After eating really 'healthy', taking a hundred different supplements/herbs and everything else, I ended up.... WORSE.
For two reasons, I believe.
You're best chance of recovery is rest.
A lot of my symptoms (and that means nearly all of them) could be caused by mere anxiety and stress build up.
Open your minds for a moment - I bet you spend A LOT of time, if you've not in the past, trying to find answers on Google and in forums like this one.
Always feeling like you need to keep looking, because surely the answer is out there somewhere.
Maybe it's a liver cleanse, maybe it's cannabis oil... maybe it's all a bunch of old bollocks.
Without going on and on, I want to hit home with this message: Stop living an abnormal life in the shadows, trying all these ideas that are based on theory.
You don't need to cleanse Accutane out of you. You don't need to have an enema.
You need to let it all go. Just forget about trying to cure yourself.
A lot of ignorance here. Sad that you think you have enough knowledge and experience to tell people they should not change their diet and do nothing except "manage stress", you should learn some physiology before posting full of crap posts (sorry but that make me mad). Keep your deceptions for yourself.
Might I point out that I started this forum topic and have been suffering from the side effects for 8 years?
Might I also point out that over those 8 years I have tried A LOT of things. All of which have not helped.
I'm not trying to deceive, as you suggest.
My intentions were good.
To me, the blindfold has been lifted and I can see a lot of you poor sods are wasting even more months of your life over what is most likely anxiety. Anxiety after all the self-diagnosing and horror stories.
Tiredness ... Do you expect to be energetic when you batter your mind with worry, likely miss out on getting enough sleep and have an eating disorder?
Some may consider it ridiculous of me to suggest you have an eating disorder... I would have too, until recently.
Worrying about everything being organic and natural is bordering on a mental illness.
Maybe it's made it's way past the border.
I'm not suggesting diet isn't important...
What I'm saying is, I was eating organic fruits and vegetables... spending over £100 on food a week myself (and I still live at home).
Surely if the solution was diet, I'd of at least improved?
But that didn't happen.
Because although, obviously, eating natural unprocessed foods is a good thing, there lies a problem with it... especially if you have metabolic issues...
I.e. the symptoms of Hypothyroidism and Adrenal Fatigue.
It only recently occured to me that I'd been undereating for a while.
I'd estimate I was having around 1500 calories a day. That's not nearly enough.
Fasting, diets and all those things are not good for the body.
Fasting is a terrible idea. When your body is screaming 'eat.... eat' and you ignore it because you're on a juice fast or something equally stupid, well... you're just going to end up worse.
I'm not ignorant to the topic of health. Not by a long-shot.
But if you're cold a lot of the time, have a low sex drive, are prone to anxiety/depression... you're nervous system is in sympathetic mode.
That's not a good thing. You're body is stressed out.
Food is a way of de-stressing. A way of comfort.
The World is fucking god-awful at times... We're supposed to enjoy food and listen to our bodies wants and needs.
If you enjoy salty foods, you likely need more of them.
Drinking too much fluids and eating too many fruits/veg (mainly water) will flush and dilute your body... worsening things.
It's well known that when you have adrenal fatigue, you need more salt because sodium isn't easily retained.
I could go on...
Going back to some examples of being cured... Joseph came up. Rice and shrimp.
That's not fucking cured. That's absolute retarded madness. Wake up.
Avoiding all but two foods is not normal, or healthy. I don't care who says differently.
Dude who said avoiding Milk helped clear your acne..
That's great, but I doubt it has anything to do with retinol content.
Much more likely, you just are better off without milk, as are many people.
You're not the first to say their acne cleared from cutting the dairy.
And I want to re-iterate that stress and mental well-being is far more important that anything else.
If you've been to the doctors and the blood tests don't point out anything worrying... you need to work on your problem with health anxiety.
I was trying to help, not ridicule you guys.
But I don't come on here anymore, and when I (every few months or so) check in to see what you're talking about, I think 'Fucking hell. They're still at it.'
Smoke your cannabis if it makes you feel good.
Put cannabis oil on your wrist if it helps.
I'm just saying - CHILL THE FUCK OUT.
Life is too short to waste chasing answers that aren't there.
You can get better for sure, and I'm sure we all have different variations of health issues to heal, but brain fog, depression, low sex-drive... They're explainable as anxiety and exhaustion of body and mind.
