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RatherBeSkating

Accutane - Do you regret taking it?

Accutane - Do you regret taking it?  

305 members have voted

  1. 1. Do you regret taking accutane?

    • No, it was great!
      173
    • Yes, worst decision ever!
      92
    • Didn't really bother me
      47


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So, with the topic around here about how accutane is evil, started by someone who has no experience with it, I was just wondering how many people out there have had good experiences with tane, and bad experiences.

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yea most people who post on here have a negative thing to say about accutane. i think if u can realize that people mostly just post on here because they need help with something and know it might not happen to u, u should be ok. also sometimes people exaggerate or it might not even be accutane related. after the first few months, the only problems ive had were dry lips. :D

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So far I am very happy with it. 19 days in on Sotret and all my pimples are gone.

I wish I had done it 10 years ago…It would have saved me a decade of emotional turmoil!

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Me too, I'm 18 and almost two months in, and wish I would have done this a lot sooner! It's really been worth it so far. I'm 19 in 3 weeks, I hope to be clear by then, go out and get smahsed in celebration. (I've drunk on tane before, nothing bad happened, just not making a habit of it)

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if u notice, those who complained are those past 6 months on accutane....

1st month, 3 months down the road etc are no big deal..u will feel really good abt it now...u can even not wash ur face n not a single bump will appear....non oily face....

yeah lips drying up onli....wats the big deal....i was like u guys...

u really got to wait till u notice something went wrong....thinning of hair, dry scalps and hair dropping will start in the 6th month and before u realise...u can see ur scalp like some sort of cancer patients...and im telling u....

u may think its fine...i got enough hair to let it drop.....just wait n see...and tell me if its realli fine...damn...my whole bushy hairs has since drop and thin like a freak....and now post accutane 8 months, i finalli see a bit of recovering...

now im on a regimen and i felt i m more or less the same as i was on accutane...acne free.....

depression realli comes on accutane if u r emotional weak....

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I've been lurking on this site for a few days now but felt compelled to write something on this topic. My skin is basically clear and has been for years and I owe it all to Accutane. The worst I got in terms of side effects was dry lips and and face.

When I took it I was at boarding school and there would have been at least 10 other guys taking it also. No one had any severe side effects and all ended up with MUCH better skin than before.

This stuff is like a wonder-drug and people who try to persuade other not to take it syhould be shot!

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I've been lurking on this site for a few days now but felt compelled to write something on this topic. My skin is basically clear and has been for years and I owe it all to Accutane. The worst I got in terms of side effects was dry lips and and face.

When I took it I was at boarding school and there would have been at least 10 other guys taking it also. No one had any severe side effects and all ended up with MUCH better skin than before.

This stuff is like a wonder-drug and people who try to persuade other not to take it syhould be shot!

Perhaps that's a good option as moct people who write to warn others are in incredible pain from the latent accutane side-effects. Personally, I'd prefer a house visit by you if you fancy shooting me because by your attitude I'd love to give you a good kicking.

The reason I am here is to warn people about post-accutane effects many experience a few months or years down the line, when there's no other differential diagnosis. Accutane has ruined my dream of becoming a RAF Regiment Officer and is now playing havoc with my personal and social life. No acne did all of this, there were good and bad days with my skin - this is a never ending nightmare now.

I can't stress this enough. Until you get 'hit' by something serious, albeit rarely life threatening, like arthritis, osteoporosis, chronic tendonitis, IBS, Diabetes, throat hoarseness, dry eyes, chronic fatigue, one of many immune system disorders, fibromyalgia, depression or many others, you'll never understand.

Greg

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I find this topic meaningless because people who took accutane and doesn't experience severe side effects will praise how great this drug is, while people on the otherhand who experience severe side effects will regret taking this drug. As simple as that.

To be honest, I will recommend 5mg to 10mg at most, to people who want to take this drug. That's the safer dosage. 20mg is enough to give severe side effects.

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I bet half the people who have voted haven't even finished their course yet.... Finish your course and see if you vote the same way, i bet 50% of you wouldn't.

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I bet half the people who have voted haven't even finished their course yet.... Finish your course and see if you vote the same way, i bet 50% of you wouldn't.

Exactly. I've seen posts from some people saying what a mircale drug after only 19 days of being on it!!

