Jump to content


Member Since 30 Jan 2013
Offline Last Active Dec 20 2014 11:47 PM

#3463682 Repairing the long-term damage from Accutane

Posted by MovingOn on 12 December 2014 - 06:36 PM

Hmmmm maybe this is why I crave mussels and seafood in general....yum yum...Manganese. Worth a shot.

#3444429 Repairing the long-term damage from Accutane

Posted by MovingOn on 30 July 2014 - 05:34 PM

When you can demonstrate appropriate social skills and display any shred of empathy, I'll let you criticize my expertise in psychology.  Until that point, you have nothing to stand on.  You aren't worth my time either way. In fact most people don't even respond to you because I am almost certain they're fatigued from reading your ridiculously unecessary posts. 

Has any wild person tried vitamin A intravenously?? I'm curious as to how the accutainted body would respond.  If we cannot successfully metablize vitamin A, could it be the way in which our body obtains in that can effect it/make it harmful? Porbably a dumb question, but my teachers always said there was no such thing :P

I struggle to understand how some people that I've talked to report getting well after omega 3's and ingesting vitamin A, and the other half of us don't. And you can send me those scientific articles, but, it doesn't really explain the intense variability.

#3444104 Repairing the long-term damage from Accutane

Posted by MovingOn on 28 July 2014 - 09:13 PM

I really hope the suicide thing was not targeted at me as that is absolutely appauling. I will get you banned from this site permanently if it is. that's despicable to even comment on that.

Furthermore, your insecurities and hatred of other people is apparent.  Projected inner self-hatred, placed on others to make yourself feel better.  How about we show compassion for others instead of using your big bad vocabulary to tear people down to size....NO ONE else on here is looking for a competition.  We are all just looking for answers. BE NICE. PLAIN AND SIMPLE.

#3443726 Repairing the long-term damage from Accutane

Posted by MovingOn on 27 July 2014 - 02:34 PM

I never said Saw Palmetto worked lol, Just that I was going to try it,  At that time i didn't know much about anti-androgens, now I live by that. It made my skin drier and yah my hair stopped shedding as much, but i think it just aggravated things more like any anti-androgen.  I've reduced all of my supplements to 225 billion probiotic, collagen in powder form, and LDN for joint pain.  Don't think I could be doing any better.  Oh yah, still gluten free as my tolerance to that has not gone away.  i did one liver flush which got a lot of "Stones' out, still am skeptical but i did feel better for about a week and change afterwards, but it slowly wore off.  It did temporarily help with my food intolerances which was weird. I'm doing another this week.  The most important thing to do is to stay hydrated, and there really is not much of a need for epsom salts apparently during but i'm too afraid to try it without.  Again, I'm not recommending anyone go and do this, I'm just letting you all know what I;m doing. I'll report back. If I die,. it was for the CAUSE. jk.  I've done it before and it was painless. Until next time. ;)

#3429350 Repairing the long-term damage from Accutane

Posted by MovingOn on 30 April 2014 - 07:40 AM

you can ingest it or use it topically from my knowledge. I've heard of people being cured after several months to a year of consistent treatment.  Good cannabis oil has a lower THC content and higher CBD content, which has all the healing properties. I think it's highly dependent on how severe your symptoms are and there is no guarantee that it will work, but I have noticed benefits from vaping in the past on overall health.  Do be careful though since marijuana is an antiandrogen or acts like an antiandrogen, so it can also aggravate symptoms of dryness as well (in my experience. It's mostly just confusing to me how it can be healing and bad for some at the same time. But seeing as it does directly effect hormones, I think that that is the key.

#3429301 Repairing the long-term damage from Accutane

Posted by MovingOn on 29 April 2014 - 08:20 PM

Reported my sides to Rxisk website! Will be doing the others tomorrow.  Thanks for attending the protest. I still think it had a solid impact and I hope to go to one in the near future. Ya know, once I have money and vacation days...


Anyone have any experience with Armour Thyroid?? I don't believe it's doing crap...perhaps maybe even causing mroe harm than good....LDN is still working like a charm...

#3418580 Repairing the long-term damage from Accutane

Posted by MovingOn on 05 March 2014 - 05:56 PM

Hey guys. Just need details on the US protest.  I would like to make time to be there since it is majorly important.

I've always wondered about stem cells treatment for hair growth.  This seems to incorporate both nutirnet dense blood and stem cells to regrow hair:


I'm going to contact them soon if I don't have any luck elsewhere...interesting that I also get my naltrexone from Boca Raton, good stuff happening down there.