And for sure as fucking Jesus, you can exhaust your body and mind with stress and false-beliefs.
Stop throwing away your hard earned cash on another supplement, that may or may not (likely not) help you.
I look forward to telling you that I'm all better in a few months, but I've only just started this new journey.
A journey of freedom.
It doesn't mean eating junk shit all the time.
But it means I'm no longer afraid of a single cookie causing diabetes.
It means, if I want fried chips ... I'll have them and enjoy them.
Once again... two most important things: EAT ENOUGH (I suspect some of you are fucking up your metabolic rate, especially if you've noticed cold hands and feed) and DEAL WITH ANXIETY. The books I recommended will help you greatly.
Or, you can ignore my advice, get angry and moan at me.
It really makes no difference to me.
Accutane affects other people differently than it does others. Basically what you're suggesting is to get over it and enjoy life. I get what you are saying and agree with you, but keep in mind that other people have had far worse experiences on accutane to the point of being contantly in pain.
Brain fog and low sex drive and depression aren't necessarily all caused by the exhaustion of the mind and body. Usually it is and the drugs amplify these issues, but not always. At least that is what I have found with me. Cutting out the unnecessary annoyances in life wherever I could has helped as has finding hobbies and interests that I enjoy doing.
I firmly believe diet greatly impacts the symptoms that one may have, so yeah what you eat is important. For instance, I've become FAR more sensitive to refined sugar, dairy, wheat and anything with a lot of carbs basically. When I cut those out I felt FAR better than I have ever been since shortly after ending my accutanne treatment 12 years ago. I still have chronic dry skin and dry eyes. No amount of water helps so perhaps I simply can't store water very well (let's just say I go to the bathroom after drinking a small amoutn of water).
Now I can live with my symptoms...I imagine things will get worse for me later on though since things have slowly been getting worse over the last 4-5 years. I'm thankful that I don't have ulcerative colitis and that I only have IBS...THAT is something you can't really enjoy life with if you have it (unless you enjoy blowing money on surgeries and spending tons of time out of work).
All of this stuff can be explained away by saying that "it hasn't been proven" or that "not everyone that took Accutane has it", but you gotta really wonder with all the reports that people have about it if it is just a coincidence or not.
At any rate, some people aren't able to enjoy life because of constant pain, multiple trips to the hospital, and just the time and money being spent trying to get back to having a "normal" life. If a person loses too many things at once, then it is nearly impossible to truly enjoy life. Luckily for me, it has been a slow progression and I personally find joy in volunteer work and writing poetry. That is all I need and want and although my joints do bother me at times, I can still write so I am happy.
Just try to be careful what you say because some people could very well take offense to what you are suggesting, especially if they have some of the more "severe" side effects of Accutane. Generalization is a VERY bad thing which will only tick others off which from what I am reading in your post is exactly what you are doing. Again I get what you are saying and I agree with pretty much all of it...just keep in mind though that any medication has a chance of messing you up pretty badly and that sleep and rest won't always cure or even help those that are experiencing side effects from medication in general.
Thanks for the reply.
I agree a lot with what you've said.
Although I definitely suffered very badly with the effects of this drug, everyone is different and some many have more issues that me.
I suppose my message was aimed at those who can relate to it.
It's an odd scenario because it's very easy to start blaming every problem in your life on 'that sodding drug I took ____ months/years ago'.
For me personally, the eye floaters and sexual dysfunction began a few years after coming off the drug.
If Accutane caused those problems, I'd like to know how...
My main point isn't in ignoring problems and just accepting them, because I think that would be very hard to do for anyone... for the rest of their lives.
However, I realised that back when I was at college (age 17-18) I didn't struggle to get out of bed and think clearly like I do now.
Things like dry eyes ... Annoying as hell, but I tried so many things for that alone and realised I was fighting a losing battle.
I think Life is too short to waste away searching over and over for an answer to something like that.
Now... I don't use any eye drops or anything. My eyes are dry upon wakening and can feel bad at times, but overall... I'm better than when I used drops etc.
I believe the reason I'm so tired now is pure anxiety and stress. A lot, un-intendedly, self-inflicted.
Bad things happen to everyone. Y'all have likely realised nobody really has it easy.