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yea most people who post on here have a negative thing to say about accutane. i think if u can realize that people mostly just post on here because they need help with something and know it might not happen to u, u should be ok. also sometimes people exaggerate or it might not even be accutane related. after the first few months, the only problems ive had were dry lips. :D

I agree most people on here still have acne or are on Accutane, I doubt most really sucessful past Accutane users would still be on here. No acne= no need for acne.org! On to the next phase in life!

(Although I do love acne.org!)

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I bet half the people who have voted haven't even finished their course yet.... Finish your course and see if you vote the same way, i bet 50% of you wouldn't.

Most of us wouldn't vote after our course because we would be off acne.org because no more acne! Yay!

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I won't say it was the thrill of a lifetime because of all of the side effects, but it did the job and I'll take it again if I have to. I finished 1 month ago. No side effects now.

p.s. I stick around because I like this place.

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Well around 25% of those who have voted have stated that it was 'their worst decision ever' which is quite a large number - 1 in 4 so far will regret taking the drug.

Plus with regards to the other post about people not having acne not being on acne.org, agreed. However, the same goes for those experiencing major accutane side-effects - we have our own forum to debate the drug and find some form of treatment. With over 4,000 members and god only knows how many guests. This is by no means a clear indication of who is safe down the line and who is not.

It's funny, A lot of people say that the course that 'clears' your acne for good is the one that wipes you out with many side effects. A common statement on the accutane action forum.

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SHEEFA

I was just wondering how bad your skin was that it made you want to try Accutane. How severe was it? How long did you have acne before you tried accutane? Was your acne painful in anyway? Because I don't know about you but I get cysts under my ears behind my jaw and on my neck and forehead. And they hurt constantly and severely if touched the wrong way like while sleeping, or showering, or putting, on shirts, wearing a helmet, just sitting there doing nothing...

So I might try accutane again even though my doctor took my off for almost 2 weeks. I was having joint pain but if I use a lower does the statistics are good enough to have faith that the joint pain will go way after the course. For me... it is worth the risk. The emotionally draining effects of acne combined with the day to day grind of regimines, the constant frustration, with physical pain and scarring has completely worn me out and I feel that I am starting all over again at ground zero.

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SHEEFA

I was just wondering how bad your skin was that it made you want to try Accutane. How severe was it? How long did you have acne before you tried accutane? Was your acne painful in anyway? Because I don't know about you but I get cysts under my ears behind my jaw and on my neck and forehead. And they hurt constantly and severely if touched the wrong way like while sleeping, or showering, or putting, on shirts, wearing a helmet, just sitting there doing nothing...

So I might try accutane again even though my doctor took my off for almost 2 weeks. I was having joint pain but if I use a lower does the statistics are good enough to have faith that the joint pain will go way after the course. For me... it is worth the risk. The emotionally draining effects of acne combined with the day to day grind of regimines, the constant frustration, with physical pain and scarring has completely worn me out and I feel that I am starting all over again at ground zero.

I understand your situation mate and if your acne is severe and other treatments haven't worked then by all means I agree a low dose treatment option is probably a good idea. Fingers crossed for you.

I had acne from about 17-23. tried EVERYTHING. Loads of prescribed topicals, Tetracycline, Minocin, 3-day apple liver cleanse diet, loads of dietary alterations etc. I did the Regimen for a while but it didn't seem to work. I then tried it before my accutane coursae and it slowly began to work and my skin began clearing but by that time I was prescribed accutane and thought I'd give that a shot instead. My acne was moderate and persistant. At least 5-6 new lesions a week and occassionally they hung around for 2-3 weeks. Minimal scarring luckily. Mine was not that painful but was certainly holding me back in life.

I should make myself clear again. I've been on both sides of the fence and hated my acne, god I hated it so much. I just wished I gave the BP regimen a little longer and look at any other alternatives, but I suppose there weren't many left. I think for my moderate acne I made a mistake.

The Roche pamplet & prescribing info states for use only in cases of 'severe cystic and nodular scarring acne'. I think it should ONLY be prescribed in such cases - no exceptions. If you fit this category then I'm sure you will take the leap of faith and take the treatment. Fingers crossed for you.

Greg

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SHEEFA

I was just wondering how bad your skin was that it made you want to try Accutane. How severe was it? How long did you have acne before you tried accutane? Was your acne painful in anyway? Because I don't know about you but I get cysts under my ears behind my jaw and on my neck and forehead. And they hurt constantly and severely if touched the wrong way like while sleeping, or showering, or putting, on shirts, wearing a helmet, just sitting there doing nothing...

