of me. I had already done the research and knew all the side effects. So needless to say I refused. Well I went on for over a year on Doxycycline it helped a tiny bit. Finally went back to the derm..and she of course went back to suggesting Accutane in the nicest way she asked me why I would want to live with my skin the way it was. And I realized that this why MY only chance at ever having clear skin. So fears set aside I did it. And boy was I amazed!! Skin clearer within 2 wks..dry as ever yes , but clear! Yes I know there is the side effects and yes I did have a lot of them... joint aches-the excessive dryness-my husband even said I was more irritable...but on that who knows ;)! Anyway I have been off Accutane for almost 6 mo. now and while my face is still red (due to the roscea..though definetly not as bad and very eassily covered with little make up) I no longer have to worry about ever waking up and looking in the mirror and feeling the way I did! And I know it is different for everyone. I am happy I did it. Wish I would of done it right when it was offered to me instead of waiting a whole year!

:dance:

Share this post


Link to post
Share on other sites

I've been trying to decided whether I should post under Positive Experiences, or if I should post under Negative Experiences. Positive won that one, I guess.

So, let's start with the basics:

Age: 20

Sex: Female

Acne: Severe (inflammatory- forehead, cheeks, jawline)

Accutane Start: mid-June, 2009

Accutane End: December, 2009

Dosage: 40 mg (June-Sept); 60mg (Oct-Dec)

Side Effects: Dry skin, eyes and lips; excessive perspiration (embarrassing!!); anaemia; hypopigmentation

My acne always got me down. Insensitive people didn't help make it any better. I talked to my GP, and she referred me to a dermatologist. After trying nearly everything under the sun (topicals, retinoids, the world of antibiotics etc.), she prescribed (Ro)Accutane.

I had no severe problems, really. After two months my face was siginificantly less oily, then it was just dry! Flaky and dry! As in, huge patches of skin were flaking off of my face! Kinda gross, I know.

By October, my improvement had reached a standstill, so my dermatologist upped my dosage. By December, my skin was SO smooth! I loved it! It lasted until February of this year, then things started going downhill. I noticed my face was getting oilier. I tried to ignore it. Then a couple bumps popped up, nothing to be alarmed about, right? Use some BP and move on! Right.

Between February 2010 and now, my face became just as oily as it had been pre-Accutane, and new bumps are appearing daily (seems like hourly, though). My dermatologist has put on a BP in the A.M. and Differin in the P.M. routine (again). I hope it works, because I certainly am starting to feel as though I'm back at square one.

All in all though, I'd still recommend Accutane. I know everyone's system reacts differently, but I suffered relatively mild side effects, and my skin did clear up, almost perfectly so!

Edited by Esoterique

Share this post


Link to post
Share on other sites

My god - roaccutane is such a fantastic drug.... It has saved my whole life.

I was a bright reddy spotty loser at school - with no girlfriend and most people just avoided me. Life is so much better acne lesss - its unbelievable. the cool boys in my school are including in their gangs and telling me to ditch the outcast friends i used top have tio hang around with. Girls are looking at me with amazment at the transformation....

I have girlfriends, boyfriends all sorts of frriends now - this drug is totally a god sent. My mother keeps bull;shitting about how she thinks shud come off it becos im about to sit my gcses in like 2 weeks and she claims that its made me unmotivated and that im doing no work - what crap - she doeswnt understand the most important things with exams is to relax (thats how i passed my orals) and i need this drug........

I advocate it completely andf i love hoffmann laroche.

Share this post


Link to post
Share on other sites

Hi Folks,

Like you guys, i had an acne prone skin since last 2009. I played soccer very much during my university life and nothing had distracted me. I was quite popular guy in my uni with sporty body too. I had one or two pimples every few months and i didnt care abt it. I even didnt know what is acne unitll a big disaster came and shoved my life. After first semester , i got tiny whiteheads on my face esp on my cheek. I didnt care and just let it be. Then i worked part time untill late nights, eat unhealthy, late night sleep , sex , etc....... After one month, i noticed that i had tiny bumps under my skin whenever i felt it and not comfortable at all. So i tried to squeeze out. Then i just went to internet and looked for some remedies. I used tea tree oil, lemon, baking soda, u name it pls. What was the result ? Totally freaked out and my face became so ugly. I felt very down and desperated to look for cure. It was a big mistake guys.

Then my sister brought me to private facial and she said she could cure it. What she did was squeezed out every single pimples. :( So pain , So hurt and sometime tears came down. So after i did about 6 sessions , my face became clam but so many red marks and scars. Luckily, she was professional and my scars were not too deep. Then my uni reopened for second semester and my frds asked me what the hell was happened during the holidays. Then i noticed a word called " Break Out " Sigh.... Then those days were hell high way for me. I rejected all invitations from parties as well as from my frds. But i still playing soccer with my friends. Then after 4 mnths , my acne problems were still not okay for me and i went to the dermatologisit for cure. He prescirbed me doxycycline and blamed me for picking acne with scars and reminded me not to do it again. So i took for 3 mnths but still not 100 % cure.

( P.S my ance was not so bad but moderate )

Cut from long story to short , my doctor finally described me " ACCUTANE " for 6 mths.

40 - 1 month ( Terrible break outs , No more oil , Lip dry, hair fall , joint pain )

60 - 1 month ( little break out, red face, No more oil, Lip Dry , Hair fall )

60 - 1 month ( No more break out, scars , No more oil, Lip dry , Hair fall )

60 - 1 month ( Perfect , No more oil , Lip Dry , Hair fall )

40 - 2 mths ( perfect, scars faded a bit , Lip dry , hair fall )

I use cetaphil for my cleanser and loreal for moisturizer )

After i had done my missions on accutane , i felt so lucky and gained my confidence back . But still have scars but not too visible. :) Dry lip gone after 1 week and hair got back to normal state. Accutane saved my life.