#3406839 Repairing the long-term damage from Accutane

Posted by MovingOn on 09 January 2014 - 09:59 PM

Hi all,


Quick update.  I'm still taking LDN at 4.5mg (4 months now)  and have shown great improvements in physical functioning.  regular bowel movements (also take super doses of probiotics), minimal bloating, immense energy, little to no joint pain, no pressure in head, moisture in eyes, moisture in mouth.  still have dry skin overall, and continued hair thinning but the shedding has gone down considerably.  I work out either daily or every other day, have resumed guitar and singing, and have my life back now.  I'm still looking for the cure, but as it still stands, LDN has saved my life.  I still encourage others to look into it.  Just because LDN works to manage inflammation and symptoms, doesn't mean you can have a shit diet.  I juice on a near daily basis as well, but I do occasionally splurge on some pizza or cookies.  My main diet is pretty fresh and healthy. Only other things I am taking are magnesium glycinate, vitamin C ester, and D3. :)


hip hip hooray!!


Anyone have luck with the RSO please message me privately! :) I'd like to hear from people who try it for the tane induced dry skin.  As it is i still drink tons of water and can't seem to stop. D3 and garlic help regulate it but it still persists. I'm sure it's also a result of my bodies reduced ability to hold water due to decreased HA too. I don't care about the science anymore. Just want answers. 


Thanks! we will beat this! some have. keep that in mind.

#3405131 Repairing the long-term damage from Accutane

Posted by MovingOn on 02 January 2014 - 04:37 PM

vaping is the way to go. that is all. if you cannot get the RSO. I've kind of given up on the venture for right now do to financial issues, but it will manage symptoms appropriately.  I wouldn't overdo it though because it can mess with hormones in higher doses.

#3400861 Repairing the long-term damage from Accutane

Posted by MovingOn on 14 December 2013 - 10:06 AM

Can I just say how excited I am that you guys are finally talking about cannabis oil lol....I've been trying to advocate for this all along!! I notice benefits from simply vaping, but unfortunately It's not potent enough to effect permanent change.  SO.  basically two things I put together as a widespread truth for myself (and my supportive, brilliant doctor).  I have out of control inflammation in my body due to wicked dryness.  Naltrexone and cannabis both target inflammation directly and work to help modulate the immune response.  It's that simple.  Naltrexone produces more endorphins in the body so that I can feel less pain and also directly modulates the immune system through this effect. I'm on month 3 of Naltrexone and doing great. I have my one or two off days, but they are tolerable. On a bad day, there is cannabis. I'm working out full time now and can work overtime with no problem.  I do a gluten light diet because that's what's possible for me at this time in my life.  Please look into naltrexone...it can't hurt to get information on it.  It is safe when you are comparing to other medications, and has very minimal side effects. The only thing I initially got was constipation but that subsided after time and taking a super strength probiotic. Should be taking 50 billion organisms or more.  I had been taking less than that and ZERO beneficial flora showed up in a stool test. That's a problem! It's winter time and I'm not worried about getting sick since I know it will be tolerable for once. :)


This girl will be moving to Cali in two years.  My life's more important than an awesome job.  I hope you all can get your hands on it.  Let me know what you find out.  I'm in Mass, but dispensaries are not up and running as far as I know yet.  You can get a medical marijuana license tho...Totally going to ask about that soon.

Does anyone know if castor oil is an anti-androgen or contains vitamin A? I'm working to regrow my hair.  I'm taking biotin (have tried it in the past with no results so I'm not too hopeful), but I don't want to take ANY anti-androgens since I'm super super sensitive to them. My nostrils will instantly dry up, eyes dry up, amongst other not so comfortable things. Any hair loss remedies that improve blood flow to the crown area that isn't an expensive laser system?? or an insanely shifted diet?


Thanks you guys. Hope you are doing okay.

#3395100 Repairing the long-term damage from Accutane

Posted by MovingOn on 16 November 2013 - 08:12 AM

On LDN for month 1.5, doing even better on 4.5mg. sleeping like a baby, no joint pain, no anxiety, no mucus, moist eyes, moist nose, better moisture in face.  still have dry skin though, especially hands.  Everywhere else, I'm a happy camper.  The amount of pain I was experiencing got me hospitalized into a psych ward and guess what, they thought I was a hypochondriac and found NOTHING wrong.  I strongly believe I personally suffer from an allergic/autoimmune response and my body is just attacking it self.  I don't know how the DHT inhibition plays into that, and why it seems so permanent, but I am still sensitive to that.  I strongly believe that diet can help, but i'm not bought into the cure piece yet...i havn't tried it for long enough though.  high stress jobs demand energy and i am  having trouble finding a new lower stress one...so for now...it's LDN since I can live a normal life finally. No negative side effects besides occasional constipation but now I take a massive amount of probiotics since my testing showed ZERO beneficial flora...that will wreak havoc on the body and cause something autoimmune from my limited understanding,  I also take magnesium glycinate for bowel movements, D3 since I was on the low end, and biotin which I am not bought in that biotin works for hair loss...I do think diet can help that.  We shall see.  I've been trying to get this squared away for 9 years. my sides hit most severely 7 years later, and i think chronic stress was a major trigger for it. I don't know if I believe A is still in my body, but i do think due to the chronic cellular dehydration, there is some buildup of SOMETHING that prevents my body from cleaning or healing itself.  what that something is i don't know...

