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My Story

PF-killer

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I wanted to start this blog for my fellow pityrosporum folloculitis sufferers. Quick history on myself, I have previously experienced a long journey on curing chronic UTI hence I have been on many many rounds of antibiotics (approx. 30) which I believe is the cause behind this skin condition for me. I have PF on my chest, neck, face (forehead and nose mostly) and sometimes shoulders. I used to have completely clear skin and all of a sudden, it is bumpy, red, itchy, flakey, you name it. Next, a quick history of my dermatology experience; I have been going to the dermatologist for almost a full year now where they have treated me for bacterial folliculitis which caused an outbreak, leading to their assumption of it being fungal.. well my tests for fungus came back negative BUT that doesn’t mean that isn’t what I have because sometimes it doesn’t show up in the tests. Anyways, they resulted to treating me for acne which in turn gave me an even more red, irritated, angry face. Now I’m going to get down to what everybody wants know, how you cure it or attempt to maintain it. So at this point I believe that I have pityrosporum folliculitis with probably a few spots of typical acne in there so I resulted to using the praised Nizoral shampoo which I was skeptical of because I was previously prescribed the 2% ketonconazole shampoo which dried out my sensitive skin. However, Nizoral only has 1% ketonaconazole in it which seems to be less irritating so far. So I just started using this yesterday, and I am not exaggerating when I say this stuff has given me instant relief. There are obviously still bumps and spots present to the redness, itchiness and flaking has cut down immensely. My plan is to rotate between Nizoral (3 times a week on mondays, wednesdays, and Friday’s),  Neutrogena acne stress control cream (2 times week on saturdays and tuesdays) and scrub  (2 times a week on sundays and thursdays) so that I treat the PF and any acne without overdrying my skin and of course exfoliating. Hopefully this works! Wish me luck and I hope this helps somebody else! 


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Update: So I decided to take neutrogena out of the equation for now to zone in on this pityrosporum folliculitis. Now I am only using Nizoral to wash my hair and face (leaving it on for 3-5min) Day 4 of using Nizoral once a day (used twice today because I showered twice today which dried out my skin a bit but not too bad so stick to once a day for sensitive skin) Anyways, I am so happy because my forehead and nose are clearing up! I honestly can’t believe it, it’s a miracle. But I don’t wanna jinx things yet, hopefully it continues! I also wanted to add that I’m still not sure if my cheek “acne” is PF or acne because it’s not reacting as strongly as my forehead and nose. I’ll keep my post updated as I continue. Good luck to everybody searching for a cure ❤️

Edited by PF-killer

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I’m just going to keep updating even though nobody is commenting because I know I am just a reader myself and normally don’t comment on others posts. So update: my skin looks 10x better, not clear yet but so much better. I quit cleansing with the nizoral after the 5th day because I read it isn’t good to use it for too long daily. I am now using it 3-4 days a week, along with Biore baking soda cleanser because I felt it was a safe alternater which it has been. Also, I asked for my dermatologist to prescribe me diflucan 200mg once a day for 7 days. Hopefully it continues to get better. Good luck!

Edited by PF-killer

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Hey there, I've been diagnosed with PF as well and have tried Nizoral but it makes my skin so red and irritated. I think my skin barrier is non existent. Did you use any specific moisturizer as part of your routine? Are you still clear? This stuff is seriously ruining my life!

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I am new to this website and I’ve never commented anyone’s posts before. I’m only a reader, but I felt I needed to comment on this because I’ve been suffering from (what I believe to be) PF for 11 months now after taking a round of Doxycycline prescribed by my Derm for an acne breakout.  Nothing and I mean NOTHING has cured this terrible stuff. I lost hope since going on a strict anti-candida diet for 2 months and nothing cleared up. So, I’ve just been living with it and covering it up with makeup that won’t break my skin out. I used Nizoral Shampoo with decent results for a couple months maybe but it eventually stopped working altogether, I’ve used zinc pyrithione soap for a period of time which also stopped working. I’ve spent upwards of 400$ on creams/pills/supplements/foods/doctor visits -including a naturopathic doctor with no relief. I’m starting to believe I will have this the rest of my life and I’m only 22. It has totally depleted my self esteem in the process. If anyone has any advice on destroying this terrible skin condition pleaseee let us on in the secret.

