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Here We Go!

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Well I'm two days in! Took my second dose tonight with a nice roast beef dinner nice and fatty :). They started me at 20mgs which I was hoping for 30 but whatever. Weigh 115 so I know I want to be on 60 ASAP. They did put me on a short course of mecadrone to calm all the inflammation already in my face. He said if it was just two or three cysts to inject her do that but since there are so many he recommended I do this for ten days. Here's hoping I look somewhat manageable for thanksgiving at least!

Also I was on levora but recently discovered that its highly androgenic. ( And looking into the past might have caused the only other bad cyst ive ever had? ive never been on bc for acne though used to be mild just persistent) I don't need to add to my problems so I'm switching to the nuvaring tomorrow which I've used before with no problems-- though I am very paranoid of what pregnancy has done to my body, permanently changed it or something. I developed dermagraphism, or skin writing, which means every time I get an itch it looks like my cat attacked me. Showers are the worst! I'm already moisturizing like crazy to avoid any itchiness. My mom had this for years after she had me. No acne though! -_-

No side effects, mild headache that could be anything. Flaking around a pimple I decided to stupidly spot treat so that won't be happening anymore. Also got a few more pimples, nothing noticeable to anyone but me. Must stop touching and examining face! My mood and day go much better the less I go to the bathroom. Went on a walk today with the babe and it was nice. Trying to do yoga or walking every day as well as lots of chamomile tea and green smoothies for lunch.

Supplements:

Milk thistle

B complex

Fish oil plus d

Zinc

C

Trying to see the brightness in everything!

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Trying to not be discouraged, the steroid hasn't done anything for my inflammation, I'm breaking out already, no side effects and I'm oilier than ever. I wish I started a higher dose. I am exhausted but a baby will do that...

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Just try to think of the end result!! In 6 months (or however long your course is) you'll be looking back at this totally clear and it'll all be worth it!

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I know just trying to stay positive and not look in the mirror! Got a lot bumpier on one cheek today, feels gross but you can't tell, face just looks awful might post pics but they're so gross to make myself look at...ugh doing it so I can hopefully laugh at this later..

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I didn't have time to read you entire post, but I just wanted to give you a recommendation. Please breastfeed your child! Breast milk is important for baby's to grow fully mature. Baby's who aren't breast fed are shown to have smaller brains and less brain power function. But it doesn't stop there. Breast milk gets its nutrients through the diet the mother is eating. For breast milk to be optimally nutritionally dense, you need a high omega-3 diet. 3-6 tablespoons of flaxseed oil daily is a good place to be. Also a good multi vitamin/mineral is important.

Motherhood is going to be an incredible and worthwhile journey for you! Your child doesn't care about your face it just wants to be nourished/loved by its parents. Yes acne sucks, but don't let it take away the joy of this short-lived life we all experience here on earth. I hope it all works out for your family - Best of luck.

Well I was not breast fed and I was never told my brain was smaller than anyone else's and I had less brain power function. I did finish a law school and later an art school with distinctions....hmmm less brain power, I do not think so.....

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Right cheek is all inflamed, :( still oily though I drank a whole bottle of water overnight. Really pissed about the steroid they put me on, makes me moody and can't sleep and yet has done nothing for the lumps on my face. Should have just gotten the shots. My parents are coming to visit this week And I know it's going to be a lot of pity. I miss them so much but I hate seeing anyone looking like this. I'm turning into a hypochondriac, wondering if I need to get my hormone levels tested, if I have pcos. I have always had mild acne until now, even during pregnancy when I thought it was bad it wasn't really, this is just humiliating.

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Day 10 - really feeling like crap. Nauseous, have to kind of force myself to eat and feeling really anxious. Literally didn't sleep last night cause my mind was racing. Can't tell if it's the steroid or my bc or the accutane but I hate it. Picked at my face, great idea :\

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Hun, as everyone has said, this is a long process and you're gonna have to find a way to emotionally brace/occupy yourself. I am on the wall about taking steroids as they sometimes can backfire but its worth a try, especially if the inflammation is painful. Things will get worse before they get better but just remember to take things one day at a time.

Good Luck


It's a rocky road but like everything else in life, there is always a beginning and an end. Here's to finding my end.

God is good to me..........more than I deserve.

James 1:2-4

Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, that you may be perfect and complete, lacking in nothing.