I mean, look at us. We had acne and then we end up with all these problems...
A bit of perspective can be healthy though.
I watched embarrassing bodies on TV last night (a show in the UK). I'll tell ya... that show will make you feel lucky.
The only goal in all of this, though, is to be happy and content. At peace...
I understand many people on this forum will state that's impossible. I was one of them.
If you look back at some of my posts, I'm sure you can see what kind of state I was in.
But I look back at the years of my life with some regret.
I've lost friends... partly because I was so lost in my own world with it's problems. Partly because those friends didn't make an effort...
But I think 'Wow... All the things I could have done... I've not really done much'.
Anxiety and low mood have held me back for so long.
Without going on and repeating myself my only points are these:
- You have to know when it's time to stop waiting around for a pill/supplement/diet to cure you. Don't put your life on hold and say you'll do things when 'you're better'.
- Stress can cause pretty much any problem. You've taken the drug now and there's nothing you can do to change that. Be reasonable. Sure... it's a fucking terrible drug (for some) and I'd never touch it again.... but is it really the cause of every problem in your life now?
- Anxiety could have been triggered by this drug. I've read of people who's anxiety came on after using drugs (like Marijuana). The answer is the same. You have to heal it mentally and over time. The key is to accept that you're anxious and will be for a while, because it's been going on a long time. Instead of fighting, you face the things that make you anxious and practice acceptance. For me, walking up the road past strangers on my own, or having my space invaded can put me on edge. Instead of adding more tension, worry and stress (which will exhaust you and cause physical symptoms), you tell yourself 'It's okay. I don't need to figure out why I'm like this. I've been so stressed and worried for such a long time. My body is in a heightened state and worrying makes me worse.' If you accept as best you can, how you are feeling, you will get better. Some degree of anxiety is normal anyway.
(Once again, I don't know how many of you this anxiety stuff will relate to, but I'd guess the majority, if not all).
- Depersonalization is where you feel un-real. Like you're in a bubble. Like you're friends and family could be shot in front of you and you'd feel nothing. It's just another symptom of anxiety. This used to scare me more than anything. The complete numbness.
- Get the fuck out of your comfort zone. I'm only trying to help you... because lately I've realised some things. Staying in your room, rarely leaving it... going on your laptop all night... It's just got bad news written all over it. When you're depressed and anxious, being alone will lead you to dwell on the past... fear the future and try to fix everything at once (which can't possibly happen). Get outside, so that four walls aren't surrounding you. It'll feel weird at first, but you need to change if you want your situation to improve. I used to walk round the same field every day. Rarely was anybody else ever on it. Now, I'm walking up the streets so I have to walk past people. I sit on a bench for a while... and .... nothing bad happens. You are merely afraid of feelings. Over time, you can realise you need not fear feelings.... and, ironically, those feelings will smooth out.
- Don't expect to get better over night. I sometimes prayed before bed (I don't believe in God, I was just desperate) that I'd wake up better. That's an impossible dream and will only lead to you waking up disappointed. Instead, go to bed (at a reasonable time) hoping for the courage to handle things as they are. You can psyche yourself up at any time to have courage. It's better to be angry than afraid. Get pissed off that you're life has flashed before you... Get pissed off that you've become a shadow of your former self. Fuck those people who let you down, gave up on you or walked away. Show them you're better than they thought.
Once again, I want to reiterate... The reason I won't be going on google is because I realise nearly all of my symptoms are down to stress and anxiety only. Some of you may have bowel problems, I dunno... Find what works best I guess, and stick to it.
I used to cut out foods (like gluten) because I thought 'Maybe I have a gluten intolerance'... all because I'd read how bad gluten is. Yet, I had no real reason to believe I had an issue with gluten and millions eat it every day and are healthier than me... Sure, they didn't take a drug... But I was changing my diet and becoming bored at times with what I was 'allowed' to eat. Yet, over months... nothing I did was making a difference. Lifestyle and stress are very important. You can eat as healthy as you want but if you're putting yourself in a constant state of panic about your health, or anything else, you're body won't function right. Constipation and all sorts can be caused just from the thoughts you have.
If you think I'm full of shit, feel free to write this off as a bunch of rubbish.
For those that may read and think 'Yeah... this guy actually speaks some sense' ... I'm glad to of helped.
Have a good day.