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skindeepstory

Member Since 13 Feb 2013
Offline Last Active Jan 23 2014 01:37 AM

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In Topic: Stacey's Spiro Log.

08 September 2013 - 01:02 PM

Hello gals (and guys)!  Today marks the beginning of month 9 on Spiro.  I thought it would be a good time to do a quick update. Actually, knowing me this might be long...

 

This is my second time on spiro, and it is still my miracle medicine.  I know it doesn't work for everyone.  Sometimes the side effects aren't worth it, and it is so important to listen to your body and your instinct.  Beauty is not worth sacrificing your health.

 

With that said, I've had ups and downs on this med.  I started at the highest dose, 200mg per day.  A couple months ago I started experiencing pretty intense shortness of breath that was constant for a full week.  I decided to ween down very slowly so my skin wouldn't freak out, but I could feel comfortable breathing again.  As soon as I lowered my dose, the breathing problems went away.  I'm at 175mg per day now, and hope to get down to 150 by the end of the year.  I still have shortness of breath every so often, but it only lasts a few minutes. This has been the only worrisome side effect for me.

 

Here are some other side effects: I'm thirsty all the time and have to pee a lot, but this is to be expected with a diuretic. My body has really changed.  I'm looking much more curvy and feminine.  I gained a few pounds, but they seem to have all gone to the right places.  Total bonus for me!  I was getting hirsuitism before I started spiro, and my hair stopped falling out almost immediately.  The thicker peach fuzz I had on my face went away in a few months.  I had serious fatigue and moodiness the first few months, but this has completely disappeared.  Actually, I feel more energetic and even tempered than I have in a long time!  Crazy how much normalizing my hormones has changed me externally and internally.

 

As for the big question - how is my skin? 

 

A little backstory: I started esthetician school two weeks ago.  I absolutely LOVE it.  Seriuously, it's the best choice I've ever made.  Every day I feel like I'm going to Disneyland.  Anyway, we've been practicing facials on each other and finally, a few days ago, it was my turn to get one.  I was really nervous about revealing my face to the class, but everyone actually remarked on how good my skin looked!  The girl that did my facial was upset because she didn't get to practice enough extractions on me.  She said I had "three clogged pores on my nose, but that's it."  I am still dealing with melasma (a large area of hyperpigmentation that is genetic and aggravated by hormone imbalance and sunlight) and rosacea (redness, visible capillaries, dry and irritable skin which is also genetic and aggravated by the sun).  I've started laser therapy for both of those conditions and it's been making a big difference. 

 

I still get the occasional breakout.  They are much smaller than what I used to get, not as inflammed, and often just shrink down in a few days.  The upsetting thing is, even though my face is so much better now, if I see a pimple starting to form I immediately feel that same sinking feeling I used to get.  In my head, this one pimple is just the beginning of a whole new huge breakout.  I'm always waiting for my face to start acting up again.  Even though it's taken a long 8 months to transform my skin, it still feels too sudden and a bit unreal.  I guess I don't quite believe it yet. 

 

I'm posting some updated photos for you.  I took these this morning. 

 

I really hope this log will help people.  Feel free to reach out to me if you have any questions, or just want some encouragement on the journey.  Now that I've started esthetician school, I'm thinking of starting a new log here about my journey.  Stay tuned...

 

xo

 

Sierra

http://skindeepstory.wordpress.com

 

Spiro Month Nine 4
Album: Spironolactone Month 9
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In Topic: Stacey's Spiro Log.

28 May 2013 - 01:44 PM

Skindeep-

I know you said you had a ton of clogged pores previously and was wondering if you still get new ones? The ones I have are definitely clearing up at a much faster rate now than the new ones are appearing but I still get a few new ones every week even with the retin a, SA and Spiro (although it has only been 4 week on that). Do you think the Retin a and Spiro will eventually stop all of them, or are those of us who get closed comedones forever doomed to get them?

Thanks!

Hi lifeinfaith!

 

I answered this question for you privately, but I thought it might benefit other people to read the answer so I'm posting on the forum too:

 

I am about to start my 21st week on spiro tomorrow and I can say that the clogged pores have dramatically reduced!  I had so many before and all of those had to come out one way or another.  I took it into my own hands to get facials every few weeks to do extractions and that made a big difference between having a breakout and not having one.  Usually every single clogged pore would turn into a major scary zit, but the facials stopped those in their tracks.  Awesome.

 

Right now I can literally count the number of clogged pores on my face with one hand.  I don't feel I'm getting any new ones, or if I am, it's very rare.  Spiro has once again been a blessing for me.  I'll post my updated pics soon.

 

Here are a couple practical tips for you:

- Get regular facials with extractions!  I can't tell you how much of a difference this has made for me.