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Willow our stories are literally identical. I developed PF after antibiotics abd prednidone. It's been 10 months of hell and I too have tried tons of topicals, naturopaths, supplements, paleo diet.....spent 800 last month alone on all of this. The only thing that slightly worked was oral itraconazole but it started to flare back 4 weeks after coming off it. If you haven't tried Selenium Sulfide you could give it a go. I can't handle it. There's also ketoconazole cream, presciption only, that's 2% potency. Nothing has worked to clear me but everyone seems to be different. This crap is life ruining....I avoid all social activities now and my dermatologist tells me to stop obsessing and I don't look thst bad. Unbelievable....if he looked like me for a year with no Dr. actually taking him seriously I'm sure he would be just like me. Please keep me posted. What makeup do you use? I had to stop because I'm afraid to make it spread worse! Keep me posted on your progress and good luck. I know how you feel on every level.

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On 12/11/2017 at 0:28 AM, Nicole_CA said:

Willow our stories are literally identical. I developed PF after antibiotics abd prednidone. It's been 10 months of hell and I too have tried tons of topicals, naturopaths, supplements, paleo diet.....spent 800 last month alone on all of this. The only thing that slightly worked was oral itraconazole but it started to flare back 4 weeks after coming off it. If you haven't tried Selenium Sulfide you could give it a go. I can't handle it. There's also ketoconazole cream, presciption only, that's 2% potency. Nothing has worked to clear me but everyone seems to be different. This crap is life ruining....I avoid all social activities now and my dermatologist tells me to stop obsessing and I don't look thst bad. Unbelievable....if he looked like me for a year with no Dr. actually taking him seriously I'm sure he would be just like me. Please keep me posted. What makeup do you use? I had to stop because I'm afraid to make it spread worse! Keep me posted on your progress and good luck. I know how you feel on every level.

I can not even tell you how excited I am (yet also sad because you’ve experienced this) that I can actually relate to someone with this condition! I have had my family memebers tell me it’s “not that noticeable” time and time again.. yet I never feel comfortable in anything other than a hooded sweatshirt because it will show the red dots all over my neck and chest. I’ve also got countless “you’re probably allergic to something” “have you switched detergents lately” -_- because no one seems to know what this stuff is. Zinc Pyrithione soap worked well for me if I left it on 10-15 minutes at a time in the shower and alternating between Nizoral Shampoo left on for 10-20 minutes at a time, but it eventually stops working.. selenium sulfide didn’t seem okay make my PF even budge.. But thankfully the makeup I use is totally PF friendly, the carbon chain lengths in the ingredients don’t feed the PF. It’s called Maybelline superstay better skin transforming powder with salicylic acid. It’s non-comedogenic and works really well to cover spots that decide to creep up onto my face and neck. It’s only a powder though I haven’t found any liquid foundatios that dont break me out, but I really like this powder so maybe give it a try! I am totally right there will you also, If I am given any suggestions on how to kick this crap for GOOD I am all ears all the time. It’s horrible. Did the 2% ketoconazole cream work for you? It’s about the one thing I haven’t tried. That and oral Ketoconazole.  

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I just wanted to say that I’ve been dealing with this on my butt and thighs for what seems like forever! I’ve been having some success using an antibacterial wash (hibicleans), a benzoyl peroxide wash (panoxyl) and then afterward applying a 10% no cream in the morning and then clindamycin lotion at night. I can’t seem to get rid of it all though, and my skin is dry from all this stuff. And god forbid I should skip one of these steps/applications— it comes back...

anyway, maybe you ladies could give my routine a shot to see if it helps you at all. In the mean time, since I’ve been using the clindamycin for a lot longer than some recommend, I’m going to try swapping that for tretinoin cram that I have on hand... I’ll let you know.
Best of luck to you all (and to me too)!

