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IndigoRush

Member Since 07 Feb 2010
Offline Last Active Today, 12:47 AM

#3439348 Repairing the long-term damage from Accutane

Posted by IndigoRush on 04 July 2014 - 06:52 AM

 

 

After eating really 'healthy', taking a hundred different supplements/herbs and everything else, I ended up.... WORSE.

 

Why? 

For two reasons, I believe.

 

You're best chance of recovery is rest.

A lot of my symptoms (and that means nearly all of them) could be caused by mere anxiety and stress build up.

Open your minds for a moment - I bet you spend A LOT of time, if you've not in the past, trying to find answers on Google and in forums like this one.

Always feeling like you need to keep looking, because surely the answer is out there somewhere.

Maybe it's a liver cleanse, maybe it's cannabis oil... maybe it's all a bunch of old bollocks.

 

Without going on and on, I want to hit home with this message: Stop living an abnormal life in the shadows, trying all these ideas that are based on theory.

You don't need to cleanse Accutane out of you. You don't need to have an enema. 

You need to let it all go. Just forget about trying to cure yourself.

 

A lot of ignorance here. Sad that you think you have enough knowledge and experience to tell people they should not change their diet and do nothing except "manage stress", you should learn some physiology before posting full of crap posts (sorry but that make me mad). Keep your deceptions for yourself.

Yo...

 

Might I point out that I started this forum topic and have been suffering from the side effects for 8 years?

Might I also point out that over those 8 years I have tried A LOT of things. All of which have not helped.

I'm not trying to deceive, as you suggest.

My intentions were good.

To me, the blindfold has been lifted and I can see a lot of you poor sods are wasting even more months of your life over what is most likely anxiety. Anxiety after all the self-diagnosing and horror stories.

Tiredness ... Do you expect to be energetic when you batter your mind with worry, likely miss out on getting enough sleep and have an eating disorder?

 

Some may consider it ridiculous of me to suggest you have an eating disorder... I would have too, until recently.

Worrying about everything being organic and natural is bordering on a mental illness.

Maybe it's made it's way past the border.

 

I'm not suggesting diet isn't important... 

What I'm saying is, I was eating organic fruits and vegetables... spending over £100 on food a week myself (and I still live at home).

Surely if the solution was diet, I'd of at least improved?

But that didn't happen.

Because although, obviously, eating natural unprocessed foods is a good thing, there lies a problem with it... especially if you have metabolic issues...

I.e. the symptoms of Hypothyroidism and Adrenal Fatigue.

It only recently occured to me that I'd been undereating for a while.

I'd estimate I was having around 1500 calories a day. That's not nearly enough.

 

Fasting, diets and all those things are not good for the body.

Fasting is a terrible idea. When your body is screaming 'eat.... eat' and you ignore it because you're on a juice fast or something equally stupid, well... you're just going to end up worse.

 

I'm not ignorant to the topic of health. Not by a long-shot.

But if you're cold a lot of the time, have a low sex drive, are prone to anxiety/depression... you're nervous system is in sympathetic mode.

That's not a good thing. You're body is stressed out.

Food is a way of de-stressing. A way of comfort.

The World is fucking god-awful at times... We're supposed to enjoy food and listen to our bodies wants and needs.

If you enjoy salty foods, you likely need more of them.

Drinking too much fluids and eating too many fruits/veg (mainly water) will flush and dilute your body... worsening things.

It's well known that when you have adrenal fatigue, you need more salt because sodium isn't easily retained.

I could go on...

 

Going back to some examples of being cured... Joseph came up. Rice and shrimp.

That's not fucking cured. That's absolute retarded madness. Wake up.

Avoiding all but two foods is not normal, or healthy. I don't care who says differently.

 

Dude who said avoiding Milk helped clear your acne.. 

That's great, but I doubt it has anything to do with retinol content.

Much more likely, you just are better off without milk, as are many people.

You're not the first to say their acne cleared from cutting the dairy.

 

And I want to re-iterate that stress and mental well-being is far more important that anything else.

If you've been to the doctors and the blood tests don't point out anything worrying... you need to work on your problem with health anxiety.

I was trying to help, not ridicule you guys.

But I don't come on here anymore, and when I (every few months or so) check in to see what you're talking about, I think 'Fucking hell. They're still at it.'

Smoke your cannabis if it makes you feel good.

Put cannabis oil on your wrist if it helps.

 

I'm just saying - CHILL THE FUCK OUT.

Life is too short to waste chasing answers that aren't there.

You can get better for sure, and I'm sure we all have different variations of health issues to heal, but brain fog, depression, low sex-drive... They're explainable as anxiety and exhaustion of body and mind.

And for sure as fucking Jesus, you can exhaust your body and mind with stress and false-beliefs.

Stop throwing away your hard earned cash on another supplement, that may or may not (likely not) help you.

 

I look forward to telling you that I'm all better in a few months, but I've only just started this new journey.
A journey of freedom.

It doesn't mean eating junk shit all the time.

But it means I'm no longer afraid of a single cookie causing diabetes.

It means, if I want fried chips ... I'll have them and enjoy them.

 

Once again... two most important things: EAT ENOUGH (I suspect some of you are fucking up your metabolic rate, especially if you've noticed cold hands and feed) and DEAL WITH ANXIETY. The books I recommended will help you greatly.

 

Or, you can ignore my advice, get angry and moan at me.
It really makes no difference to me.

 

Peace.

Accutane affects other people differently than it does others. Basically what you're suggesting is to get over it and enjoy life. I get what you are saying and agree with you, but keep in mind that other people have had far worse experiences on accutane to the point of being contantly in pain.

