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Pff..

Something for Acne.org to consider?

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I dont know how good of an idea this is to be honest. Or if something like Acne.org would take it on (i dont know how much work would be involved). But, it saddens me that in some cases where scarring is severe and destroying someones emotional well being and they cannot afford to do anything about it. I feel reasonably lucky at this stage in my life to be able to afford some treatments, which gives me hope.

Anyway...

I wonder if some kind of Fund could be set up for scar treatments for someone who cannot afford anything. What if a donations link was set up (and poss some sponsership if poss) for a fund where we could put in as little or as much as we can? It may take time to raise enough funds but well, there are a lot of us using this forum and even a few pounds/dollars could mount up over time. I know that Acne.org do some great work giving presentations and working hard to help as a non-profit organisation. Its really admirable. This seems to mainly focus on acne and clearing it. I wonder if they would take on some kind of fund for scar-sufferers.

Im not sure about how much a person could receive but sum could be capped, or just a set amount, and the money could be paid to the derm office rather than the individual (after a written quotation)? Or just given to the individual? They would need to submit a formal application of course (maybe acne.org would get swamped :S).

I think it would be nice to try help out our fellow sufferers if we can afford either a one-off or regular donation of even a small sum.

So...?

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I think is a great idea !

The candidate can choose the treatment of their choice

eg: dermabrasion, fraxel etc. Maybe the person can take

progress pics of just the skin ( if they want to stay anonymous ).

Also everyone in Acne. Org can benefit from learning what type

of treatments can help which type of scarring etc.

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Man that's a great idea. Also, I'd have no problem asking NYC derms to REDUCE their prices

for acne.org patients in my area. Even w/out this, it's a great idea.

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Man that's a great idea. Also, I'd have no problem asking NYC derms to REDUCE their prices

for acne.org patients in my area. Even w/out this, it's a great idea.

Asking derms to reduce prices? Why would they agree to that? Just curious.

Pff..

Excellent marks!

Candidates, could be voted and elected by board members through photo submissions.

This thread should be moved or copied on the Announcements section.

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There are loads of members on here that have little money and still scrape enough together to get treatments done. Acne scars are such a horrible thing to happen to someone and they just make u feel terrible. With that said I think they also get people motivated to do things to afford them. I dont worry about money but if I did I would have no problem selling off my books and art (the things I own of value) if it meant fixing my face and leading a productive life. The average person on here would need about $3000 to fix their face as good as possible. Most of us could scrape that much together if we had too.

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i was thinking if this thread proves popular and many people like the idea then it could be shown to the powers that be here at acne.org in the hope for some kind of action if poss.

Of course it also relies on people willing to donate to help out.

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I think this is a good idea in theory but logistically there are too many problems. Who would decide who gets the money? There would be way too many arguments over this I think. Also we all know that treatments even expensive ones have proven to leave some worse off than before even with "experts" performing the procedure. I seriously doubt Dan would want any liabilities tied in should someone's treatment get botched or have bad results. Also people could just lie about their financial conditions to get funds for treatments and we just wouldn't know. I know it sucks not being able to trust people but that's what happens in a world of frivolous lawsuits and bad apples.

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Would it be at all possible to find a way to get insurance companies to cover some of this stuff? They don't currently cover it because it's "cosmetic" but it affects people a lot more than just how we look. I wish there was a way...

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Would it be at all possible to find a way to get insurance companies to cover some of this stuff? They don't currently cover it because it's "cosmetic" but it affects people a lot more than just how we look. I wish there was a way...

I wish there was a way too. But that would be impossible, I think.

My derm talked my insurance in to covering micro-dermabrasions for me. That's about as far as they'll go I bet.

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I think this is a great idea! I was watching Dr. 90210 the other night and 1 of the Dr.'s was having a fundraiser 4 Face To Face. It's an organization that uses their proceeds to pay for surgeries for women that have scars on their face. The women are victims of domestic violence. So I think this is a good idea and hope it comes to life.

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Colin is right.

Generous thought, but impractical.

I agree. People could easily make their scars look worse with photoshop or just use a picture of someone else completely. You would have to actually see them in person to know if they were being completely honest. Plus what if the procedure did make them worse, it happens all too often :(

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Okay instead of a charity for scars how about one for acne sufferers that are uninsured and need medication. That would be a much more worthwhile charity, and would be cheaper too. There are people on this sight with horrid acne that are using shitty over the counter stuff when they need accutane. Without insurance thats like $550 for a months generic, that is total bs. That would be my idea free medications for acne sufferers.

Maybe free smoothbeams if they dont respond to accutane. Would probably solve the prob of a lot of people as they wouldnt scar if they get rid of the acne in the first place.

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Okay instead of a charity for scars how about one for acne sufferers that are uninsured and need medication. That would be a much more worthwhile charity, and would be cheaper too. There are people on this sight with horrid acne that are using shitty over the counter stuff when they need accutane. Without insurance thats like $550 for a months generic, that is total bs. That would be my idea free medications for acne sufferers.

Maybe free smoothbeams if they dont respond to accutane. Would probably solve the prob of a lot of people as they wouldnt scar if they get rid of the acne in the first place.

