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MovingOn

Member Since 30 Jan 2013
Offline Last Active May 06 2014 09:37 PM

#3429350 Repairing the long-term damage from Accutane

Posted by MovingOn on 30 April 2014 - 07:40 AM

you can ingest it or use it topically from my knowledge. I've heard of people being cured after several months to a year of consistent treatment.  Good cannabis oil has a lower THC content and higher CBD content, which has all the healing properties. I think it's highly dependent on how severe your symptoms are and there is no guarantee that it will work, but I have noticed benefits from vaping in the past on overall health.  Do be careful though since marijuana is an antiandrogen or acts like an antiandrogen, so it can also aggravate symptoms of dryness as well (in my experience. It's mostly just confusing to me how it can be healing and bad for some at the same time. But seeing as it does directly effect hormones, I think that that is the key.




#3429301 Repairing the long-term damage from Accutane

Posted by MovingOn on 29 April 2014 - 08:20 PM

Reported my sides to Rxisk website! Will be doing the others tomorrow.  Thanks for attending the protest. I still think it had a solid impact and I hope to go to one in the near future. Ya know, once I have money and vacation days...

 

Anyone have any experience with Armour Thyroid?? I don't believe it's doing crap...perhaps maybe even causing mroe harm than good....LDN is still working like a charm...




#3418580 Repairing the long-term damage from Accutane

Posted by MovingOn on 05 March 2014 - 05:56 PM

Hey guys. Just need details on the US protest.  I would like to make time to be there since it is majorly important.



I've always wondered about stem cells treatment for hair growth.  This seems to incorporate both nutirnet dense blood and stem cells to regrow hair:

 

I'm going to contact them soon if I don't have any luck elsewhere...interesting that I also get my naltrexone from Boca Raton, good stuff happening down there.

 




#3406839 Repairing the long-term damage from Accutane

Posted by MovingOn on 09 January 2014 - 09:59 PM

Hi all,

 

Quick update.  I'm still taking LDN at 4.5mg (4 months now)  and have shown great improvements in physical functioning.  regular bowel movements (also take super doses of probiotics), minimal bloating, immense energy, little to no joint pain, no pressure in head, moisture in eyes, moisture in mouth.  still have dry skin overall, and continued hair thinning but the shedding has gone down considerably.  I work out either daily or every other day, have resumed guitar and singing, and have my life back now.  I'm still looking for the cure, but as it still stands, LDN has saved my life.  I still encourage others to look into it.  Just because LDN works to manage inflammation and symptoms, doesn't mean you can have a shit diet.  I juice on a near daily basis as well, but I do occasionally splurge on some pizza or cookies.  My main diet is pretty fresh and healthy. Only other things I am taking are magnesium glycinate, vitamin C ester, and D3. :)

 

hip hip hooray!!

 

Anyone have luck with the RSO please message me privately! :) I'd like to hear from people who try it for the tane induced dry skin.  As it is i still drink tons of water and can't seem to stop. D3 and garlic help regulate it but it still persists. I'm sure it's also a result of my bodies reduced ability to hold water due to decreased HA too. I don't care about the science anymore. Just want answers. 

 

Thanks! we will beat this! some have. keep that in mind.




#3405131 Repairing the long-term damage from Accutane

Posted by MovingOn on 02 January 2014 - 04:37 PM

vaping is the way to go. that is all. if you cannot get the RSO. I've kind of given up on the venture for right now do to financial issues, but it will manage symptoms appropriately.  I wouldn't overdo it though because it can mess with hormones in higher doses.




#3400861 Repairing the long-term damage from Accutane

Posted by MovingOn on 14 December 2013 - 10:06 AM

Can I just say how excited I am that you guys are finally talking about cannabis oil lol....I've been trying to advocate for this all along!! I notice benefits from simply vaping, but unfortunately It's not potent enough to effect permanent change.  SO.  basically two things I put together as a widespread truth for myself (and my supportive, brilliant doctor).  I have out of control inflammation in my body due to wicked dryness.  Naltrexone and cannabis both target inflammation directly and work to help modulate the immune response.  It's that simple.  Naltrexone produces more endorphins in the body so that I can feel less pain and also directly modulates the immune system through this effect. I'm on month 3 of Naltrexone and doing great. I have my one or two off days, but they are tolerable. On a bad day, there is cannabis. I'm working out full time now and can work overtime with no problem.  I do a gluten light diet because that's what's possible for me at this time in my life.  Please look into naltrexone...it can't hurt to get information on it.  It is safe when you are comparing to other medications, and has very minimal side effects. The only thing I initially got was constipation but that subsided after time and taking a super strength probiotic. Should be taking 50 billion organisms or more.  I had been taking less than that and ZERO beneficial flora showed up in a stool test. That's a problem! It's winter time and I'm not worried about getting sick since I know it will be tolerable for once. :)

 

This girl will be moving to Cali in two years.  My life's more important than an awesome job.  I hope you all can get your hands on it.  Let me know what you find out.  I'm in Mass, but dispensaries are not up and running as far as I know yet.  You can get a medical marijuana license tho...Totally going to ask about that soon.