 

Brain fog and low sex drive and depression aren't necessarily all caused by the exhaustion of the mind and body. Usually it is and the drugs amplify these issues, but not always. At least that is what I have found with me. Cutting out the unnecessary annoyances in life wherever I could has helped as has finding hobbies and interests that I enjoy doing.

 

I firmly believe diet greatly impacts the symptoms that one may have, so yeah what you eat is important. For instance, I've become FAR more sensitive to refined sugar, dairy, wheat and anything with a lot of carbs basically. When I cut those out I felt FAR better than I have ever been since shortly after ending my accutanne treatment 12 years ago. I still have chronic dry skin and dry eyes. No amount of water helps so perhaps I simply can't store water very well (let's just say I go to the bathroom after drinking a small amoutn of water).

 

Now I can live with my symptoms...I imagine things will get worse for me later on though since things have slowly been getting worse over the last 4-5 years. I'm thankful that I don't have ulcerative colitis and that I only have IBS...THAT is something you can't really enjoy life with if you have it (unless you enjoy blowing money on surgeries and spending tons of time out of work).

 

All of this stuff can be explained away by saying that "it hasn't been proven" or that "not everyone that took Accutane has it", but you gotta really wonder with all the reports that people have about it if it is just a coincidence or not.

 

At any rate, some people aren't able to enjoy life because of constant pain, multiple trips to the hospital, and just the time and money being spent trying to get back to having a "normal" life. If a person loses too many things at once, then it is nearly impossible to truly enjoy life. Luckily for me, it has been a slow progression and I personally find joy in volunteer work and writing poetry. That is all I need and want and although my joints do bother me at times, I can still write so I am happy.

 

Just try to be careful what you say because some people could very well take offense to what you are suggesting, especially if they have some of the more "severe" side effects of Accutane. Generalization is a VERY bad thing which will only tick others off which from what I am reading in your post is exactly what you are doing. Again I get what you are saying and I agree with pretty much all of it...just keep in mind though that any medication has a chance of messing you up pretty badly and that sleep and rest won't always cure or even help those that are experiencing side effects from medication in general.

Thanks for the reply.

I agree a lot with what you've said.

Although I definitely suffered very badly with the effects of this drug, everyone is different and some many have more issues that me.

 

I suppose my message was aimed at those who can relate to it.

It's an odd scenario because it's very easy to start blaming every problem in your life on 'that sodding drug I took ____ months/years ago'.

For me personally, the eye floaters and sexual dysfunction began a few years after coming off the drug.

If Accutane caused those problems, I'd like to know how...

 

My main point isn't in ignoring problems and just accepting them, because I think that would be very hard to do for anyone... for the rest of their lives.

However, I realised that back when I was at college (age 17-18) I didn't struggle to get out of bed and think clearly like I do now.

Things like dry eyes ... Annoying as hell, but I tried so many things for that alone and realised I was fighting a losing battle.

I think Life is too short to waste away searching over and over for an answer to something like that.

Now... I don't use any eye drops or anything. My eyes are dry upon wakening and can feel bad at times, but overall... I'm better than when I used drops etc.

 

I believe the reason I'm so tired now is pure anxiety and stress. A lot, un-intendedly, self-inflicted.

Bad things happen to everyone. Y'all have likely realised nobody really has it easy.

I mean, look at us. We had acne and then we end up with all these problems... 

A bit of perspective can be healthy though.

I watched embarrassing bodies on TV last night (a show in the UK). I'll tell ya... that show will make you feel lucky.

 

The only goal in all of this, though, is to be happy and content. At peace...

I understand many people on this forum will state that's impossible. I was one of them.

If you look back at some of my posts, I'm sure you can see what kind of state I was in.

But I look back at the years of my life with some regret.

I've lost friends... partly because I was so lost in my own world with it's problems. Partly because those friends didn't make an effort...

But I think 'Wow... All the things I could have done... I've not really done much'.

Anxiety and low mood have held me back for so long.

 

Without going on and repeating myself my only points are these:

 

- You have to know when it's time to stop waiting around for a pill/supplement/diet to cure you. Don't put your life on hold and say you'll do things when 'you're better'.

- Stress can cause pretty much any problem. You've taken the drug now and there's nothing you can do to change that. Be reasonable. Sure... it's a fucking terrible drug (for some) and I'd never touch it again.... but is it really the cause of every problem in your life now?

- Anxiety could have been triggered by this drug. I've read of people who's anxiety came on after using drugs (like Marijuana). The answer is the same. You have to heal it mentally and over time. The key is to accept that you're anxious and will be for a while, because it's been going on a long time. Instead of fighting, you face the things that make you anxious and practice acceptance. For me, walking up the road past strangers on my own, or having my space invaded can put me on edge. Instead of adding more tension, worry and stress (which will exhaust you and cause physical symptoms), you tell yourself 'It's okay. I don't need to figure out why I'm like this. I've been so stressed and worried for such a long time. My body is in a heightened state and worrying makes me worse.' If you accept as best you can, how you are feeling, you will get better. Some degree of anxiety is normal anyway.

 

(Once again, I don't know how many of you this anxiety stuff will relate to, but I'd guess the majority, if not all).

 

- Depersonalization is where you feel un-real. Like you're in a bubble. Like you're friends and family could be shot in front of you and you'd feel nothing. It's just another symptom of anxiety. This used to scare me more than anything. The complete numbness.

