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acne conglobata

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i have a acne conglobata since 1997 year, i was 13 and now i have acne always on my body, face, neck, bosom, belly, hands, back, i many times go to derm, and another doctors, but nothing help, i was use a accutane, but it not help to, i wont to know, when it's a end? somwone mayby know poeople who have acne conglobata, when he have a clean?

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That is a very hard disease to treat as you know; have you considered traveling to other countries for treatment, and have you already spoken with specialists who have experience with treating acne conglobata? There are many treatment options; I found an interesting study/article that even suggests CO2 laser can help. Here is one quote from the article:

Medical Care

The therapy of choice for AC is isotretinoin 0.5-1 mg/kg for 4-6 months.

Simultaneous use of systemic steroids, such as prednisone 1 mg/kg/d for 2-4 weeks, may also prove beneficial, particularly if systemic symptoms are evident.

Alternatives include oral tetracycline 2 g/d or erythromycin 2 g/d, either alone or with isotretinoin or prednisone.

For treatment-resistant cases, dapsone 50-150 mg/d is recommended; this treatment should be carefully monitored.

Along with vigorous medical therapy, emotional support is essential.

Treatment of AC with infliximab has been tried14; the authors do not recommend this therapy.

Successful treatment of perifolliculitis capitis abscedens et suffodiens, including AC, has been described with combined isotretinoin and dapsone.15

Acne conglobata has been successfully treated by carbon dioxide laser combined with topical tretinoin therapy.16

Surgical Care

Large hemorrhagic nodules may be aspirated.

Intralesional triamcinolone or cryotherapy may also be valuable.

Occasionally, surgical excision of interconnecting large nodules may be beneficial.

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no i not go to another countries, laser CO2, Simultaneous use of systemic steroids in a my city we dont have it's, and erythromycin it's a not for long help, and it's a help a little, very little. and i think that acne coglobata have only i

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I don't really know if I have acne conglobata, but I think I have some symptoms.. but not sure.

And I'm currently on Isotretinion, Dapsone (antibiotic) and Prednisone (steroid).

and right now it is pretty good, I just hope it will last after I finish the prednisone.

I hope you'll find a solution!

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