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Sheefa

I don't know how much longer I can go on

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I've had it. The doctors, specialists, surgeons don't understand or comprehend what I'm going through and it seems I've run out of any treatment options. I can harly eat, haven't been able to in months and feel physically sick and frequently am sick following food. I am in daily agony and no treatment is working for my joint pain. My acne is also gradually creeping back on my forehead. I used to be suicidal about my acne, well you can imagine how bad and low I feel now. I feel absolutely useless. This all due to my Accutane course over 2 years ago, what on earth is all that about. Why did I get hit with these side effects when so many others have been fine....life just is not fair.

My days are truely numbered. As a last wish I just hope everybody taking or comprehending tane appreciates what it can do to some people like me. It's completely ruined my life. God bless you all, I know acne is hell, but living daily hell in this state....nobody can do that.

Greg W

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I can clearly understand your pain my friend. My experience with Accutane has also not been very good. I came on this site a couple of months back when I read a lot of horror stories including yours. Ignoring all those I went on with tane. This was my second tane course and I already had side effects carried from my 1st course 3 yrs back.

The thing is we all are so desperate to get our acne cleared, that we forget to think about the other servere side effects. Its only when we face bad experiences, we realise our mistake.

I think the biggest culprits are these dermas who really are quacks. They just think of making their job easier by prescribing tane ignoring all the side effects.

God bless all acne sufferers.

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Greg, I am so sorry for what you are going through! But please do not hurt yourself!! Please, talk to your friends and family and let them know how you are feeling. I know you may feel hopeless now, but things can turn around! Please, try and keep hope!!

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Sheefa, I truly am sorry you're going through all of this. You've tried going through the specialists in your area, but have you branched out to different cities or even states? I know in my heart there's a doctor out there that would jump at the chance to find out what's going on with you. I don't believe the doctors you've seen are "bad" or inept, they just don't have the time, expertise, resources, or gumption to follow through with your case, but one does. I just know it. Don't give up! :comfort:

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We will Greg. I will adhere to your wish and remember your story. You're doing an admirable thing by helping strangers.
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Greg you know what i'm about when it comes to tane. I haven't been on the action forum for a while because i cant remember the password for my account and the password retrival doesn't work.

If you want someone to talk to who has been through similar shit as yourself due to the same thing (accutane). Then message me your mobile number and we can have a chat. It can help alot to have someone to speak to that knows what your going through.

if you wanna chat on the phone any time, just pm me your number and ill give you a call when is best for you.

I also have some ideas for treatment options and i wanna talk to you in full about what you have tried thus far.

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I feel your pain sheefa. I really do. don't complete suicide yet, it is the solution but not necessarily the answer, don't you want to see what happens to Roche when it's all over? I know I do and that is the only reason I'm here typing this. do whatever you need to do to stay alive, we need as many people as we can to test soon, talk to mark again maybe he can find more things to try. Maybe one day science will fix us. stay strong brother

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I've had it. The doctors, specialists, surgeons don't understand or comprehend what I'm going through and it seems I've run out of any treatment options. I can harly eat, haven't been able to in months and feel physically sick and frequently am sick following food. I am in daily agony and no treatment is working for my joint pain. My acne is also gradually creeping back on my forehead. I used to be suicidal about my acne, well you can imagine how bad and low I feel now. I feel absolutely useless. This all due to my Accutane course over 2 years ago, what on earth is all that about. Why did I get hit with these side effects when so many others have been fine....life just is not fair.

My days are truely numbered. As a last wish I just hope everybody taking or comprehending tane appreciates what it can do to some people like me. It's completely ruined my life. God bless you all, I know acne is hell, but living daily hell in this state....nobody can do that.

Greg W

hang in there greg. im apparently not as familiar with your story as others are, but i wish you the same happiness. if i may ask- what is it that makes you so sure that all of these things you are experiencing are consequences of accutane?

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Sheefa, dont do anything stupid. Im having also side effects from accutane after 6months i finished my course. My dosage was from 10mg in first month and 70mg in the last month of my course(5months). I was afraid of side effects and i didnt go for the full dosage which would be 90mg(Im 6"2 and 87KG~200lbs-bodybuilder and good health) from day one but I upped it slowly each month. But still i am left with brain fogginess, dry lips sometimes, anxiety(bad panic attacks in first months). I managed to take anxiety and panic attacks under control without any other medication by practicing self-hypnosis, it is really good relaxing method. Thank God it is getting better now. I remember when i finished it was already summer and i couldnt go anywhere without being extremely sweaty on my face and body, i believe it was due to my anxiety and panic attacks which was 24/7 at that time.

What i want to say, you will get better and there is hope in future.

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Not everyone has hope in the future. Maybe it does if in term of a good job and career but the health and physical level will never be the same again. Just like one who lost both his eyes from accident, his life goes on but he will never be able to see again.