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I think oral steroids are the devil. at least if its injected you know something will happen! it brough down inflammation in only two cysts, better than nothing i guess. developed blisters between my hands, im guessing this is eczema. My palms are burning but luckily no itch. Using lubriderm cream constantly but with a baby I wash my hands like 40 times a day and its obvious the drying on my hands is going to drive me nuts. Hate steroid ointments so I'm roughing it out. Thinking of switching to taking my pill on themorning since it makes me anxious. Didn't take it today cause I was just too exhausted to deal with another night of no sleep with my family coming to visit tomorrow. Hope they don't go crazy trying to find me cures like the last time they saw me. My dad wants me to try skin detox tea but I dunno about adding a bunch more herbs to accutane? He can't help himself he's searching for the reason this happened as well. Thinking if visiting an endo, something just seems off about what's happened these last few months. Developed rare rash, which caused face to explode, severe anxiety diagnosed, I'm worried my adrenals or thyroid are wacked. Want to make sure I'm well enough to be on this drug without causing myself further issues.

Counted 25 actives. Some going down and getting that bumpy feeling on my nose. Go away blackheads!

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Give accutane some time, I think you'll be surprised with the results! It may be a long six months but it works! Look through the forums, some people that go on accutane have worse acne than you have... but it works for them! Keep your head up :)

But I agree, definitely make sure it's healthy for you to be on accutane!

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Yes give it time, i brokeout exactly like you are now... I had huge cysts and my acne went worse than ever in the first 3 weeks, it started to improve in 4th week when i was put on antibiotics by my derm and that was a good idea. You may want to ask your derm to put you on antibiotics for a very short time. I was on Azithromycin 250mg for only 15 days and i didnt stop taking accutane during that period. You should keep on telling yourself that it will get worse before it gets better.. stay positive and keep your fingers crossed. :)

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Started Oratane 3rd October, 2012
-------------------------------------
Month 1 20mg/day
Month 2 40mg/day
Month 3 40mg/day
Month 4 40mg/day
Month 5 40mg/day
Month 6 40mg/day


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Day 24 - Things are looking up - went to the derm to get some injections because some of the giant cysts were really bringing me down. Derm said I was making progress, that a lot of people break out way worse in the beginning, so I told him I was scared of breaking out more when we went up a dose and he said Nah (lies!). But my breaking out has been manageable, only a few crappy new cysts and then some little whiteheads. Unfortunately after the injections some of my skin looks pretty bruised from him squeezing the crap out :\ but they have definitely gone down. Hopefully the bruising goes away soon. My scars are more pink than purple and some of my large nodules are going down. When I feel my face when I wake up I'm less horrified every day so thats good! I'm only being put on 40mg next month which prolongs my treatment but my derm believes its the better way to go. Maybe pics on day 30.

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Hey ughhhhh!

Wow! Finally someone who has acne almost exactly like mine! I totally get what you are saying about feeling so horrible and being at your wits end with this! I am a 29 y/o female and have VERY similar severe acne. Mine is a lot like yours in looks, but I have a lot more on my chin (sides and up around mouth) and forehead and less on my cheeks. It is as you describe, i.e. it leaks, feels like marbles under the skin, and tunnels together in tracts. Its pustular and crusty and gets that purplish-red tinge. I am 110 lbs and on 60mg/day of accutane. Today is day 14 and I'm seeing very, very slow progress. I definetely had an IB around the end of week 1/beginning of week 2. Just more cysts coming up that were small or not there before and new pustules. Its been itchy some and throbbing/burning. The last couple days have been a bit better. Its a little less red and some of the cysts have come to heads and drained and seem to be flattening out a bit. I'm still getting new ones though, just hoping they don't get as bad as the other ones.... It's comforting to know that I'm not alone in having such severe nodular acne! It sucks so bad and people who don't have it or don't have it as bad just don't get it. Severe acne can't even be covered up with makeup... It's life-changing and debilitating in my opinion... Anyways, I am sooo glad to see you are making some progress!! Gives people like me some hope! smile.png When did you start notice it changing a bit for the better? Just recently or has it been more of a process? Are the injections working well for you? I had some about 2 weeks before I started and of the 8 injected, it only really got rid of one... The others got less inflammed for awhile like you said, but they came back. sad.png Debating whether I should have more injected at my 1 month check-up or not... Looking forward to seeing your progress around day 30! I haven't had the courage to post any pics as of yet... Hope you continue to do better as time passes and that we can both get over this and have beautiful skin once and for all!! smile.png The thought of a change to the way my face feels in a couple weeks like you described is inspiring and has me hopeful! Fingers crossed!!! eusa_pray.gif

