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#3480078 Spiro...my Last Hope

Posted by shadylee on 06 May 2015 - 05:40 AM

Still clear!!  Yayyyyyyyyy!!!

In 2 days it will be 8 months on spiro.  For anyone who is struggling after a few months of being on spiro, don't give up!  It took me over 7 months!  I might be talking too soon bc its only been 2 weeks of clear skin, but my skin hasn't been this clear in so long.  My husband and I went to Atlantic City over the weekend to celebrate his birthday and it was the first time in soooo long that I went away without something growing on my face.  It felt so great to be not freaking out over my skin.  The big test will be in the next few days coming, I get my period in about a week.  I always breakout badly right before my period and the worst time for me is right after my period, so we shall see.  Even if I do breakout I feel like spiro is finally doing its work..If it does happen I will bump myself upto 150, but I am really hoping that's necessary.

Thank you so much Thovis for your very informative post, and for also sharing your story.  It's so hard being "older" and dealing with this.  I'm so happy to see you have a supportive family.  I have no idea how I wld've gotten through this without my husband, he was always my rock and support.  I think I might've finally found relief in spiro, I truly hope it sticks!  Have you thought about going the hormonal direction?  Its so frustrating trying to find the solution..

Well after my 7 month post I said hopefully the 8th month will be the magical month..I think it might be!

#3479530 Spiro...my Last Hope

Posted by shadylee on 30 April 2015 - 06:33 PM

Well..I'm sure I'll be sorry I posted this, bc it's always a jinx..but here it goes....My skin is clear!!

I haven't had any kind of pimple for a week, its unbelievable.

It's so bizarre I started to feel a big difference in my skin last week, it just felt different..less oily..its like it happened overnight.

I've been on 125mg for 12 days.  I'm guessing that's why the sudden change, but who knows.  Maybe it just took 7 1/2 months for spiro to finally kick in.  I am definitely staying on 125 tho.  A couple of months ago I had tried 125 and had side effects.  This time around no side effects...Yayyy!

I'm going to kick myself in the butt for posting this if I start breaking out again!  But jeez I do feel like I am having that miracle moment..Keeping fingers crossed!

#3476932 Spiro...my Last Hope

Posted by shadylee on 04 April 2015 - 05:58 AM

Hi girls :),


Well I'm probably going to totally regret saying this, anytime I do I jinx myself, but here goes...I haven't had a breakout for 8 days which is a complete miracle.  I cant remember the last time I went this long, how sad is that.  I went and got a cortisone shot on March 27th and I have been fine since.  I actually went to a brand new derm bc I was getting so frustrated.  I also wld love to have everything with one derm.  I've been going to one derm for my scrip for spiro and another one for shots.  I wanted to find one that cld give good shots and prescribe spiro.  I think I'm going to stay with this new derm.  She took a ton of time with me but really had nothing new to add.  She did recommend photo dynamic therapy, she says she has pretty good success with it.  Even though its quite expensive I might try it if I start to breakout again.  She also said if I wanted to try Accutane again she wld put me on a low dose, but I'm way too terrified to try that again. I do feel if i'm still breaking out after a full year on spiro, I will put some great thought into super low dose of Accutane.   I'm praying this is finally my miracle moment..but we shall see.


Kirks...i'm so sorry you're having a hard time, it totally sucks.  It's so frustrating that most women do so well on spiro and yet we are still having problems.  Maybe you should try  birth control?  My gyno says spiro works a lot better if you're on it.  Unfortunately it's not an option for me bc of my age. Maybe a higher dose of spiro? I know Accutane is a scary thing but perhaps a low dose if all else fails..I know how hard it is to deal with all of this, and its so hard to make decisions about the options.  There's so much to weigh out w side effects etc.  It's also so hard when you finally do make a decision to try something and you don't see results. 


Justtfx..I'm happy to hear your potassium level is back in range.  I'm so sorry your acne is back..totally sucks.   It also sucks that we are running out of options.  Maybe low dose Accutane wld be good.  You can always stop it if side effects get bad.. 


Sladnacne..I totally understand what you're going through.  I think it was abt my 3 month mark and I had like 3 weeks of being clear.  It felt so frkn good.  I thought finally I'm going to be clear.  I started to breakout again month 4 and have basically been breaking out since.  I'll get a few days here and there of nothing, but something new seems to pop up.  My anxiety was just so out of hand a couple of weeks ago, acne really F's you up.  I hope better days are ahead of us!


I had upped my dose to 125 but I went back down to 100.  I was getting side effects on 125..My period was all out of whack and I felt like I was in a haze.  I'm going to stick w 100.  In 4 days I'll be on spiro 7 months, I can't believe it.  Right now my skin is doing really good, but unfortunately I have a very hard time believing it will stick.  Whenever I get excited it bites me in the ass.  The big test will be when I get my period again..I always break out horrifically at the end of my period, so we shall see...


