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Severe Side Effects Have Left Me Suicidal

accutane depression hairloss drymouth sideffects suicide

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#21 pattyw

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Posted 05 February 2013 - 12:11 PM

Hello, I hope you are feeling better. PLEASE look into vitamin D. As a long time ago accutane user,  I have needed to look into side effect issues. Long story short, vitamin D is considerably depleted by accutane which can really mess up your body. If I were to do accutane all over again, I would definitely take high dose Vitamin D along with it. Go to the Vitamin D Council website. Search in their letters section for the terms: "accutane" "acne" "GERD" and you will see a letter from Jan with a reply from Dr. Cannell that touches on this issue. Starting on high dose Vitamin D might be what you need--effects mood, skin, and lots of other things. You can also search Vitamin D in product reviews on this website for other success stories.



#22 Livetoregret

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  • Gender:Female
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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 05 February 2013 - 08:02 PM

Just an update - 

 

No improvement since I first posted this..My skin has continued to dry out and deteriorate not only on my face but over my entire body.

Deep lines/creases are forming on my wrists, shoulders, neck & chest.

I have avoided the sun for 15 years so it has zero to do with sun exposure. Prior to taking accutane my skin was soft & supple, milky,hydrated and youthful- all over my body. Now my skin is sallow, dehydrated, blotchy, red, thin,with fine lines all over my face.

I use the best quality natural oils and hydrating moisturizers but they do nothing. makeup does not blend and look absolutely cakey and disgusting as soon as I apply it.

My lips are so dehydrated I feel like I need to wet them every 5 seconds. 

The skin around my eyes and on my check & forehead is the worst..I just cannot believe what I see when I look in the mirror every morning and I am so scared for 5 or 10 years from now already I look at elderly ladies and their skin looks to be more supple than mine.

Deep creases have formed under my eyes and my eyelids are so dry and painful this is beyond a joke.

 

My hair is still shedding/thinning rapidly and seems to have gotten much worse in texture and quality, it is now the thickness of a pen in a ponytail and stick flat to my head and my scalp can be seen clearly around my front hair line and all over my scalp as soon as you lift the wafer thin layer of hair that I have left.

 

The remaining hair continually sheds, the condition is stringy,brittle, course like horse hair.

What little regrows is transparent in colour and so fine in each hairs diameter. The hairloss also includes my lashes and eyebrows my eyebrows are now so sparse I struggle to make them look somewhat normal.

Things I have tried to remedy the hairloss/dryness and skin shriveling up/complete loss of natural oils and hydration:

 

All manner of supplements including iron, EPO,hyaluronic acid,Vit B complex,Vit B6,Vit C,Vit E,liquid silica, hair skin & nails formula,coconut oil,almond oil, argan oil,etc etc  

 

I have long been focusing on my nutrition and water intake- (at least 2L p/day) ( have always been a healthy eater, but did not eat throughout the day usually)

I have been eating loads of fruit & veg since at least May 2012,eliminated sugars,breads,pasta etc

I feel like i HAVE TRIED EVERYTHING.

 

I am desperate, depressed,humiliated, in pain from the tightness caused by the dryness, this has completely changed my life I used to be a normal woman now all I can do is wish I could go back in time and never put this poison into my body. I am so embarrassed and what this has done to my physical appearance. 

It's become apparent over time that my body has been permanantely damaged and fear my skin & hair will never recover now its been over 2 years since I stopped taking it..I have neglected to really mention the fatigue, muscle soreness joint pain in my wrists,legs, sleep disturbance,etc etc -  but that doesn't bother me nearly as much as all the exterior damage to my person. I would live in pain everyday if I still had normal hair and skin.

 

Nothing has had any effect at all and I beyond devastated that I am not recovering, even slightly.

I could have hope for the future if I saw even the tiniest improvement but since everything really started drying out in may 2012 I have channeled every resource I have into beating this and I am struggling to stay alive at this point, I have fast lost faith that I am ever going to get better.