- Consider either a gentle peel (salicylic acid really helped me) and/or microdermabrasion.  Both will help with the clogged pore situation.  But since you are on retin a, you will have to stop using that topical a week in advance and several days after you have the peel or micro. 

 

We aren't doomed to get those clogged pores forever!!  Keep the faith, girl!  Patience has been the most difficult part of this journey, but learning it has been a blessing that has shined on so many other aspects of my life. 

 

xo

Sierra



Hi people.

So, thought I would update my log. I haven't posted for a while on here, since I kind of just wanted to wait and take a break, plus I was finding it confusing with everyones different stories and trying to keep up with everyone, although, I am grateful for people chiming in ofcourse.

I am just going to focus on what my log is all about, and it was about my Spiro journey, but now I guess its about MY journey..So I will still keep it running.

Okay well, I have been OFF Spiro for about 3 weeks I think now or something like that. And I am so friggin' happy about it. It was probably the right decision to make, but we can see if things change from here on out - which I doubt.

I encourage those on this drug to keep going. Keep on keeping on. If its working for you that is, it just wasn't working for me, I did not like the side effects...and let me tell you I feel better with my weight, a little anyway...I think I may have lost a few lbs (I ain't weighed in yet so we will see) I also sleep better, and enjoy excercise again since I don't get BREATHLESS all the time. I am still urinating frequently though and my hair is still a little loose and falling out.

The only major thing thats kind of stayed is this pain I keep getting in my stomache, its on my lower lefts side and when I press on it its very sore, my digestive system has been warped since being on Spiro and it still is, I am unbelievable consipated and I think thats leading to this pain too...so its something I will get checked out.

Im glad Im off it though, hope everyone else is doing well.

Currently my routine right now is just eating a good diet, excersising frequently (3-4 times per week) taking NO supplements, just starting "a-new" so-to-speak. I am also using a BHA for my skin to see if it will help with the bumpy-ness.

My current state of skin is not worse or significantly better...but I feel better and thats the main thing right?

 

Hi Stacey,

 

I am so grateful to you for starting this spiro log and sharing your story - the ups and downs of it.  I've been absent from the forum for a few weeks so I missed the spiro drama, but it sounds like it was really doing a number on you.  Really happy you had the foresight to quit while you were ahead.

 

Medicine is...well...tricky.  There will always be a side effect, big or small.  I still have faith that you will find your answer.  Now that you have a clean slate, you can flush your body out and really nourish yourself (mind, body and spirit). 

 

My only suggestion is that you don't give up trying to figure out exactly why the symptom of acne is showing up.  What is out of balance in your body?  Honestly, it may take both time and money to get to the bottom of this very big question, and those are two things I know most of us have very little of.  But, finding the root cause is key so you aren't continuing to shoot in the dark and getting frustrated in the process.

 

I am really proud of you for you courage in sharing your story, and I do hope you continue to blog and update us on your journey.  You may not realize it, but there are so many people (myself included) who have been deeply impacted by reading about your journey.  This forum honestly helped me keep my sanity :)

 

I'll post my own update soon.  Tomorrow marks 21 weeks (the beginning of month 6) on spiro.  Things are continuing to look up for me.  My week 20 photos will be up soon :)

 

xo

Sierra


In Topic: Stacey's Spiro Log.

12 May 2013 - 02:49 AM

Skin deep-

Does your aesthetician do extractions and then the peel and what % peel have you gotten? I had kind of a bad experience with an SA peel 4 months ago when I was on differin, they told me I only needed to stop it for a couple days before but then my face got so burned from the peel...my whole face came off in strips... I think I actually needed to be off retinoids for at least a week. She also did extractions while the acid was still on my face and left red scabs everywhere she used the tool. Eck! The past 2 months I have been getting some extraction facials (and doing my own at home with steam and the help of my husband because I find I can sometimes do it better than they can). I was thinking of trying a peel again but was nervous. You have had really good results with your peel loosening clogged pores? I think I have one more "layer" of clogs that needs to come more to the surface on both my cheek bones before I am close to clear. Thanks for your advice!

 

 


Skindeepstory - 
 
 
I started Spiro 2 weeks ago. I had already been purging before that so I think it was the retin a, which I have been on for months. I was so fed up with the purging I called my derm and asked if there was something else I could do and she told me to take a break from it. It has been 6 days now and no active pimples. However I have a lot of clogged pores on my cheeks and jaw line, almost all of my issue is clogged pores. Its like the retinoids were slowly bringing those up but there are multiple layers of clogs or something. I am going to an aesthetician tomorrow to see if she can get a lot of them out that I can feel really obviously on my skin. I dont know how far along the clog has to be for them to extract them. Orif I never get back on the retin a if the rest of them just wont come out.  How long have you been on Spiro for and when do you feel like is started really helping and preventing new stuff/decreasing oil? I am on 100mg now and so far 0 side effects. 