So I might try accutane again even though my doctor took my off for almost 2 weeks. I was having joint pain but if I use a lower does the statistics are good enough to have faith that the joint pain will go way after the course. For me... it is worth the risk. The emotionally draining effects of acne combined with the day to day grind of regimines, the constant frustration, with physical pain and scarring has completely worn me out and I feel that I am starting all over again at ground zero.

I understand your situation mate and if your acne is severe and other treatments haven't worked then by all means I agree a low dose treatment option is probably a good idea. Fingers crossed for you.

I had acne from about 17-23. tried EVERYTHING. Loads of prescribed topicals, Tetracycline, Minocin, 3-day apple liver cleanse diet, loads of dietary alterations etc. I did the Regimen for a while but it didn't seem to work. I then tried it before my accutane coursae and it slowly began to work and my skin began clearing but by that time I was prescribed accutane and thought I'd give that a shot instead. My acne was moderate and persistant. At least 5-6 new lesions a week and occassionally they hung around for 2-3 weeks. Minimal scarring luckily. Mine was not that painful but was certainly holding me back in life.

I should make myself clear again. I've been on both sides of the fence and hated my acne, god I hated it so much. I just wished I gave the BP regimen a little longer and look at any other alternatives, but I suppose there weren't many left. I think for my moderate acne I made a mistake.

The Roche pamplet & prescribing info states for use only in cases of 'severe cystic and nodular scarring acne'. I think it should ONLY be prescribed in such cases - no exceptions. If you fit this category then I'm sure you will take the leap of faith and take the treatment. Fingers crossed for you.

Greg

I also had been suggested Accutane multitudes of times by my dermatologists, but after I met my current one (the one who works at the Johns Hopkins School of Medicine, Dermatology... so you know she's amazing), I have realized that when it comes down to finding a good dermatologist, it's oftentimes ones that will use the minimal medication necessary to help cope with acne.

I actually asked her if I might go on Accutane, and she said that I was "not a good candidate" because I did not have cystic acne, that mine was just moderate, so she "couldn't prescribe" me Accutane.

It felt amazing to hear those words, because all of my previous dermatologists had always given me the eye-rolls every time my mom would say "no" to Accutane.

Now, I have almost no single active acne, have a fair complexion, and my face is just getting near being near how it used to be when I was little.

And Accutane was left out of the formula.

And when I read these posts here, I'm really thankful that my mom and my current dermatologist were strong enough to keep on refusing my wants for Accutane, because I see now that I reached what I wanted without having to take the huge risk.

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Ok, I know this is a reeeallly long post, but I hope people out there read this, especially those who are in a really low place right now.

Accutane has given me my life back. I only regret that I didn't take it earlier.

This is the first time in months and months that I have logged onto this website. Why? Because my skin is perfectly clear and I no longer need to trawl this messageboard for hours and hours hopng I can find some "miracle" cure like dipping my head in camel's milk or whatever other crazy "cures" people invent on these boards. My skin no longer preoccupies my mind 24/7 and it is the most liberating thing ever.

For over a decade, I had severe acne on my face, neck, arms, back, and moderate acne on my chest. Oxytetracycline didn't clear me. Doxytetracycline didn't clear me. Benzoyl Peroxide didn't clear me. Differin didn't clear me etc etc...you get the idea. I was so demoralised and felt hopeless about ever getting rid of this burden. I passed university with distinctions and should have been ready to fly off and make a wonderful career for myself. Instead I spent an entire year of my life shut away from the world, spending everyday self-loathing and pitying myself because of my "freak" skin. I was working part-time on the minimum wage, and spending the remaining hours asleep so I didn't have to see myself. My confidence was shot, and it was a vicious circle with that devil on my shoulder telling me that no-one would employ me, and that I was inferior to everyone else. You could say I was weak for letting acne nearly destroy me. I admit I was weak, but once you get in that hole, getting out is near impossible.

Finally I had enough and opted for Accutane. Now, my experience on the drug was NOT plain sailing. Throughout my course and a little while after, I suffered from facial flushing, red skin, the sweats. My eyes were so dry and tired I looked like a meth addict. I had an outbreak of dermatitis all over my calves. But these were all controllable - I got creams for the dermatitis, drops for my eyes, and I listened to my body by reducing my dose by half when the flushing got bad. My best piece of advice is just that, listen to your body and reduce your dose if things get bad. You'll still get to the end, it'll just take longer, and the risk of any permanent damage is reduced.

