Jump to content

Kim28

Member Since 10 Nov 2013
Offline Last Active Yesterday, 10:36 PM

#3449323 1500 Negative Posts About Accutane

Posted by Kim28 on Yesterday, 10:40 PM

However, the known stats on side effects only reflect what is KNOWN. For example, I have permanent night vision loss as a result of Accutane. But, the acne bothered me way more than having to wait a minute more for my eyes to adjust at night, so I have never reported this and never will. I would be willing to bet there are others out there like me who DO have side effects, but find them more manageable than acne, so they just don't say anything. Just a thought since we are getting into stats.

Yet, as I said, I would take it again if I had to because life isn't perfect and sometimes you take the good with the bad a little. I also agree that the issues on this site and many others are greatly overstated because most people who have positive experiences aren't posting in these forums. Even with the side effect I have, I am incredibly pro-Accutane. But you need to be in a place where the risk is worth the reward to you, and if your acne isn't that bad then maybe it isn't, but if it deeply affects your life on a daily basis like it did for me, then maybe it is.

Best of luck.

:)




#3447751 New Member Accutane 2Nd Round 16 Yo Male

Posted by Kim28 on 18 August 2014 - 12:35 AM

Good luck!




#3447749 Kim's Log

Posted by Kim28 on 18 August 2014 - 12:32 AM

Just got back from my brother's wedding in one of the hottest, most humid countries in the world. Holy crap, there was no hope of keeping my makeup on. BUT - although it was certainly easier not being around too many people I knew (just family), I felt okay about it. Most of my redness is gone, and the scars I endured have faded so much, I didn't even feel like they were noticeable. It was pretty liberating to not feel like I NEEDED makeup just to look normal. And nice to jump on the sea and not care if my face got wet!

Skin is still doing great. Still paranoid every time I think I feel something, but so far, nothing has actually happened. My nose has gone back to getting a bit oily throughout the day, but I have had a shiny nose for as long as I can remember, so no shocker there. Otherwise, the oiliness has not returned anywhere else, so that makes me hopeful that the zits will stay away too as oiliness and acne generally go hand in hand for me.

Glad I did this second course, and thankful for the results I have so far.




#3445259 Even If There's A Cure... Being Dependent On Pills Is Emotionally Unsettling

Posted by Kim28 on 03 August 2014 - 07:48 PM

I have come to realize that without my trusty Diane (BCP) my face is a mess. However, contrary to feeling trapped or dependent, I am incredibly thankful that I can just take a tiny pill everyday and be fine. Most people with chronic illnesses don't have it this easy.




#3444663 Old Lady On Accutane—50, Female, 40Mg

Posted by Kim28 on 31 July 2014 - 04:07 PM

Lol, I totally noticed that while on Accutane every little scar and wrinkle I had looked way worse, and I felt like I aged 10 years. Now that I've been off for a couple months, this effect has definitely gone away. It wasn't even as bad towards the end of my course as it was at the beginning.

Clear days ahead!




#3444661 Holy Isotretinoin Batman, It's Another Accutane Log!

Posted by Kim28 on 31 July 2014 - 03:59 PM

F**k retinoids, my skin hates them topically so there is no way I'm going there. They were what ended me up back on Accutane in the first place so I'm not playing around with that. On the other hand, my skin loves BP, so I have been continuing to use that. I think we all just have to go with our gut instinct on what to do 'after-Tane', and try to keep it simple.

I did SO much research on relapse (due to having one!) and learned that basically there isn't anything you can do. As long as you take your whole course and end it being clear, the rest is in the hands of the universe. High dose, low dose, taking dose while riding unicorn, none of it makes any difference.

 

Anyway - SO glad to hear things are going great! Things are great over here, too. I've actually gotten some work done on my thesis, and am heading to Jakarta in a week for my brother's wedding - not even worried about my skin! Gotta love the freedom this drug creates.




