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Ultra Low Dose Accutane Experiment

ultra low dose accutane long skin oily acne term isoretinoin

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#61 emp2thy

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Posted 02 November 2013 - 02:06 PM

Update :

Still going strong! Zero side effects now! Skin is 100 clear and smooth. And it's only been less than 2months!

Scratch that it has been 69 days since I took 10 mg a day

 said it here.

but all good. glad low dose accutane is working well for you. i'll probably get mine when i can.


Edited by emp2thy, 02 November 2013 - 02:07 PM.


#62 yunchang

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Posted 03 November 2013 - 01:33 AM

Omg my sincerest apologies. I will fix that right away. Just to clarify again. Never have I taken accutane daily for this low dosage experiment. Only weekly. 30 mg was my highest. But mostly (and currently), I am on 15 mg a week.

Update :
Still going strong! Zero side effects now! Skin is 100 clear and smooth. And it's only been less than 2months!
Scratch that it has been 69 days since I took 10 mg a day

 said it here.
but all good. glad low dose accutane is working well for you. i'll probably get mine when i can.

Edited and fixed! Thanks!

#63 TheASTMstandard

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Posted 05 November 2013 - 09:56 PM

I started 10mg of Epuris ( A brand of accutane ). Just today, took my first pill. Didn't feel anything.....I took 40mg before for a week or so. The first pill I took I felt something when I took a 40mg. This time, nothing. I'm looking to do long term, but probably will ask to ramp the does up if the side-effects are tolerable..

 



#64 TheASTMstandard

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Posted 05 November 2013 - 10:14 PM

Also did your diet changed while on accutane. Did your lifestyle change overall due to Accutane. Currently I go out of my way to change bedsheets, stay clean of alcohol, eating as healthy as possible,etc. Would you slack on it a bit seeing the success of the drug?



#65 freefood

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Posted 08 November 2013 - 05:30 AM

How long do you plan on taking low dosage accutane?



#66 yunchang

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Posted 08 November 2013 - 08:27 PM

Also did your diet changed while on accutane. Did your lifestyle change overall due to Accutane. Currently I go out of my way to change bedsheets, stay clean of alcohol, eating as healthy as possible,etc. Would you slack on it a bit seeing the success of the

I do not eat processed foods, sugary drinks, and every single type of junk food. I always try to eat at home where I know what is going in my food. I stopped smoking and I stopped alcohol. Yes, I slack on it a bit and I can cheat because of Accutane. However, I rarely cheat because I know certain foods increase sebum production and that leads to acne. Beer and smoking also cause me to break out so fuck that stuff. And, the doc told me not to smoke or drink while on Accutane.

 

 

How long do you plan on taking low dosage accutane?

 

I plan on taking it until it stops working. Currently, it makes a profound difference in my skin (in a good way) so I will continue. 



#67 Herbie Hancock

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Posted 14 November 2013 - 06:46 AM

How long have you been taking accutane now yunchang?

 

On 20mgs a week, is there dry lips or dry eyes?



#68 yunchang

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Posted 16 November 2013 - 09:25 AM

How long have you been taking accutane now yunchang?
 
On 20mgs a week, is there dry lips or dry eyes?


Been on this low dose for 178 days. On 20mg a week I don't get dry lips or eyes.

I wish it always kept me clear 24/7 but I get acne sometimes. It has reduced my oil greatly so I'm going to stick with it. Clear right now but I know I'll get some once in awhile. I'll keep u guys updated!