Now 7 months after completing my course, my life has turned around. I have not had a single spot since. My flushes have gone. My skintone is now even. My dry eyes are back to normal. Most importantly, I have a feeling of self-worth and confidence. I now have a great job earning well above the national average wage. I have a girlfriend. I can look people in the face. I now enjoy socialising. I go to the gym. I can actually wake up in the morning and not dread that walk to the bathroom mirror. I can look into that mirror and smile.

Obviously not everyone has an experience like this. However, I think it's important to share positive experiences. Most people in my shoes leave these boards and are never seen again. It's the unfortunate people who don't react well to Accutane that stick around, and are understandably quite vocal and bitter about what Accutane did to them. The reality is that Accutane is a risk, each person reacts differently. Most will make it through fine, but some won't, and you do need to be aware of that when you take it.

Just listen to your body when you take Accutane, and if it's struggling, seek help and reduce the dose. Good things come in time. Don't let your desperation to be acne-free jeopardise your long-term wellbeing.

Good luck all.

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yah my advice would be.....if its not v v severe cases and if u do have other alternative..skip this drug...maybe now u wont have any side effects...10 yrs down the road u discover issues with liver etc...and its not worth the risk...

no doubt some peopl react well to it..some had bad experiences....

i was only on 5mg and was on the road to clear skin....but on my 8th month...my hair drop drastically....

soo...i assume i wasnt good enough for accutane and took myself off the course..im not condemning it...but i heard terrible stories abt how it affect ur liver etc.....

so its realli up to individual to judge if its good or bad..but definitely no point sworning the better now to others and promote this drug like some miracle.....for all that u know..u might be misleading another person who is not suitable for this drug to take it.....

by e way accutane was the first drug that i was made to sign an indemnity letter by my derma...

and its so effective n non dangerous why do i have to made sign it before consuming...

do u sign indemnity when u r on doxycycline?

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Ok, I know this is a reeeallly long post, but I hope people out there read this, especially those who are in a really low place right now.

Accutane has given me my life back. I only regret that I didn't take it earlier.

This is the first time in months and months that I have logged onto this website. Why? Because my skin is perfectly clear and I no longer need to trawl this messageboard for hours and hours hopng I can find some "miracle" cure like dipping my head in camel's milk or whatever other crazy "cures" people invent on these boards. My skin no longer preoccupies my mind 24/7 and it is the most liberating thing ever.

For over a decade, I had severe acne on my face, neck, arms, back, and moderate acne on my chest. Oxytetracycline didn't clear me. Doxytetracycline didn't clear me. Benzoyl Peroxide didn't clear me. Differin didn't clear me etc etc...you get the idea. I was so demoralised and felt hopeless about ever getting rid of this burden. I passed university with distinctions and should have been ready to fly off and make a wonderful career for myself. Instead I spent an entire year of my life shut away from the world, spending everyday self-loathing and pitying myself because of my "freak" skin. I was working part-time on the minimum wage, and spending the remaining hours asleep so I didn't have to see myself. My confidence was shot, and it was a vicious circle with that devil on my shoulder telling me that no-one would employ me, and that I was inferior to everyone else. You could say I was weak for letting acne nearly destroy me. I admit I was weak, but once you get in that hole, getting out is near impossible.

Finally I had enough and opted for Accutane. Now, my experience on the drug was NOT plain sailing. Throughout my course and a little while after, I suffered from facial flushing, red skin, the sweats. My eyes were so dry and tired I looked like a meth addict. I had an outbreak of dermatitis all over my calves. But these were all controllable - I got creams for the dermatitis, drops for my eyes, and I listened to my body by reducing my dose by half when the flushing got bad. My best piece of advice is just that, listen to your body and reduce your dose if things get bad. You'll still get to the end, it'll just take longer, and the risk of any permanent damage is reduced.

Now 7 months after completing my course, my life has turned around. I have not had a single spot since. My flushes have gone. My skintone is now even. My dry eyes are back to normal. Most importantly, I have a feeling of self-worth and confidence. I now have a great job earning well above the national average wage. I have a girlfriend. I can look people in the face. I now enjoy socialising. I go to the gym. I can actually wake up in the morning and not dread that walk to the bathroom mirror. I can look into that mirror and smile.

Obviously not everyone has an experience like this. However, I think it's important to share positive experiences. Most people in my shoes leave these boards and are never seen again. It's the unfortunate people who don't react well to Accutane that stick around, and are understandably quite vocal and bitter about what Accutane did to them. The reality is that Accutane is a risk, each person reacts differently. Most will make it through fine, but some won't, and you do need to be aware of that when you take it.