 

- Get the fuck out of your comfort zone. I'm only trying to help you... because lately I've realised some things. Staying in your room, rarely leaving it... going on your laptop all night... It's just got bad news written all over it. When you're depressed and anxious, being alone will lead you to dwell on the past... fear the future and try to fix everything at once (which can't possibly happen). Get outside, so that four walls aren't surrounding you. It'll feel weird at first, but you need to change if you want your situation to improve. I used to walk round the same field every day. Rarely was anybody else ever on it. Now, I'm walking up the streets so I have to walk past people. I sit on a bench for a while... and .... nothing bad happens. You are merely afraid of feelings. Over time, you can realise you need not fear feelings.... and, ironically, those feelings will smooth out.

 

- Don't expect to get better over night. I sometimes prayed before bed (I don't believe in God, I was just desperate) that I'd wake up better. That's an impossible dream and will only lead to you waking up disappointed. Instead, go to bed (at a reasonable time) hoping for the courage to handle things as they are. You can psyche yourself up at any time to have courage. It's better to be angry than afraid. Get pissed off that you're life has flashed before you... Get pissed off that you've become a shadow of your former self. Fuck those people who let you down, gave up on you or walked away. Show them you're better than they thought.

 

Once again, I want to reiterate... The reason I won't be going on google is because I realise nearly all of my symptoms are down to stress and anxiety only. Some of you may have bowel problems, I dunno... Find what works best I guess, and stick to it.

 

I used to cut out foods (like gluten) because I thought 'Maybe I have a gluten intolerance'... all because I'd read how bad gluten is. Yet, I had no real reason to believe I had an issue with gluten and millions eat it every day and are healthier than me... Sure, they didn't take a drug... But I was changing my diet and becoming bored at times with what I was 'allowed' to eat. Yet, over months... nothing I did was making a difference. Lifestyle and stress are very important. You can eat as healthy as you want but if you're putting yourself in a constant state of panic about your health, or anything else, you're body won't function right. Constipation and all sorts can be caused just from the thoughts you have.

 

If you think I'm full of shit, feel free to write this off as a bunch of rubbish.

For those that may read and think 'Yeah... this guy actually speaks some sense' ... I'm glad to of helped.

Have a good day.

 

Stefan




#3438878 Repairing the long-term damage from Accutane

Posted by IndigoRush on 01 July 2014 - 03:12 PM

After eating really 'healthy', taking a hundred different supplements/herbs and everything else, I ended up.... WORSE.

 

Why? 

For two reasons, I believe.

 

You're best chance of recovery is rest.

A lot of my symptoms (and that means nearly all of them) could be caused by mere anxiety and stress build up.

Open your minds for a moment - I bet you spend A LOT of time, if you've not in the past, trying to find answers on Google and in forums like this one.

Always feeling like you need to keep looking, because surely the answer is out there somewhere.

Maybe it's a liver cleanse, maybe it's cannabis oil... maybe it's all a bunch of old bollocks.

 

Without going on and on, I want to hit home with this message: Stop living an abnormal life in the shadows, trying all these ideas that are based on theory.

You don't need to cleanse Accutane out of you. You don't need to have an enema. 

You need to let it all go. Just forget about trying to cure yourself.

 

A lot of ignorance here. Sad that you think you have enough knowledge and experience to tell people they should not change their diet and do nothing except "manage stress", you should learn some physiology before posting full of crap posts (sorry but that make me mad). Keep your deceptions for yourself.

Yo...

 

Might I point out that I started this forum topic and have been suffering from the side effects for 8 years?

Might I also point out that over those 8 years I have tried A LOT of things. All of which have not helped.

I'm not trying to deceive, as you suggest.

My intentions were good.

To me, the blindfold has been lifted and I can see a lot of you poor sods are wasting even more months of your life over what is most likely anxiety. Anxiety after all the self-diagnosing and horror stories.

Tiredness ... Do you expect to be energetic when you batter your mind with worry, likely miss out on getting enough sleep and have an eating disorder?

 

Some may consider it ridiculous of me to suggest you have an eating disorder... I would have too, until recently.

Worrying about everything being organic and natural is bordering on a mental illness.

Maybe it's made it's way past the border.

 

I'm not suggesting diet isn't important... 

What I'm saying is, I was eating organic fruits and vegetables... spending over £100 on food a week myself (and I still live at home).

Surely if the solution was diet, I'd of at least improved?

But that didn't happen.

Because although, obviously, eating natural unprocessed foods is a good thing, there lies a problem with it... especially if you have metabolic issues...

I.e. the symptoms of Hypothyroidism and Adrenal Fatigue.

It only recently occured to me that I'd been undereating for a while.

I'd estimate I was having around 1500 calories a day. That's not nearly enough.

 

Fasting, diets and all those things are not good for the body.

Fasting is a terrible idea. When your body is screaming 'eat.... eat' and you ignore it because you're on a juice fast or something equally stupid, well... you're just going to end up worse.

 

I'm not ignorant to the topic of health. Not by a long-shot.

But if you're cold a lot of the time, have a low sex drive, are prone to anxiety/depression... you're nervous system is in sympathetic mode.

That's not a good thing. You're body is stressed out.

Food is a way of de-stressing. A way of comfort.

The World is fucking god-awful at times... We're supposed to enjoy food and listen to our bodies wants and needs.

If you enjoy salty foods, you likely need more of them.

Drinking too much fluids and eating too many fruits/veg (mainly water) will flush and dilute your body... worsening things.

It's well known that when you have adrenal fatigue, you need more salt because sodium isn't easily retained.

I could go on...

 

Going back to some examples of being cured... Joseph came up. Rice and shrimp.

That's not fucking cured. That's absolute retarded madness. Wake up.

Avoiding all but two foods is not normal, or healthy. I don't care who says differently.

 

Dude who said avoiding Milk helped clear your acne.. 