I really hope we all find consistently clear skin soon!!!

#3474147 Spiro...my Last Hope

Posted by shadylee on 09 March 2015 - 08:26 AM

hi sladnacne,


My hubby is actually the only person i'll let see me when im breaking out horrendously.  I've been with him almost 10 years and it took me quite awhile to even talk about my acne to him.  My acne didn't turn cystic till about 5 years ago, so even though I had bad breakouts when I was dating him I could get through it.  When my acne turned cystic everything really changed.  Like you I was just so embarrassed.  We had moved into together and one morning I was getting ready to go to work and I completely lost it.  I was crying hysterical.  My hubby (bf at the time) walked into the bathroom and was like whats wrong?  I just let it all out, my frustration w my skin, how I felt so ugly and embarrassed, etc.  Well he comforted me, he was the best.  The funny thing was he said he really never noticed anything, he was really surprised that I had suffered for so long.  It really was the best thing I did, to open up about it to him.  He's so truly comforting and a pillar of strength for me, I have no idea what I wld do without him.  I'm so lucky that I have someone who is supportive and understands. 


If you think you can, I wld really try to talk about it with your bf.  It feels so good to let it all go..and hopefully he will help you through it all...Its so hard to do it alone.


Well yesterday was 6 months in..6 frkn months and still I breakout.  Friday I completely and utterly lost it..total meltdown.  I was breaking out all week, but things seemed to be healing.  I looked in the mirror and had 2 new spots forming..wth???  I just lost it.  I called derm and begged to be able to come in for shots..I just did not feel like watching new chit grow on my face all weekend.  I got in and got my shots.  I was crying like a baby, I kind of felt ridiculous but i'm so emotionally spent.  Its heartwrenching to be on this med for 6 months and not have any real consistency.  I feel like I'm going to be damned w bad skin forever..i just don't have anymore options.


She was very understanding..She let me vent.  We decided to up my dose to 125 and take it from there.  I'm not too excited abt it, I really wanted to stay at 100mg but I just don't know what else to do.  It makes me so sad when I remember I couldn't wait til the 3 month mark bc I thought my skin wld be clear.  When I hit the 3 month mark I was like ok...I cant wait til 6 month mark, bc i'm sure i'll definitely be clear then.  Well here it is and I still have no relief.  Last month my skin was doing really well, its so hard to understand why it wld go back to crap...sighhhh


So today my skin is doing well..I got my shots Friday and nothing new came up..yayyy.  The only problem is one of the shots didn't seem to work that well.  I get these lumps..they are nuggets..its like the pimple is filled with solid matter, not pus.  When I get these kind shot..the swelling goes down some but the stupid nugget just stays there..its so frkn annoying.  This one still feels a little swollen and is red, not sure what i'm going to do w it.  Besides that my skin is looking good, my red marks are healing fast, I think bc I haven't had something absolutely huge on my face so they aren't damaging the skin like my old cysts did.  Saturday morning I felt like I looked like I had chicken pox..but today the red spots have faded nicely.  All my spots lately have been mostly on chin, moustache area and laugh lines.  I haven't gotten anything on my cheeks or forehead.  Couple of years ago I only got cysts on my left cheek, its funny how my acne has totally changed areas.  Being someone who has suffered from cystic acne on cheeks and chin, I much rather have it on my chin.  They seem to heal faster on my chin.


Well sladnacne, I really hope spiro starts kicking in for us.  I'm not going to give up and I really hope you don't either.  I have read a lot where it has taken upto a year to finally have some consistency.  Maybe this month will be our lucky month :)...Please keep me updated on your progress!!

#3470647 Is This Normal After Cortisone Injections? Some Help Please

Posted by shadylee on 06 February 2015 - 06:05 AM

Hi Krissy :)


Just wanted to check in and see how it was going..How's the Accutane journey so far?


Hope you're doing great!

#3468614 Is This Normal After Cortisone Injections? Some Help Please

Posted by shadylee on 19 January 2015 - 03:35 PM

Hi ya Krissy,


Although the cysts are still there, it does look like you're having improvement.  The area around the cysts look like they've healed very nicely.  One of my first cysts years ago was quite the doozy.  It was on my cheek and I got a shot.  Back then I knew nothing about cortisone shots, I didn't know I could go back and get more shots if it didn't work.  The shot brought it down some, but I had a nice size lump for over 2 months.  I couldn't stand it.  It just sat there and did nothing.  One day it formed a head and It finally popped.  Omg I cant even tell you how happy I was...I couldn't believe the thing was finally gone, it was such a relief!  I couldn't stop looking in mirror and feeling the spot, I just couldn't believe it was gone.  I cant wait for you to have the same feeling!


