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Member Since 23 Mar 2011
Offline Last Active Today, 09:18 AM

Topics I've Started

Spiro...my Last Hope

08 September 2014 - 08:06 AM

Hi All,


My name is Lisa and I'm 47 years old.  I have been suffering from acne for over 30 years.  I was able to deal with it pretty well through the years bc I wld have weeks of clear skin, then get a breakout.  I would get over the breakout and my skin wld heal well.  That all changed about 5 years ago.  That's when I started to develop cystic acne, I never had a cyst till my early 40s. 


I was dealing "ok" even with the cysts.  I would get 1 or 2 tops at a time, I would go get cortisone shots and I wld be clear for awhile.  It was a tiring process, but I was able to deal with it mostly, although I did have some very low points.  The beginning of this year I was actually doing great, I had like 3 months of clear skin.  I foolishly thought I was finally out of the woods, what a joke!


The last 3 months have been HELL...I now can get upto 4 to 5 cysts at a time, and I breakout with something new everyday.  Not always cysts, but there is always a new bump of some kind.  I never had such chronic acne in my life.  I cry just about everyday and I am filled with such unbelievable anxiety.  It really has made me a shell of who I was.


I've had my hormones checked throughout the years, and they always have come back in normal ranges.  A little over a month ago asked the derm to get bloodwork again.  When I got the results I went to an endo.  The endo said in all her years she has never seen a level so high in a woman.  She wanted to retest bc she was thinking it cld be a mistake with the lab.  I was also taking DIM but had stopped it a cpl of weeks before I saw the endo.  She asked me to wait a cpl of weeks before retesting bc she wanted the DIM out of my system.


With that said, got retested and my hormones came back in normal ranges.  I was kind of bummed out actually, I thought for sure it has to be hormones..I also have facial hair which totally sucks.  I talked her into giving a scrip for spiro anyways, bc I have read your hormones can be at normal levels but still have sensitivity to androgens.   She prescribed me 25mg twice a day.


During all this was going to derm to get cortisone shots, I talked to him abt spiro too.  He really wldnt give me straight answer if he thought it was a good idea or not, which was annoying.  He said it does do wonders for women that do have hormonal acne, but my levels are normal.  I actually have another appointment with him on Thursday to get more shots and he wants to discuss with me the side effects of spiro.


I was waiting to see him to start taking spiro, just to make sure I was making right decision.  It seems whatever medications I take I always get all the bad side effects.  I am absolutely terrified of hair loss, that is my biggest fear.  I still get regular periods and they are like clockwork, so i'm scared its going to mess with that too.


Yesterday I had a great day..everything was healing and I was actually feeling normal, I thought it was going to be the first day in long time where nothing was going to grow, I was feeling ok about waiting till Thursday before I took my first pill.  Fast forward to late last night..went to scratch an itch on my face..and tadaaa...2 new spots..UGHHHH


So this morning took my first pill, lol.  I think first week i'm going to just do 25mg a day just to see how my body reacts to it. 


Sorry so longwinded, just wanted to get it all out...its all so frustrating! 

Having Trouble With Latest Board Posts

25 July 2012 - 05:45 PM

when i come onto acne.org last 3 days, my latest board posts are the same ones..i have to go to message boards to see recent topics..since i always love to read the latest posts am wondering how i fix this..does anybody know?