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oli girl

'Accutane debate placeholder thread'

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I appreciate the honest responses from everyone. Reading your stories has truly been a heart-felt, enlightening experience. I am going through a difficult time with my acne over the recent months. After numerous failures with other medications, I am now considering accutane as a 'cure' for my acne. I am aware of its benefits, but I wanted to learn more about the possible side effects and reprecussions from accutane.

I took solodyn for a 3 week period, which isn't very long, but I experienced shortness of breath, increased heart rates, moodiness, spaciness, and blurry vision - i guess i had an allergic reaction. The side effects went away for the most part, but I wish the dermatologist informed me of these possible risks. He told me that I would only experience an upset stomach or a slight head ache - which didn't seem terrible at the time. Had I been more well-informed, I think would have been able to manage these side effects better or stopped the medication earlier. INstead, I was a complete emotional and mental mess - trying to figure out why I felt the way I did and why my body was failing me. I feel a lot better now, physically. But I don't feel 100% myself - maybe I'm just a bit down about my acne and my skin. or maybe the medication altered me some how. Who knows?

After experiencing the side effects of solodyn, of course I'm going to be more wary about accutane. Right now, I haven't found a doctor who would prescribe it to me. I guess my acne isn't terrible, but since I have tan skin, the marks on my face stay forever (not exaggeratng) so I'm desperate to find a solution. Everyday is a different day - one day I'm against accutane, and the next day, I'm fed up with my pimples and I see accutane as my only hope. Hopefully, I can keep playing these mind games with myself until my acne is gone! Again, I appreciate all of the honest answers. I hope everyone the best.

I took three cycles of Accutane and each time my acne came back.

On my last course I began to experience a lot of the negative side effects including:

flushing redness on my chest/face caused by anxiety or heat

depression

joint pains, back pains

skin fragility

hair thinning

sensitivity to light

I took the drug hoping I would be cured of acne. Not only am I still suffering from acne, I now have to live with the side effects listed above.

It wasn't worth it.

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ive had mine for 3 years now

Word of caution: jmiri is one of nvapro's religious christian "buddies" who team up on acne.org to "crusade against Accutane" in the name of "g o d" by literally making things up about their experiences with the drug. I pretended to be interested in joining what nvapro literally calls "his army against accutane" and they told me to post making things up to scare people away from it.

Bottom line: Talk to your doctor dude. Stay hydrated and ask him what he can do for you about the flushing. He is the professional - not me, and certainly not religious people condemning the drug on personal grounds.

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ive had mine for 3 years now

Word of caution: jmiri is one of nvapro's religious christian "buddies" who team up on acne.org to "crusade against Accutane" in the name of "g o d" by literally making things up about their experiences with the drug. I pretended to be interested in joining what nvapro literally calls "his army against accutane" and they told me to post making things up to scare people away from it.

Bottom line: Talk to your doctor dude. Stay hydrated and ask him what he can do for you about the flushing. He is the professional - not me, and certainly not religious people condemning the drug on personal grounds.

that's F ed up dude.. thanks.. howd you know about that?

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Because nvapro always asks people to join his 'army against accutane' in his big posts about "god" hating Accutane users. I made a fake account to join his army and that's what he asked me to do. Just ask a professional and relax because I guarantee with the doctor's help you can make the reddening die down a lot and I guarantee you notice it a lot more than people around you do.

Plus flushing has gotta be better than the zits! ;)

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Because nvapro always asks people to join his 'army against accutane' in his big posts about "god" hating Accutane users. I made a fake account to join his army and that's what he asked me to do. Just ask a professional and relax because I guarantee with the doctor's help you can make the reddening die down a lot and I guarantee you notice it a lot more than people around you do.

Plus flushing has gotta be better than the zits! ;)

thanks, i apperciate it.. i just want it to go away, but yea its alot better than acne

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ive had mine for 3 years now

Word of caution: jmiri is one of nvapro's religious christian "buddies" who team up on acne.org to "crusade against Accutane" in the name of "g o d" by literally making things up about their experiences with the drug. I pretended to be interested in joining what nvapro literally calls "his army against accutane" and they told me to post making things up to scare people away from it.

Bottom line: Talk to your doctor dude. Stay hydrated and ask him what he can do for you about the flushing. He is the professional - not me, and certainly not religious people condemning the drug on personal grounds.

Yeah, cause we just make up stuff that's out there on accutane....I guess we make up the stuff Roche prints, or any other studies out there....The things that happen to us and others that have wrote thier experinces are just lies......

