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mameha

There's only one side effect to Accutane

I talked to two dermatologists about Accutane and they both said that the only side effect I'd ever have to worry about is the drying effects. They also said I should ignore the list of other more severe side effects because the chances of them occurring are so astronomically low I shouldn't even think about them.

But....reading the stories of people on here about the effects they're experiencing (stomach pain, headaches, joint pain, etc.) made me wonder, just how rare are the other side effects? How did your derm address them?

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I'm on my 3rd month and i am 100% clear and only side effect is dry lips and face.

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I had minimal side effects too. My derm also down played the other side effects saying that they were rare. She didn't downplay the fact that the drug is serious and if other side effects occur to immediately contact her. Although, if you are active with sports and working out, the joint pain and aches are more common.

Most bad cases that are topics here are extremely rare. Unfortunately, sometimes the only reason people have to post is because they are experiencing the worst of the drug. Most people who are acne free by the first, second, or third months do not come on here. I didn't on my first course! I will post a success log for my second course.

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In the British study, ninety-three per cent of the people taking Accutane reported no long-term side effects. The British researchers reported that two percent suffered muscle aches at follow up, and 5 percent suffered from dry mouth. Fewer than one percent claimed that they had dry eyes and skin and joint pains. Higher doses were not associated with more side effects. The authors concluded that their study showed that isotretinoin is a safe drug with no serious long-term side-effects. However, it causes birth defects when taken during pregnancy.

A study from Israel also shows that Accutane is far safer than many doctors think (4). Many doctors refuse to prescribe Accutane for severe acne because they are afraid that Accutane will damage livers, raise triglyceride levels and cause heart attacks. In this study, none of the patients had liver tests that were abnormal enough to stop treatment. Only 1.5 percent of patients had serum triglyceride levels above 400 mg%, but all continued treatment. Most exciting, only 3.5 percent of patients required a second treatment.

Source:

www.drmirkin.com/morehealth/G200.htm

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I have no clue why your Dermatologist said you'd only get dry skin, because she/he couldn't possibly know how your body would react. It is true that people have a lot more side effects than dry skin.. rashes, joint pain, nosebleeds, headaches, etc. I have joint pain and I do not play sports.

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I am on my 17th day on accutane, and all ive had is dry lips, and really really crusty dry face.

its really shocking, every day for 10 years with an oily face.... waking up this morning, no oily what so ever...

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I have been on accutane 4 months now and I suffer from some side effects

1) dry lips, skin

2) rash on back of hands as well as extremely dry skin on the palms of my hands and finger tips (derm said its accutane induced eczema on the palms of my hands)

3) ALOT of muscle pain. If I am sitting in a position for a really long time, by lower back is REALLY stiff, same with my feet if they are in a position for a long time. Also my joints crack alot easier now. But it doesnt really hurt or affect my functioning.

Thats about all ive sufferred from so far. I had the initial IB which was so intense i hated it. i but i am clear now and hopefully it lasts!

good luck!

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I am still suffering.

My Derm has written a letter to another Derm I am going to see to try and counteract the side effects 18 months after stopping. He stated in his letter something like 'This is the most severe case of joint pain related to the medicine I have witnessed to date, but certainly not the first. I would like to hear the outcome of the patients visit and proposed treatment'.

I truly believe not all cases are reported. In fact, I bet there are thousands of others out there with similar long-term problems.

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Also my joints crack alot easier now. But it doesnt really hurt or affect my functioning.

A sure sign of the start of crepitis followed by mild progressive pain if your joints have never clicked before. That was the start of it all for me.

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Also my joints crack alot easier now. But it doesnt really hurt or affect my functioning.

A sure sign of the start of crepitis followed by mild progressive pain if your joints have never clicked before. That was the start of it all for me.