#3443999 Old Lady On Accutane—50, Female, 40Mg

Posted by Kim28 on 28 July 2014 - 12:07 PM

Hello! Glad to hear you're having some good days!

I also had a wonderful first course around age 25 - started looking better from day 1. This time, not so much. Being older is sucky in so many ways. But I also noticed that things finally started to subside after about day 30. It took a while after that to get to totally clear, but nothing was as crappy as that first month.

 

And don't worry if you don't up your dose. There's some pretty good research out there that staying on it longer is more effective anyway.

Best of luck!




#3443524 One, Two, Punch

Posted by Kim28 on 26 July 2014 - 12:13 PM

My acne was very similar to you and hormonal methods have worked great for me. Accutane never stuck, and I do break out again when I go off my anti-androgens, but I'm not so sure that after the initial flare of your body accepting it's not taking hormones anymore that acne is much worse than it was before. It might seem worse because you are older and your skin doesn't bounce back like it used to. And I think people are just surprised that their acne came back. Well no shit, sherlock, you never stopped having acne, you just had it under control.

I truly believe that spiro/diane/yaz are the best treatments out there for adult women with acne, and there is no reason you have to stop taking them prior to menopause (or even during necessarily).

Any acne treatment you find that works comes with the risk of relapse after.

 

Hope you find your solution soon, but I don't think 'learning to live with it' is the one you should feel you have to choose.




#3443243 How I Reduced Redness Overnight (Pretty Alot) With Zinc Cream

Posted by Kim28 on 24 July 2014 - 06:59 PM

First, to the second poster, although certainly different people have different experiences, vaseline has a comedogenicity rating of 0, and will not clog pores for the vast majority of people when applied in a reasonable way. The whole idea of it being 'occlusive' is not as straightforward as vaseline haters make it out to be.

Second, for the first poster, zinc oxide is anti-inflammatory, so it will reduce redness and make your skin nice TEMPORARILY. It is certainly not going to permanently change your situation overnight. It is what they put in diaper rash cream for the same reasons. However, stop using it without finding the root of the issue, and diaper rash returns, just like facial redness.

Lots of people who have redness use zinc creams to calm it down. I use a zinc based sunscreen (17% zinc oxide), and it works great, but it is not going to permanently change anything from one use.

Best of luck.




#3442350 Feeling Like A Million Bucks! I Know It Will Work This Time :d

Posted by Kim28 on 19 July 2014 - 08:56 PM

Oh, and I haven't yet found much good evidence on whether or not a high daily dose will clear you up faster, just that the sebaceous gland can be suppressed with as little as 2-5 mg per day.

And there is LOTS of research evidence that high daily doses are far more likely to lead to permanent scarring.

 

So I guess what I've been trying to say through all this is that getmetheresults has an excellent plan that is supported by plenty of current research, and anyone who says different doesn't have much current info to back them up.

 

Okay, now I'm done.

I just find people who are misinformed about Accutane and insistent with their misinformation incredibly frustrating.




#3442152 Feeling Like A Million Bucks! I Know It Will Work This Time :d

Posted by Kim28 on 18 July 2014 - 05:42 PM

WOW! First, the person who says you have to take a high dose is just wrong. There is no research evidence to support their claims. It may take longer to get clear, and you will have to take it for a long time, but I get the feeling that this is what Getmehheresults wants to do. Long term low dose therapy is actually quite common now.

And why come on someone's log and be so negative? That is odd.

 

And to the person complaining (in several places) about this site being for the regimen, you should read Dan's intentions more closely. He offers the regimen as what has worked for him, but created this site to support all of us going through this struggle, including those of us who have chosen Accutane. And I think it's offensive to show up on someone's log to raise this issue.

 

Sorry for being ranty in your space getmetheresults, those two just got my goat a little!




#3442001 Feeling Like A Million Bucks! I Know It Will Work This Time :d

Posted by Kim28 on 17 July 2014 - 10:13 PM

I totally disagree with the pill nay-sayers. It is common for people to have their acne relapse when they go off the pill, but there is no scientific evidence that going off the pill CAUSES acne in people who would not otherwise have had it.