Ironic though that if it was one of us that posted something like that about a pro accutaner the mods would be all over us as scare mongering.......

scooby32- It would be good to talk to your derm, however there is a good thread in the Roscea fourm called post accutane/mino flushing... It has a lot of info for people who have experinced this.....

I guess ForSure will say thier lieing too........ :naughty:

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Absolutely not. All I am saying is that when some one tells you "MY FLUSHING LASTED FOR THREE YEARS" not to take it to heart 100% and to seek professional advice.

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This thread is now a debate placeholder topic. We will be able to preserve debates that do have interesting and helpful information for posters but will not clutter up poster's individual threads with those debates (which, face it, are never going to convince either side of the opposite point of view).

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ive had mine for 3 years now

Word of caution: jmiri is one of nvapro's religious christian "buddies" who team up on acne.org to "crusade against Accutane" in the name of "g o d" by literally making things up about their experiences with the drug. I pretended to be interested in joining what nvapro literally calls "his army against accutane" and they told me to post making things up to scare people away from it.

Bottom line: Talk to your doctor dude. Stay hydrated and ask him what he can do for you about the flushing. He is the professional - not me, and certainly not religious people condemning the drug on personal grounds.

oh my god is that a joke, do you have any proof of this? i didn't tell you to do anything, read through the post tane flushing thread, and the negative experiences pinned thread you tool

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ive had mine for 3 years now

Word of caution: jmiri is one of nvapro's religious christian "buddies" who team up on acne.org to "crusade against Accutane" in the name of "g o d" by literally making things up about their experiences with the drug. I pretended to be interested in joining what nvapro literally calls "his army against accutane" and they told me to post making things up to scare people away from it.

Bottom line: Talk to your doctor dude. Stay hydrated and ask him what he can do for you about the flushing. He is the professional - not me, and certainly not religious people condemning the drug on personal grounds.

Yeah, cause we just make up stuff that's out there on accutane....I guess we make up the stuff Roche prints, or any other studies out there....The things that happen to us and others that have wrote thier experinces are just lies......

Ironic though that if it was one of us that posted something like that about a pro accutaner the mods would be all over us as scare mongering.......

scooby32- It would be good to talk to your derm, however there is a good thread in the Roscea fourm called post accutane/mino flushing... It has a lot of info for people who have experinced this.....

I guess ForSure will say thier lieing too........ :naughty:

If you do not like the way the forum is moderated you may join another forum.

By the way, yes, some of the anti-Accutane dream team has made up things, and have actually admitted to other posters that they have done so simply to scare people away from using Accutane. These PMs are forwarded to moderators for action sometimes. One such PM actually contained threats.

And...you have no idea who has been warned (on either side).

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Don't think for a second that accutane induced flushing/rosacea can't be permanenet because it certainly can be.

SOme of the drugs i have used over the years to help fight the accutane induce flushing are:

Clonidine, Propranolol, mirtazapine and the most effective (mepacrin).

The mepacrin is used for lupus and arthritis mainly, it works on the rosacea and other inflammatory conditions by supressing the inflammation at the centre of the condition.

who made up things?
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...
who made up things?

No one buddy, ignor them....

Incorrect. Perhaps if some of you spoke some reason to your compatriots, those others might not stoop to harrassing PMs.

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Yeah, cause we just make up stuff that's out there on accutane....I guess we make up the stuff Roche prints, or any other studies out there....The things that happen to us and others that have wrote thier experinces are just lies......

Ironic though that if it was one of us that posted something like that about a pro accutaner the mods would be all over us as scare mongering.......

I'd like to hear the reasoning behind that accusation.

So far as I know, the mods have not in any way interfered with your posts.

You seem to feel that when other members are disciplined (for breaking rules, btw, NOT for their position on Accutane), these actions somehow affect you. Why is that?

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who made up things?

No one buddy, ignor them....

Incorrect. Perhaps if some of you spoke some reason to your compatriots, those others might not stoop to harrassing PMs.

I don't follow everything on here but most of what i read in terms of bad experiences is true. I do agree that what needs to be remembered often with these negative posts, is that people generally post when they are at their lowest. SO the negativity comes over at it's worst. That doesn't mean to say that this suffering isn't real or as bad as they state, however. Admitedly i can't read peoples inbox's like a mod but i'm just going by what i read.

When someone is accused of being a liar because they state they have suffered from accutane induced rosacea for 3 years, i feel the need to back them up.