Okay, Sheefa, I have seen you post on SEVERAL topics, and I must say that you act like everything that's started by Accutane is going to be extremely severe and that it will stick with you for the rest of your life. This isn't true. I have joint pain and I doubt it'll go far as permanent Arthritis ... Just because it started for you means nothing to other people. You don't have the same body as others. I can't stand people who pee on other's parades (people who are taking Accutane while others are warning them not to go on it or telling them to get off just because of what Accutane did to them) ... we are all VERY aware of the RARE risks and side-effects, as our dermatologists have informed us. Please stop encouraging people to get off the drug just because it didn't turn out well for you. It's extremely annoying.

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Um for me the side effect were Dry lips with was easily countered by Blistex, dry hair (good for me since i have oily hair), little bit of joint pain but it stopped recently and the last two months of my 2.5 year course i had a bit of hairloss (more like hairshedding) but now back to normal after 2months of stopping.

the side effects are dose related despite the above poster saying it's not as i've tried 10,20,30,40 and 10mg every other day and i can say from personal experience that 5-10mg a day was really good since the oilyness was just right.

isotretinoin is produced in small amounts naturally by our liver therefore a dramatic increase in our system would be worse than a small increase. my dose i think averages out to about 20mg a day which i'm extremely happy since i know it's a very potent drug but i don't htink i got permanent remission becuase recently i've been getting quite a few pimples(whiteheads) on my nose non-stop and scalp aswell but no one notices it as it's very small.

Note: as I was researching the effects of low dose accutane i did come across one user stating even with 10mg a day shes had a bit of hairshedding but iv'e also come a across a user whose been on it for 5years (male) who takes 20mg 2-3 times a week with no reported side effects therefore I think it's best to monitor any changes when on the drug and if you notice any unusual effects then stop and contact your derm.

Better to be safe than sorry right, but from my experience i do reccommend users to try it out but at 10mg a day for month or two to see how well you respond to the drug

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Dry skin, hair, and lips. Bought chapstick in bulk! I did have some nose bleeds (2 so far) but I have weak blood vessels in my nose, because I used to have bleeds when i was a kid.

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What I found the most confusing is that my doctor told me this: "Some people's skin gets worse before it gets better, but that's only about 12% of cases. Most people just start getting better."

I found that odd because it seems like EVERYBODY who posts on here reports having the dreaded initial outbreak, so I thought it was inevitable. Any thoughts on this? :think:

But, yeah, my derm pretty much told me that the only side effects I should expect are dry skin and lips. He never even mentioned the possibility of joint pain or anything else. It's a good thing I did my own research months before I started, or I would have had no idea.

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What I found the most confusing is that my doctor told me this: "Some people's skin gets worse before it gets better, but that's only about 12% of cases. Most people just start getting better."

I found that odd because it seems like EVERYBODY who posts on here reports having the dreaded initial outbreak, so I thought it was inevitable. Any thoughts on this? :think:

But, yeah, my derm pretty much told me that the only side effects I should expect are dry skin and lips. He never even mentioned the possibility of joint pain or anything else. It's a good thing I did my own research months before I started, or I would have had no idea.

I didn't get the dreaded IB. There are a few others I can recall from this board not having one either, but I do think your derm's number is low for that. Then again, the members posting on this board regarding the Accutane experience is so small in comparison with the number of people across the globe taking isotretinoin.

My derm went over everything, the potential good and bad. He's not one to sugarcoat.

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I don't want to take my chances loosing my hair!

or your brain

Also my joints crack alot easier now. But it doesnt really hurt or affect my functioning.

A sure sign of the start of crepitis followed by mild progressive pain if your joints have never clicked before. That was the start of it all for me.

Okay, Sheefa, I have seen you post on SEVERAL topics, and I must say that you act like everything that's started by Accutane is going to be extremely severe and that it will stick with you for the rest of your life. This isn't true. I have joint pain and I doubt it'll go far as permanent Arthritis ... Just because it started for you means nothing to other people. You don't have the same body as others. I can't stand people who pee on other's parades (people who are taking Accutane while others are warning them not to go on it or telling them to get off just because of what Accutane did to them) ... we are all VERY aware of the RARE risks and side-effects, as our dermatologists have informed us. Please stop encouraging people to get off the drug just because it didn't turn out well for you. It's extremely annoying.

