Jump to content

WishClean

Member Since 06 Nov 2011
Offline Last Active Aug 08 2015 05:16 PM

#3491305 My Pcos Is Gone For Now!

Posted by WishClean on 08 August 2015 - 04:53 PM

Hi ladies,

Yes, I was told today that I no longer fit the PCOS patient profile!!! I'm not sure how long this will last, but for now I'm pleased with my progress ;D ;D ;D I don't think one can "outgrow" or fully treat PCOS, but I certainly think it can be kept under control and cysts can lessen with the right holistic approach (as in, considering the WHOLE body and tailoring a treatment accordingly).

Some of you have been following my journey for a while now. Acne helped me figure out a lot of things going on in my body & general surroundings, and I had to make some lifestyle changes for the better.

I was diagnosed (and re-diagnosed several times) with PCOS since 18 years old, but today I got an ultrasound follow-up for a procedure I had done (hormone-related as well), and the doctor confirmed that I have very few cysts on each ovary (5 on each to be exact) and no longer qualify as a PCOS patient. I still have some ovarian cysts, but he said I no longer have the PCOS "syndrome".

Since I removed a demoid cyst back in April (detailed in my other thread), I noticed that I had fewer hormonal issues (e.g. fewer facial hair, thicker hair growth on head, lower sex drive rather than crazy high drive, etc). I'm glad to see I'm on the right track to fixing yet another issue, and I am cutting back on some supplements and lowering the dose to maintenance --  only a few times a week/ month as needed.

Anyway, I just wanted to share this for those of you who feel discouraged, as I did many times. I never gave up and tried to listen to my body and modify my lifestyle accordingly to show people that there are other options besides traditional treatments & medication.

If you need more details, check out my signature below.


#3491297 Is Accutane All In All Worth It?

Posted by WishClean on 08 August 2015 - 04:25 PM

MOD Edit: moved to the prescription acne medications forum.  ~ WishClean


#3491060 Plan B Acne Plus Cleanup Story

Posted by WishClean on 06 August 2015 - 05:16 PM

WOW!!! Your photos made me really happy for you....I hope the lyme disease is as under control as your skin. I'm glad you finally got diagnosed...acne is a sign that something is wrong with our body, and when we address the cause, the acne subsides. I found out I had a demoid cyst that had to be removed, plus other issues, on the way to healing my skin. Good luck to you with your recovery!

Are you seeing a homeopath/ naturopath/ doctor for the supplements you are taking?


#3490390 How Do You Start A New "product Reviews" Entry?

Posted by WishClean on 02 August 2015 - 06:09 AM

What happened to the Pros & Cons section of product reviews? I added a couple of items to the database (still pending approval), and I noticed that the Pros & Cons list was missing. I thought that having that list makes it easier and faster to read the reviews.


#3490387 Help Please! I Don't Know What's Happening On My Face

Posted by WishClean on 02 August 2015 - 06:00 AM

So I had a closed comedone on my chin for about a month. It was not very big but noticeable, white or maybe flesh-colored. I didn't touch or squeeze it at all. Today I woke up and the closed comedone was waay smaller but instead a large bump appeared around it. It's a bit red (but not very inflamed), swollen and sore when you touch it (I mean, it hurts when i gently push it with my finger and also it hurts a little bit when I make a sharp movement with my mouth). Does it mean that the closed comedone kind of broke deeper into my skin and became inflamed? What should I do to make it go away? I'm going on holidays tomorrow and this thing really makes me anxious. I'm thinking about cancelling my plans. Please, help me.

pic: http://pl.tinypic.com/r/jg192r/8

I know the pic is lame, my camera sucks, it looks way worse in reality. 


Put some aloe vera gel on it and don't stress out about it. It's a shame to cancel your holidays because of this, seriously.




#3490383 Having Trouble Cutting Bread Out Of Diet

Posted by WishClean on 02 August 2015 - 05:50 AM

how about replacing it with rice? If you had, let's say, 1-2 rice cakes in the morning, that might be better than bread.


#3488761 Going Off Spironolactone. Yes, Really.

Posted by WishClean on 21 July 2015 - 02:02 PM

 

 


That is so helpful! Thank you. The following link discussed adrenal PCOS. But yes, I do not have a problem with my ovaries and multiple cysts since I do ovulate every single month (or I used to before the last couple months I was on spiro when I was having biweekly periods - no ovulation then.) 

http://www.whitelotu...androgen-excess

"Current evidence suggests that in women with (adrenal) PCOS, the adrenals produce androgens through an exaggerated response to adrenocorticotropic hormone (ACTH) stimulation from the pituitary gland.Obesity, insulin resistance, and ovarian secretions seem to play a limited role in adrenal androgen excess."