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Thanks for the suggestions. It sounds like you have bacterial folliculitis based on the regimen. Unless it's drying you out so much it's keeping the pityrosporum at bay. I made a promise to my derm to go off meds for 6 weeks so he can take another biopsy. I recently just got tiny bumps all over the tops of my hands that itch like crazy. I'm not sure if it's the folliculitis but it sure looks like it. I couldn't resist and tried a Nizoral contact therapy for 15 minutes this morning. No real change. With winter and germs I wash my hands with antibacterial soap probably 20 times a day so I can't imagine it being bacterial. All I know is the next 6 weeks with no meds scares the crap out of me....so worried it will flare or spread like crazy. Another biopsy is my only hope of convincing my derm that I'm not crazy though! He acts like I am....ughh. Willow how are you?

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Oh my goodness, I can’t believe I actually have comments! Lol I’m sorry I haven’t responded, I didn’t receive notifications and haven’t checked my post assuming there has been nothing but I’m so happy there is! So I first want to apoligize because the Nizoral stopping improving and started irritating my skin (of course, like everything else). Well anyways, I tried a couple other things and no luck. I had a derm appt. today and I am almost positive as is my derm that this is primarily a yeast issue. So glad she actually believes me. This time around, we are trying a cleanser called sulfacetamide lotion (I know it says lotion but it can be used multiple ways) and she said to wash with this once to twice a day. She also put me on another week of flucanazole I think it is 200mg a day for a week but I’ll check (flucanzole is an antifungal/yeast). I also asked her about suggestion for a moisturizer because my skin is irritated and dry from all of this and she suggested cerave moisturizer because it does not proliferate yeast and improves the skins natural barrier. Put it on tonight and is super light and hydrating so far, no issues. I don’t think this “condition” will ever go away but I do think it can be maintained so hopefully something works soon. I will keep you all updated. I am so happy to see replies! I hope we can figure this out together. 

Just to summarize my my current treatment plan: 
Flucanazole 200mg per day for a week
Sulfacetamide lotion as a cleanser (rinse face, apply lotion/cleanser, leave on for 30 sec. Rinse)
Cerave moisturizer after cleansing

P.S. test the sulfur cleanser on the antecubital part of your arm before use on face, neck, etc. to rule out any sulfa allergy (I put it on my arm, let dry for 5-10 min and rinsed off and am giving it through tonight to make sure I have no allergic reaction) 

Sorry this was long. Thanks for your input everyone! 

Edited by PF-killer

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Day 1 update: I’m not sure which product to give credit to but I’m literally improving already! I’m assuming the oral antifungal (flucanazole) has a significant role in my improvement. But a quick review on the cleanser: I’m loving it so far, a little watery, but superrr gentle and easy to use. Side note: sulfur or sulfa products treat acne, bacterial and fungal infections so essentially it’s working on everything which is perfect. And for the cerave moisturizing lotion, I am literally loving it too. I am normally not a lotion or moisturizer person, but I am so glad I gave this one a try. My flakes and irritation have improved immensely. Another side note: this moisturizer contains caprilyc acid which is a natural antifungal (BONUS!) Lastly, I wanted to add that I am also washing my hair with the women’s head and shoulders because I have it on my scalp too and the zinc is antifungal and I neeed the anti-itch. I really hope after I go off of the diflucan, the cleanser and moisturizer maintain this nasty condition. I would really like to know what is going on with you all too so I hope you see my posts soon. I am eager to beat this. I will update on Monday after the last dose of diflucan. Wish me luck! 

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Update: so it’s monday and my week course of diflucan is finished. The results are not as good as I wanted but I feel like maybe it gave me a good start. So my forehead is the main breakout area right now, with my chest and neck only having a couple spots. My plan is to stick with the sodium sulfacetamide suspension 10% lotion as a cleanser 1-2 times a day for now. I have read that it can show results as early as two weeks so I’m hoping for the best. I will probably update next Monday because that will be the 2 week mark of the cleanser. And to all my fellow pickers, quit picking! My face is currently  mess because of my picking. Still hoping for replies! I hope one of us is doing better with this. 