He has the right to express his opinion just as you do. I hate when people talk about how its a miracle drug and they think its the best thing ever. I went on Accutane for one full course and another course for a couple of weeks and see where it got me, I still have moderate acne. Its overrated.

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He has the right to express his opinion just as you do. I hate when people talk about how its a miracle drug and they think its the best thing ever. I went on Accutane for one full course and another course for a couple of weeks and see where it got me, I still have moderate acne. Its overrated.

Thank you Molly. I still have mild acne too and all these dreaded side effects, great.

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I don't want to take my chances loosing my hair!

or your brain

Also my joints crack alot easier now. But it doesnt really hurt or affect my functioning.

A sure sign of the start of crepitis followed by mild progressive pain if your joints have never clicked before. That was the start of it all for me.

Okay, Sheefa, I have seen you post on SEVERAL topics, and I must say that you act like everything that's started by Accutane is going to be extremely severe and that it will stick with you for the rest of your life. This isn't true. I have joint pain and I doubt it'll go far as permanent Arthritis ... Just because it started for you means nothing to other people. You don't have the same body as others. I can't stand people who pee on other's parades (people who are taking Accutane while others are warning them not to go on it or telling them to get off just because of what Accutane did to them) ... we are all VERY aware of the RARE risks and side-effects, as our dermatologists have informed us. Please stop encouraging people to get off the drug just because it didn't turn out well for you. It's extremely annoying.

He has the right to express his opinion just as you do. I hate when people talk about how its a miracle drug and they think its the best thing ever. I went on Accutane for one full course and another course for a couple of weeks and see where it got me, I still have moderate acne. Its overrated.

Nice One

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the likelihood of suffering the severe side effects is low, but not impossible. that's a risk every accutane user has to take willingly. that's why your doctor will monitor you so closely during the course.

personally, accutane made me depressed, which is a possible side effect. it affected my mood quite badly. but i'm through with my course now, and it has subsided.

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I don't want to take my chances loosing my hair!

or your brain

Also my joints crack alot easier now. But it doesnt really hurt or affect my functioning.

A sure sign of the start of crepitis followed by mild progressive pain if your joints have never clicked before. That was the start of it all for me.

Okay, Sheefa, I have seen you post on SEVERAL topics, and I must say that you act like everything that's started by Accutane is going to be extremely severe and that it will stick with you for the rest of your life. This isn't true. I have joint pain and I doubt it'll go far as permanent Arthritis ... Just because it started for you means nothing to other people. You don't have the same body as others. I can't stand people who pee on other's parades (people who are taking Accutane while others are warning them not to go on it or telling them to get off just because of what Accutane did to them) ... we are all VERY aware of the RARE risks and side-effects, as our dermatologists have informed us. Please stop encouraging people to get off the drug just because it didn't turn out well for you. It's extremely annoying.

He has the right to express his opinion just as you do. I hate when people talk about how its a miracle drug and they think its the best thing ever. I went on Accutane for one full course and another course for a couple of weeks and see where it got me, I still have moderate acne. Its overrated.

it is the best thing even when youve had over 15 years of acne then because of accutane you are totally clear

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Sorry you are still suffering from accutane side effects..........and I agree with you that there are thousands out there with long term accutane side effects from accutane.

What dosage were you on and for how long?

I am still suffering.

My Derm has written a letter to another Derm I am going to see to try and counteract the side effects 18 months after stopping. He stated in his letter something like 'This is the most severe case of joint pain related to the medicine I have witnessed to date, but certainly not the first. I would like to hear the outcome of the patients visit and proposed treatment'.

I truly believe not all cases are reported. In fact, I bet there are thousands of others out there with similar long-term problems.

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