So it's basically not the same mechanisms at work, although women who have ovarian PCOS and high testosterone can also have high DHEA-S level. However DHEA-S is exclusively produced in the adrenal gland. It's been causing me problems! DHEA-S coverts to DHT in peripheral tissues, hence acne, hirsutism and all that fun stuff.  :wall:
 

I see also your tag says DIM. I wonder if I should be taking that. I feel like my estrogen got way elevated from spiro. However I am concerned if there are any side effects to DIM or if women who actually have LOW estrogen levels should avoid it. However, for my purposes, it might be just what I need. I am trying to block DHT in my follicles and I read studies that DIM is an actual DHT blocker. http://www.cpmedical...t-anti-androgen


I am also taking a large dose of beta-sitosterol (which I have noticed has reduced my oily skin drastically - even within the first week). So between a 5-alpha-reductase inhibitor like that and DIM which is a DHT blocker at the actual receptor site level, I am wondering if that might be the winning combo. Plus, I read Rhodiola is really helpful for calming down the adrenal and balancing it out as an adaptogen hence targeting the problem to begin with. It's a multifactorial approach but wondering if I can do it without any pharmaceuticals.


 


I suggest you ask the chiralbalance people whether inositol can work for adrenal pcos, that is an interesting question, and they might provide some research on this. If so, feel free to share, I would like to know.

Well, noone knows exactly how DIM (or other herbs for that matter) works in the long run. In my experience, I think DIM reduced the bad estrogens, but also raised the good estrogens in my body because it made my melasma a bit darker. So, if you already have low estrogen levels overall (including the good metabolites), then it could be what you need. However, there is conflicting evidence on its anti-androgenic properties...some body builders,for example, take DIM to increase free testosterone and thus increase lean mass.

I haven't tried Rhodiola but let me know if it works if you try it. It's also used in herbal teas for its calming effect.




#3488682 Salt Link To Acne?

Posted by WishClean on 21 July 2015 - 06:05 AM

Low sodium can be just as bad. It really depends on what the cause for your acne is. And as you probably realized by now, accutane won't cure the cause for your acne, that's why it keeps coming back.


#3488681 Gluten-Free Vegan Diet (No Dairy) Is An Anti-Inflammatory Diet

Posted by WishClean on 21 July 2015 - 06:04 AM

One diet does not work for everyone. You have to figure out what's best for your body by eliminating certain groups of foods & noticing how your body reacts.


#3488676 Inositol's Impact On Hormonal Acne

Posted by WishClean on 21 July 2015 - 05:44 AM


 

Actually I got all of those side effects when I started taking it for the first time, and I took 0.6g a day at first. I also noticed it makes a big difference to actually split the dosage and take it morning and night. All of those side effects are gone now though.


I see, then it could have been your body adjusting to it. Normally, there should be no side effects at all if you're at the right dosage. Splitting it up definitely helps, plus it gives you a steady supply of inositol. Since inositol is water soluble, it leaves the body and does not get stored, that's why it helps to take it twice daily.




#3488585 Going Off Spironolactone. Yes, Really.

Posted by WishClean on 20 July 2015 - 02:50 PM



 

So that's it so far. I'm a really busy person and keeping this regimen along with a healthy diet is already pretty difficult. I will update if I change the regimen or experience any significant progress.
Comments welcome, would love to hear if anyone else is going off spiro or trying similar methods. 

I quit spiro after six months. The most I had taken was 125 mg but even at 100 mg I was having biweekly periods, trouble sleeping, awful PMS, constant breast pain and severe fatigue. I know it affected cortisol production. I felt wired and yet exhausted simultaneously. My doctor advised me to quit so I did.

I'm now on beta-sitosterol "Best Prostate" brand. Almost immediately I noted a reduction in oil production on my face. It's too soon to tell about the acne though but I've been off spiro a week and nothing major has happened. I am also taking magnesium now too as that has been helping calm me down and sleep better.

Spiro did help my skin but the side effects seriously messed me up. I don't know if it had the ability to encourage fatty tissue growth in the body but I had a small lipoma on my elbow for years and never bothered me....yet it trippled in size especially toward the end of being on spiro! I don't know if there is a connection but it was when my symptoms were the most severe. This was alarming. I had to get it removed last week.

 

Lovenaturalways, I never took spiro, but I had taken its European "equivalent" androcur many years ago.

I do think that anything that can raise your estrogen levels has the capacity to increase fat storage in your cells, so perhaps the fatty tissue growth you experienced was due to the excess estrogen triggered by spiro. I'm glad you had the lipoma removed, that's scary and definitely not worth risking your health by taking something that doesn't agree with you. Side effects are our body's way of telling us that something doesn't sit well with us.

HI greengables,

I've been MIA from the boards recently too....I appreciate your update, and the fact that you put your overall health first instead of just the acne.
Have you looked into SOD (superoxide dismutase) enzymes? I've been taking them for months now with large meals and have not had any swollen cysts since. I also recently had a dermoid cyst removed...I believed it was due to and/or worsened by estrogen dominance. I'm waiting to see if the rest of my hormonal symptoms calm down.


That's interesting. What brand of SOD enzymes do you use?

I see that SOD had a moment in the spotlight in 2006 but not a lot of research since. I hadn't heard of it.

