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hi there everyone, its good to know that my daughter is not alone with this terrible PF.

my daughter was finally seen by a derm, after 3 years, after docs saying it was acne or they were not sure, after having blood tests and swabs, they didnt really know what was :snooty: wrong. Anyway after seeing the derm, she said my daughter may have PF, which is spread all over her upper shoulders all the way to her upper back knees. I see my daughter covered up so many times so that others cannot see, and it hurts as a parent to see your child hide herself, at school she will not play any sport coz she so uncomfortable in her own body..

Im glad that we finally know what it is and have treatment for it, BUT im hoping this will work for her, shes only 14 years old, and to see her with this at her age is terrifying for me, I want to see her enjoy life as a kid.

At the moment she has started taking Isotane and Itraconazole tablets, so fingers crossed that a miracle happens..im praying hard!!..

I will keep this updated...

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