As women, out hormones WILL change throughout our lives, pill or no pill, and if your acne is hormonally related, then you skin will be affected.

 

Although it is impossible to know if women who relapsed post-pill would have had acne the whole time if they had never taken it, my guess is that they would have.

 

Of course you have to make the decision that is best for you, and if you have side effects or good reasons to not be on the pill, then certainly you might try not taking it. However, the idea that the pill causes acne that would not have otherwise existed, is, in my opinion, not sound.

But, I like to think I am always open to changing my opinion, so if anyone has a good peer-reviewed journal article that states otherwise, please do share.




#3442000 Kim's Log

Posted by Kim28 on 17 July 2014 - 09:56 PM

Meg, I am not good with the paranoia at all!

With my first course, it just took time. If it is truly not a relapse, then eventually you just get used to not having terrible acne anymore and it stops being the first thing on your mind when you wake up in the morning. It probably took me about a year after my first course before I stopped worrying every day and with every tiny spot. Over the ten years I was clear I would get a tiny spot from time to time and a bigger one about once a year (always in the spring - no idea why). And every time I would be a little bit afraid, but less and less as time went on.

 

The thing that is helping me now is that I can do another course if I need to. The worst did happen - my acne came back. But I survived, and if I had just gone back to Accutane instead of trying out topicals and various OTC products, the 'relapse' experience would not have been that bad.

 

So I guess the knowledge that Accutane is there for me if I need it (my derm has suggested a long term low dose course if trouble happens again), and that a relapse doesn't mean I'm stuck with acne forever (clear right now!) helps a lot.

 

To answer you second question, I knew I was relapsing when my skin got super oily again and I started always having a cyst or two. Not like I had one and then nothing for a while - like I was always covering something up and worrying about something. I started going through concealer way faster, when previously I usually threw it out barely used just because it was old.

 

When my acne first came back, prior to my topical debacle, it was not as bad as it had been and in fewer places. But, it was bad enough that I worried about things like if a big event was coming up - would I have a giant zit for it? I started not wanting to make plans and thinking about my skin all the time, and that's when I knew I had to do something. I did the wrong thing at first, but I learned from that and I guess that's the best I can do.

 

Most importantly I guess I learned that I am not a failure for taking it again. It even says right on the product monograph that most people reach sustained clarity through "one or two courses of isotretinoin therapy", so a second course is not the shocker people make it out to be. From reading your posts, you seem to have a great derm that is willing to work with you, and that is the best thing you can have I think.

 

The fear is hard to kick, and I think I'll have it in the back of my mind forever, but it does get better once you have some sustained clarity. Let's hope we can both find some peace of mind.




#3441810 Feeling Like A Million Bucks! I Know It Will Work This Time :d

Posted by Kim28 on 16 July 2014 - 10:31 PM

I have seen countless posts by women who have hormonal acne and have taken Accutane and used the pill (or spiro) to maintain clarity. This is also because I look for these stories, as it is my story too. Although my acne has never been related to my cycles, I know it is hormonal because I have had such good results on the pill (Diane), and it is all on the lower part of my face.

Personally, I think it is a great plan, and probably the best method out there for adult female acne sufferers, but you do have to be relatively committed to staying on anti-androgens long term. The down side is that you will never really know if it is helping you stay clear, or if this is just a result of the Accutane until you go off it. But then you can always go back on if issues return.

Best of luck! Your course is getting close!




#3441712 Before You Apply Powder What Do You Use?

Posted by Kim28 on 16 July 2014 - 04:01 PM

Everyone raves about bare minerals, but I think it looks awful. I'm sure it works great for some, but I find it just accentuates every tiny wrinkle and tiny bump like crazy. They do make several primers, I think Prime Time is the original (which is full of silicones and sort of goes against the reason most people use this), but maybe you are right that this would improve the situation.

Just my opinion.