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What Minocycline Did To Me.

minocycline iih pseudotumor cerebrii side affects complications vitamin a

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#1 twizzlercakes

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Posted 10 December 2012 - 02:35 PM

Okay, here goes:

Everything started almost a year ago. Just after christmas and new years' day. Lovely way to start 2012, now that I think about it.
It was about two weeks before christmas, give or take a little. I had (still have) moderate acne that was just ugly and irritating and I figured the dermatologist might be able to help. Went to the office, it was this really nice woman who said my acne was bad enough to take a prescription pill for it. She told me minocycline was a good pill to take, and prescribed it twice daily. I was so happy. Could this possibly be the solution to my hideous skin? I prayed it would be.

Christmas rolls around. Gifts are exchanged, my skin even cleared up a little already. Wonderful! New years' comes by, celebrating the 2012. I go back to school, life starts again. About two weeks into January I begin to get headaches. Strange, considering I never get headaches for any reason, but nothing to be concerned about. Over the course of a week, they get worse. Still, not completely unbearable. Monday morning, I wake up for school. Eventually, I notice I'm seeing two of everything. We think maybe this double vision is just me needing glasses or something, considering my dad had bad vision as well. Maybe my eyes were just misaligned, I had looked it up and that is a possibility. I began to look at things through the corner of my eye so I could see just 1 image. Headaches worsened. That sunday, we decided to go to our walk-in clinic and get it checked out. She sent us to get an MRI, it came back OK. No tumors or anything awful. They directed us to an opthamologist, and that tuesday we saw them. She ran tests (visual field [peripheral vision test], dilated my eyes and looked in the back of them) but no one told us anything yet. Opthamology told us to go to a neurologist, and we saw him that friday. It was then that someone finally told us what was going on, and what I had.

Pseudotumor cerebrii. Also known as Idiopathic Intercranial Hypertension (IIH). He sent us in for an emergency spinal tap that night. My mother just started crying, but I couldn't seem to feel like anything. I couldn't figure out how, what or why this was happening. When they measured my spinal fluid pressure, it came back as OVER 55. It went to the top of the tube and spilled over, indicating it would have gone higher. The average person's pressure is between 15-20.

For those who don't know, Idiopathic Intercranial Hypertension is what happens when there's too much spinal fluid in your head. In my case, it put pressure on my optic nerve. If I had not gone to the doctor, my neurologist said, I would have been blind in a short amount of time. They don't know exactly why this happens. All the cases they have support a few different ideas: Overweight people, adolescents, women, and high doses of Vitamin A. I'm not overweight, I am an adolescent woman, but I've been an adolescent woman for quite some time now. The only NEW factor was the minocycline, or high dose of vitamin A.

For the next 6 1/2 months, I had regularly (and often) scheduled appointments with both the opthamologist and neurologist, along with 5 more spinal taps. Although I had stopped the medication immediately, my spinal fluid pressure always seemed to crawl back up. In august, my neurologist had had enough. He reccomended us to a neurosurgeon. In our consultation, he decided we should get a ventricular-atrial shunt. Simply put, he wanted to put a tube from my ventricles (inside my brain where fluid is produced), out to beneath my skin where a valve would automatically drain it once it got to a certain pressure through a cable that connected to my facial vein and into the right atrium of my heart, where it would re-absorb. Oh, and guess what? He had to shave half my head. Not even the side I didn't like. Great. Went into surgery, got kicked out after 1 night was given only mild pain meds and sent home.

Now time for school. At this point, I hadn't cut the other side of my head a bit shorter (it was way past my chest and I cut it to a couple inches long), and I had to face everyone at school, where only about 4 people know I had surgery. I couldn't even blink without getting wide-eyed stares for the first whole week, and the looks trailed on long after that. Being a freshman in highschool, of course people were going to gossip about me. One of the things that was relayed back to me was, "oh my gosh does she realize how stupid she looks? why would she do that? gross." Real confidence-booster, right?

In short, don't take minocycline, kids. It has worked for some people, but honestly, that ^ stuff was not worth a couple pimples. I would much rather not know what headaches truly are, have all my hair still, and not have all the ridicule and pity people have given me. Thanks.