Edited by PF-killer

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Hey PF killer thanks for the updates. I'm headed back to the derm on Friday for a 3rd round of biopsies. My face is so inflamed I look like  bad case of Rosacea but know this is folliculitis and a stripped barrier with crazy bad inflammation. This stuff just wont let up! I ever have bumps on my upper arms and most recently the tops of my hands. I didn't even know that was possible! Right now my routine is splashing water on my face period. If I rub my face or add any topical it flares like I'm sunburned. I do have some flakes and will add a dab of cerave once in awhile. I'l

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I completely understand your pain. I get them on the backs of my arms and tops of my shoulders sometimes too. Definitely try the cerave lotion, it helps to repair the natural moisture barrier. When you reintroduce topicals, maybe give the sodium sulfacetamide lotion as a cleanser a try as it has been gentle on my skin and it treats many skin conditions including rosacea, folliculitis, and acne. It seems to be improving my skin slowly, but surely. However, you never know with this stuff, I’ll keep you all updated. Let me know how your biopsies turn out! 

Edited by PF-killer

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Figured I’d do a quick update since I’m on here. So my forehead is almost completely clear at the moment but now my cheeks and neck are breaking out a little (of course) but it seems sort of controlled right now. I did start adding in some clay masks to my routine because they’re supposedly good at killing fungus and I feel like they are helping clean my pores out. I have been using CVS brand of the Dead Sea minerals clay mask and the avocado oatmeal clay mask. I ordered a new clay mask from origins called out of trouble and it contains salicylic acid, sulfur, bentonite clay, and zinc oxide. Super excited to try it and I guess it’s a good double for a spot treatment, win win. I have stopped using moisturizer every day because my skin’s barrier seems to be back to normal so now I’m only using it when drier than normal. Until my origins mask gets here, I’ve been spot treating with margarites sulfur, zinc oxide cream for problem skin and it works pretty good. Lastly, I am continuing to wash my hair with the women’s head and shoulders and my scalp has really been relieved, less itchy and barely any bumps. 

Updated routine:
• Cleanse w/ the sodium sulfacetamide suspension lotion 10% 1-2 times daily (remember to leave on for 30 sec-1 min each time)
• Use clay mask 3-4 times a week for 10 min (no more than 10 to prevent over-drying)
• Use cerave lotion when skin is feeling extra dry and flaky 
• Spot treating occasionally with sulfur/zinc oxide mix
• Washing hair with women’s head and shoulders 

Edited by PF-killer

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For anybody who is still following, I just wanted to share my results from a month with this new routine. Today, my face is almost completely clear, I have maybe 2 small spots that are going away. All that’s really left currently are some red marks that the derm said will go away with time. At this point, I am back to wearing no makeup most of the time. I have been diligent to wash my face with the sulfacedamide cleanser at least once a day and I leave it on for a minute to a minute and half before rinsing it off in the shower (I feel the time left on had an impact on my improvement) with that being said, don’t leave it on for too long though. Other than that, all I have done is occasionally use a clay mask (either the CVS ones or the origins one). I leave the origins one on overnight as a mask or spot treatment when I feel a couple spots arising and it seems to do a good job of calming it down. I only use the moisturizer as needed now. I have also switched to alternating between H&S shampoo and my normal whole blends garnier shampoo and conditioner because my hair gets too dry without the conditioner. Anyways, I would HIGHLY recommend the sodium sulfacetamide suspension lotion 10% as a cleanser 1-2 times daily. It has definitely “cured” my skin; give it a good month before you decide to stick with it or not. I hope it sticks for me! Let me know how you all are doing when you get the chance. Best of luck! 

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Thanks for your posts.

I went on Doxycycline last Oct for 'acne' and since I've come off it ive development many of these small inflammed bumps on my cheeks and chest. The chest area cleared up naturally but my cheeks seem to break out every week consistently.

I've been using a 10% Sulfur soap which really helps keep the pustules around my mouth at bay, but it always seems to burn my cheeks and make the issue worse there. I've also been using Nizoral a few times a week on my head. Just picked up a 2 week 200mg per day prescription for Itraconazole. Hoping for some results soon.

Glad to find others with a similar issue.

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Thanks for your post Mr. Brownstone! Idk if your sulfur soap is the same as the sulfacetamide cleanser I’ve been using but if not, I have not had any dryness or irritation for the sulfacetamide so maybe give that a try. And for some reason, the itraconazole did not work as well for me as the flucanazole so let me know what happens with you. I heard the itraconazole is usually more effective. Keep us updated please! 

