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Accutane question for anyone who has tried it

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I tried accutane 2 years ago and while it made the acne disappear, it made my lips chap and shed. I know this is a side effect but, my lips were actually disappearing before my eyes. If I ate anything or drank anything they turned to soup, i had never seen anything like it in my life. Layers upon layers would fall off every day no matter how much lip chap or which of the 20 lip products i had purchased, i applied on. At no point were my lips actually normal, the tissue on them was almost constantly white, and id remove the parts that were falling off but putting the lip chap on just made my lips wet, white and peel, you could see it from a hundred yards away. I couldnt eat anything in public it was so embarassing. By the end of the first month on acutane me and my family were worried I actually wouldnt have any tissue left on my lips. I stopped because what happened to lips was something out of a horror movie, or like ebola for the lips. Has anyone ever experienced the side effect that bad? I wish i had a picture because it's hard to accuratly describe the magnitude of lip tissue that turned white and cracked and shed.

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I've never heard of anything like that. Did you talk to your derm about it?

actually, i have that but to a much lesser extent. are your lips usually really sensitive?

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During my first course my lips were like that. In retrospect i realize that the condition was greatly exacerbated by the lip product that i was using - Carmex. Most products marketed for chapped lips have ingredients in them to speed exfoliation of dry flakes on the lips, and on normal chapped lips this is not an issue. They also contain products designed to cool or numb, but these can be extremely irritating to raw lips.

When on Accutane the best approach is to avoid any lip product which contains menthol, camphor, or salicylic acid - Carmex contains all three. I was going through a tub of it in a week and my lips only got worse. Most lip products on the market contain at least one of these ingredients. Avoid anything tingly like peppermint oil as well.

During my recent course my lips were much better. I used Dr. Dan's Cortibalm - a lipbalm designed especially for Accutane patients which contains hydrocortisone to ease to the swelling and heal any open wounds on the lips, and does not contain anything that increases irritation. It doesn't moisturize real well, so i used Clinique's Superbalm or Aquaphor on top. The combination works better than anything else i tried. Your lips will still not be "normal" but you won't be scaring little children either.

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