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conglobata

DOES IT WORK? Experiences please

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I posted this in another part: then i saw this.

My name is Danny and I'm from savannah. Currently I live in LA because I'm working there. I'm new here and came upon this site while stumbling for acne treatments. I'm currently prescribed accutane 60mg/day and was wondering if anyone can give me advice.

I'm 23 years old, 172pounds and I'm suffer from acne conglobata as my dermatolgist had said. I don't know why its called acne because it definitely isn't. I'm in constant pain most of the time and it has affected me mentally as well. It started in 2006 and it has followed me until now. To this day I'm still suffering. I had to quit my job for about a year because the pain and lesions had gotten so bad that they bleed and pus came out. I also had a surgery to remove the really huge hard lesions on my back.

It started when my back became really achy and painful. Over the next couple of days, it turn really red and raw. I went to the hospital and they prescibed me medications like painkillers and inflammatory drugs I can't remember the names. The pain did subside but after some time, it didn't work and about a month later boils started appearing on my back, chest, face and arm areas that I had go to the hospital again. Initially they thought I was burnt and roped in a dermatologist who catergorise it as a severe form of acne call conglobata. I went for laser and tretinoin cream which didn't work. Then I took antibiotics like tetracycline and minocyline. Minocyline was really good, it kept it under control till now which is starting again so my dermatologist prescibed me accutane 60mg/day. He said its a 6 month long course and is bumping me up to 80mg next month. I'm also taking sitalopram for my depression.

He said there is a possibility that accutane will cure my acne which i am really hoping for. I wish it will really work to help save me from this god damn disease that made me live so painfully for the past 2 years. I cannot sleep properly because every move would hurt me. I had to sleep on the bed side ways sometimes to prevent touching the lesions. I am working now again because I need to pay off my debts from the treatments this disease has saddled me with.

I didn't read the side effects and I don't really care the risks involve. If I really do get them and my disease doesn't get cured I think I should just commit sucide and end it all. Everyone hates me, they think I'm some kind of monster. I HATE them so much and wish I can kill them. Lucky for me I have my mum who stays with me and encourage me. If not for her, I guess I would be dead by now.

For those who took accutane does it really work? I saw there

So to those who are taking the drug, does it really work? What can i expect??

This is my back at the moment. minocyline doesn't work anymore and its coming back

post-92732-1231616244_thumb.jpg

post-92732-1231616244_thumb.jpg

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Hey i'm really sorry to hear about your experiences, sounds really nasty but hopefully your going to get clear :D i'm also on 60MG accutane and well i can easily say my acne isnt as bad as yours, looks so painful in your picture. I used to have cystic bacne and the first time round on 60MG accutane it cleared it all right up butt then later on once i was clear i got it quite bad and persistant on my face and thats been my only problem so i've been put on it again. I think when your acne is really bad you do see improvement on a bigger scale from accutane, fair enough maybes you may need two rounds on the stuff but i would be fairly confident about it :) you have to keep your hopes up, i know how mentally destroying it is having really bad acne, as do many people on this site. I'm hopeful for you, lots of people do get good results from this. As well as being on the treatment there are loads of ideas on this site to help and for you to try as well. I hope you all the best, accutane really is good in the end, i've seen it! Dont give up hope :D

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While not exactly the same as your condition, I had a severe cystic outbreak on my back a few months ago. I can relate to most of the things you said... how everything you do is painful, sleeping is difficult, etc. I imagine there are many more acne related suicides than people realize.

My heart goes out to you because of how long you've lived with this. I can't believe they are just now giving you Accutane! I think you'll see results with Accutane if you just stick it out a while longer. I've been on it for about 40 days and it has already began doing wonders.

I hope you give it a chance! Good luck!!

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wow that is some bad acne on your back i would say get on accutane asap that looks so pain full im sure its afecting your life to i would try get accutane it will work or least clear your back 90%

one more thing dont kill your self your acne will go away dont let it bug you so much try accutane it will work dont let acne ruin your life you can get rid of it :]

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I'm really sorry about your experience. You must have been through a lot and I can see that from the pic. It looks really bad and is the one of the worst I have seen on this board.

Accutane will work hopefully, after all its one of the main treatments for acne conglobata. Give it a bit of time and it should help you. Do come back to the boards if you need any help.

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Accutane, antibiotics, surgery, oral steroids, sometimes laser surgery are among the only things that work for acne conglobata (as you know). I'm so sorry to hear of your experience and I do hope that you improve greatly and have no more pain. I can't even imagine that pain from lesions. You sound strong and capable; I think you'll do well.