#69 BecomingKnock

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Posted 17 November 2013 - 01:38 AM

Hi Yunchang- thank you for all this information. I have finally had it. I've done everything, literally everything besides accutane for my cystic acne. I decided to call the dermatologist Monday to talk to her about Acvutane.
I know drinking is off the table (but I think it triggers my acne anyway), I eat fairly well. Working on cutting out sugar and processed foods, as I need to anyway - again, I think it's a trigger.
I'm nervous about the toxicity, the dry skin- ( my skin is different. I actually have dry skin to begin with) and the chapped lips.
I know myself so well, I'm certain my face will redden and my lips will chap.
My questions are this :
1) did you have to take a regular dose the first time you tried accutane? Is this maintenance?
2) can I suggest to my doctor to start me off super low to see how I do and build from there? Is that common?
3) how long does the initial break out take to come and go?
4) are you able to use any sunscreen you want? Is your skin more sensitive?
Thanks in advance for the information. Thanks for the months of updates!

#70 yunchang

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Posted 19 November 2013 - 09:23 PM

Hi Yunchang- thank you for all this information. I have finally had it. I've done everything, literally everything besides accutane for my cystic acne. I decided to call the dermatologist Monday to talk to her about Acvutane.
I know drinking is off the table (but I think it triggers my acne anyway), I eat fairly well. Working on cutting out sugar and processed foods, as I need to anyway - again, I think it's a trigger.
I'm nervous about the toxicity, the dry skin- ( my skin is different. I actually have dry skin to begin with) and the chapped lips.
I know myself so well, I'm certain my face will redden and my lips will chap.
My questions are this :
1) did you have to take a regular dose the first time you tried accutane? Is this maintenance?
2) can I suggest to my doctor to start me off super low to see how I do and build from there? Is that common?
3) how long does the initial break out take to come and go?
4) are you able to use any sunscreen you want? Is your skin more sensitive?
Thanks in advance for the information. Thanks for the months of updates!

 

1. Yes, I would recommend doing a full course first! Because there is a chance that you may not have to do low maintenance if you have a successful first course! Listen to your doctor and you will be fine.

2. Yes, you can start low...but I would not ultra low dose like me. You have cystic acne, you need a higher dosage. But since you have dry skin, your doctor will probably give you a smaller dosage than the full.

3. Initial breakout will come. Mine was not as severe, but it definitely came. It will come within the first month if you are on full dosage, but it should reside within a week.

4. You HAVE to use sunscreen everyday! Heck, even if you have never touched accutane and your skin is already tanned, I would tell you to use sunscreen everyday! If you are going to be out in the sun, use it. The sun can be very damaging to our skin!

 

Yes, your lips will dry and your cheeks will redden! For sure. The higher the dose, the worse the cheeks and lips will dry. My cheeks were so red! Lol, but it all goes away once you finish. good luck! if you have any more questions, just ask me! 



#71 Melie87

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Posted 25 November 2013 - 08:51 PM

I am on Spiro and have dramatic positive changes. It is the second month. I wanted to try this before Accutane. My face is smooth and my scaring is subsiding. I think all women should def look into Spiro, before the accutane plunge, I knew my acne was hormonal, and I realized after hormone testing that my DHEA level was way out of wack even tho it said that I was wihtin the "normal" range. I investigated. And hopefully this is my cure. I will post a picture of me without make up on.


We need to feed our skin

as we'd feed our bodies

a delicate rhythmic dance

we all deserve to find.

 

Eminence Organics

-probiotic cleanser

-hungarian face mask

-citrus exfoliating wash

 

Acure Organics

-sensitive facial cleanser

(alternating face washes helps

so my skin does not become resistant)

 

Spironolactone 25 mg 2x daily

Retin A Micro every other night

Clindamycin every other night

Clindamycin during day under light 100% Pure Mineral Powder on T zone

NO DAIRY, NO CAFFEINE, NO SUGAR!

 

 

 


#72 TheASTMstandard

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Posted 28 November 2013 - 07:31 AM

I'm a month into Low Dose as well. 10 mg/day. I've been put to 20 mg/day as of this week. I had no listed side-effects from 10 mg except for more drying of my hands, and "chappier" lips. Even with those, I could still manage without lipbalm if I drank enough water. Feeling the benefits though...

Frequency of new pimples are decreasing, but i'm still not satisfied yet...