Does anyone know if castor oil is an anti-androgen or contains vitamin A? I'm working to regrow my hair.  I'm taking biotin (have tried it in the past with no results so I'm not too hopeful), but I don't want to take ANY anti-androgens since I'm super super sensitive to them. My nostrils will instantly dry up, eyes dry up, amongst other not so comfortable things. Any hair loss remedies that improve blood flow to the crown area that isn't an expensive laser system?? or an insanely shifted diet?

 

Thanks you guys. Hope you are doing okay.




#3393928 Repairing the long-term damage from Accutane

Posted by MovingOn on 10 November 2013 - 11:05 PM

I agree with taking DHT inhibitors without knowing enough at the time, but everything went back to normal when i stopped them :) and I didn't blame anyone besides myself. but thanks though. I'm fairing a lot better off than a lot of people so it's funny that that comment was made. good luck to you. Just wish I could be the same self i was pre tane.




#3393199 Repairing the long-term damage from Accutane

Posted by MovingOn on 07 November 2013 - 08:50 PM

@MovingOn - definitely did not intend to convey that I think isotretinoin is O.K. because most people don't present with side effects. Meaning must have crossed wires. I just think that paper is interesting, and on to something, as it suggests that certain drugs can cause epigenetic changes. It mentions isotretinoin.

 

I respect your opinion, anonyy, but I just think the epigenetic theories are more compelling. But we can all agree to disagree.

 

My biggest side effects have been cognitive (brain fog) and sexual (dysfunction), and it's incredible how much my experiences in those respects mirror some of what Propecia men complain of. I have also taken saw palmetto, which is how the problems began. As for my ongoing skin thinning - as in my eyelids, earlobes, hands and everywhere - that's definitely something Accutane did in its own unique way. Can't look to finasteride folks for that.

 

There don't seem to be many drugs/supplements that can cause persistent side effects, but saw palmetto, finasteride and Accutane (and Yaz and Mirena for some gals) are some substances that can cause long-term problems. (In full disclosure, for some of the things I listed, only personal anecdotes exist that demonstrate problems after discontinuation.) Anonyy, do you think it possible that in each case the offending drug/supplement is still stored in the body? 

 

Finally, MovingOn, I have not tried cannabis oil. I suppose I would be willing to. Let's all fly to Colorado yesterday. Ah, kidding.

 

Have you tried it?

 

What is vaping?

Vaping is just using a vaporizer to inhale the marijuana. it gets rid of most of the toxins as the thc becomes a vapor instead of smoke since it has a low burning point. I only did it when i had my most severe symptoms for relief, but the next day i felt tons better. there is some talk of it being an anti androgen but i have no side effects when i use it. none. i would only do it if it gets really bad for symptoms management.  my head would swell some days and my joints would be creaking and cracking, with no help from water, HA, or iodine at a certain point. only that would help with symptom management.  and yes, my plan is to move to cali  in the next two years lol



Ahh it feels so lovely on this forum now that Cam is gone.  I can breathe easier.  You guys are awesome. thanks for working together to get him kicked off hahaha




#3392557 Repairing the long-term damage from Accutane

Posted by MovingOn on 04 November 2013 - 09:29 PM

My biggest fear is that the LDN will stop working someday, but I can be hopeful and realistic at the same time. I've had many disappointments and many successes. Like always, I will keep you updated.  I think the pros outweight the cons for me at least, my body began attacking itself so hard that my gums were literally being eaten away....nothing was going to stop it...but now I have something working for me not against me.  SSRI's only did more damage to me. Lithium orotate is a safer alternative if your mood is haywire---great for cyclothymia (less intense mood wings than bipolar) or bipolar symptomology. backed by my doctor too. The best part about LDN is i have the energy to exercise, and exercise helps immune function, circulation, sleep, etc. :)  Going to doctor tomorrow for followup. I will tell him all of the good news!! I wish you all the best in your research and I hope you find some answers! keep questioning, don't give up.




#3392127 Repairing the long-term damage from Accutane

Posted by MovingOn on 02 November 2013 - 08:26 PM

I believe that many of us are struggling from something autoimmune..my new doctor believes this as well, but will obviously only speak to my experience.  He fully believes accutane triggered an autoimmune response like sjogrens, hashimoto's, and RA, have ALL the symptoms of each, but neither show up in blood. Since LDN, nonexistent. just have dry skin, but even that has been slightly alleviated. only been one month. don't know long term...side effects appear to be minimal...sleeping like a baby now. deep restorative sleep.  I believe much of it has to do with brain malfunction as well.  Lack of serotonin and endorphins, any feel good chemical can wreak havoc on any body...i believe accutane devastated my serotonin levels..but no SSRI will fix it...LDN has drastically improved my mood, joint pain, sleep, sex drive, eye moisture, mouth moisture, scalp itching, and nose moisture. I'm not saying it will work forever, but in theory, it should if its helping the autoimmunity i have going on...but im not assuming everyone has something autoimmune either....it can't hurt to research more about it i did.  just do a simple google search...go to forums as well for LDN...smart people on there...quite like here

How did you get prescribed this? How long have you been on it for?