That's great, but I doubt it has anything to do with retinol content.

Much more likely, you just are better off without milk, as are many people.

You're not the first to say their acne cleared from cutting the dairy.

 

And I want to re-iterate that stress and mental well-being is far more important that anything else.

If you've been to the doctors and the blood tests don't point out anything worrying... you need to work on your problem with health anxiety.

I was trying to help, not ridicule you guys.

But I don't come on here anymore, and when I (every few months or so) check in to see what you're talking about, I think 'Fucking hell. They're still at it.'

Smoke your cannabis if it makes you feel good.

Put cannabis oil on your wrist if it helps.

 

I'm just saying - CHILL THE FUCK OUT.

Life is too short to waste chasing answers that aren't there.

You can get better for sure, and I'm sure we all have different variations of health issues to heal, but brain fog, depression, low sex-drive... They're explainable as anxiety and exhaustion of body and mind.

And for sure as fucking Jesus, you can exhaust your body and mind with stress and false-beliefs.

Stop throwing away your hard earned cash on another supplement, that may or may not (likely not) help you.

 

I look forward to telling you that I'm all better in a few months, but I've only just started this new journey.
A journey of freedom.

It doesn't mean eating junk shit all the time.

But it means I'm no longer afraid of a single cookie causing diabetes.

It means, if I want fried chips ... I'll have them and enjoy them.

 

Once again... two most important things: EAT ENOUGH (I suspect some of you are fucking up your metabolic rate, especially if you've noticed cold hands and feed) and DEAL WITH ANXIETY. The books I recommended will help you greatly.

 

Or, you can ignore my advice, get angry and moan at me.
It really makes no difference to me.

 

Peace.




#3433471 Repairing the long-term damage from Accutane

Posted by IndigoRush on 27 May 2014 - 12:14 PM

Hey Guys.

Hope you're doing okay...

 

Just wanted to check in.

I'm still in the same boat as I was a couple of years ago.

Have days that are better than others, but overall have to survive each day as it comes, usually with a big lack of energy.

 

A really good book for anxiety (a big problem for me) is At Last A Life, by Paul David.

It's about letting go of control. I'd read it in the past but am re-reading at the moment.

I try to avoid researching anything with health now - I've wasted a lot of my life looking for a cure and never found it.

 

However, the dude who posted a video about liver flushing to cure himself has made me want to give it a try.

I'm skeptical, because after researching into it a little, there are others who have done dozens of flushes and are still in a poor state of health.

It's hard not to be bothered by the complexity of all of this.

Cannabis oil is never going to be a viable option for me and some others that post here.

I have doubts that it will be the final answer too.

 

Some days I feel like I'll never get out of this mess.

On others, I feel more optimistic.

For now, I'm eating as a vegetarian (though I'll have fish occasionally). I try to avoid processed foods as much as possible, but can't help but feel I should be benefiting more than I am by my dietary choices.

I plan to try a liver flush in the next few weeks, after taking some colon cleansing supplements (magnesium oxide based).

I take probiotics daily and firmly believe that our main point of focus needs to be detox pathways - Digestive system and liver support.

 

I've messaged the guy (James, was it?) who made the YouTube video and haven't yet heard back, so if he happens to be reading this, please get back to me.

The liver cleanse process doesn't exactly sound much fun, but what is there to lose at this stage?

I just want my health back, rather than trying to pretend everything isn't all that bad.. Because it is.

When I think about the years lost because of a fucking acne drug, it just gets to me.

 

Stefan 




#3399629 Repairing the long-term damage from Accutane

Posted by IndigoRush on 08 December 2013 - 04:30 PM

Absolutely gutted to have found out about James :(

 

 

The most aggravating thing is when Roche bring up 'Acne can cause depression' even when most articles relate to depression after treatment and when the acne has cleared up. Cunts.




#3371558 Repairing the long-term damage from Accutane

Posted by IndigoRush on 03 August 2013 - 01:14 PM

*Moderator edit, Link removed - read the board rules*

 

Someone linked me to this.




#3370115 Repairing the long-term damage from Accutane

Posted by IndigoRush on 29 July 2013 - 03:46 PM

Thank you...

I'm not sure I'll be spending much time chattin', but it's nice to see how you're all doing.

I hope you are well.

While I've made some good progress personally, with facing fear and being less obsessed with Accutane, unfortunately I can't shout 'I'm cured'.

My health issues are still there, and they do still get to me... sometimes a lot.

I guess I've learned a few things though...

 

My advice: Don't bother with ANY supplements. Such a waste of money and they only ever led to me feeling more frustrated because they did fuck all.

I still try to eat well and make an effort to avoid too much junk.

Main issues for me are still waking up like a bag of hungover crap, despite not consuming alcohol.

I seem to have vertigo and dizziness a lot of the time.

The dry eyes and dry mouth and a pain in the butt, also.

I don't even bother with eye-drops anymore.

Balancing blood sugar levels seems to be important, because anything too high in sugar tends to wipe me out and leave me exhausted.

 

Due to start a new job next week, so will be earning full-time wages again.

I'll probably start spending a bit more money on real, good food.

But yeah, I won't be wasting it on pills.

I got a juicer last year and haven't used it in months.

 

The problem I have is, I've read so many books and online articles... there's so much conflicting evidence.

I always find myself thinking twice before eating.

'Are eggs good or bad?' I ask myself.

'I have bread every day. What if this is stopping my digestive system from healing...' blah blah.

I still vlog on YouTube (www.youtube.com/fireyourdoctor) if you want to follow my progress, but I don't talk about Accutane or health as much these days.

The other day I was sent a newspaper story about someone who killed themselves 9 days after the BBC3 documentary aired.

