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sasquire

Member Since 16 Jun 2013
Offline Last Active Aug 07 2013 11:55 PM

#3365488 Repairing the long-term damage from Accutane

Posted by sasquire on 10 July 2013 - 09:16 PM

If they're leaning to neuropathy, I'd be hunting for my closest hyperbaric chamber. Would probably help with alot of the other side effects as well.




#3364435 Repairing the long-term damage from Accutane

Posted by sasquire on 07 July 2013 - 03:07 AM

Yeah, me experience with Doctors when I mention Accutane has been outright hostile. 

I also hate the experience of trying some new drug, only finding it's benefits fizzle out or never work at all.

 

In fact, the only thing that continues to work with me is Craze (Pre-workout supplement/stimulant for the gym).

Daaaaaamn that stuff makes me feel good. It's only meant to give you a small boost in mental focus to get more sets done but makes me feel like the Hulk. Surely not good for an already stressed adrenal gland, but if you stick to the recommended dosage and cycle off it when needed, I look forward too my next scoop like Christmas (works best when you push your body... eg exercise).

 

It really showed me what being awake means and returned that sense of 'drive' that I hadn't felt since my early teens. Only temporary for half a day but it was one of those wake up calls on my journey to discovering my problems. I'm meant to feel that good all the time. Naturally. Normally.




#3363992 Repairing the long-term damage from Accutane

Posted by sasquire on 05 July 2013 - 05:39 AM

Appreciate you going to the effort of posting that info.

I've found UDCA has helped a little, but not as much as I was hoping. However, it has assisted in my digestion and certainly with metabolising fat soluble vitamins etc. I plan to cycle on it. Still, for most, it takes greater than two weeks for it to really show it's worth so I'll go for a month or two and report back. Personally, I'd like my body to be creating it's own bile and would like to hope UDCA can be used like a "jump start". Will see what happens.

 

The biggest thing that has helped me recently is in fact Vitamin D. I'm having a large 10000IU a day (I'm a big boy :D), and have found I can finally digest Vitamin B properly so long as I'm having the vitamin D. Go figure. My psoriasis has cleared up better than it's been in years and feeling a nice mental boost on the Bs and Ds.

 

Also, has anyone had any benefits for racetams to deal with brain fog/mental drag? Noopept seems to be popular at the moment and could be very promising in dealing with our mental tennis matches etc (might even ease the tension in these forums :D).

 

Possibly posted before... http://suicide.org/n...e-accutane.html ... the last bit about brain scans was interesting. It shows how accutane changes our brains. And here we are, preparing for a zombie apocalypse when something is already attacking our brains.




#3361524 Repairing the long-term damage from Accutane

Posted by sasquire on 25 June 2013 - 05:22 PM

Sorry, I see i made a mistake coming here and asking... thanks for the answer though... Others can ignore my post.

Don't take it too much too heart :)  Accutane suffers have alot on their plate, which usually includes a short temper. :)

There's always some young teenager as well who pops onto a forum here and there, has a few minor pimples in odd spots, and says they're jumping on accutane and they don't care about the consequences. In can make your nerves (those that are left functioning!) go raw.

 

In the case on cystic acne, I can understand your desperation. Will accutane help with that? Most likely it will. Will it have consequences? Yes, but we can't say how severe at this time. As you're already showing certain symptoms, I would hazard a guess that you are actually more vulnerable to such damage. I know cystic acne is really horrible to have but the cost of using accutane isn't worth it. If you eventually do, you can negate alot of the consequences by taking supps/drugs that protect your liver. UDCA is the best, but cheaper alternatives like NAC, Liv.52 and milk thistle can help. There's quite a few threads of people taking supps to offset accutane damage, but in the end, can't protect yourself 100% from them all because no one really knows how accutane damages us, we're doing alot of guesswork here.

 

However, Accutane is also considered a neurotoxin that can damage your serotonin receptors.  Not sure if protecting your liver can save your from this? Basically means you can have life long mood swings which are just horrible. It all varies from person to person, perhaps reflecting any genetic weaknesses we may already have?

 

Checking this thread is probably a great idea though as whatever works for an accutane suffer to help with dry skin etc is going to work much more effectively on you who doesn't have the same internal damage. Keep your Vitamin D up high as this will keep your skin more flexible/healthier and will definitely help in avoiding that damage from cystic acne, even if it doesn't stop its intensity (though it should help a little, even with that).

 

What works for one person, may not work for you, so don't let your hopes get smashed with each experiment you try. I'd go to the curezone website and try a few of the methods they recommend. Organic Cider Vinegar is very potent on Cystic Acne (if I recall, cystic acne can actually have different causes than normal acne as well)... and I personally have a friend who had massive cystic acne (and got alot of damage from it) and got rid of it eventually using organic cider vinegar. 

 

Good luck.




#3361284 Repairing the long-term damage from Accutane

Posted by sasquire on 24 June 2013 - 07:46 PM

Whoops. I mean , 5mg of Orotate Lithium. 25mg and I might be smelling colours.




#3361280 Repairing the long-term damage from Accutane

Posted by sasquire on 24 June 2013 - 07:26 PM

Been using some Kelp Iodine (not sure if it's of equal effectiveness) but my dose has been too low. Will up it and see the effects. Thanks :)

Just started taking Lithium Orotate myself, 25mg a day. Same dosage as yourself?