Anyone here can offer funds to anyone they choose, without involving acne.org. Seriously. If you want to buy medications for someone, you can easily do exactly that. Just pm them your offer. If you want to pay for smoothbeams for someone, again - you can. No one is stopping anyone from helping others.

I for one am THANKFUL that accutane EXISTS.

Research to create new drugs is EXPENSIVE. Cystic acne is a horrible disease, but it certainly doesn't affect a huge percentage of the population. I am AMAZED that ANY drug maker bothered to expend MILLIONS on research for this drug in the first place. I'm not going to complain about what they charge for what I personally consider to be a WONDER DRUG.

If someone is suffering with cystic acne and can't afford accutane, it might be worth their time and effort to seek out the drug maker and contact them directly. Many drug makers offer FREE DRUGS to individuals who can demonstrate financial need. I do not know if the accutane producer is one of them, but it won't hurt for the poverty stricken who need the med to give it a shot. The worst that can happen is the person on the other end of the phone says "no, we don't offer discounts or free meds."

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Well I have seen a member on here that did get accutane for horrible horrible acne for free or sig dicounted, but after a long waiting time. Also she still paid for doc visits and blood work. I know for scar sufferers waiting is not an option. I freaked when I got scarring acne and basically went immed on accutane and am clear from that point on.

It is not possible for people to just donate thousands of dollars to people for accutane. I was saying that the government could at least regulate accutane and acne medications for severe cases of acne to make them affordable. I can understand a medication like VIagra being optional, but not accutane that should be free even if your unlucky enough to have no insurance. Also what acne age kid is gonna have insurance or $500 a month to spend on accutane when their parents dont?

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Well I have seen a member on here that did get accutane for horrible horrible acne for free or sig dicounted, but after a long waiting time. Also she still paid for doc visits and blood work. I know for scar sufferers waiting is not an option. I freaked when I got scarring acne and basically went immed on accutane and am clear from that point on.

It is not possible for people to just donate thousands of dollars to people for accutane. I was saying that the government could at least regulate accutane and acne medications for severe cases of acne to make them affordable. I can understand a medication like VIagra being optional, but not accutane that should be free even if your unlucky enough to have no insurance. Also what acne age kid is gonna have insurance or $500 a month to spend on accutane when their parents dont?

More government regulation will result in LESS innovation, Keith. Personally, I prefer drug companies to spend their money on research and development instead of spending it trying to comply with another boatload of government regs.

The only possible route that I can think of is legislative action to force insurers to cover treatment to control severe acne, as well as scar repair procedures. But once again, we are a tiny fraction of the people, and as such we (and therefore our cause) would carry no weight with politicians.

Even if we were able to get legislative action to force insurers to cover treatment, that wouldn't solve the problem, because many young people (20somethings) choose not to carry health insurance. It's a smart bet, really, because younger people generally have much less health care costs than older people.

I can envision a scenario in which a 22 year old chooses not to carry health insurance, then develops cystic acne, and the insurer has a pre existing clause in their policy, so even after the 22 year old buys a plan, his treatment would be further delayed.

There is no easy answer.

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Well I have seen a member on here that did get accutane for horrible horrible acne for free or sig dicounted, but after a long waiting time. Also she still paid for doc visits and blood work. I know for scar sufferers waiting is not an option. I freaked when I got scarring acne and basically went immed on accutane and am clear from that point on.

It is not possible for people to just donate thousands of dollars to people for accutane. I was saying that the government could at least regulate accutane and acne medications for severe cases of acne to make them affordable. I can understand a medication like VIagra being optional, but not accutane that should be free even if your unlucky enough to have no insurance. Also what acne age kid is gonna have insurance or $500 a month to spend on accutane when their parents dont?

More government regulation will result in LESS innovation, Keith. Personally, I prefer drug companies to spend their money on research and development instead of spending it trying to comply with another boatload of government regs.

The only possible route that I can think of is legislative action to force insurers to cover treatment to control severe acne, as well as scar repair procedures. But once again, we are a tiny fraction of the people, and as such we (and therefore our cause) would carry no weight with politicians.

Even if we were able to get legislative action to force insurers to cover treatment, that wouldn't solve the problem, because many young people (20somethings) choose not to carry health insurance. It's a smart bet, really, because younger people generally have much less health care costs than older people.

I can envision a scenario in which a 22 year old chooses not to carry health insurance, then develops cystic acne, and the insurer has a pre existing clause in their policy, so even after the 22 year old buys a plan, his treatment would be further delayed.

There is no easy answer.

Fuck not making new and improved products. Im not talking about lowering the prices (which the government really needs to do) but making a fund for severe causes of acne for kids that cant afford it. Hell u said it yourself the accutane market is small the gov and tax dollars would not have to spend much money at all to do it. And with the government giving all my money to people that dont want to work, I could stand behind this plan.

Also accutane has been out since like 1976 so I dont think the improved products are coming along anytime soon lol.