So i was off for 2 months already but after one month the little oil came back :( so i scared my acne will follow up later. But I found something which can control oil very well. That is Milk Of Magnesia. I keep my diet , my hygiene very much and try to avoid fast food as much as i can. So i hope i can stay clear for months to years.

Btw, i am going to be 21 and i suffered acne for 1 year plus.

Feel free to pm me if you have any idea from me.

God Bless U.

Share this post


Link to post
Share on other sites

Since i was 14 years old i've had moderate acne but as i got older my acne got so much worst. My former dermatologist prescribed me medication for my acne but nothing worked! Currently i am taking Claravis 30 mg a day and i have to say i am shocked! At first, i had an initial breakout and i wanted to give up but i stood strong! Now my face is clearing up tremendously even though I had a couple headaches here and there. Eventually I got through it and now i am at the beginning of my second month and can't wait to see the results at the end. =D I'm just really scared of my acne coming back once i'm done with this, Did that happen to anyone?

Share this post


Link to post
Share on other sites

At 19 I had a round of 'tane. 60mg/day for 4 months.

Side effects were really dry lips and eyes, and bad cheeks.

However, by the end of month 2 my skin was compelety clear, and stayed that way for about 4 or 5 months. 2 years later I am starting round 2 of 'tane just to clear up what has come back. The drug does what its supposed to very well imo and I have (atm) no regrets of taking it.

Share this post


Link to post
Share on other sites

Accutane was great for me, another four days and I'm done, so in a nutshell:

Mild Acne, Male, 17 years old.

Month 1 - 20mg

Month 2 - 40mg

Month 3 - 60mg

Month 4 - 60mg

Month 5 - 60mg

Month 6 - 60mg

Side Effects: Dry skin/lips, occasional joint pains, overall tiredness. Some days I got really pissy and wanted to yell at everybody, b*tchy overall mood. Thats about it when it comes to side effects.

Overall Experience was great. ALL my acne is now gone, and I couldn't be happier with my decision to go on Accutane. I would be still dealing with acne if I had not. To anybody thats worrying about side effects, I can tell you I only had minor ones, and the end result greatly outweighed them.

Share this post


Link to post
Share on other sites

At 25 years old I had tried prescription treatments for acne for 10 years, including minocycline, tetracycline, erythromycin, topical erythromycin, benzaclin, retin-a, aczone, bactrim, and birth control pills. Finally I went to a dermatologist (all other treatments were prescribed by my GP) and he put me on 60 mg of accutane for 6 months (I weighed between 140 and 150 lbs. during this time).

Side effects: dry skin, dry lips, joint pain.

My course was practically a textbook case... I was prescribed a moderate amount of accutane for my weight, my face got worse the first month and then slowly improved over the next 5 months. I got the normal side effects and after a month of ending accutane all the side effects had gone away.

Before starting accutane I was frightened by the things I read. I was sure every bad side effect would happen to me. But I was also at a point where I didn't care anymore, I would rather have had joint pain the rest of my life than deal with acne. Luckily it didn't come to that, my face cleared up beautifully and the joint pain went away.

I always promised myself I would come back and leave a positive post in this folder if accutane worked for me, then I kept not wanting to do it because I was afraid the acne would come back. So far it has been 6 months since I stopped taking accutane and my skin is so clear I have to pinch myself every morning to make sure I'm not dreaming.

I know my acne may come back, and if it does I will try my hardest to get a doctor to prescribe accutane again. It is the only thing that has ever really worked for me. Good luck to everyone!

Share this post


Link to post
Share on other sites

When I was 34 I made the decision to take accutane. I had suffered with acne since in my teens and it was controlled for most of my twenties through birth control. After getting married I decided to stop the BC so that I could have children (I have 2 kids). After being off the BC my skin returned to it's old ways, extremely oily, break outs, painful cysts etc.....very embarrassing for a woman in mid 30's working in a professional environment. My signature tells you the dosage I took and the products I've used while on the meds. My regimine was a low dose one which I was carefully monitored by my doctor. In a nutshell, it was the best decision I ever made. I now have the confidence to look at people in the face without worrying what they thought of my skin, there's no more pain of the cysts that would develop and dealing with cortisone injections, no more makeup and no more spending money on acne products. It's been almost 3 years since my course ended and my skin isn't perfect, I do still get little pimples here and there but it's nothing compared to the cysts I was dealing with. It has made me a happier and more confident person.

Edited by Dani Lou

Share this post


Link to post
Share on other sites

Age: 21

Sex: F

Dosage: 20mg for 6months

Acne: Moderate

Years of acne - from 14years old to before accutane

The only thing I regret was waiting until my 20's to take accutane because i was too scared too after hearing the "horror" stories. Accutane gave me my life back, I don't know how to express how grateful and serious i am when i say that. I used to be obsessed with my skin and afraid to do things/see people because of my breakouts. I've been on many many kinds of antibiotics long term (which totally ruined my health/immune system) and topical drugs for acne - all the medications were just a temporary cure.

Even though accutane did give me insomnia while on it I'm not complaining because I remember when I had acne, I said to myself... "I would trade anything to have nice skin" because living in shame and fear was depressing and painful. Insomnia < Nice Skin...

I would stay on accutane forever if i could just to maintain oil free skin but I can't. Try accutane if you want to start your life. Don't be afraid of those horror stories and wait around because you'll just end up scarring your skin and wasting time.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Personalized Advice Quiz - All of Acne.org in just a few minutes


×