Im sorry to hear that. Actually I experienced the same, birth control caused my acne too. But I can totally understand your aversion to going back on the pill. I agree with what the other ladies have said pair it with an antibiotic and hopefully that'll keep the cysts at bay. Sending you lots of positive energy and hope you clear soon! Stay strong!
Posted 20 July 2014 - 11:17 AM
Thank you Krissy--I really appreciate that. I am hoping to hear back from the office tomorrow about Keflex. Fingers crossed please!!! In the mean time, trying to stay positive. Day 66 for me I believe, so not quite a week into my third month.
I really, really hope this works.
As for the pill, yeah, not in my near future of going back on it. I want to be stable first before adding anything else new/foreign to my body.
Posted 21 July 2014 - 12:54 PM
Alright, day 66 I believe?
Anyways, my chin is having a spotting frenzy coupled with the left side of my face. Oh joy. My dermatologist did call in 500mg/once daily of keflex that I can pick up later today. Hopefully it helps calm my skin until the Spiro can fully kick in. I also go to see my dermatologist on August 23rd for a follow-up. By that time it will be well past three months on Spiro, so hopefully good things can be seen, and I can be stable. Fingers crossed. It is so hard staying optimistic when I cannot even run my hand across my skin without it being slick with oil or hurting from a cyst or pimple. Face, neck. Jawline. All red and bumpy and gross. I feel, and I know I look hideous.
I swear two months and a week in, and I am still this bad??? I want to cry.
Edited by kirks, 21 July 2014 - 01:08 PM.
Posted 22 July 2014 - 12:13 PM
I think this is actually day 68....
New BIG cyst forming by my right ear lobe. Has a matching but smaller one on the left earlobe. Two big ones on my neck. My left cheek is flaring up like no other. There is a cyst forming, I can feel it, and it is already painful. I have pimples up my temples. They are especially bad all along my chin. My jawline is still such a mess.
Simply put--worse. No improvement. This is day two on the keflex as well.
So about nine weeks, my skin is horrible. Day two on Keflex. Everything is inflamed and nasty looking. So miserable and upset. This is awful it never ends, it just gets worse.
Posted 22 July 2014 - 01:06 PM
dont worry it will get better i can assure you but i think you need at least 500mg of keflex twice a day though. sometimes they even prescribe it three times a day so it will work it will just take a little longer. i would wait a week and then if you need to call the derm and tell them you need a higher dose. my derm said the normal course is 500mg twice a day for 8 weeks.
Posted 22 July 2014 - 01:32 PM
My derm is unfortunately so stubborn and not helpful. I'll call tomorrow and talk to her again...I don't know why she is so difficult when clearly nothing she has done in the past has helped.
Posted 22 July 2014 - 01:40 PM
yeah it is very frustrating to find one that actually cares that is for sure. i was supposed to go on accutane twice but this last time i was so convinced that the keflex would work that i begged the doctor to try one last thing before i started the accutane and continued on the spiro. thank god she wrote the script because it was amazing how fast i cleared up and like all the inflammation just went right down. i am so glad i didnt go on accutane because i do think the spiro works really well but just takes like 6-9 months to fully kick in. its the first few months that are like total hell though.
Posted 22 July 2014 - 02:44 PM
Thank you Tracy. I will call and speak to her directly tomorrow (when she is in the office, as she is only in two days a week). She needs to know how severely this is affecting my quality of life. I don't go out if I can help it. Work, school, groceries. That's not living. I do not understand why she is so hesitant when I have not had any adverse reactions to any medications before. She knows how severe this is! AGHHHH.
The left side of my face is seriously such a mess. The neck and jawline and chin and temples too. I hate this. Sorry for always saying the same spiel, but it just keeps getting worse
Posted 22 July 2014 - 02:57 PM
Yes some dermatologists are very stubborn about prescribing meds. I had a derm who wouldn't give me anything but topicals so I had to change doctors. I have a good dermatologist now but unfortunately I might have to change since our insurance is going to make us pay $80 co pay and we are only paying $40 now. Im afraid the next derm wont even give me Spiro and ill be back to square one again.
Posted 22 July 2014 - 04:12 PM
As if things cannot get any worse, I have a neck rash that has spread down to my chest. It looks like a sunburn. I do not think it is the keflex, as this rash started before I began taking it. I think it might be klonopin which I was recently prescribed and have taken at night to help me sleep. Probably the inter-mixing of all these drugs. I'm not sure.
