Jump to content

Photo

Has Anyone Experienced Noticeable Hair Loss On Spironolactone?

spironolactone hormonal acne hair loss spiro ortho tri cyclen lo

24 replies to this topic

#1 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 21 October 2013 - 08:05 PM

A little more than a year ago I was prescribed Spironolactone for cystic acne. I had it very deep around my chin and mouth. Before, I of course had very oily skin. It was basically uncontrollable. I had tried a few things for it, but my derm basically jumped straight to the Spiro. A couple months before, I was also put on Ortho Tri Cyclen Lo. I had a good year with this combo. I literally don't have any acne left, but there is a huge problem, my hair is literally just falling out. I have never ever in my life had this problem. I am a 21 year old female with zero family history of hair loss. I saw my derm back in July and she denied that Spiro could cause this. Back at that time, the hair loss was noticeable to me, just because i know my body and when something is right and wrong. Well, I was forced to sort of put it behind me because she said that it wasn't possible. Obviously I was frustrated, but there wasn't much i could do, as my potassium, iron, and thyroid were all checked and all fine.

 

Anyways, here I am in October with HORRIBLE shedding! I mean, when I comb my hair after a shower, clumps are falling out. I take vitamins and stay as healthy as possible. Even during the day my hair is falling into my lap and all over my arms. It is quite irritating and also mortifying. I am trying not to stress about it, as i know that will make it worse, but its a bit hard to stay positive about this.

 

So i just saw my derm and she did a pull test. It wasn't good... a few pieces came straight out with the plugs on the end. On top of hairloss, my scalp is TERRIBLY itchy, but there is NOTHING. No dandruff, no rashes, nothing. She told me to stop taking the Spiro, so i did. She said she's never met a person who had hair loss caused by a medication that is prescribed FOR IT, but that I might be the exception. I guess the ultimate question is, has ANYONE been on Spiro this long and experienced this? i would really appreciate it if maybe someone could shed some light on this situation. 

 

I stopped the Spiro and I know it's too soon for the hair loss to stop as that was just 4 or 5 days ago.

 

Any thoughts?



#2 Like Moonlight

Like Moonlight

    Member

  • Moderators
  • Posts & Likes
    Posts: 664
    Likes: 114
About Me
  • Gender:Female
  • Joined: 17-May 13

Achievements

     

Posted 21 October 2013 - 09:03 PM

Hi, I have been taking spiro for about a year now, with great success. I started taking spiro after an accutane course. I started to get random acne here and there and I freaked and didn't want to go back on accutane so I decided on trying spiro. Right after I finished my accutane course my hair started falling out like crazy, I swear I must have lost 25% of my hair. It thinned out like crazy and I was losing huge amounts in the shower.

I started spiro and I was concerned about hair loss with this medication as well. If you read about spiro you see that it has helped people with excess , dark hair. Spiro mutes out your testosterone levels so that excess dark hair growth stops. I wasn't sure how that would affect my hair on my head. My obgyn said it does not affect head hair and side effects do not include hair loss. Once I started spiro my hair actually stopped shedding.

If you can't link your hair loss with anything else, besides starting the spiro, I would assume your reacting to the medication differently than the majority. If spiro is indeed the cause and you find that your acne returns, you could ask your dermatologist about topical spiro. That way the medication is just in your skin rather than running through your system.

#3 talenaabrams

talenaabrams

    Junior Member

  • Members
  • Posts & Likes
    Posts: 33
    Likes: 0
About Me
  • Joined: 11-November 11

Posted 21 October 2013 - 09:21 PM

Yes but it decreased and went back to normal with time. 



#4 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 21 October 2013 - 09:22 PM

That is interesting, I have never heard of topical Spiro. Unfortunately I know that my acne has a huge chance of returning, so I'll definitely ask about that!



#5 Like Moonlight

Like Moonlight

    Member

  • Moderators
  • Posts & Likes
    Posts: 664
    Likes: 114
About Me
  • Gender:Female
  • Joined: 17-May 13

Achievements

     

Posted 21 October 2013 - 09:26 PM

The topical spiro is pretty new to the market.

#6 paigems

paigems

    Member

  • Veteran Members
  • Posts & Likes
    Posts: 892
    Likes: 107
About Me
  • Joined: 24-October 08

Posted 21 October 2013 - 10:23 PM

I had the same experience with spiro and also with yaz and yasmin. My hair got so thin on spiro, and continued to fall out until a few months after I stopped taking it. Thankfully it grew back! We're not alone; I've seen a lot of other people complaining of the same problem.



#7 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 21 October 2013 - 10:30 PM

I had the same experience with spiro and also with yaz and yasmin. My hair got so thin on spiro, and continued to fall out until a few months after I stopped taking it. Thankfully it grew back! We're not alone; I've seen a lot of other people complaining of the same problem.