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truu, its the nature of the beast, permanent damage

Not everyone has hope in the future. Maybe it does if in term of a good job and career but the health and physical level will never be the same again. Just like one who lost both his eyes from accident, his life goes on but he will never be able to see again.
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Its awful Sheefa, and I wish you all the best, but to be fair you did do the #1 sin of accutane by buying it online. Who knows what you were actually putting in your body. Its terrible and you shouldn't have to pay for it like this. Again I pray for you that everything gets better. Just surround yourself with family and love, I used to be seriously depressed, and I have had some major health problems in my life so I really DO understand. Stay with us bud!

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Dear Sheefa,

I don't know you and I don't know if you are serious about not wanting to stick around. However, if you are contemplating suicide, please don't hesitate to get help. You can call the National Suicide Hotline 24 hours of the day.

Please call 1-800-SUICIDE.

if you do not live in the U.S. please see this link for suicide hotline numbers world wide. http://suicideandmentalhealthassociationin...org/Crisis.html

There are people in this world who can't imagine it without you, you know.

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hi sheefa, i havent gone on accutane, and while it may have helped or even the main cause of your depression, you have to find a way to deal through it.

as i said, i never went on accutane, but i was severely depressed and had a lot of stress and invasive thoughts surrounding me. i know its different to hear it from somebody else, and i know how frustrating it is for people to tell you to attend it, and to get over it, because for me, it was a very hard to do, and many people dont realize it is a legitimate, clinical condition that can affect your everyday.

HOWEVER, it is actually possible to come out of it. when i overdosed on a psych drug, i was interned on a psych clinic for several months. i modified my daily routine, did what motivated me (studying) and eventually, as i felt more and more gratified about it, i have been able to be almost in the same mood as before my depression. it also helped me to have a person as a support, and yuo may find one as well, it can help A LOT.

i still struggle with the leftovers, but at least i have my motivations back, and i feel i have a sense in life, and you have to find it too. it did change me a lot (it may be different to you) to open my eyes and see the problems that people around me have to go through, some worse, some even, some less, but they have been able to get through it, so why not me.

i hope it helps, in either case im here for anything you need.

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I can clearly understand your pain my friend. My experience with Accutane has also not been very good. I came on this site a couple of months back when I read a lot of horror stories including yours. Ignoring all those I went on with tane. This was my second tane course and I already had side effects carried from my 1st course 3 yrs back.

The thing is we all are so desperate to get our acne cleared, that we forget to think about the other servere side effects. Its only when we face bad experiences, we realise our mistake.

I think the biggest culprits are these dermas who really are quacks. They just think of making their job easier by prescribing tane ignoring all the side effects.

God bless all acne sufferers.

I couldn't of said it better myself! I actually stopped coming on this site because I don't appreciate getting belittled by people that are on accutane and can't stand someone saying something bad about it. I feel that not wanting to read about the bad things that have happened to us is just absolutely ignorant!

I hope things get better for you Sheefa! I'm doing alot better now, although my left knee and right pointer finger have started having a bit of joint pain. Not too bad, but I fear it's only the beginning!

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Thank you all. I have arranged to see a counselling through the Employee Advisory Resource scheme my company operates. I have been once before but found it pretty damn hard as it was just after the RAF setback. I'm not doing any better. I broke down last night in front of my mum and dad after I threw up my dinner. My stomach cramps and pains have got worse and I feel physically sick nearly every time I eat now.

Whilst depression is a severe condition itself, mine is solely related to the symptoms of pain and discomfort in my joints, inability to eat properly and other damn annoying side effects. Life isn't fulfilling. It's like having acne all over again but worse because this is physical pain and suffering that persists and persists with no sign of stopping.

My parents don't know what to do and at the age of 26 I shouldn't be breaking down on a regular basis. My girlfriend is obviously scared about my state of mind as is my best friend.

I think I will have to consider a strong anti-depressent soon enough to try and pull me through.

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I have to. I don't fully trust my state of mind right now and I split up with my other girlfriend a while back so we parted ways. Until I'm in a stable state, I can't be going anywhere.

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I am sorry you are feeling so horrible.

I went through a similar state about two months ago when my acne was at its worse. I couldn't stop breaking down, it was effecting the way I felt physically.. and I didn't feel like myself. I wasn't having any joint problems obviously, but my skin was so itchy and painful I felt like fire ants where crawling all over my face. After about a week straight of crying, laying in bed all day, and complaining to loved ones.... I decided I wanted to be happy again.

I got up, and even though the pain was still there and wouldn't be going away any time soon... I decided it was time to learn to live with it. I started taking care of myself again, and I started to laugh again. These pains you have are not going to go away over night (or could be something you have to deal with for the rest of your life)... as hard as that sounds...I have a feeling you can over come them...

I know you are a strong person because you sent me an email a few weeks ago that was very supportive.

It sounds like you are thinking about going on an anti-depressent... which could drastically change the way you feel.

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