#3361251 Repairing the long-term damage from Accutane

Posted by sasquire on 24 June 2013 - 04:51 PM

For me, I only focus on the symptoms that occurred during or immediately after I was taking accutane.

And even then, I only focus on the ones that bother me the most... I almost completely ignore my dry skin and psoriasis. ;)

I want my brain back. And to do that, I need to be able to digest nutrients again that my body at this time can't. So I'm working on the liver and digestion.

 

From accutane users, there's usually a general consensus on the damage as we've all got similar symptoms. And a good way of looking at it... some of the symtpons may not be accutane. Say my psoriasis may be another problem. But the damage done by accutane disables my bodies ability to deal with this problem, even though they are unrelated.

 

Accutane suffers struggle to heal in specific areas. Regardless if the original source.




#3360998 Repairing the long-term damage from Accutane

Posted by sasquire on 23 June 2013 - 05:37 PM

Much appreciated Lukez. I've got MSM in tablet form on the way already :)

 

Not sure if it's also covered, but many suffers will also have systemic candida (as I do... male or female are prone). I attempted to deal with it head on, but that's not the way. Candida is a natural part of the body (yeast) which helps with toxins and breakdown of other harmful substances. It often occurs when one has a weakened digestion either from lack of flora (probiotics), lack of bile flow and/or toxicity levels. While it has many side effects when it gets out of control (brain fog, weakness to skin infections and other yeast infections etc) it is ultimately trying to help as well (clear out toxins).

Just increase your probiotics and focus on your digestion... don't attack it head on with Candida clearing drugs. Bile is actually the number one natural method of Candida maintenance.

 

Also...

http://www.ehealthme...horus increased

With a number of accutane suffers, you may have the consequences of increased phosphorus in your blood. Which may also explain why certain people benefit greatly from Vitamin D (which assists in the balance of phosphorus and calcium in the body). Just keep increasing Vit D dosage until you begin to notice benefits (google a dose good for you... anywhere between 3000UI and 10000UI per day is pretty standard for vit d deficient patients).

Ultimately in this case, it is a deficiency with Vit D. Which leads to poor skin, brittle bones/ligaments, lose of hair etc etc. An imbalance of phosphorus also causes mood swings.

 

Of course, like the wonder drug accutane is, and it's amazing skill of disabling the body of digesting things we need to heal, you may need to focus on digestion/liver to properly utilize the vitamins. 

Like everyone else, I'm trying different methods and will report any benefits/failings as they appear.




#3360576 Repairing the long-term damage from Accutane

Posted by sasquire on 22 June 2013 - 11:32 PM

I do believe that accutane can be cured. One day. And it'll probably be because of the evidence obtained and tested by the average person.

Spam on the other hand, that crap will follow you to hell.




#3360483 Repairing the long-term damage from Accutane

Posted by sasquire on 22 June 2013 - 07:35 PM

You'll never get to walk to the moon with that attitude! ;)

And being a half-wit is just a side effect of accutane. Don't judge us for it!

 

There's four ways to deal with it.

1. Manage it.

2. Cure it.

3. Live with it.

4. Die with it.

 

And depending on which one you pick, you'll probably conflict with your methodology with the other three.

I have read some stories of people being cured... but most are really just managing the symptoms. The only permanent cures I've heard are from 30 day water fasting. I've got it on my list.... but it's a brutal (and depending on your health, dangerous) fast. Tried three days once and ouch. Suppose to force everything to 'reboot' as well as giving everything a chance to completely detox and heal. Probably good to have the betonite clay and iodine ready for that one.

 

To me, being mentally crippled by accutane... the fight is important. Even if I don't win.




#3359666 Repairing the long-term damage from Accutane

Posted by sasquire on 20 June 2013 - 06:49 AM

Been reading this thread for quite awhile and noticed recently that it's getting a bit off topic. As riveting as the attacks may be, and my desire to grab the popcorn grows, I suspect the simple corn my cause my accutane induced brain fog to increase :)

At least we can say from the last few pages that accutane doesn't have a strong negative on testosterone levels :D

 

Been suffering from accutane damage for nearly twenty years (1993-1994 were the years I was put on it) and only recently came to realise it was accutane all along (suspected of course, but never believed). You can call me slow but living in this brain fog hell doesn't make you... um... think straight? I've got alot of physical issues, much the same as everyone else, but it was the mental changes that were insane (ha! I still managed a pun!)

Anyway, over the last few months I've been supporting iherb employees with my multiple orders and have tudca arriving from another source any day now. I'm trying all different things. 

 

Over the years I've narrowed down the majority of my problems to my liver so I was naturally getting close to the cause. After trying liver flushes and getting alot of calcification out, it struck me that something had definitely damaged my liver. 1+1=2... well in the life of accutane, 1+1=dnfsn.... but in the end, this is when accutane became my focus.

 

I've found that nearly all vitamins/herbs/pills have little to no effect, and while I don't think tudca is the cure, I suspect it may allow my body to final metabolise such nutrients to the point that the damage will be healed. All speculation of course but will keep everyone updated.

Really appreciate everyone who has kept this thread going, including IndigoRush whose struggle reminded me of my own. I've got to the point in my life that much of the anger is gone, rather, I'm just sad that 20 odd years of my life are basically wasted.