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If you can find the courage please do post pics! i hope to see my dramatic progress through here. felt so alone on this board, everyone just wants to get rid of their 'normal' acne. I had normal pimples until late August, can only be described as severe stress plus crazy hormone changes :/ do you know what caused yours? I never thought I'd be on accutane, I used to say if never take it no matter how bad my acne got, when I used to complain about a few zits! I really hope we make it to the other side back to normal. Scars I can handle I think, once my battle is won. Right now I'm trying to not freak out about hair loss, around this time after birth it's normal to lose a lot and I am so I don't know if its my hormones or the accutane! But otherwise I've had no side effects so I am trying to tell myself it's just the hormones...

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Same here, never wanted accutane and tried to avoid it. I did stay off of it for a while, too. 5 1/2 years of 90-100% clear skin with topicals (tazorac)! Then it came back this September worse than ever.... I don't have kids yet (the whole reason I've waited is because of the strong acne meds, even topicals, which cause birth defects), so mine did not stem from that, but my doc still says its a hormonal connection. She thinks that stress is also a big factor and of course genetics. I had been REALLY stressing and anxious right before this breakout came on strong. Genetically, I got the oily skin from my mom's skin and the sensitive skin from my dad's so I guess when the two combined, PRESTO, only person in the family with severe acne... My parents and sisters have perfect skin. My teenage sister doesn't even take off her makeup at night and rarely gets zits. Seriously? I do everything by the book religiously and look like this? Shouldn't she be dealing with this at her age and not me at 29? Anyways, getting off track and just venting a bit, lol!

Neither my derm nor I buy the diet/exercise thing that some people on here try to push. I've been doing both for years so why is my skin bad again? People on here who play that BS game must have mild acne to begin with if it really works. Believe me, I've TRIED it!! For some reason when I or others say that it falls on deaf ears. The whole "anyone can cure their acne naturally no matter how severe it is," "you must want to poison yourself if you are willing to take accutane," "acne is an internal problem not a skin problem," load of crap really ticks me off. Don't treat me like a child. I don't WANT to take accutane. Like you said, I never did. I cried when I found out I had to, but I've come around to embracing it now. This site really helps with that cause there are a lot more helpful, encouraging users out there than predatory ones! None of us went out begging to get on accutane. Wish I hadn't put it off for fear of it and tried useless stuff as long as I did or I might be clear by now! Oh well, I'm doing good right now (though no change much in my lesions yet) and look forward to my skin making some progress in the next few weeks and months! Good luck girl! Glad we all have each other for support in battling this crazy stuff!!

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Exactly what you said, Brownilocks! Haha. And whenever I start thinking about side affects I just tell myself to take it one pill at a time. I won't get 50 different side affects because of one pill, and it helps. It may not be the most accurate thing, but it makes me feel better about it.

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What a bad day.

Had my derm appointment, and apparently my AST levels were too high to go up on my dose. Should be 6-40, mine are 47. They said there could be a lot of reasons for this, including bad lab work, but they can't put me on a higher dose in case the accutane is affecting my liver. So I'm staying at 20mgs for this month, which is devastating because I feel like my scarring is only going to get worse. The PA said I look so much better than the last time she saw me (6 weeks ago) and that she's seen people clear on the 20mgs, but if it's already affecting my liver...

I'm also experiencing hair loss. This is very common for postpartum women around this time, but my derm confirmed for me today that accutane can make it worse. I want to be hopeful but it is really hard when it just seems like everything is going downhill. It is the only side effect I experience other than dry skin :( I dont know what to do anymore.

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Day 46 -

Going through the "is accutane even working" phase. I am not getting new pimples (a few tiny ones) and almost everything from the IB has calmed down and went away but all my cysts and nodules I had at the start of treatment are still here and haven't moved. Keep fighting the urge to get a shot at the derm because its expensive and I come home a bloody bruised mess. I keep thinking this isn't acne and its never going to go away. Nose is a little oily in the morning but otherwise my face is peeling a bit. Back is killing me at the end of the day.