Greengables, check out this article on the rosacea- histamine- mast cell connection, you might find it helpful. http://thelowhistami...ell-connection/

 




#3487663 Spiro Ruined My Face

Posted by WishClean on 13 July 2015 - 07:15 AM

well it's been almost six weeks since I stopped spiro and there has been no change. No sign of hormones reverting back to normal. My facial skin is very thin and sagged and not how it used to be. I have zero libido which is not normal for me, my hair on my body is rediculously soft (I'll take it.) when do the hormonal effects of this drug wear off? If it wasn't for all the rave about spiro on this site that I had read about, I never would have touched it. I hope that my body reverts back to my normal self soon because this is getting frustrating.


I know this is hard, but try to be patient. My skin used to be a mess, especially in 2013, and now looking back on it 2+ years later, it's soooo much better. But 6 weeks might not be enough to see improvements yet.

It might help to see an esthetician/ dermatologist who can help with treatments to boost collagen in your skin, like vitamin C facials, lactic/aloe vera peels, and high frequency.

For what it's worth, I'm glad you started this thread because it shows that standardized treatments do not work for everyone. It's easy to jump on the bandwagon, but not everyone will react the same...especially to medications NOT meant for acne. Spiro was not designed for acne, just like birthcontrol was not designed for acne, and so on. The same applies to alternative/herbal/ other treatments too, I don't want to be hypocritical since I have jumped on those bandwagons too in the past. I think before starting an acne treatment, we should try to figure out the causes before trying out stuff, especially for women who try these hormonal treatments without being properly diagnosed for hormonal issues to begin with.

So, thank you for sharing and I'm sure some will think twice before taking overhyped treatments.




#3487662 Severe Cystic Acne After Pregnancy And Birth

Posted by WishClean on 13 July 2015 - 07:02 AM

No I do not.have any facial.hair. I started breaking out during pregnancy on my cheeks and a little on my chin. I also broke.out bad on my back. Then when I gave birth and was breastfeeding it got really bad.


Hey,
Your face looks better in the recent photo you posted - it seems like some of the big lumpy bumps have subsided.
If it's itchy, it's definitely infected! I would suggest getting a facial  with extractions (either at a trustworthy dermatologist or a qualified esthetician) to get the infection under control. They might do some red & blue light treatments, along with high frequency, which will help with inflammation... No matter what they give you internally, if your skin is already infected (yes, it looks infected!) you have to also treat it on the surface level, which means getting it under control topically as well as internally.

I would also recommend a saliva/urine hormonal panel...those are the most accurate (unlike blood tests), and might give you an indication on which hormones are off...most likely, your pregnancy threw some hormones off whack, which is not uncommon, and usually hormonal imbalances resolve by themselves some months after pregnancy if you haven't had hormonal issues before, so please do not panic and be patient!

If you do get a hormonal panel done, post your results here and I might be able to make some more definite recommendations.
 




#3487661 Inositol's Impact On Hormonal Acne

Posted by WishClean on 13 July 2015 - 06:56 AM

Examine.com's page on inositol has been updated with more research. They also gave it a high rating for acne! However, there's no sufficient evidence on whether it can help men as well...

http://examine.com/s...ments/Inositol/


#3487660 Foods That Mess Me Up

Posted by WishClean on 13 July 2015 - 06:43 AM

Hey buddy, good luck with your diet adjustments. If I may, I would recommend ditching canned foods altogether. I know it's convenient to eat canned foods, but they contain more preservatives, and many people react to the preservatives in canned foods rather than the foods themselves. Even if some canned foods are ok, I would encourage you to try and ditch the cans altogether.

Also, if you don't want to get too paranoid about what you eat, I would recommend a few supplements to prevent big flare ups for when you do eat something that bothers you. I personally have been taking SOD enzymes to minimize my histamine reactions to foods, and I can relax a bit with my diet. Digestive enzymes can also work, especially if you suspect lactose intolerance or gluten sensitivity.


Thanks for the advice.  I thought about ditching cans.  Are organic canned items any better?  I'll probably get frozen fruits and veggies from now on to replace the cans.  And I'm not too big on supplements.  I've considered b12 since my base diet is vegan. 

Canned items are canned items, no matter what's in them...the BHP and other things that cans contain (& give off) is worrysome. There are of course cans that are more consumer-friendly, and it's usually stated on a label so that you can at least pick "healthier" cans.
Frozen foods also have preservatives to stay frozen. Why not just eat fresh fruits and veggies? I know it's less convenient, but if you can replace some of the frozen & canned foods in your diet, that might make a huge difference. I must say, though, that when I didn't have much time to cook, I used to thrive on microwaveable sweet potatoes...I actually looked healthier and I think they helped my leaky gut/ histamine issues a lot.

I'm not that big on supplements either, but if you find the right ones from trustworthy brands then they can make you (& us in general) less paranoid about what you eat & less fearful of having a few cheat items in your diet.
For B12, though, it's difficult to find the right form and right %...I still haven't found a B12 supplement or a multivitamin with B12 that I'm satisfied with.