Do you plan on going to derm again soon?  Or just wait it out?  How is Accutane going?  Hoping its going smoothly!

#3465826 Spironolactone Journey

Posted by shadylee on 29 December 2014 - 05:29 PM

I wish I knew Val, bc this is pure torture!  I got my shots today, but not even happy about it.  I have this cyst that keeps refilling, its starting and it wasn't big enough to shoot today.  I also feel a new lump growing..this sucks! 


The derm I like going for my shots are closing from Wed. to Sunday.  I got an appointment with my other derm for Friday.  He kind of sucks with shots but its better than nothing.  I'm going away on Monday and i'm praying my skin will at least be "ok". 


I have been on spiro for almost 4 months, I thought my skin wld be better than this.  My skin was actually better in 2nd month that it is now.  I'm back to getting a new spot everyday, its so frustrating! 


I just know i'm gonna have a whopper on my face for new years.  I'm praying the cyst doesn't get too huge, I have no idea how I will last to Friday.


I keep waiting for that magical day where the breakouts get less and less, and then go away...

#3463128 Loryna (Yaz) Log

Posted by shadylee on 08 December 2014 - 05:09 PM

I have never tried crushing ibuprofen pills or the gel, but always wanted to!  If you try, please tell me how it goes.  My skin seems to be back on track, keeping my fingers crossed!


Sorry to hear about your breakout :(..Hopefully it goes away fast!


Hoping December is a good month for both of us! :)

#3462720 Loryna (Yaz) Log

Posted by shadylee on 05 December 2014 - 07:34 AM

My cysts are usually pea sized too, and dang do they get so red.  I'm fair skinned so they really stand out.  I'm a cortisone shot junkie, I just cant bear having them sit on my face.  I have gotten so many shots in the last few months I lost count. 


Its funny when I started to get cystic acne 5 years ago, it was always on my left cheek, nowhere else.  My poor left cheek took a beating.  But I would always have bouts of clear skin.  I would get one or two cysts, get them shot, and all wld be ok for awhile.  That changed a few months ago, that's when the cysts became chronic.  They would just keep coming and coming, and it was all over my chin area.  I rarely ever broke out on my chin, so it was bizarre.  Now its my chin that's taking the beating, I don't even know how a cyst finds a new place, I feel like every single pore on my chin has had a cyst.  I have never had a cyst on my right cheek or my forehead.  I wish my whole face looked like my right cheek, no scars, no marks.


The last cyst I got which happened on Monday was literally one of the biggest cysts I've ever gotten.  It was a lima bean, so frkn swollen.  I went for cortisone shot on Tuesday and even my derm was like , "wow, that is pretty big".  Usually shots work pretty fast for me, by the next day i'll see significant improvement.  Not this one, I seriously thought the shot got messed up somehow.  This morning finally it seems to be going down.  I guess it was frkn big it took awhile.  I have a feeling though I'm going to have one of those underskin bumps that last forever with this one.  I'll take it tho, as long its not a stupid red lump sitting on my face.  The cyst freaked me out totally just bc it was truly one of the largest ones I have ever gotten, and being on spiro for almost 3 months its bewildering.  UGHHHH!!


I use aveeno ultra calming face wash most of the time, and sometimes use panoxyl bp wash.  I used to use acanya in the morning and tazorac in the evening.  Then my derm thought I should try aczone, so I tried that for awhile.  When that wasn't working I got scrip for clindamycin gel.  I think my fav still is the acanya, taz combo but when I started to breakout in all the cysts, it seemed irritating.  Also I know bp slows down the healing process of red marks.   I think the taz was thinning out my skin too much.  So basically ive been using the clindamycin, but I just started to incorporate taz back in.  All very confusing lol.


Today my skin does seem clamer.  I had a spot on my chin that I thought was turning into something big, it seems to be at a standstill at being an annoying lump, thank god!


Hope you're having a good skin day, well a good day all around :)

#3462403 Spironolactone Journey

Posted by shadylee on 03 December 2014 - 07:18 AM

Hi Kirks!


I actually had asked Tracy if she had talked to you bc I was dying to know how you were doing.  I am sooo happy that you're doing good!  What a journey this is.  Very up and down. 


I'm glad that things are calming down for you.  Its also great to hear that you've had no cysts, yayyyyy!!!


The support here is fantastic, would go crazy without it.