They'd taken Accutane 10 years ago and ended up suffocating themselves because of the side effects.

That put me in a depressed state for a while.

Reading anything like that will, so don't go looking for information like that.

 

Anyway,

 

That's a little update for you

x




#3331362 Repairing the long-term damage from Accutane

Posted by IndigoRush on 06 March 2013 - 03:51 AM

This threat is getting juvenile. Someone please post something helpful?! Thanks.

 

I read a few posts here... having trouble keeping up with this thread... I used to read it and post to it religiously when my side effects were at their worst and I was desperate, trying hundreds of supplements/diets/yadayada, with no help whatsoever...

 

Until now:  please please please, everybody look into Standard Process supplements (Iplex or oculotrophin for eyes) (dermatrophin for skin) , peppermint oil, Picamilon, and burdock(burdock totally helps with ED) /dandelion tinctures...

 

I think on my last post I accidentally was telling everybody to buy Boswellia when I was meaning to say Burdock, so if you bought Boswellia because of me instead of Burdock I apologize profusely... Although Boswellia sounds like it could help with our symptoms as well, I have personally been taking Burdock with success.

 

These supplements have cured me, and to be quite frank and honest, my diet hasn't been the greatest and I have drank a lot and smoked pot during this period of healing because I basically said "Fuck it, nobody believes me about my side effects, I have a few hundred floaters a day at the age of 24"... so I gave up but still took the supplements listed above with amazing results.

 

Maynerd - When you say cured, do you mean of everything?

Hair-loss, dry-eyes, fatigue, etc?

Was Peppermint oil for digestion?

And I've not heard of Picamilon. What's that for?



 

I'm glad some of us can stay focused.  Just started taking glucosamine, chondroitin, MSM, HA, and collagen.  Two separate bottles (one has everything besides the collagen), definitely already noticed a difference.  Skin is as smooth as a babies ass. This is on top of the iodine i started taking which works great for morning stiffness and vision. HOORAH!

 

Sounds great smile.png. What form and how much iodine do you take?

 

I've taken Lugol's Iodine twice for a few days each and definitely had a reaction. Normalized my circadian rhythm and changed my digestion drastically (not necessarily for the better). Also felt strange/dizzy/off. Like a bad hangover. Not sure if it actually helped or made things worse. Interestingly I have the same reaction after eating way too much coconut fat. Some kind of temporary hyperthyroidism maybe? Herxheimer reaction?

 

I had an abdomen-MRI last week and there weren't any gallbladder/liver issues. My pancreas has something going on, but the pictures had many movement artifacts, so don't know for sure. Got another test running for my immune status, looking for viruses etc.

Yah I am taking biotics liquid iodine.  I do notice the jittery feeling after taking it but it subsides after about an hour and then i'm okay.  It puts me to sleep and like i said no morning stiffness, which is a huge battle for me in the mornings! Also, makes my skin nice and soft as an added bonus.  I don't know about long term use, but in terms of getting adequate rest, I will take it as long as needed to get sleep.  So far past several nights have been about 75%.  Which is a step up from 25%



 

This threat is getting juvenile. Someone please post something helpful?! Thanks.

 

I read a few posts here... having trouble keeping up with this thread... I used to read it and post to it religiously when my side effects were at their worst and I was desperate, trying hundreds of supplements/diets/yadayada, with no help whatsoever...

 

Until now:  please please please, everybody look into Standard Process supplements (Iplex or oculotrophin for eyes) (dermatrophin for skin) , peppermint oil, Picamilon, and burdock(burdock totally helps with ED) /dandelion tinctures...

 

I think on my last post I accidentally was telling everybody to buy Boswellia when I was meaning to say Burdock, so if you bought Boswellia because of me instead of Burdock I apologize profusely... Although Boswellia sounds like it could help with our symptoms as well, I have personally been taking Burdock with success.

 

These supplements have cured me, and to be quite frank and honest, my diet hasn't been the greatest and I have drank a lot and smoked pot during this period of healing because I basically said "Fuck it, nobody believes me about my side effects, I have a few hundred floaters a day at the age of 24"... so I gave up but still took the supplements listed above with amazing results.

And that makes me happy

smile.png



I know I use this forum too often to plug my songs and videos, etc, but I can't resist doing it once more:

 

https://soundcloud.c...son-to-be-alive

 

Please listen to my new song which I recorded at home today.

It's Accutane-related technically speaking, because most of my songs are influenced by that drug haha

 

Stefan,

 

love the new song.  Especially the quick turnover at the end, really tugs at the emotions, like the edge is getting closer and closer.....but you BEST not jump! smile.png



Maynerd,

 

What symptoms were you struggling with exactly? My main ones are joint pain and painfully dry skin...has any of the things you tried helped that? I'm assuming dermatrophin helped with the skin...

 

 

Haha, thanks. Glad you liked it :)

I've sent it off to the radio through something they're doing for unsigned artists, so hopefully they'll like it too!




#3330610 Repairing the long-term damage from Accutane

Posted by IndigoRush on 03 March 2013 - 04:37 AM

Was in the studio recording a new song all of yesterday.

Stuff like that makes me feel goooood.

Do it.

The song won't be up for a little while but it's so rad.

Ended up getting lost after dropping a friend home though... Didn't get back until 2am.

Driving at night is tough. My eyes get tired and I get cranky as fuck when I don't sleep.

Had to get up early today to visit a relative.

But I've been feeling good the last week.

Definitely making progress.

I stand by protein being helpful. Eggs and buttered toast seems to be a good meal for me.

