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shadylee

Member Since 23 Mar 2011
Offline Last Active Today, 06:03 AM

Posts I've Made

In Topic: Spiro...my Last Hope

Today, 05:58 AM


Hi JoJox,

I'm very happy to say that spiro hasn't effected my tinnitus.  I was so nervous in the beginning.  My tinnitus is moderate and at times I can get spikes which are brutal.  Thank god the spikes go back down and my tinnitus is "livable".  I have a tea kettle going off in my left ear 24/7.  The good news is spiro didn't make it worse, thank god. 

When I first started to take it of course  any tiny change in my tinnitus freaked me out.  Then I realized I was just being paranoid.  I am so careful with my ears now.  I also get very nervous if I need to take pain medication, or any medication actually.  I get so scared my tinnitus will get worse.  A few weeks ago I was prescribed antibiotics and had to switch the scrip 2 times bc when I reasearched the first 2 they had tinnitus as possible side effect.

Have you decided to try spiro?  It's a hard decision I know, living with tinnitus isn't fun.  Everyone told me give spiro a try and if it makes your tinnitus worse you can always stop.  What they don't understand though is sometimes if a med does make it worse, it can stay that way..I decided to take the plunge though, and I'm very happy it didn't change my tinnitus.  I'm very happy I decided to give it a try..

Please let me know what you decide to do!

In Topic: Spiro...my Last Hope

02 July 2015 - 01:17 PM

Hi ya TS.. Got a couple clogged pores near my laugh lines..This area has been my hot spot.  The good thing is they are already going away after 2 days.  Usually the suckers hang out for a long time. The first time I went to 125mg it messed w my period too..I only tried for abt a week and decided to go back down to 100 bc I hated spotting continually.  A month or so later when I was still breaking out I decided to give 125mg a shot again.  For some reason the 2nd time worked like a charm.  No spotting, no side effects. I know how frustrating it can be to still be breaking out after 4 months.  I remember in the beginning of taking spiro I cldnt wait til the 3 month mark.  Then when I got to the 3 month mark and was still breaking out, I was so upset.  Then came the 6 month mark, and I was still breaking out!  It took me almost  8 months to find consistent clear skin. I figured it wasn't really hurting me, and I was getting no side effects so why not keep trying.  I've read where it took a whole year to work for some women.  I'm so glad I stuck with it. As for my biopsy sites, they still totally suck.  I'm at my wit's end.  I might as well  have 2 gigantic cysts.  They look so awful.  One is healing into what looks like a big raised scar.  I made appointment with derm on Monday.  I'm praying he can do something.  I truly can't take this anymore. I hope you see clearance on your chin soon, and please keep me updated on your progress!

In Topic: Spiro...my Last Hope

22 June 2015 - 03:46 PM


Hi ya TruthSleuth,

As for my acne I'm doing very good.  Had a couple blips before my period, but they were small and went away fast.  I haven't had a cyst in a very long time.  I am still on 125mg.  I was thinking if I keep getting blips around my period I might try 150.  I will see.  How is your spiro experience going?

WishClean,  Being a sufferer of acne for over 30 years, I too thought I would rather have clear skin over a full head of hair.  I luckily didn't have to make that decision bc I barely had side effects while being on spiro.  In my over 30 years of suffering w acne I have tried everything..Spiro is the only thing that has kept me consistently clear.  I think your comment was a little harsh.  Unfortunately meds do have side effects.  It is one's personal choice of what they think is more important.  It would be great if someone could find the perfect answer and not suffer any side effects at all, but sometimes that isn't meant to be.  One has to decide if the side effect is worth the gain...

Well cant believe I have been on spiro for over 9 months..it has been a godsend.  With that said I'm not really enjoying my clear skin at all.  I had my 2 shave biopsies done on my face 5 1/2 weeks ago and they are still a mess.  Its actually worse than having cysts, at least w my cysts I knew I could get a shot and they would get better.  The shave biopsy sites are just a mess and look basically like 2 big red cysts.  The redness has not improved at all, and the larger one is healing into a weird lumpy mess, it has been hell.  I wake up every morning in tears.  It totally freakin sucks to finally have manageable skin but have 2 big wounds on my face that don't get better.

I don't really know what my next step will be for these..I cant really get ipl or any lasers done bc they are so new.  One derm recommended cortisone shot in big one saying it cld help w the swelling and redness, im a little scared , the skin is so fragile, frightened the whole area will sink in.  I was going to try to wait it out another week before I saw derm again, but have a feeling i'm going to breakdown and go this week.  I just cant take this anymore..i just want to see tiny bit of improvement..thats it..but doesn't seem to happen..

So if anybody has any experience w shave biopsies wld love for any kind of info...Thanks!

In Topic: Started Accutane On 15Th March '15, 19Yrs. Girl + Pictures Of Progress

22 June 2015 - 03:25 PM


Looking Great!!  Huge improvement!!  So happy for you!

In Topic: Spiro...my Last Hope

06 June 2015 - 04:56 AM


Hi ya nmed..

I was very lucky and didn't really have any symptoms.  Did you take your dose with food?  I heard that can relieve stomach issue.

Once in awhile I wld get dizzy and feel a little faint, I would drink tons of water and I wld feel ok.  Maybe you weren't keeping hydrated enough?

Maybe you can start off at a low dose and see how it goes, and work your dose up as your body gets used to it.

Sorry I wasn't too much of a help..I hope all goes well!