#2 whoartthou1

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Posted 15 December 2012 - 03:42 AM

how long were you on minocycline for?

I believe antibiotics are the worst medicine that can be prescribed for people... worse than accutane

#3 anb1998

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Posted 18 December 2012 - 08:46 AM

Okay, here goes:

Everything started almost a year ago. Just after christmas and new years' day. Lovely way to start 2012, now that I think about it.
It was about two weeks before christmas, give or take a little. I had (still have) moderate acne that was just ugly and irritating and I figured the dermatologist might be able to help. Went to the office, it was this really nice woman who said my acne was bad enough to take a prescription pill for it. She told me minocycline was a good pill to take, and prescribed it twice daily. I was so happy. Could this possibly be the solution to my hideous skin? I prayed it would be.

Christmas rolls around. Gifts are exchanged, my skin even cleared up a little already. Wonderful! New years' comes by, celebrating the 2012. I go back to school, life starts again. About two weeks into January I begin to get headaches. Strange, considering I never get headaches for any reason, but nothing to be concerned about. Over the course of a week, they get worse. Still, not completely unbearable. Monday morning, I wake up for school. Eventually, I notice I'm seeing two of everything. We think maybe this double vision is just me needing glasses or something, considering my dad had bad vision as well. Maybe my eyes were just misaligned, I had looked it up and that is a possibility. I began to look at things through the corner of my eye so I could see just 1 image. Headaches worsened. That sunday, we decided to go to our walk-in clinic and get it checked out. She sent us to get an MRI, it came back OK. No tumors or anything awful. They directed us to an opthamologist, and that tuesday we saw them. She ran tests (visual field [peripheral vision test], dilated my eyes and looked in the back of them) but no one told us anything yet. Opthamology told us to go to a neurologist, and we saw him that friday. It was then that someone finally told us what was going on, and what I had.

Pseudotumor cerebrii. Also known as Idiopathic Intercranial Hypertension (IIH). He sent us in for an emergency spinal tap that night. My mother just started crying, but I couldn't seem to feel like anything. I couldn't figure out how, what or why this was happening. When they measured my spinal fluid pressure, it came back as OVER 55. It went to the top of the tube and spilled over, indicating it would have gone higher. The average person's pressure is between 15-20.

For those who don't know, Idiopathic Intercranial Hypertension is what happens when there's too much spinal fluid in your head. In my case, it put pressure on my optic nerve. If I had not gone to the doctor, my neurologist said, I would have been blind in a short amount of time. They don't know exactly why this happens. All the cases they have support a few different ideas: Overweight people, adolescents, women, and high doses of Vitamin A. I'm not overweight, I am an adolescent woman, but I've been an adolescent woman for quite some time now. The only NEW factor was the minocycline, or high dose of vitamin A.

For the next 6 1/2 months, I had regularly (and often) scheduled appointments with both the opthamologist and neurologist, along with 5 more spinal taps. Although I had stopped the medication immediately, my spinal fluid pressure always seemed to crawl back up. In august, my neurologist had had enough. He reccomended us to a neurosurgeon. In our consultation, he decided we should get a ventricular-atrial shunt. Simply put, he wanted to put a tube from my ventricles (inside my brain where fluid is produced), out to beneath my skin where a valve would automatically drain it once it got to a certain pressure through a cable that connected to my facial vein and into the right atrium of my heart, where it would re-absorb. Oh, and guess what? He had to shave half my head. Not even the side I didn't like. Great. Went into surgery, got kicked out after 1 night was given only mild pain meds and sent home.

Now time for school. At this point, I hadn't cut the other side of my head a bit shorter (it was way past my chest and I cut it to a couple inches long), and I had to face everyone at school, where only about 4 people know I had surgery. I couldn't even blink without getting wide-eyed stares for the first whole week, and the looks trailed on long after that. Being a freshman in highschool, of course people were going to gossip about me. One of the things that was relayed back to me was, "oh my gosh does she realize how stupid she looks? why would she do that? gross." Real confidence-booster, right?

In short, don't take minocycline, kids. It has worked for some people, but honestly, that ^ stuff was not worth a couple pimples. I would much rather not know what headaches truly are, have all my hair still, and not have all the ridicule and pity people have given me. Thanks.