#73 yunchang

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Posted 02 December 2013 - 03:15 AM

I'm a month into Low Dose as well. 10 mg/day. I've been put to 20 mg/day as of this week. I had no listed side-effects from 10 mg except for more drying of my hands, and "chappier" lips. Even with those, I could still manage without lipbalm if I drank enough water. Feeling the benefits though...

Frequency of new pimples are decreasing, but i'm still not satisfied yet...

 

im glad you are taking accutane but I just want people to be sure that what I am doing is 20 mg a WEEK. Not 10 mg each day or not 20 mg each day. my experience is for those who are doing ultra low dosing for long term instead of the average 5-6 month course.



Update:

 

My skin is doing really really well. I am not 100% clear because I do have some signs of tiny acne. But unless you are kissing me with your eyes open...you will think I am 100% clear. Been eating healthy, exercising, sleeping well, and no fapping (lol). just a lot of self control in eating and exercising. i hope accutane keeps working... 

 

 



#74 purple123

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Posted 02 December 2013 - 08:34 AM

Yunchang, wow, that *is* ULTRA low!  I was on low dose for basically a decade, with regular breaks (about a month to six weeks each year). I was taking about 40-60mg each week (so, let's say 50mg per week on average), usually in 10mg or 20mg doses every second or third day.  I didn't have any side effects except for almost clear skin (I was still getting breakouts around my period, but nothing I really worried about). At that dose, it would take between three to four years to match a single "traditional" course of accutane, so you could say I've been on three courses.

 

I was side-effect free on this regimen until this year. About six months ago, I noticed mild hair loss and significant crepitus in my knees (crackling and popping sounds, but no pain).  The hair loss is now subsiding and could well have been the result of a very stressful event last summer, and the crepitus is common in my family, so these could be totally independent of accutane, but I've stopped accutane as well as running, and am working on strengthening some muscles supporting my knee cap.  After stopping the low-dose accutane, I was on doxy for a few months and then got sick of how finicky it is (you really have to be careful how you ingest it so you don't give yourself an ulcer, which I did, multiple times -- oops). Now I'm on 25mg of spironolactone which is keeping me almost entirely clear.  I had taken spiro in my early 20s and needed 100mg per day, but now this small daily dose of 25mg seems to be enough.

 

I wouldn't recommend low dose isotretinoin over such a long term to anyone without proper supervision and blood tests. It is not a well studied approach, and risking musculoskeletal or other unknown systemic consequences is simply not very smart, to put it mildly. However, it would indeed be interesting to see some serious attention be given to this approach by the research community.

 

Yunchung, what does your doctor say about your approach now that you've been on it for a while? Does s/he still dismiss it as laughable? I must admit that dose sounds too low for your body to even register it, but if it's working, who are we to argue?



#75 yunchang

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Posted 04 December 2013 - 01:28 AM

Yunchang, wow, that *is* ULTRA low!  I was on low dose for basically a decade, with regular breaks (about a month to six weeks each year). I was taking about 40-60mg each week (so, let's say 50mg per week on average), usually in 10mg or 20mg doses every second or third day.  I didn't have any side effects except for almost clear skin (I was still getting breakouts around my period, but nothing I really worried about). At that dose, it would take between three to four years to match a single "traditional" course of accutane, so you could say I've been on three courses.

 

I was side-effect free on this regimen until this year. About six months ago, I noticed mild hair loss and significant crepitus in my knees (crackling and popping sounds, but no pain).  The hair loss is now subsiding and could well have been the result of a very stressful event last summer, and the crepitus is common in my family, so these could be totally independent of accutane, but I've stopped accutane as well as running, and am working on strengthening some muscles supporting my knee cap.  After stopping the low-dose accutane, I was on doxy for a few months and then got sick of how finicky it is (you really have to be careful how you ingest it so you don't give yourself an ulcer, which I did, multiple times -- oops). Now I'm on 25mg of spironolactone which is keeping me almost entirely clear.  I had taken spiro in my early 20s and needed 100mg per day, but now this small daily dose of 25mg seems to be enough.