Lifeinfaith,
 
I really enjoyed reading your story.  Thanks for sharing.  One of the biggest things that helped me get through the most severe breakouts and lowest moments is just reading that other people were going through it too.  Keep your faith high and stay connected.
 
As for the clogged pores, mine are pretty much all gone.  I think I literally have five on my entire face now!  Mine were everywhere. Completely covering my forehead, and most of my cheeks and chin.  Spiro worked to basically purge, purge and purge some more.  The unfortunate news is that for the first three months, literally every single one of those clogged pores turned into a full blown honking zit.  That was just the process of elimination.  Around month three when my skin began to settle a bit, I decided to take things into my own hands.  I went to the esthetician and she manually extracted many of the clogged pores before they could become anything bigger, and then we did a salicylic peel that was absolutely amazing!  A month later I had another peel and extraction session with even better results.  Basically, the spiro worked to purge all the clogged pores and stop me from getting new ones.  So, with the help of my fantastic esthetician, I've been getting rid of all of them, and not getting new ones. 
 
I think I'll go in for one more peel and extraction just because I'm a perfectionist, but at this point my skin is great (aside from the scars that are fading slowly but surely).  


Skin deep-

Does your aesthetician do extractions and then the peel and what % peel have you gotten? I had kind of a bad experience with an SA peel 4 months ago when I was on differin, they told me I only needed to stop it for a couple days before but then my face got so burned from the peel...my whole face came off in strips... I think I actually needed to be off retinoids for at least a week. She also did extractions while the acid was still on my face and left red scabs everywhere she used the tool. Eck! The past 2 months I have been getting some extraction facials (and doing my own at home with steam and the help of my husband because I find I can sometimes do it better than they can). I was thinking of trying a peel again but was nervous. You have had really good results with your peel loosening clogged pores? I think I have one more "layer" of clogs that needs to come more to the surface on both my cheek bones before I am close to clear. Thanks for your advice!

Hey LifeinFaith!

 

I'm trying to remember what order she did it in.  I believe it was the steam, then a general cleansing and massage.  Then extractions.  Then the peel, then a nice soothing mask, some moisturizer and another little massage.  Then I doze off :) 

 

I actually don't know the percentage of the peel!  Silly.  I should totally have asked.  I was recommended to lay off of the retinoids at least 5 days to a week before and after the peel.  I did notice that after both peels I did have a small post breakout, but I've read that's pretty normal and is just part of the shedding.  I did have more red marks for a few days after the peel, where she extracted, but those went away quickly, and once it actually peeled, my scars were noticeably faded and continued to get better in the next couple weeks.

 

I can't imagine doing extractions DURING the peel!  I couldn't stand the peel for more than one minute so there wouldn't be any time to extract.  Love that your husband gets in on the extraction action!  I only recently "came out" to my boyfriend about just how bad my skin was.  It was so freeing to show him the real me and see that he wasn't grossed out and even loved me more for it. 

 

If you're located in Southern California, I'd be happy to give you the name of my esthetician.  She's fantastic!

 

xo

Sierra


In Topic: Stacey's Spiro Log.

11 May 2013 - 11:35 PM

Skindeepstory - 

 

 

I started Spiro 2 weeks ago. I had already been purging before that so I think it was the retin a, which I have been on for months. I was so fed up with the purging I called my derm and asked if there was something else I could do and she told me to take a break from it. It has been 6 days now and no active pimples. However I have a lot of clogged pores on my cheeks and jaw line, almost all of my issue is clogged pores. Its like the retinoids were slowly bringing those up but there are multiple layers of clogs or something. I am going to an aesthetician tomorrow to see if she can get a lot of them out that I can feel really obviously on my skin. I don’t know how far along the clog has to be for them to extract them. Or…if I never get back on the retin a if the rest of them just won’t come out.  How long have you been on Spiro for and when do you feel like is started really helping and preventing new stuff/decreasing oil? I am on 100mg now and so far 0 side effects. 

Lifeinfaith,

 

I really enjoyed reading your story.  Thanks for sharing.  One of the biggest things that helped me get through the most severe breakouts and lowest moments is just reading that other people were going through it too.  Keep your faith high and stay connected.