Okay, here goes:

Everything started almost a year ago. Just after christmas and new years' day. Lovely way to start 2012, now that I think about it.
It was about two weeks before christmas, give or take a little. I had (still have) moderate acne that was just ugly and irritating and I figured the dermatologist might be able to help. Went to the office, it was this really nice woman who said my acne was bad enough to take a prescription pill for it. She told me minocycline was a good pill to take, and prescribed it twice daily. I was so happy. Could this possibly be the solution to my hideous skin? I prayed it would be.

Christmas rolls around. Gifts are exchanged, my skin even cleared up a little already. Wonderful! New years' comes by, celebrating the 2012. I go back to school, life starts again. About two weeks into January I begin to get headaches. Strange, considering I never get headaches for any reason, but nothing to be concerned about. Over the course of a week, they get worse. Still, not completely unbearable. Monday morning, I wake up for school. Eventually, I notice I'm seeing two of everything. We think maybe this double vision is just me needing glasses or something, considering my dad had bad vision as well. Maybe my eyes were just misaligned, I had looked it up and that is a possibility. I began to look at things through the corner of my eye so I could see just 1 image. Headaches worsened. That sunday, we decided to go to our walk-in clinic and get it checked out. She sent us to get an MRI, it came back OK. No tumors or anything awful. They directed us to an opthamologist, and that tuesday we saw them. She ran tests (visual field [peripheral vision test], dilated my eyes and looked in the back of them) but no one told us anything yet. Opthamology told us to go to a neurologist, and we saw him that friday. It was then that someone finally told us what was going on, and what I had.

Pseudotumor cerebrii. Also known as Idiopathic Intercranial Hypertension (IIH). He sent us in for an emergency spinal tap that night. My mother just started crying, but I couldn't seem to feel like anything. I couldn't figure out how, what or why this was happening. When they measured my spinal fluid pressure, it came back as OVER 55. It went to the top of the tube and spilled over, indicating it would have gone higher. The average person's pressure is between 15-20.

For those who don't know, Idiopathic Intercranial Hypertension is what happens when there's too much spinal fluid in your head. In my case, it put pressure on my optic nerve. If I had not gone to the doctor, my neurologist said, I would have been blind in a short amount of time. They don't know exactly why this happens. All the cases they have support a few different ideas: Overweight people, adolescents, women, and high doses of Vitamin A. I'm not overweight, I am an adolescent woman, but I've been an adolescent woman for quite some time now. The only NEW factor was the minocycline, or high dose of vitamin A.

For the next 6 1/2 months, I had regularly (and often) scheduled appointments with both the opthamologist and neurologist, along with 5 more spinal taps. Although I had stopped the medication immediately, my spinal fluid pressure always seemed to crawl back up. In august, my neurologist had had enough. He reccomended us to a neurosurgeon. In our consultation, he decided we should get a ventricular-atrial shunt. Simply put, he wanted to put a tube from my ventricles (inside my brain where fluid is produced), out to beneath my skin where a valve would automatically drain it once it got to a certain pressure through a cable that connected to my facial vein and into the right atrium of my heart, where it would re-absorb. Oh, and guess what? He had to shave half my head. Not even the side I didn't like. Great. Went into surgery, got kicked out after 1 night was given only mild pain meds and sent home.

Now time for school. At this point, I hadn't cut the other side of my head a bit shorter (it was way past my chest and I cut it to a couple inches long), and I had to face everyone at school, where only about 4 people know I had surgery. I couldn't even blink without getting wide-eyed stares for the first whole week, and the looks trailed on long after that. Being a freshman in highschool, of course people were going to gossip about me. One of the things that was relayed back to me was, "oh my gosh does she realize how stupid she looks? why would she do that? gross." Real confidence-booster, right?

In short, don't take minocycline, kids. It has worked for some people, but honestly, that ^ stuff was not worth a couple pimples. I would much rather not know what headaches truly are, have all my hair still, and not have all the ridicule and pity people have given me. Thanks.

I'm taking minocyclien but I'm only on it for 16 days, Is it just me or does it taske really bad?