Hope things continue to go well for you!  :) xo

#3459500 Spiro...my Last Hope

Posted by shadylee on 11 November 2014 - 04:25 PM

9 weeks 1 day


Well things are way better.  I did go get those 2 buggers shot that day, I couldn't take it.  That was 2 weeks ago.  My skin started to be clearish after that.  I left for Aruba on Nov. 2nd with the clearest skin I had in months.  Felt really good.  I was clear until the 2nd to last day of my trip which was Friday.  I got a cyst that wasn't huge, but I popped my prednisone bc I wanted to enjoy the ending of my vacation without freaking out about my skin.  I took the prednisone for 3 days, I stopped on Sunday.  Since then my skin has been clear, I have zero actives right now.  I don't know if its bc spiro is kicking in or its just aftermath of prednisone.  Before I took the prednisone tho I noticed my skin was doing better, so I'm keeping my fingers crossed.  I'm just so happy I was able to enjoy my vacation.


I am still suffering from the anxiety every morning tho.  I wake up with it, I cant stand it.  It takes me awhile to make it to the bathroom mirror.  Even when I don't have something new on my face, it takes awhile for the anxiety to calm, it totally sucks.  I'm hoping if I sustain some kind of clearing for awhile it will subside.


Besides having a little longer period than I used to have, still no side effects.  I'm so glad my body is tolerating 100mg.

#3454842 Finally Joined...just Want To Know Someone Understands...need To Vent.

Posted by shadylee on 06 October 2014 - 05:35 PM

Hi Retta,


I understand COMPLETELY what you are going through.  I am 47 years old and suffering the worst acne I have ever had.  I always had acne since I was 17, but it was bearable until my early 40s.  That's when it turned cystic.  I was dealing with it ok bc I would get one or 2 cysts a month, go get a cortisone shot and be done with it for awhile.  That is not the case anymore.  4 months ago my skin went absolutely haywire.  I have no idea why.  I have broken out every single day for the last 4 months, my face is an absolute mess.  I cry just about everyday.


I had blood tests done, my first one came back testosterone very high, next one came back in normal range.  I do believe its hormonal.  I was prescribed spiro and have been taking it for the last month.  I've had massive breakouts, but i'm holding faith that it will kick in eventually, its truly my last hope.


I've found it harder to deal with it at this age, its just so embarrassing to be suffering from acne at this age.  I see nobody at my age dealing with this.  I've been too embarrassed to go out..Thank god for my wonderful husband, friends and the super support here.  I would lose my head if I didn't find the support that I've found here.


I wish I could give you some great advice, but i'm at a loss too.  You will find a lot of great info and support on this site.  Even though I can't give you advice, I can give you any support you need...Just know you are not alone!

#3452128 Spironolactone Journey

Posted by shadylee on 15 September 2014 - 06:58 AM

Hi Kirks,


I've been following your log since beginning.  I know exactly how you feel.  Last 3 months have been utter hell for me.  I breakout every single day.  Stuff starts to heal and a new batch just follows.  I cry almost everyday, I hate going out. 


Every time I think i'm going to get a break, something awful arises.  Was feeling "ok" last cpl of days, woke up this morning with one of the biggest cysts I've ever had, its horrible.  I also have one under my eye that is freaking me out.  Have a few small zits, and red marks that are taking forever to heal.  I hate the way I look.


I'm going to call derm and beg to get in for shots today, I was just there last Thursday.  So frustrating.  I started spiro last Monday, i'm so hoping it will be my cure.  Hopefully the both of us will be happier soon.


Hang in there and know you are not alone!

#3439074 Old Lady On Accutane—50, Female, 40Mg

Posted by shadylee on 02 July 2014 - 04:00 PM

Awww Mandy, didn't mean to scare you.  dry eyes are a very common side effect and it seems the big majorityof people get thru it just fine.  I happened to be in the small minority.  If the margin of my eyes hadn't gotten so swollen I would never have stopped.  I think you will be just fine, especially since they already calmed down.  Don't be scared..you can always stop if you think they are getting bad.  As I said, if I hadn't had such a long way to go to finish my course, I wldve finished it..All the best Mandy, I always love hearing the success stories!!


DD..hope you're having a great day 3!!

#3438820 Old Lady On Accutane—50, Female, 40Mg

Posted by shadylee on 01 July 2014 - 08:46 AM

Hooray for day 2!


Yes it was so disappointing for me to have to stop my course.  It had taken me so long to finally to make the decision to go on it, and not being able to finish it was truly heartbreaking.  It had taken me about 10 days to decide to come off of it.  I was taking a pill every other day to see if a lower dose wld lessen the side effects, but mine just kept getting worse.  My eyes were so swollen that my derm also had given me prednisone to take down the swelling.  It was so upsetting to stop, I really do believe Accutane is the miracle drug for tons of people.  I actually have jealousy for people that are able to finish their courses.


DD wishing you luck everyday!  You must be very excited knowing your first course was such a great success!!