Haven't read all the posts from the last 24 hours... What's this about Joe talking dirty? haha




#3330134 Repairing the long-term damage from Accutane

Posted by IndigoRush on 01 March 2013 - 03:17 AM

Okay, L-T-R (LiveToRegret, Not LeftToRight)..

I've had a look at your pictures.

I'm always honest, so will be here...

You can tell a difference, but you don't look nearly as bad as I thought you would from how you've said.

You still have a lot of hair from what I can see, though I know it won't be in the healthy state it was prior to all of this.

At first, I did think your skin perhaps looked quite aged, but then I assumed you were in your early twenties like me.

At 31, I don't think you look too bad.

Take solace in what I'm saying, because I'm sure you're very hard on yourself.

I'm not pretending your skin looks how it should.

Clearly you're body is suffering somehow... But I really would advise against getting into debt.

If there was a very high chance of recovery from stem cells, I'd say Yeahhhh, do it.

But who know's if that'd really help?

 

You look exhausted in your recent pictures.

Under your eyes mostly.

Do you get much sleep/rest? 

Stress will obviously worsen this.

I'm sure you've tried an array of products, but aloe vera is such lovely stuff, I think that's the best you could use right now (meaning Aloe Vera gel).

Internally, it could help to reduce inflammation.

 

You still need to keep a fighting attitude.

You're living in fear because you've lost so much already.. You've lost faith in the World and don't really expect anything to help you.

I'm sure this is mainly because you've searched the Internet and realised there are many in the same boat and not too many shouting about cure's.

But, we will get through this.

Doesn't matter how, or when, we just will.

Listen to anything positive; don't pay attention to the negative stories.

A reminder - I used to spend hours trying to put 2 + 2 together, but I never found anything and became so much more frustrated because of it.

I read all the terrifying stories about people who developed problems years after stopping the drug.

Someone in their 20's dropped dead to a heart problem and their parent was claiming Accutane was the cause.

But it got to the tipping point where I'd read enough horror stories.

The shock value in them was gone for me.

Gradually I stopped looking for reasons to talk about this drug because I realised nobody wanted anything to do with me when I was depressed and feeling sorry for myself. At first, people are sympathetic, but then they just lost interest in you.

That can be the hardest part of depression - loneliness.

But, I used that as motivation because I didn't want to be 'that' person.

 

There might be a voice in your head while you read this saying 'Indigo doesn't know. He got off lightly with this drug. I don't want this advice. It's bullshit. I can't be positive when I look like this now.'

Maybe I got off lightly compared to some people in here, but Man, I've been to some dark places in the last several years.

I still have days where I want to kill myself.

But I have improved.

 

Why?

Mainly because I realised life is a bit of a bitch, for everyone who's given the chance to live.

This problem I have might suck at times, but another me in a parallel universe has just watched their Mother die of Cancer.

Another me is starving for food and wondering what difference it makes because they're just going to be hungry again after that. They have no education or future.

Another me has to deal with the trauma of being abused as a child. His Mother is an alcoholic and his Father is in prison for murder.

You get the point!! 

 

The more you fight against what's happening, the more resistance and the more stress.

Acceptance is hard. But necessary.

(Once again, I don't mean you accept this for the rest of your life, just as your current reality. It's about realising you can't control everything that goes on, and realising that your body doesn't need any further obstacles, so get out of the way of yourself and do your best to survive each day, finding a purpose for yourself).

 

Since starting College, I've been happier more days.

When I was working full-time in an office job, all I could think was 'This can't be it, surely. This can't be why I'm alive'. 

I'm a deep thinker like that. Others are happy to do whatever and just get drunk and have a good time at the weekends.

I wrote a couple of new songs yesterday and today am off to do the interview with that journalist... well, I think she was mentioned in here.

She's just a student at the moment but wants to talk to me about Accutane. Why not hey?

I'm in the studio recording a new song at the weekend and have a job interview soon, even if it is for somewhere way out of my comfort zone (Waiter/Bar work).

You need things to look forward to like this.

I'm excited to earn money again because I used to waste most of mine on crap that just sits on my shelves.

I want to buy a new guitar, a plane ticket to some place warm, some gig/theatre tickets...

 

You'll be okay...

 

Books I'd recommend (and most self-help books are utter shite) for you: 

1) Feel the fear and do it anyway

2) Feeling Good: The New Mood Therapy (the chapter on self-esteem is best and covers most of it)

3) At Last A Life (I'm pretty certain you must suffer from anxiety)

 

Just those three for now. 

Definitely the one's I've gained most insight and help from.




#3329958 Repairing the long-term damage from Accutane

Posted by IndigoRush on 28 February 2013 - 12:45 PM

Stefan,

 

Would a nutritionist be the best person to get a food allergy test done? or a gastroenterologist? or both? I havn't explored that realm yet, but i definitely believe i have food allergies. I also have a strange addiction to sushi....like real sushi...not the cooked crapped...talking raw fish and rice. I think it may have to do with the fact that it's a natural source of iodine and fatty acids....yum. 

 

The other Stef.

 

Hi...

There are tests available online, like a hair analysis, but I wouldn't trust them to be accurate.

But their is some kind of an immune-response test which can pinpoint allergies.

Haven't actually been down that route myself.

For the last week I've been eating natural yoghurt.

Seems to be helping my digestion a bit, but too early to tell.

I try to eat lots of butter because it's a good source of fat.

My skin seems quite nice at the moment.

I barely wash it, aside from using water.

I figure some people here get worse because they read information suggestion a raw vegan diet.

Though I wouldn't say eating natural foods is a bad idea, the debate is up for whether avoiding protein is smart.