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7 hours ago, PF-killer said:

Thanks for your post Mr. Brownstone! Idk if your sulfur soap is the same as the sulfacetamide cleanser I’ve been using but if not, I have not had any dryness or irritation for the sulfacetamide so maybe give that a try. And for some reason, the itraconazole did not work as well for me as the flucanazole so let me know what happens with you. I heard the itraconazole is usually more effective. Keep us updated please! 



Hello, could you let me know the name of the sulfacetamide you are using. 

Day 3 of the itraconazole and no difference yet. I did pick up some miconazole and lamisil creams too

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On 3/14/2018 at 5:18 AM, Mr. Brownstone said:


Hello, could you let me know the name of the sulfacetamide you are using. 

Day 3 of the itraconazole and no difference yet. I did pick up some miconazole and lamisil creams too
Here is a picture of it, it was prescribed to me so idk if you can buy it otc. I just wanna say that it is definitely no miracle cure but it has helped a ton in controlling my breakouts. Give it a month before tossing it out of your routine. And honestly I would just avoid the creams for now as they seemed to “feed” the yeast for me. Then if all else fails, give them a try. 

P.S. don’t forget to previously test it on the antecube of your arm to rule out any allergy 

image.jpg

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Thanks for the update! Please let us know if the routine continues to work. Also Mr Brownstone I would love to hear how the itraconazole works for you. I tried it for 2 weeks without much success but wonder if maybe this stuff just needs a longer treatment period than 2 weeks.

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I just wanted to add that the origins out of trouble mask has really been helpful too. If you have any angry spots, put it on them overnight and they’re reduced pretty significantly. The 10 minute mask (I use for 15-20) has really helped on days where my skin is irritated and broken out, it seems to help with the skins moisture barrier too improving redness. It’s improving my red spots! It was a bit pricey at $27 (I’m cheap lol) but totally worth it. Give it a try! 

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Hello

I really don't think the itraconazole is doing much, but I'm still taking it (4 days left) 

Still using the sulfur soap and I find the longer I leave it on before rinsing, the better. 

I'm using azelaic acid on the PF areas and a little bit of benzoyl peroxide on the spots around my mouth. 

I was finding that the avène moisturiser wasn't hydrating enough, so I picked up some Squalane oil to add to it and its making a huge difference.

Onwards! 

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Hmmm thanks for the updates I may have to look into the masks and sulfur soap. My derm is insistent I go on Doxy and metrogel...she thinks my face is rosacea. I don' know what to think any more. My face is red, bumpy, irritated and I'm sooo tired of it. My social life is non existent these days and I'm always stressed about how my skin looks :(   Weird that the itraconazole didn't do much for either of us.....

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Mr. Brownstone, glad you’re having some success. Keep us informed on any other effective treatments you come by! 

Nicole, you could always give your derm’s suggestion a try. I mean they are the “experts” and if it doesn’t work, treat it as something else. I’m not a dermatologist but I believe the main distinguishing symptom of pityrosporum folliculitis from other conditions is itchy, uniform pustules. But like I said before, the sulfacetamide cleanser treats all conditions killing bad bacteria and fungi so it’s really a great all around choice. And the origins out of trouble mask I use is great! Definitely recommend. Lastly, try not to stress so much, don’t let it ruin your social life. I did the same thing when my skin got bad and I feel it only made it worse. It’ll get better I promise! 

On a side note, I wanted to add something. So I know tanning is frowned upon in the derm world but I had some free passes to use up and so I did because I am as pale as can be due to his winter. Anyways, I really feel that the tanning has helped keep my bumps at bay especially on the neck and chest. Idk, it might just be a coincidence and I’m not encouraging tanning butttt worth a try, if you’re willing. Don’t burn or tan excessively!

Good Iuck!  

 

Edited by PF-killer

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I had a particularly bad weekend. 

I started using the squalane oil mixed with my moisturiser and have developed what appear to be newly forming pimples around my chin.  

I find that the sulfur soap helps around my mouth, but it really burns my cheeks and makes everything redder.

At a loss with what to do. I hate this. 

Any thoughts on diet and alcohol? I've been drinking a lot lately

Edited by Mr. Brownstone

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