The percieved idea that accutane side effects go away post treatment is somthing that needs to be addressed. If i had realised the potential longevity of accutane side effects, i would of never taken the drug.

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Yeah, cause we just make up stuff that's out there on accutane....I guess we make up the stuff Roche prints, or any other studies out there....The things that happen to us and others that have wrote thier experinces are just lies......

Ironic though that if it was one of us that posted something like that about a pro accutaner the mods would be all over us as scare mongering.......

I'd like to hear the reasoning behind that accusation.

So far as I know, the mods have not in any way interfered with your posts.

You seem to feel that when other members are disciplined (for breaking rules, btw, NOT for their position on Accutane), these actions somehow affect you. Why is that?

I Don't think the mods here are bad, but when you have read most posts you can make judgement yourself, 'oli girl' may not be able to provide direct ecidence but when you read all the posts over time you can make your own judgement. Over the past few years it is clear that the mods seem to dicipline Anti accutaners to a greater extent than pro accutaners.

Maybe it is because they feel we shouldn't 'scare' people away from accutane because their 'doctors' have put them on the drug. People need to remember doctors aren't godlike, we don't live in the times where we take everything doctors say as the be all and end all. They are human and people need to be reminded that just because a medical 'professional' has put them on a therapy, this doesn't mean to say it's the right therapy for them.

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“We simply assume, that the doctors have personal responsibility. They are specialists, who have the information either in their head or they know where to find it.â€

-Andres Schneider, Swissmedic

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Yeah, cause we just make up stuff that's out there on accutane....I guess we make up the stuff Roche prints, or any other studies out there....The things that happen to us and others that have wrote thier experinces are just lies......

Ironic though that if it was one of us that posted something like that about a pro accutaner the mods would be all over us as scare mongering.......

I'd like to hear the reasoning behind that accusation.

So far as I know, the mods have not in any way interfered with your posts.

You seem to feel that when other members are disciplined (for breaking rules, btw, NOT for their position on Accutane), these actions somehow affect you. Why is that?

I Don't think the mods here are bad, but when you have read most posts you can make judgement yourself, 'oli girl' may not be able to provide direct ecidence but when you read all the posts over time you can make your own judgement. Over the past few years it is clear that the mods seem to dicipline Anti accutaners to a greater extent than pro accutaners.

Maybe it is because they feel we shouldn't 'scare' people away from accutane because their 'doctors' have put them on the drug. People need to remember doctors aren't godlike, we don't live in the times where we take everything doctors say as the be all and end all. They are human and people need to be reminded that just because a medical 'professional' has put them on a therapy, this doesn't mean to say it's the right therapy for them.

oli girl and I took our discussion offline and I won't try to recap it all here ...

Basically my viewpoint is that there are a very few problematic anti-Accutaners who do indeed draw down the wrath of the mods in very public ways. This is not because they are anti-Accutane ... it is because they insult people, start fights, and send threatening PMs, among other things. And yes, we do indeed keep an eye on known troublemakers.

We do our best to enforce the rules evenly, however, so if you see personal attacks and flaming taking place on either side of the debate, please report it.

Also, please remember that the mods here are members as well. When we are enforcing the rules, we have to be impartial. When we are joining a debate on the board, we are entitled to our own opinions. :)

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If factual information, not an opinion, scares someone, so be it. That's understandable and doesn't get anyone into trouble. When completely false information is given in order to scare and then personal attacks start to fly, that is when the mods have to step in. It has happened so many times with anti-accutane members which is why it appears mods single them out. There have been times when pro-taners get zealous about how much of a "miracle" they think the drug is and anyone that speaks against the drug gets an eyeful of personal attacks. They, too, get disciplined. However, there are much less of these types and they are much more quiet about it, so of course it's going to seem like the mods go after them less.

If y'all truly feel the mods are being one-sided then start reporting posts you think break board rules.

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I had the "anti-accutane club" send me their propaganda through pm's as well, just ignore them, they are not worth wasting your time on.

As for flushing and redness, from the accutane diaries i've read some ppl have experienced this 8-9 months post-accutane.And like forsure said, its not as bad as the acne :)

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The anti-accutane club acts as if those with negative accutane experiences has been the victim of some great injustice. No one forces you to take accutane, the possible side-effects are well documented and there is no excuse for not being aware of the risks you run when taking it. We're all responsible for our own health.

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I had the "anti-accutane club" send me their propaganda through pm's as well, just ignore them, they are not worth wasting your time on.

If anyone has saved a PM of this sort, please forward it ... thank you!

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