I have boiled eggs and buttered toast every morning... Keeps me full for a while and the combination of carbs and protein/fat means my blood-sugar doesn't go crazy high.

 

Stef



Wow, LiveToRegret, how can you even afford $9,000? If that's Australian Dollar's I don't know how much that is in pounds, but sounds like an investment.

And it sounds like a risk.

I don't know about Stem Cells, but my opinion (from having spent large sums of money on supplements and professional help) is to avoid.

If it doesn't work out, you'll be gutted that you wasted all that money on nothing.

If it doesn't work out, you'll likely be out of money and will rely on regular income.

If the thing about potential cancer is true, that'd be a No-no for me.

 

My personal opinion is that anything that isn't natural and available for free (technically - meaning, products of Nature that aren't harvested and sold in Supermarkets) is messing with things that shouldn't be messed with. But it's your money.

 

If I were you, I'd take a break from all this and get some Sunshine and relaxation, but you live in Australia...

I live in Cold England.

 

You've never uploaded any pictures of your skin here.

I don't know why.

Nobody here is judging...


Well, I'm interested to see if it's as bad as you make out.

I don't know how bad things are for you, and I won't know without some kind of evidence.

Feed my curiosity? 




#3329659 Repairing the long-term damage from Accutane

Posted by IndigoRush on 27 February 2013 - 04:39 AM

Joe's probably right on that account.

48 hours without food won't harm you.

But, it likely won't do much good either.

 

Livetoregret, you need to change your attitude if you want to stop feeling the way you do. I'm not going to say some bullshit about people worse off than you in Africa, but in perspective, things could be worse.

You've obviously tried very hard to fix things, and that obviously hasn't helped.

You're looking for the answers in all the wrong places, and you've become obsessed with your health to the point where you're making yourself worse because of the stress.

 

I don't know the answers to why we have these problems.

Theories suggest:

 

1) Drug is still in body and causing these issues (only reason I say this is possible is because some people get side effects after stopping the 'treatment')

2) The drug flat-out just damages the body, because it's chemotherapy (however, some people seem to get none of these symptoms, so that's unexplained)

3) The drug causes autoimmune issues (It obviously can do this, because Oligirl has diabetes) in some patients

4) The drug fucks up the endocrine (hormonal) system... (Could make sense)

5) Accutane damages the intestinal lining and weakens our ability to digest what we're eating (or makes us prone to allergies/ food sensitivities)

 

Bear in mind there are a few people who have improved without resulting to fasting. Diet clearly plays a part because this drug does something to the G.I. Tract.

There are things you can do to help your body though.

First, you need to stop spending every waking moment trying to find a way out of this. You won't because you don't even know the problem. You're not going to be better today, tomorrow, in a month. Maybe not for a year or longer.

But if someone told you you would get better and don't have to do anything, and you knew for fact that your body would heal in it's own time, you'd probably relax and realise you can't do anything about it right now.

Well, that's probably true. 

Have patience because you're wasting what little energy you do have on this.

That's not to say stop trying - Just don't expect something to cure you.

If you have money, and if you're like most of us you're probably lacking, you shouldn't waste it on random supplements.

Get a saliva test for your adrenals and follow a nutritionist's advice on what to eat.

Get a test for digestive issues, as this could be why your skin looks like shit. 

I don't know, but stop searching in the dark and come up with a plan where you make the decisions, not fate.

 

And quit feeling sorry for yourself, it won't do you any good.




#3327259 Repairing the long-term damage from Accutane

Posted by IndigoRush on 16 February 2013 - 04:00 PM

So, my last post was a bit downbeat, huh?

Will be doing a YouTube update soon, but I had to face my fears and play 5 songs on stage (by myself).

I'll save what happened for the video..

For now, I wanted to ask if anyone wanted to have an ear orgasm?


Spent all day in a studio with my friend and recorded this:

 

https://soundcloud.c...-you-now-studio

 

On the subject of health, do many of you have gum problems?

My breath seems to be very bad at the moment and whenever I floss, my gums (at the back) bleed badly.

Erghh.




#3325158 Repairing the long-term damage from Accutane

Posted by IndigoRush on 07 February 2013 - 12:54 PM

This forum is about as useful as praying to a Fictional bearded man in the sky.

I'm not sure if you can delete profiles on here, but if you can, I bid you fairwell.

I'd like to say it's been nice, but it hasn't really, has it?
It's been one big waste of time, contemplating different scenarios and getting NOWHERE.

Honestly, we might as well all kill ourselves.

 

Bye.




#3323497 Repairing the long-term damage from Accutane

Posted by IndigoRush on 01 February 2013 - 05:16 AM

First of all, i want to appologize if i said something wrong. I never said i'm ignored here, but......... hmmm.......although Propecia or other meds have many common side effects with Accutane, we should realise its not the same drug. I know some people who took Propecia and got E.D., but within some months/few years, their sexual function got on the right track. On the other side, i never heard of people who got E.D. from Accutane, to reverse the damage. But maybe i'm wrong...

 

Someone suggested me here to try TOPICAL SOLUTIONS, to reverse the hair loss? Minoxidil doesnt seem to work. What's the other option?

 

Thanks guys, really appreciate your efforts.

 

Practically if Accutane induces Telogen Effluvium, there is nothing much that can be done except to wait for the effects to wear off.

Not what you want anybody wants to hear, but it's the truth!




#3323124 Repairing the long-term damage from Accutane

Posted by IndigoRush on 31 January 2013 - 02:47 AM

 

Any opinions as to suffering from the severe dryness 2 years post treatment?

Is it possible this could be a permanent side effect setting in just like the hairloss has?

