I've been on Solodyn (Minocycline) for a little more than a year, taking 115 mg once every morning. As I mentioned in my previous post, based on my weight, I should have been prescribed 80 mg, but I figured my derma knew what was best.
I was pretty satisfied with the medication. I never had an entirely acne-free face, but it was definitely much better than it had used to be.
Well, here's where it went downhill.
5 months ago, during a trip to Yosemite, I began getting headaches. I had one one day, and then another the next day. Strange, considering I don't get headaches often. I associated it with the high altitude we were camping in, as well as motion sickness from winding mountain roads.
Once we returned home, I started my second year of college, and those first few weeks were hell.
My headache wasn't going away. I couldn't pay attention to lectures. I started seeing blurried spots in my vision. My parents said maybe I needed new glasses, but I knew that wouldn't fix it.
One Friday, I couldn't even drive myself to school. My mom drove me to the optometrist. She gave me an intense eye exam and found that my optic nerve was severely swollen. She said I needed to have a CT scan or MRI done, stat.
Had a CT scan - no noticeable tumors shown. Spinal tap - he told me the fluid looked good but that I'd receive further results later. I had an MRI done a week later, and again, they found nothing abnormal.
My doctor finally diagnosed me with Idiopathic Intracranial Hypertension (IIH). What that means is that I've got increased cerebrospinal fluid around my brain, but there is no tumor causing it. Doctor said he had no idea how this could have happened because it normally occurs in severely overweight women. Because this condition may cause vision loss, my doctor recommended I see an ophthalmologist, who then prescribed me the medication Acetazolamide.
Weeks later, right after coming home from picking up my prescription of Solodyn (in which my insurance no longer covered, so I had to pay $75), I found out Minocycline has been known to cause IIH. I couldn't believe that after numerous times of being asked what medications I was on, no one ever told me that my acne medication was the cause of this :'(
I was just in shock - I'd been taking Acetazolamide, the treatment for IIH, along with Solodyn, what caused my IIH, for so long.
As soon as I had my next dermatologist appointment, I informed my derma (my usual derma was on maternity leave so I had someone else) about my condition. She said she we needed to take me off of Solodyn, and she then prescribed Zithromax (250 mg).
If I hadn't read myself that tetracyclines cause IIH, who knows if my doctor would have ever brought it up to me.
But I've still no idea if what caused the IIH was my high dosage of Minocycline, or just having taken it for so long. Or probably both?