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My back was hurting bad recently too but I upped my water intake and that seems to be helping. I feel ya on the stubornness of the cysts... I keep telling myself that its going to take longer for the ones that are there to die than for it to stop new ones since the old ones got more out of control before the med got into our systems. Thats the hardest for me to get rid of and the cortisone shots I've been getting don't help with anything but tiny ones. Didn't affect the big ones at all so its not really worth it for me... I think the fact that you're not getting new ones is a good sign so keep holding on! I'm about at the same stage right now. New ones are not that bad and getting less of them, but old ones just look the same everyday. It's very frustrating. I've heard that month 3 is really when those of us who are more severe will see more progress, but users on here have said 4 or 5 months even if its really bad or stubborn to get noticeable results. I hope it doesn't take us that long but just remember, this is going to be a bump in the road for us one day that we will look back on and learn from. I'm getting a good lesson in patience right now and in understanding how lucky I am to have the great people in my life who feel for me and see me beyond my skin! :) Keep at it girl and stay positive! ;)

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My back was hurting bad recently too but I upped my water intake and that seems to be helping. I feel ya on the stubornness of the cysts... I keep telling myself that its going to take longer for the ones that are there to die than for it to stop new ones since the old ones got more out of control before the med got into our systems. Thats the hardest for me to get rid of and the cortisone shots I've been getting don't help with anything but tiny ones. Didn't affect the big ones at all so its not really worth it for me... I think the fact that you're not getting new ones is a good sign so keep holding on! I'm about at the same stage right now. New ones are not that bad and getting less of them, but old ones just look the same everyday. It's very frustrating. I've heard that month 3 is really when those of us who are more severe will see more progress, but users on here have said 4 or 5 months even if its really bad or stubborn to get noticeable results. I hope it doesn't take us that long but just remember, this is going to be a bump in the road for us one day that we will look back on and learn from. I'm getting a good lesson in patience right now and in understanding how lucky I am to have the great people in my life who feel for me and see me beyond my skin! :) Keep at it girl and stay positive! ;)

Thanks for the positive reinforcement :) really needed to read this after a breakdown today. My nightmare cyst that started this whole thing made a comeback tonight :( nasty thing wept for like 6 weeks and went away after three injections right before I started accutane. A couple days ago I started feeling a bruise in the same spot ( which is scarred and beat to hell in the first place) and I swore I would just wait it out til my next appt but it opened and looked all infected today, threw me into a total crying rage! I haven't had any gross oozing since I started tane, I was really hoping that was over. I feel like I'm living a nightmare. I just want to take pictures with my daughter and go to mommy groups and show her off, not hide away in my house...

But my right cheek is clearing up, forehead is clear except for one nodule, and I know it could be a lot worse- I keep reminding myself I have a good life, a perfect baby who actually let's me sleep, a husband and family who love me. But I'm still waiting to wake up so I can enjoy just the good parts of my life.

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*hugs* I'm sorry about that nasty zit! I know it's frustrating. Just try your best to not think about it, and focus on that wonderful child and husband of yours instead. Otherwise you'll finish your treatment with clear skin, but will realize you missed out on things with your family because you were too busy thinking about your skin. We can get through this!

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*hugs* I'm sorry about that nasty zit! I know it's frustrating. Just try your best to not think about it, and focus on that wonderful child and husband of yours instead. Otherwise you'll finish your treatment with clear skin, but will realize you missed out on things with your family because you were too busy thinking about your skin. We can get through this!

I totally agree. I've vowed to take my danger out once every day while I have my full time with her. I'm putting on makeup and it makes me just a little more confident to not see the red marks, most of my face is red marks at this point, just these nasty things that will take forever to go away. We went to the mall today and inked out a few new outfits, which made me happy so it was a good day. Husband said I looked pretty, I love him so much.

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Hey ughhhh!

Hope you are getting a little better every day! :) I'm seeing improvement but its massively slow! Are you still dealing with cysts? I am. :( They seem like they just don't want to go away and the shots never help mine at all.... I'm going to see if there's anything else I can possibly do to speed up the process the next time I go to the derm... Let us know how your blood tests go this month. Are your side effects getting any better? Wishing you well in the meantime!

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Your situation sounds the same as mine brownilocks, I just have these lingering things that I'm afraid are permanent, no change. The only pimples I get are teeny tiny ones but I want these lumps to go away! Blood test on Wednesday, derm appt on Monday. I really hope I get bumped up!

Side effects are minimal, aside from potential hair thinning, my husband says I have tons of hair but I get some every time I run my hands through it. I don't style it at all anymore because I don't want to mess with it.

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