Thanks for that! I don't feel so alone now! I'm glad to hear that your hair grew back. :) Hopefully I will have the same outcome.



#8 Green Gables

Green Gables

    RETIRED

  • Veteran Members
  • Posts & Likes
    Posts: 2,939
    Likes: 392
About Me
  • Gender:Not Telling
  • Joined: 06-June 11

Posted 21 October 2013 - 11:08 PM

The hormonal changes initiated by spironolactone can cause a telogen effluvium. Usually this state of hairloss is TEMPORARY and the hair will grow back over time. In some people who already had scalp hair loss, the hair will actually grow back thicker than it was before.

 

Because of testosterone affects hair follicles differently depending on where they are in the body, antiandrogens typically INCREASE scalp hair and REDUCE body hair and facial hair.

 

A very small minority do not fare well on spironolactone and the hair loss does not stop until you come off the drug. If you think this is you, please have your vitamin D tested by a doctor. Vitamin D levels have documented crucial roles in the hair shedding cycle. If spironolactone is able to plunge you into a never-ending hair shedding cycle, you probably have some other problems going on already.


Edited by Green Gables, 21 October 2013 - 11:08 PM.


#9 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 22 October 2013 - 09:32 AM

The hormonal changes initiated by spironolactone can cause a telogen effluvium. Usually this state of hairloss is TEMPORARY and the hair will grow back over time. In some people who already had scalp hair loss, the hair will actually grow back thicker than it was before.

 

Because of testosterone affects hair follicles differently depending on where they are in the body, antiandrogens typically INCREASE scalp hair and REDUCE body hair and facial hair.

 

A very small minority do not fare well on spironolactone and the hair loss does not stop until you come off the drug. If you think this is you, please have your vitamin D tested by a doctor. Vitamin D levels have documented crucial roles in the hair shedding cycle. If spironolactone is able to plunge you into a never-ending hair shedding cycle, you probably have some other problems going on already.

 

I have actually researched and now I'm starting to think it is telogen effluvium. Thanks for that information. I am actually planning to get tests run soon by my doctor to rule out other problems. I never thought about the vitamin D, that is something I really need to have checked. I had no idea that could effect hair, but then again it seems like everything does! 



#10 paigems

paigems

    Member

  • Veteran Members
  • Posts & Likes
    Posts: 892
    Likes: 107
About Me
  • Joined: 24-October 08

Posted 22 October 2013 - 10:53 AM

My vitamin d was normal when I was taking spiro and my hair still fell out.

#11 talenaabrams

talenaabrams

    Junior Member

  • Members
  • Posts & Likes
    Posts: 33
    Likes: 0
About Me
  • Joined: 11-November 11

Posted 22 October 2013 - 05:21 PM

My dermatologist said topical spiro didn't exist. I asked last Thursday. She even ran a search to make sure in case it was super new.



#12 Green Gables

Green Gables

    RETIRED

  • Veteran Members
  • Posts & Likes
    Posts: 2,939
    Likes: 392
About Me
  • Gender:Not Telling
  • Joined: 06-June 11

Posted 22 October 2013 - 10:03 PM

My dermatologist said topical spiro didn't exist. I asked last Thursday. She even ran a search to make sure in case it was super new.

 

Study using topical spironolactone.

 

A post on here from someone who got a prescription for it. 

 

hanks.  If anyone else reading this is curious, the topical treatment is going well.  It's kind of a liquid consistancy--like a toner.  I had a little breakout initially, but it's clearing up nicely and as of right now I have no active marks with no side effects.   We'll see how it goes!

 

You can buy it over the counter for hair loss but the cream is perfectly safe to use on your face. So you don't need your derm's help on this one. If you search the boards, there's at least one person who had great success with that specific cream in the link.


Edited by Green Gables, 22 October 2013 - 10:04 PM.


#13 karmadog

karmadog

    New Member

  • Members
  • Posts & Likes
    Posts: 3
    Likes: 0
About Me
  • Joined: 12-January 09

Posted 24 October 2013 - 03:55 PM

Hi,

I started spironolactone about 7 months ago. I noticed minor hair shedding within about a month. I got up to 100mg daily. My skin cleared up within 2 months and I stopped worrying about the shedding. However, a couple weeks ago my scalp starting feeling itchy and irritated. I then noticed how thin my hair had actually become, especially over the crown of my head!!! My hair has also become very dry and brittle.

I stopped sprio this week. My derm said that hair loss is a common side effect. I'm now MORTIFIED and hope that it will grow back in. I also hope that my skin doesn't explode again. I don't know which is the lesser of 2 evils, thin hair or acne. I am now sporting a "comb back" with my layers to hide the thinning areas. Sheesh.

Edited by karmadog, 24 October 2013 - 04:09 PM.