 

As for the clogged pores, mine are pretty much all gone.  I think I literally have five on my entire face now!  Mine were everywhere. Completely covering my forehead, and most of my cheeks and chin.  Spiro worked to basically purge, purge and purge some more.  The unfortunate news is that for the first three months, literally every single one of those clogged pores turned into a full blown honking zit.  That was just the process of elimination.  Around month three when my skin began to settle a bit, I decided to take things into my own hands.  I went to the esthetician and she manually extracted many of the clogged pores before they could become anything bigger, and then we did a salicylic peel that was absolutely amazing!  A month later I had another peel and extraction session with even better results.  Basically, the spiro worked to purge all the clogged pores and stop me from getting new ones.  So, with the help of my fantastic esthetician, I've been getting rid of all of them, and not getting new ones. 

 

I think I'll go in for one more peel and extraction just because I'm a perfectionist, but at this point my skin is great (aside from the scars that are fading slowly but surely).  


In Topic: Stacey's Spiro Log.

11 May 2013 - 10:42 PM

Sierra - 

 

When you were on Spiro the first time, did you have any side effects? I just had my hormones tested and everything came back normal except my Testosterone...its real low..which is bizarre because I have always been really lean and gained muscle easily...I am wondering if they will want me to come off Spiro since my T is already so low. My skin is sooooooo oily though!
 

Sorry for the late response lifeinfaith!  Yes, spiro is a miracle for acne, but... it does come with some side effects.

 

Before I get into them I wanted to address the low T level.  I actually had low testosterone before i started on spiro.  That didn't deter my dermatologist and endocrinologist.  They still recommended it for my acne.  And now I'm just heading into month 5 and my skin is fantastic.  I barely get any pimples and when I do they are small and go away quickly.  There's someone else on this forum (maybe michi?) who mentioned that even though she has low testosterone, her doctor thinks there is extra androgens in her skin.  I probably wrote that wrong, but something like that.  I'm sure you could search the last couple pages on the forum and find what she said. 

 

In any case, I have low T and spiro has worked wonders!  But patience is really important.  And you may want to bump up your dose very gradually if you don't see improvement after 3 months.  Many gals didn't see a difference at all until they found the "magic dose."

 

So, side effects: had to pee all the time, dry mouth, thirst, a couple UTIs because I unfortunately started to hold it in overnight.  I also had some fatigue, even after 2 years on spiro.  There were just good energy days (mostly good days) and low energy days.  For me it was (and is) totally worth it.  The emotional pain of acne is so much worse than feeling tired and thirsty. 

 

Sending you lots of support on your journey.  Keep us updated!

 

xo

Sierra



Is your doc ok with you not having a period? I didn't know if this could be bad for me or not. It's 10 days late at this point, maybe it'll start eventually. My estrogen was normal.
 

Yeah I haven't had a period since I've been on it - but I don't think it's the Spiro but rather the fact that my estrogen can't get high enough to make me ovulate. You could get your hormones checked again and see where you are in your cycle.

Were you considering going on birth control michi?  I think we already talked about it, but I was in the same predicament.  No period or ovulation at all for almost a year, but it was only when i went off the pill that it stopped.  And it started up again as soon as I restarted the pill.

 

Oh yeah, I think we did talk about it.  You were just a bit nervous about starting it because you had a bad experience.  Totally understand.  But, might be worth a try because it really does increase your risk of cancer when you don't shed your uterine lining for long periods of time.  Something to talk to your doc about or maybe research.  



UPDATE!

 

Hi everyone, it's been a few weeks since I've chimed in and I have big exciting news! I'm about to reach 17 weeks on Spiro, so just a little over 4 months, and let me tell you my skin is looking really, really good!!! I don't think I've had an actual cyst in about 2-3 weeks. A few smaller pimples around my period last week, but everything has either gone away or surfaced in about a 24 hour period. I definitely think the people that say in can take up to 6 months are right. I have seen the most noticeable changes between 3 1/2 half months and 4. I feel fairly positive that things will only continue to improve from here!!

 

Now I am mostly dealing with a few residual scars and the occasional white head, but nothing like a few months ago. I have a facial in a week and a half, and I'm hoping she'll be able to extract the last few whiteheads I have. Then I can work on healing and feeling confident for my wedding and honeymoon in September!!

 

Also, I started using Mario Badescu products and I'm in LOVE! If anyone is interested in the products I'm using just let me know.

 

I just wanted to write everyone and give hope that I really do believe Spiro is working and if you can be patient, you will see results. I had a few moments where I wanted to give up, but I'm glad I didn't. Stick it out... I truly believe it is worth it and better then constantly switching regimens and waking the so called acne beast.

 

XOXO ladies!!!

 

Theresa

Woohoooo!!!  My skin is looking good too!  Gooo spiro.  Stick with it ladies!  Patience is so key with this medicine.

 

So happy for you Theresa!

 

xo

Sierra