Just listen to your body when you take Accutane, and if it's struggling, seek help and reduce the dose. Good things come in time. Don't let your desperation to be acne-free jeopardise your long-term wellbeing.

Good luck all.

Thank you for this post!!!

Not just for sharing your experience, but you have helped me with something haha :)

I had an outbreak of a strange rash on my inner thigh last week, and didn't know what it was until I just googled dermatitis.

Luckily I've got some Fucibet cream for dermatitis around, very strong stuff, and should do the trick. You've save me a lot of pain and itching lol. Thanks :D

I'm 2 months in and almost clear, so far this drug has given me my life back. Even if I died because of it tommorow, I'd have no regrets. I'm living in the real world again, holding my head high, and being happy with who I am. It's amazing, nothing would convince me to go back to how I was, I'm really happy for the first time I can remember!

I'm 19 three weeks from today, and hope to be 100% clear by then, gonna have a crazy night out :)

I <3 tane :)

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tigarah - i would like to say thank you very much for your post as well. reading it was like describing my life in a way. i had to quit my band which i was really all for and wanted to stick to no matter what, but my skin was affecting my life so much i couldn't focus on my music, and i was really bringing the band down. i lost all my confidence, and didn't want to play gigs anymore because i was too embarrassed. so we called it quits

for the past year i've lived life just going to work, coming home, sleep. and do it all over again the next day. all my friends have wondered what's happened to me (cept a few who know whats going on with me) and lots of people wonder if i'm even still in the area. i don't feel im the same person i was a couple years ago, i now try to avoid talking to people, and rarely look people in the eyes.

im seriously hoping things work out for me like they did for you! im a month into accutane and haven't noticed much improvement, basically only become worse but i have high hopes that after another 4 months i will be clear and get my life back.

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Although Accutane miraculously cleared up my acne at a time when I was experiencing it the worst, I still regret taking it. The conditional side-effects notwithstanding, Accutane can cause cataracts and other severe vision problems associated with vitamin A toxicity, severe liver damage when taken over long periods, heart conditions, heart failure, somatic cell mutations (which is essentially carcinogenesis), which can lead to full-blown cancer, birth defects in children, haploid cell damage in both men and women (i.e. in the sperm and ovum), not to mention death (though rare and admittedly as rare as with many other safe, prescription drugs). Not all side-effects are noticable. In fact, the most deadly ones are insidious, sneaking in undetected and killing you slowly. Just because you aren't depressed or suicidal or thinking weird thoughts does NOT mean Accutane is not harming you. I am 29 now, and was prescribed a French-style, low-dose regimen over an eight-month period when I was 24-25ish if I'm remembering correctly. At first the side-effects were quite mild and managable compared to the disaster which was my skin prior to the Accutane. Yet over time I found myself feeling socially ill-at-ease due to very odd thinking patterns caused by the drug that I was increasingly becoming aware of, and I was also getting very sleepy at random hours of the day. I can state unequivocally that Accutane has done irreparable damage to my psyche and only time will tell if to my body as well. Now having had studied the very nature of chemicals, and realizjng the serious, long-term risks associated with Accutane in conjunction with the major pharmaceutical companies' desperate desire to keep their profits high and their shareholders happy, I now know that Accutane, along with many other drugs now currently on the market (and others that have been removed), is VERY bad news for most acne sufferers. In some very severe cases I would make an exception, citing the possible outcome of avoiding the only known treatment for such cases. Undoubtedly, the possible outcome of not treating cystic-type acne can result in permanent scarring, clinical depression, and by extension a decline in self esteem, academic performance, and in some cases suicide. So carefully, and I mean carefully weigh the risks. There exists entire online societies of ex-Accutane users who could offer you sufficient reason from personal experience that the drug is one to definitely be reckoned with. So for the common acne sufferer, my advice is to avoid it at all costs and resist the advice of some dermatologists who too willingly prescribe it to unwitting, young patients. If any of you are University students, check out the deplorable statistics for Accutane yourself in the scholarly medical journals on JSTOR or whatnot. This drug is banned in many countries all over the world - and for good reasons.

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Why do so many people blow the side effects out of proportion?

It's like if you are wanting to have a child. Yes there are chances of having a disabled child, but does that stop people from having kids? No it doesn't. So to all the people that have a hairy canary over the side effects, take a minute to yourself before you post something that makes you sound like an absolute drama queen.

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