But now along with a cyst-filled face, I have a lobster-red neck and chest. With the ever-present cysts and scarring still on my neck. This is dreadful. When will this nightmare end? Oh, this just in, ANOTHER cyst in the middle of my left eyebrow. Spiro just isn't working. I've read through everyone's pages on here practically, and no one ever had as many cysts as this. No improvement whatsoever. It is worse. Far worse.
Edited by kirks, 22 July 2014 - 04:48 PM.
Posted 23 July 2014 - 06:47 AM
Kirks, when starting any new acne medication, the waiting game to see if it will work is one of the hardest. Especially with something like Spiro. I find that my constant habit of looking in the mirror worsens things emotionally for me so i suggest you limit doing that. Also, from the many logs i've read, many people report pretty knarly IB before results are seen 2-4 months in.
My on;y piece of advice is to distract yourself as much as possible with things and people that you enjoy
Chin Up hun!
Posted 23 July 2014 - 08:17 AM
try to hang in there even though i know how hard this is for you. do you get any of the cysts injected? when i was breaking out bad i went in for weekly injections until i got on the keflex because my cysts would never go away and even though it took time since they diluted the cortisone i believe it helped me get through that awful time. i 100% know how you feel though i didnt go out for 6 months i was in such a deep depression i thought i would never get out of and my poor hubby was so sad because there wasnt anything he could do to help me. the best thing you can do right now is to force yourself to go out and do something - anything just to get out of the house and try to keep up your regular routines so keep exercising and doing what you love because you will get through this and you will get to the other side. just try to hang in there and you can pm anytime. sending hugs and prayers your way
Posted 23 July 2014 - 09:56 AM
I just can't keep doing what I love and going out when I wake up with new cysts every single morning. There are three right by me earlobe (one huge one), and matching ones on my other earlobe. Gathered ones on my jawline and neck on both sides. To accompany the one above my left eyebrow, there is now the biggest cyst I have ever experienced right on the inner eye/nose area. It matches the scattered ones all along my left cheek and temple. Inflamed and scarred ones, it is just a red mess. Still with the rash on my chest/neck area.
I don't get it, I've never had this many cysts before in my life, not even before the spiro!!!!! This is the ABSOLUTE worst my skin has ever been. As I've said before, I live across the state from my dermatologist. I am visiting home this weekend, so I scheduled an appointment with another doctor to get injections because my doctor is only in two days a week.
I don't think this is a normal reaction to being on Spiro. This many new cysts flourishing on my skin, still super oily, and new pimples/cysts in places they have never been before? I think spiro is making my skin worse. Over two months now, something is not right. I think I am the odd one out in spiro not working.
Posted 23 July 2014 - 10:45 AM
Well speak to the new Dr when you see him/her. If the breakout is above and beyond what you can tolerate then stop and see if things slow down.
My heart goes out to you hun
Posted 23 July 2014 - 02:25 PM
I just don't know what to do because spiro isn't working. I really don't want to go back on accutane, it obviously wasn't a solution for me. Neither were antibiotics nor topicals.
Posted 23 July 2014 - 07:09 PM
I feel you about accutane not being a cure. Why not ask your derm to sign you up for it. Since there is a 1 month waiting period, you can give spiro that extra month to kick in. Knowing that accutane is an option may at least calm your anxiety a bit.
Have you had your hormones tested?
Posted 23 July 2014 - 07:14 PM
I already did that--I have the iPledge stuff, would just need to get my bloodwork done. I still don't think I'll do it because of all the side effects. I already have joint issues. I have not had my hormones tested. I don't know what good that will do, or if there is any other medicine that can be given if irregularities are found. I mean, I'm already on spiro?
My face is still a mess (beyond the 7th circle of hell), and my rash is slowly, slowly calming down a bit. I'm depressed out of my mind and not sure what to do next. I just want spiro to work for me.
Posted 25 July 2014 - 07:13 AM
i really think spiro is going to work for you but it will take a lot longer to fully kick in. i would give the keflex time to work even though its hard. what did the derm say about increasing your dosage to twice a day? you figure they even can prescribe it for 3 times a day as well. also did you say you were trying to get in for injections? that will help so much. just keep an eye on your skin and i believe that in the next few weeks you wont be gettting nearly as many cysts at all or if any. also prednisone can be used too if you are like really going crazy and cant take it any longer. i know its hard i totally get where you are coming from each day you just feel more beat down than the last but you can get through this. at least its friday and you can just try and relax a bit over the weekend.
just know that i am thinking about you and sending prayers your way. keep me updated on things.
Edited by tracy521, 25 July 2014 - 07:15 AM.
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