 

I wouldn't recommend low dose isotretinoin over such a long term to anyone without proper supervision and blood tests. It is not a well studied approach, and risking musculoskeletal or other unknown systemic consequences is simply not very smart, to put it mildly. However, it would indeed be interesting to see some serious attention be given to this approach by the research community.

 

Yunchung, what does your doctor say about your approach now that you've been on it for a while? Does s/he still dismiss it as laughable? I must admit that dose sounds too low for your body to even register it, but if it's working, who are we to argue?

 

In Korea ultra low dosing is common for isoretinoin. They hand out isoretinoin like candy here. Also, the doctors approach is nowhere near as dramatic as the USA. In America, they blast you with a full course for 5 months. Here, the dosage is a lot smaller and long term.

 

My doctor does this with many of his other patients. Frankly, it is my firm belief that ultra low dosing for maintaining skin after accutane should be standard procedure. It helps so much and I am currently getting little to no side effects. I think we will see more and more research coming out. Check out the study done by Plewig for more info.


Edited by yunchang, 04 December 2013 - 01:29 AM.


#76 purple123

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Posted 05 December 2013 - 10:46 AM

Thanks! Yes, I know the Plewig study. Would love to see someone do a follow up with longer term treatments.



#77 yunchang

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Posted 10 December 2013 - 03:52 PM

Update:

 

It has been 202 days since I started this experiment. My skin has never been better. Right now I am 100% clear. 100%. I learned that a good diet is very influential in the condition of my skin. 

 

Eat clean people!



#78 ciaraki13

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Posted 11 December 2013 - 01:44 PM

Yunchang! Thanks so much for taking the time to do this blog. I have just read it from start to finish. I saw a dermatologist privately yesterday after being refused Accutane on the NHS (UK). The private dermatologist is starting me on low dose Accutane this Monday. I was so excited I didn't ask what dose etc. I was actually restraining myself from kissing him in delight. I have been sooooooooooo oily for a very long time. My face IS Saudi Arabia. I want it to be the Gobi desert. Fingers crossed. And toes. And eyes



#79 XXYY

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Posted 11 December 2013 - 02:02 PM

Yunchang! Thanks so much for taking the time to do this blog. I have just read it from start to finish. I saw a dermatologist privately yesterday after being refused Accutane on the NHS (UK). The private dermatologist is starting me on low dose Accutane this Monday. I was so excited I didn't ask what dose etc. I was actually restraining myself from kissing him in delight. I have been sooooooooooo oily for a very long time. My face IS Saudi Arabia. I want it to be the Gobi desert. Fingers crossed. And toes. And eyes

 

low dose as in you'll be on it indefinitely or until you reach the cumulative dose? i was sort of under the impression NHS derms wouldnt do that kind of non conventional dosing

**my bad, just noticed you went private!!


Edited by XXYY, 11 December 2013 - 02:09 PM.


#80 ciaraki13

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Posted 11 December 2013 - 04:40 PM

yeah, I went private. I had never heard of low dosage before this. I got tired of begging on the NHS. Regarding dosage and duration, to be honest I have absolutely no idea. I didn't think to ask because I was so excited. Once I know those details I can let you know. I'm such a psycho though because he asked me if I knew how much I weighed re estimate for dosage and my first thought was "how can I gain 10kg by Monday to get a super high dose and lose it again by Tuesday and do that on a monthly basis for the foreseeable future??" I am hopeful about the low dosage because I'm thinking I might get it for a long, or please ETERNAL basis. I was on standard dose Roaccutane in 2009 and it did offer improvement, but as soon as it was finished, skin went back to shit. It was nearly worse, knowing semi ok skin for a while and never getting it back. A continuous mild improvement would be a dream and a half come true






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