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i think there are ppl more deserving of the money then acne sufferers. not that im saying they are not deserving at all just not at the top of the list to get my charity money if i had money to burn though i'd throw it in to acne r&d and if i was just dumb rich then treatments for everybody ! on me !

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Well, im sure that many here donate regularly to deserving charities, myself included.

The idea of helping fellow sufferers is another cause worth helping.

Regardless of what nationality, culture, ethnicity you are, acne scars can be debilitating to the point that some people are living half-lives. Some hurt themselves or contemplate suicide, and some do. It cannot be denied that acne-scarring seriously effects mental health. Its not vanity, because if it were it would be about more than just wishing to look more 'normal'.

Anyone who has a facial scar/disfigurement/anything unusual often feels self-conscious and to many it goes beyond that. If helping to repair a physical issue creates emotional wellbeing for that person then that is a wondeful gift to give. It frustrates me that society has so little understanding of the effect of acne scars and yet more sympathy for someone with say..a strawberry birthmark. Its like they think we brought it on ourselves or something. I also hate the feeling that im considered dirty or less of a person because of my scars, but maybe thats my own fears talking.

REGARDING ACTION:

I knew this would be a difficult suggestion when i posted, but its also great to open up discussion on this subject. If Dan/acne.org would not wish to be tied up in something like this, and thats perfectly understandable considering the difficulties involved, but, then what is the alternative. Maybe something bigger like trying to turn around the fact that these treatments are so expensive? Try to get them covered (even if only a percentage of the cost) by medical insurance or NHS. We are somewhat silent victims here, and would it not be good to find out a way to be heard?

Things like petitions if done in enough numbers can turn things around sometimes. Isnt that worth striving for? If someone created a website with instructions on where to post our letters, that could be a way to get our voices heard maybe? Maybe Dan would be more agreeable to that idea and a section on acne.org could be created for a campain of change?

I dont have the answers, but if as individuals we can be bothered to brainstrorm ideas, and come up with a good one, then maybe as a collective something can be started to change things around.

Yes there are other deserving causes, and those are campained for. We are still deserving regardless.

(and god..wouldnt it be great if something took off to get brad pitt and c. diaz to patronize..lol. in my dreams!)

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You have got to be kidding me pfff. You must be kidding me.

I spent £2500 on isolagen in 2005. And now you suggest that I should pay for other people's scar treatments as well?

I've got a different suggestion. Lets see how popular this is. I don't pay you any money and you can work to pay for your treament just as I have done. Not so good? The free handout idea more appealling?

:think: Actually, thinking about it, now I feel bad. I am clearly a Scrooge. People who would like scar treatment, please PM me with name and address for where you want me to post your cheques.....

..... just don't hold your breath thats all. ;)

I think this is a great idea!

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Hey, that's a little cynical Rupert, Pff has spent lots of money herself on procedures and just feels bad for those who truly can't afford it. I think the idea was for everyone to chip in a little to help a deserving case every now and then. I just don't think it would work. I give money to church and entrust the elders to do good with it for their charities, but I don't know if I would trust giving money here to someone who poses as a needy scar case. However, I do think scar sufferers are truly deserving because it can be very bad for some and with little money and scarring being considered cosmetic under our insurance it may cause many to go untreated when they could find much improvement. It's just not socially acceptable for someone with acne who is scarring to ask for help and that is sad :(

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Suggestions and ideas may lead to something productive, so its always worth a gamble.

Although Rupert, your response is as though I were hovering over you demanding you produce your cheque book under duress. :P Your reaction comes across as a tad over dramatic. I dont understand why the laden sarcasm, but neither do i need an explaination.

Not all people come from a First World Country or in a situation where obtaining the kind of money for scar revision would be possible, regardless of how hard someone works. It would be nice if people had opportunities if they are not in a position to finance soemthing that effects their lives no matter how hard they try. That is my opinion.

My last post was putting out a suggestion of trying to find a way for scar revision to be offered on medical insurance, but noone seems particularly interested and no point in trying to be a one man army.

Im glad for you that you were able to finance your treatment, just as I have done/am doing.

I am thankful to be in a position to do so.

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Naw your great Rupert. I felt the same way u did when I read the thread. Hell I feel the same way about every single handout I have ever had to pay thorugh tax dollars. Every single one. If u want something badly enough, and certainly scar treatments are a must if u have acne scars that are crippling u, then go out and work for the money. As I have said I have a large collection of art and first ed classics that I would be willing to part with to pay for my face. Its your face come on thats more important than anything. I value a custom sketched print from Roy Lichtenstein that I value above my left arm. (okay not that far) But I love it like a family member. Anyway I would trade that for treatments if I had to.

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lol & pff and tricia. And just how do you decide who gets the treatment? What makes one person more deserving than another? How do you assess who scarring affects more?

So I'm cynical? Lets put that to the test. Lets hear now just from people who want to give their money for other people at the website acne org to have scar treatments rather than put forward that money towards their own treatment. Lets hear from those people.....

... don't all write in at once now ;)

This thread is just going to die as there is no way anybody is going to do that, except for pff and tricia of course ;) Talking of which, I want some isolagen top up, could you help me out with that? :lol:

die thread die :wall:

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