Hi there,.

 

I get it prescribed through my doctor.  Northampton Wellness ASsociates in Northampton, MA.  He is a conventional doctor with an alternative flare. listened to everything i had to say and validated a lot of it. Anyways, i belive you can get it online in some places, but i do not know if these are reputable ways to access LDN.  You can always ask if you doctor will prescribe it, and if not ask around for more holistic healing docs who might. If you are in MA, NY, CT, CA, OR, etc..more progressive states you will have better luck.



on for one month now




#3391954 Repairing the long-term damage from Accutane

Posted by MovingOn on 01 November 2013 - 09:35 PM

I believe that many of us are struggling from something autoimmune..my new doctor believes this as well, but will obviously only speak to my experience.  He fully believes accutane triggered an autoimmune response like sjogrens, hashimoto's, and RA, have ALL the symptoms of each, but neither show up in blood. Since LDN, nonexistent. just have dry skin, but even that has been slightly alleviated. only been one month. don't know long term...side effects appear to be minimal...sleeping like a baby now. deep restorative sleep.  I believe much of it has to do with brain malfunction as well.  Lack of serotonin and endorphins, any feel good chemical can wreak havoc on any body...i believe accutane devastated my serotonin levels..but no SSRI will fix it...LDN has drastically improved my mood, joint pain, sleep, sex drive, eye moisture, mouth moisture, scalp itching, and nose moisture. I'm not saying it will work forever, but in theory, it should if its helping the autoimmunity i have going on...but im not assuming everyone has something autoimmune either....it can't hurt to research more about it i did.  just do a simple google search...go to forums as well for LDN...smart people on there...quite like here




#3391755 Repairing the long-term damage from Accutane

Posted by MovingOn on 31 October 2013 - 07:28 PM

please look into low dose naltrexone people. My symptoms are gone. it's only been a month, but i will complete reporting.  That joint pain that got worse at first has now completely vanished.  I'm not saying it's for everyone, but at least read up on it. If you have undiagnosed autoimmune dysfunction and/or autoimmune disease...it may be your best friend....Again, only been one month...but i have never felt like this before and I have not changed anything in my diet, stress level, etc. just the naltrexone..took my body 2 weeks to adjust to. I'll keep you guys updated. for me, this is the closest thing to a cure all! and yes, it does work to balance hormones.




#3385504 Repairing the long-term damage from Accutane

Posted by MovingOn on 29 September 2013 - 02:30 PM

I'm aware that it's synthetic, but it still acts very similarly to vitamin A.  That probably explains the effect it has on me.  I would put myself on the more severe end.  Massive joint pain, awfully dry skin, barely able to have a bowel movement, etc. before finding iodine.  Something thyroid going on there, but like i've said before, iodine helps cells retain moisture, so any of you still dealing with lingering joint pain, try the iodine.  I did it more for my joints than anything else.  For bowel health digestive enzymes is a MUST since many of us due to the dryness cannot make the enzymes to break down certain types of food...hence why when we eat a LOT of carbs, and a LOT of sugar we feel like shit, ya dig? I have a ton of knowledge about this thing, but the whole vitamin A thing is still a god awful big black hole. I'm going to keep trucking though.  Glad you guys are doing well for the most part :)




#3378409 Repairing the long-term damage from Accutane

Posted by MovingOn on 27 August 2013 - 08:27 PM

Nothing worked for me in food form so i went with Biotics iodine. I started with the RDA of 150mg...now I am up to 3-6 times that. I do it based upon how my body feels.  I had normal lab findings for my thyroid keep in mind.  I felt like i had a cold coming on for days when i first started taking it but then slowly the mucus thinned out and my skin became smooth and my FAVORITE part no fibromyalgia symptoms or foggy head!



Although i ALWAYS feel better after eating sushi, and there is iodine in the seaweed...perhaps thats why i am addicted....that or I am a bear...maybe both.



f'ed up my bear joke.  I'll stick to seriousness. I eat salmon/avocado rolls only...bears like salmon...Ha. Okay, drum roll off the stage embarrassed.




#3369443 Repairing the long-term damage from Accutane

Posted by MovingOn on 26 July 2013 - 06:55 PM

yah I just remember from reading Patti Lodes story that she seriously harmed herself more from the cod liver oil, so just be careful and go slowly. you guys should really look into iodine tho! cant say enough good about it.  if you have gut issues MAKE SURE to take a good probiotic or you aren't helping anything. until there is goo bacteria down there, everything else is a waste in terms of what you put in your body.  this is something ive observed. others may be different.



*good haha