#4 Charles23

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Posted 30 December 2012 - 09:21 PM

Okay, here goes:

Everything started almost a year ago. Just after christmas and new years' day. Lovely way to start 2012, now that I think about it.
It was about two weeks before christmas, give or take a little. I had (still have) moderate acne that was just ugly and irritating and I figured the dermatologist might be able to help. Went to the office, it was this really nice woman who said my acne was bad enough to take a prescription pill for it. She told me minocycline was a good pill to take, and prescribed it twice daily. I was so happy. Could this possibly be the solution to my hideous skin? I prayed it would be.

Christmas rolls around. Gifts are exchanged, my skin even cleared up a little already. Wonderful! New years' comes by, celebrating the 2012. I go back to school, life starts again. About two weeks into January I begin to get headaches. Strange, considering I never get headaches for any reason, but nothing to be concerned about. Over the course of a week, they get worse. Still, not completely unbearable. Monday morning, I wake up for school. Eventually, I notice I'm seeing two of everything. We think maybe this double vision is just me needing glasses or something, considering my dad had bad vision as well. Maybe my eyes were just misaligned, I had looked it up and that is a possibility. I began to look at things through the corner of my eye so I could see just 1 image. Headaches worsened. That sunday, we decided to go to our walk-in clinic and get it checked out. She sent us to get an MRI, it came back OK. No tumors or anything awful. They directed us to an opthamologist, and that tuesday we saw them. She ran tests (visual field [peripheral vision test], dilated my eyes and looked in the back of them) but no one told us anything yet. Opthamology told us to go to a neurologist, and we saw him that friday. It was then that someone finally told us what was going on, and what I had.

Pseudotumor cerebrii. Also known as Idiopathic Intercranial Hypertension (IIH). He sent us in for an emergency spinal tap that night. My mother just started crying, but I couldn't seem to feel like anything. I couldn't figure out how, what or why this was happening. When they measured my spinal fluid pressure, it came back as OVER 55. It went to the top of the tube and spilled over, indicating it would have gone higher. The average person's pressure is between 15-20.

For those who don't know, Idiopathic Intercranial Hypertension is what happens when there's too much spinal fluid in your head. In my case, it put pressure on my optic nerve. If I had not gone to the doctor, my neurologist said, I would have been blind in a short amount of time. They don't know exactly why this happens. All the cases they have support a few different ideas: Overweight people, adolescents, women, and high doses of Vitamin A. I'm not overweight, I am an adolescent woman, but I've been an adolescent woman for quite some time now. The only NEW factor was the minocycline, or high dose of vitamin A.

For the next 6 1/2 months, I had regularly (and often) scheduled appointments with both the opthamologist and neurologist, along with 5 more spinal taps. Although I had stopped the medication immediately, my spinal fluid pressure always seemed to crawl back up. In august, my neurologist had had enough. He reccomended us to a neurosurgeon. In our consultation, he decided we should get a ventricular-atrial shunt. Simply put, he wanted to put a tube from my ventricles (inside my brain where fluid is produced), out to beneath my skin where a valve would automatically drain it once it got to a certain pressure through a cable that connected to my facial vein and into the right atrium of my heart, where it would re-absorb. Oh, and guess what? He had to shave half my head. Not even the side I didn't like. Great. Went into surgery, got kicked out after 1 night was given only mild pain meds and sent home.

Now time for school. At this point, I hadn't cut the other side of my head a bit shorter (it was way past my chest and I cut it to a couple inches long), and I had to face everyone at school, where only about 4 people know I had surgery. I couldn't even blink without getting wide-eyed stares for the first whole week, and the looks trailed on long after that. Being a freshman in highschool, of course people were going to gossip about me. One of the things that was relayed back to me was, "oh my gosh does she realize how stupid she looks? why would she do that? gross." Real confidence-booster, right?

In short, don't take minocycline, kids. It has worked for some people, but honestly, that ^ stuff was not worth a couple pimples. I would much rather not know what headaches truly are, have all my hair still, and not have all the ridicule and pity people have given me. Thanks.

o

omg i just want to hug you! minocycline hurt me too but not even close to this! this teaches me not to judge people, omg! you are strong and very brave to share your story. i will pray for you and just hope you get better.




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