#3393928 Repairing the long-term damage from Accutane

Posted by MovingOn on 10 November 2013 - 11:05 PM

I agree with taking DHT inhibitors without knowing enough at the time, but everything went back to normal when i stopped them :) and I didn't blame anyone besides myself. but thanks though. I'm fairing a lot better off than a lot of people so it's funny that that comment was made. good luck to you. Just wish I could be the same self i was pre tane.

#3393199 Repairing the long-term damage from Accutane

Posted by MovingOn on 07 November 2013 - 08:50 PM

@MovingOn - definitely did not intend to convey that I think isotretinoin is O.K. because most people don't present with side effects. Meaning must have crossed wires. I just think that paper is interesting, and on to something, as it suggests that certain drugs can cause epigenetic changes. It mentions isotretinoin.


I respect your opinion, anonyy, but I just think the epigenetic theories are more compelling. But we can all agree to disagree.


My biggest side effects have been cognitive (brain fog) and sexual (dysfunction), and it's incredible how much my experiences in those respects mirror some of what Propecia men complain of. I have also taken saw palmetto, which is how the problems began. As for my ongoing skin thinning - as in my eyelids, earlobes, hands and everywhere - that's definitely something Accutane did in its own unique way. Can't look to finasteride folks for that.


There don't seem to be many drugs/supplements that can cause persistent side effects, but saw palmetto, finasteride and Accutane (and Yaz and Mirena for some gals) are some substances that can cause long-term problems. (In full disclosure, for some of the things I listed, only personal anecdotes exist that demonstrate problems after discontinuation.) Anonyy, do you think it possible that in each case the offending drug/supplement is still stored in the body? 


Finally, MovingOn, I have not tried cannabis oil. I suppose I would be willing to. Let's all fly to Colorado yesterday. Ah, kidding.


Have you tried it?


What is vaping?

Vaping is just using a vaporizer to inhale the marijuana. it gets rid of most of the toxins as the thc becomes a vapor instead of smoke since it has a low burning point. I only did it when i had my most severe symptoms for relief, but the next day i felt tons better. there is some talk of it being an anti androgen but i have no side effects when i use it. none. i would only do it if it gets really bad for symptoms management.  my head would swell some days and my joints would be creaking and cracking, with no help from water, HA, or iodine at a certain point. only that would help with symptom management.  and yes, my plan is to move to cali  in the next two years lol

Ahh it feels so lovely on this forum now that Cam is gone.  I can breathe easier.  You guys are awesome. thanks for working together to get him kicked off hahaha

#3392557 Repairing the long-term damage from Accutane

Posted by MovingOn on 04 November 2013 - 09:29 PM

My biggest fear is that the LDN will stop working someday, but I can be hopeful and realistic at the same time. I've had many disappointments and many successes. Like always, I will keep you updated.  I think the pros outweight the cons for me at least, my body began attacking itself so hard that my gums were literally being eaten away....nothing was going to stop it...but now I have something working for me not against me.  SSRI's only did more damage to me. Lithium orotate is a safer alternative if your mood is haywire---great for cyclothymia (less intense mood wings than bipolar) or bipolar symptomology. backed by my doctor too. The best part about LDN is i have the energy to exercise, and exercise helps immune function, circulation, sleep, etc. :)  Going to doctor tomorrow for followup. I will tell him all of the good news!! I wish you all the best in your research and I hope you find some answers! keep questioning, don't give up.

#3392127 Repairing the long-term damage from Accutane

Posted by MovingOn on 02 November 2013 - 08:26 PM

I believe that many of us are struggling from something autoimmune..my new doctor believes this as well, but will obviously only speak to my experience.  He fully believes accutane triggered an autoimmune response like sjogrens, hashimoto's, and RA, have ALL the symptoms of each, but neither show up in blood. Since LDN, nonexistent. just have dry skin, but even that has been slightly alleviated. only been one month. don't know long term...side effects appear to be minimal...sleeping like a baby now. deep restorative sleep.  I believe much of it has to do with brain malfunction as well.  Lack of serotonin and endorphins, any feel good chemical can wreak havoc on any body...i believe accutane devastated my serotonin levels..but no SSRI will fix it...LDN has drastically improved my mood, joint pain, sleep, sex drive, eye moisture, mouth moisture, scalp itching, and nose moisture. I'm not saying it will work forever, but in theory, it should if its helping the autoimmunity i have going on...but im not assuming everyone has something autoimmune either....it can't hurt to research more about it i did.  just do a simple google search...go to forums as well for LDN...smart people on there...quite like here

How did you get prescribed this? How long have you been on it for?

Hi there,.


I get it prescribed through my doctor.  Northampton Wellness ASsociates in Northampton, MA.  He is a conventional doctor with an alternative flare. listened to everything i had to say and validated a lot of it. Anyways, i belive you can get it online in some places, but i do not know if these are reputable ways to access LDN.  You can always ask if you doctor will prescribe it, and if not ask around for more holistic healing docs who might. If you are in MA, NY, CT, CA, OR, etc..more progressive states you will have better luck.

on for one month now