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Laser didn't work. It came right back even though they remove the lesions. The next few weeks, it just grew back. I tried to commit sucide once when it got too terrible for me to handle but my mom caught me and made me pull myself together. The photo is not the worse yet, its just the beginning. The worse was when my entire back all the way to my buttocks was covered in lesions together with my chest, shoulder blades and arms and face. My whole upper body was almost covered in lesions. I really really hope accutane is the miracle drug.

I have other questions as well. I have a drinking problem, I'm undergoing therapy for that but I haven't kicked the habit yet. When my dermatologist gave me accutane, he told me not to drink anymore because its not good for the liver. My test came out ok so I guess it wouldn't really hurt right? Or do I really have to totally cut off alcohol and not drink any booze at all? It will be hard but I will do whatever it takes to continue accutane. I'm slowly trying to cut down but how much is too much?

Also do you guys have any other tips to maximise the effects of accutane?

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Cut alcohol out as much as possible! This drug really does put a strain on your liver and having all that excess alcohol in there as well will be trouble, i think its fair to have the odd drink now and then but nothing more as it can be quite damaging. You dont want your acne to clear up then be faced with liver problems later on, thats just the worst so try your best to cut the alcohol out as much as possible! I cannot stress that enough.

Andd while your on the course keep yourself as best moisturized as you can, make sure you have a good moisturizer (for all over your body), drink almost nothing but water will also help so that your whole body is completely hydrated. Maybes you can see if you can get some suitable supplements which can help also; maybes talk to your derm about that though. Things like zinc, omega 3 and fish oils. Browse the site for some ideas, theres loads of stuff to help you, hang in there :D.

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I forgot to add that I'm taking sotret. My dermatologist says its not the original brand of accutane but its still accutane. He asked whether I wanted the original which is ACCUTANE by Roch I think but I said I will take sotret because its cheaper but its still accutane right? It will work the same right?

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I wish all the best and I hope things will work out for you. My husband had back acne as well, not as severe as yours but still...pretty bad....Accutane cleared him up completely and he has not had any in 6 years....best of luck with everything..

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I'm looking forward to the clearance. I don't know whether this is considered breakout or not but my shoulder blades are starting to have the lesions already. I went back to my dermatologist today and he gave me iburopfen for the inflammation. He also reminded me not to drink anymore otherwise he will take me off accutane so I guess its really bad for the body.

Anyone here taking sotret as well?

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conglobata, I took Sotret and it worked as promised. As for the alcohol, I know it's hard to stop because it's a great escape and it becomes ritualistic, but with this drug you really must lay off of it. I wouldn't do anything to hinder the progress of the medicine. You can do it. :)

Also, you said you didn't read the side effects so please stop taking the medicine and inform your dermatologist right away if you feel pressure on your brain, experience double vision, have difficulty breathing, or your urine gets dark. You're also battling depression and Accutane has been connected to intensifying it. Please let your mom in on your feelings so she can help you cope better while on the course.

Have you started a log? If not, can you? I'd love to follow your progress. We're all rooting for you!

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Hey man, I just wanted to show some support. It may take a long time before you see results (3-4 months) but don't let that deter you. Better days lie ahead. Just try and stay positive and be thankful for everything you have.

btw I spent my entire 5 month course on generics. It seemed like each month I got something different eg. Sotret, Amnesteen, Clavaris. I dont think it makes a huge difference. I mean I dont think they would be out there if they didnt work.

Anyways,

best of luck with your course

Boilermaker

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Hi, I have been taking accutane for over 3 weeks now. The acne has gotten worse but not as bad as the last time I had it. But it was bad enough to warrant a leave of absence because the lesions are on my arms and its too hard to work. I do not want to lose my job so is there anything else I can take to help in the meantime together with accutane? My dermatologist doesn't want to prescribe me too many medications because besides accutane, I'm also on iburopfen and sitalopram. Something I can convince my dermatogist to give me?

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now i'm on the 9 week of Accutane and the beak out is still there on my face...but i know that this condition will be better in a few weeks....i think it the same to you...don't have to worry about it too much....

some threads in this site mentioned about taking fish oil and vitamin E while having Accutane...why don't u try it ?...it really works ...

best wishes

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Supplements? That's kinda slow right? I need something that can help me handle things now cos its quite bad that I can't work properly. Can I ask for antibiotics?

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i don't think that's a good idea...but you can ask your derm for advice...

it takes lot of time to wait while on Accutane...plz don't be too hurry, everything gotta be alright..

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