My skin issues started happening last May ( already one year + off accutane) - I Did not experience dryness throughout the course. 

 

I am watching my skin dry our like an old boot, deep wrinkles are forming and theres nothing I can do this is devastating on top of the hairloss..please help guys :'(

Listen,

 

There is nothing anybody can say to make you feel better.

I'm sorry, and I have no idea how bad your skin and hair-loss are, but you have to accept that there isn't any way to fix this right now.

I don't want to sound harsh, because I know how frustrating it is and you just wish more than anything you didn't take this drug.

But you did take it and everybody here and elsewhere can empathise with you on that.

Luckily my skin isn't too dry. It's not the best, but I can deal with it.

Somehow, you're going to have to concentrate on something else. 

Or else, you can ignore my advice and sink deep into severe depression meanwhile feeling all the more stressed out that nothing is helping.

Trust me on this, you're best chance of recovery is trusting in your body's own healing powers.

Eat well, exercise and all that, but without the intention of a quick-fix.

I can't promise you that you'll ever recover and be the person you want to be, but this will consume you if you let it.

Feel free to talk to me privately if you like. 

I'm happy to offer advice.

The quote 'Life is what you make it' somewhat applies.

Of course, it isn't entirely true.

It should be 'Life is what you make of what you're given. Shit happens. Do your best to survive the shit'.

 

Sending love x

Thanks for the kind words Stef,

Ive already been deeply depressed and suicidal for over a year now, I am doing my best to cope any way I can but this has so severely impacted me to my core,i cannot function normally in my life, I spend all my spare time searching for an answer that does not exist, I am only sleeping 4 hrs a night and waking up every 2 hrs due to the anxiety. How can you function day to day  with chronic pain and discomfort?

This experience has turned me into a bitter, depressed recluse recluse because the physical impact is to much to bare, I go to work and then go home and hide from the world I am so embarrassed that this is what I have become physically and have aged so much beyond my years.

 

 I fear for the future, I fear being bald, my skin being like this forever, my stomach issues are worsening every week, my wrists and knees and shoulders ache I just cannot physically or mentally handle what this drug is capable of after discontinuing taking it.

I do not believe there is any other medication that can damage a body to the extent that roaccutane can especially after you have stopped taking it...with everything we know in the modern world how can they allow this to happen to innocent people... 

I know.

If there's something this drug induces, it's Fear.

But you don't need to worry about the Future.

You only ever have to deal with the Present, and I know that the Present sucks right now, but you need to make every effort to stop Googling everything.

I remember doing the same when I used to come home from work.

This consumed my life entirely and I was so scared.

I worried about going bald too. You need to realise that some of your thoughts are irrational. You're not going to go bald.

Honestly, I doubt your hair will get worse.

I'm not able to say it'll get better, but don't worry about things until or unless you have to.

You could say that it's a lot worse for a woman to lose hair.

Probably true, although Men are a lot more self-conscious these days.

My hair gets really wirey at the sides, but I learned to accept that and get regular hair cuts every 4-6 weeks.

I'm lucky my Dad has pretty good hair. Some people my age go bald and they can't do anything about it.

 

What you're doing (and everyone in this Forum has done the same before, and maybe they're still trapped in the cycle) is the equivalent of a War Veteran Googling for answers as to how he'll be able to play sports again. But he doesn't have legs.  

It's not to say that your problems will be permanent, but you'll likely have them for a while. There's the odd story of recovery from this, even if it's with extreme measures like fasting or going 100% Raw. To me, it doesn't mean you have to do those things, unless you think you'd find it easy. It just means it is POSSIBLE to heal from some of the damage.

Just remember that you can't possibly get better when you're stressed out.

Your body will not be able to heal during this.

You won't find the answers so the sooner you give up the battle, the better because you're energy won't be wasted and you'll have less expectations and therefore less reason to feel constantly disappointed.

 

You can go on about how terrible it is than this has happened.

You're right, it is very bad.

But that, again, won't make you feel better. 

You'll just be fixed in Victim world.

 

Yeah, sleep is going to be affected if you have Anxiety.

The mind running around constantly with fear and unresolved questions will not be a good sleep-inducer.

You should see a counselor because this isn't just Physical. 

You need to deal with how this has affected you emotionally.

There's nothing shameful about doing this. It's a form of acceptance and saying 'I need somebody's help'.

They won't be able to fix your problems, but I'm sure it's worth trying.

CBT, as I've mentioned, could help too.

A lot of your thoughts won't be rational.

 

You don't have to spend all your spare time concentrating on this.

It is a horrible trap and you need to escape it now.

I have some horrible side effects. The worst probably being really bad digestion/constipation and sexual dysfunction. It's beyond low sex drive. The guys will probably understand, if they have this problem. I would worry because when not erect (most of the time) a lot of the time my penis would be numb and look... just weird. Not what a guy wants to deal with every day! It literally shrivels up and feels like it isn't part of me, and I know a bunch of Propecia guys mention this too.

It's like something from a horror film.

BUT, I can still enjoy sex and when I do have an erection (way too much information??) it looks completely fine and I can remind myself when it is all strange looking that that's not permanent. Again, there's nothing I can do anyway apart from hope for the best.

 

I'm not happy all of the time but nobody else is and you'll come to realise that everybody on this earth has their own battles, fears and anxieties.

I really want to see you get better and the first step for you is to say 'Okay Stefan, I'm going to start making changes and I'm going to work at getting a normal life again'. I've felt more energetic since I've not been obsessing and worrying constantly about trying to fix all my side effects, or else worrying about 'what if' they never go away.

 

We weren't born to suffer for our whole life.

You gotta have the faith, the faith, the faith

 

xx