#14 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 24 October 2013 - 04:38 PM

Hi,

I started spironolactone about 7 months ago. I noticed minor hair shedding within about a month. I got up to 100mg daily. My skin cleared up within 2 months and I stopped worrying about the shedding. However, a couple weeks ago my scalp starting feeling itchy and irritated. I then noticed how thin my hair had actually become, especially over the crown of my head!!! My hair has also become very dry and brittle.

I stopped sprio this week. My derm said that hair loss is a common side effect. I'm now MORTIFIED and hope that it will grow back in. I also hope that my skin doesn't explode again. I don't know which is the lesser of 2 evils, thin hair or acne. I am now sporting a "comb back" with my layers to hide the thinning areas. Sheesh.

 

I'm sorry this happened to you too! You're lucky your derm actually acknowledged this side effect. Mine completely denied it. Your symptoms sound almost identical to mine. I have had a very itchy scalp and my hair doesn't feel like it used to. On top of that, my scalp has been really sore around the crown of my head. It feels like I hit it on something several times. I can't decide what is worse either. I feel your pain. I just couldn't see myself continuing this drug because I know hair loss has NEVER happened to me, and it's really embarrassing :/. At least with the acne, maybe there are other options.

 

I am curious to know how long it will take for the acne to return.



#15 karmadog

karmadog

    New Member

  • Members
  • Posts & Likes
    Posts: 3
    Likes: 0
About Me
  • Joined: 12-January 09

Posted 24 October 2013 - 05:07 PM

Thank you ;)

My skin has become very oily already, so I'm pretty sure acne is not far behind. I will just have to be more aggressive with topicals.I'm kinda happy to get off spiro. It seems so risky to take something that alters your body so much.

#16 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 24 October 2013 - 07:52 PM

Thank you wink.png

My skin has become very oily already, so I'm pretty sure acne is not far behind. I will just have to be more aggressive with topicals.I'm kinda happy to get off spiro. It seems so risky to take something that alters your body so much.

 

I feel the same way. I didn't want to be on it for more than a year because I don't think its really safe to stay on drugs for a long while. 



#17 michi31

michi31

    Member

  • Veteran Members
  • Posts & Likes
    Posts: 458
    Likes: 52
About Me
  • Gender:Female
  • Joined: 30-August 12

Posted 25 October 2013 - 08:17 AM

If you are planning to get off in a year then I wouldn't even bother with it - it can take half that time or more to reach full effects. Also many studies have been done showing Spiro IS safe long-term. but it's good you got off with the hair loss issue!


Edited by michi31, 25 October 2013 - 08:33 AM.


#18 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 25 October 2013 - 11:29 AM

If you are planning to get off in a year then I wouldn't even bother with it - it can take half that time or more to reach full effects. Also many studies have been done showing Spiro IS safe long-term. but it's good you got off with the hair loss issue!

 

I have been on it for more than a year. It actually only took about 5 months to eliminate my acne, although who knows. My acne will probably come back completely. I've been off of it for 8 days as of today, so i'm expecting it any time now!



#19 karmadog

karmadog

    New Member

  • Members
  • Posts & Likes
    Posts: 3
    Likes: 0
About Me
  • Joined: 12-January 09

Posted 25 October 2013 - 04:24 PM

Thank you wink.png

My skin has become very oily already, so I'm pretty sure acne is not far behind. I will just have to be more aggressive with topicals.I'm kinda happy to get off spiro. It seems so risky to take something that alters your body so much.

 

I feel the same way. I didn't want to be on it for more than a year because I don't think its really safe to stay on drugs for a long while. 

I went to my hairdresser today.  She said that she sees new hair growth over the thinning areas.  She also said that the new growth hairs are very fine at the tip, so it's hard to notice them when they first come in.  I am pretty relieved :)  Hopefully yours is not far behind!



#20 DaniJ

DaniJ

    New Member

  • Members
  • Posts & Likes
    Posts: 12
    Likes: 0
About Me
  • Gender:Female
  • Joined: 21-October 13

Posted 26 October 2013 - 12:32 PM

 

Thank you wink.png

My skin has become very oily already, so I'm pretty sure acne is not far behind. I will just have to be more aggressive with topicals.I'm kinda happy to get off spiro. It seems so risky to take something that alters your body so much.

 

I feel the same way. I didn't want to be on it for more than a year because I don't think its really safe to stay on drugs for a long while. 

I went to my hairdresser today.  She said that she sees new hair growth over the thinning areas.  She also said that the new growth hairs are very fine at the tip, so it's hard to notice them when they first come in.  I am pretty relieved smile.png  Hopefully yours is not far behind!

 

Yay I'm so happy for you! My hair loss has really calmed down A LOT. Everyday it seems to get better.






1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users