#23 KayPhAs14

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Posted 06 February 2013 - 09:41 AM

I'm very sorry to hear about your situation. I'm a physician assistant student on accutane myself. I'm surprised they had you stay on it for a whole year. I also find it quite strange that the doctors gave you such vague answers- there is clearly something going on that should be dealt with. Even if they can't find the root cause to treat, they should at least be helping you treat the symptoms. I have a hunch about a possibility- could it be your thyroid? Metabolic diseases can be tricky suckers to catch, especially since they present themselves in such different varieties. While some of it could be symptoms leftover from accutane, it's possible that maybe the drug triggered something else. Here's a link for the info about hypothyroidism: http://www.ncbi.nlm....th/PMH0001393/. You definitely have some of the symptoms on that list like the dry hair/hair and depression. When you go to the doctor, he should feel around the base of your neck to see if your thyroid gland is enlarged. Ask for the TSH and T4 blood tests. Maybe ask for a liver test too since you didn't get any for the whole Accutane treatment. If those tests come back positive, celebrate! Hypothyroidism is easy to treat with hormone supplementation, and you'll start to feel better pretty quickly. I hope you solve your mystery!



PS. Is EPO safe/legal to take, or do you have a prescription for that? I just want to make sure because having too many red blood cells puts you at risk for high blood pressure and clots, and those are NO FUN to deal with. 



#24 karmadelayed

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Posted 08 February 2013 - 08:53 PM

I don't mean to barge in - but if you had 40mg/day, that's actually not as much as me. I'm 80mg/day and only 14 and rather slim. Good luck, I hope I don't get the negative things you got. I hope you feel better, there's always hope.



#25 Livetoregret

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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 08 February 2013 - 11:01 PM

Read the thread - I've been OFF it for 2 years.


I don't mean to barge in - but if you had 40mg/day, that's actually not as much as me. I'm 80mg/day and only 14 and rather slim. Good luck, I hope I don't get the negative things you got. I hope you feel better, there's always hope.



#26 LillyRose7

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Posted 10 February 2013 - 10:53 AM

your doctor sounds like he is not helpful at all. I do believe you on these side effects because it DOES and CAN happen. I am so sorry you are going through this. Is there anyway you can see another doctor? who is more helpful? Any chance of you wanting to take this up in court ?

 

Regarding the facial atrophy, you can have fillers as well, some can be permanent. Are you forgoing any treatment for your side effects?

 

I empathize with you because the side effects of accutane are not kind.



#27 AccutaneInMyBrain

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Posted 10 February 2013 - 11:20 AM

http://www.youtube.c...h?v=vyut3GyQtn0


Edited by AccutaneInMyBrain, 10 February 2013 - 11:24 AM.


#28 Livetoregret

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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 10 February 2013 - 06:22 PM

your doctor sounds like he is not helpful at all. I do believe you on these side effects because it DOES and CAN happen. I am so sorry you are going through this. Is there anyway you can see another doctor? who is more helpful? Any chance of you wanting to take this up in court ?

 

Regarding the facial atrophy, you can have fillers as well, some can be permanent. Are you forgoing any treatment for your side effects?

 

I empathize with you because the side effects of accutane are not kind.

 

Thankyou Lilyrose.

 

Ive seen multiple doctors for the various issues - numerous GP's for testing of every vitamin level, thyroid function,liver function, etc etc etc as well as specialist dermatologists regarding the severity of my skin dryness,textural and colour changes, recurring acne worsening in severity - I was told my once snow white skin has turned yellow because of 'photo- aging' - when I have avoided the sun like a vampire since I was 15 and up until I took this drug my skin was luminously pale. All lies because they do not understand what this drug does to the natural balance & function of the bodies processes they have to make up some excuse for the things they cannot explain. This has happened over my entire body not just my face.

 

Ive tried homeopathic remedies in an attempt to treat this issues systemically as well as nutrition & supplements.

 

 

My skin is so thin,red,inflamed & dry I am scared to get any fillers or anything.



#29 LillyRose7

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Posted 11 February 2013 - 12:27 AM

i would suggest some vitamin D3 as well. Honestly it sounds you have tried many measures. I wouldn't be scared of facial fillers but i do understand your hesitation. BTW they have come out with stem cell injections, extracted from your own blood, that are injected into your face. My doctor calls it PRP Stem Cell therapy, its fairly new but its 100% natural and the purpose of it is to heal using your own body and when the area is injected, the number of fibroplasts (what makes the collagen) INCREASES. so you are increasing your fibroplasts and getting a boost in healing and collagen that is permanent. There was a segment last week on the news on how a doctor healed someones heart using stem cell therapy from their own tissue and the healing is remarkable. They use it on burn patients and i was amazed at how the scars heal with healthy plump tissue. I may consider having it done on my cheeks where i have acne marks. It works continuously to plump up the skin.

 

If i were you, i would really take this up in court - also, how come 1 year on accutane???????



#30 Livetoregret

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  • Gender:Female
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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 14 February 2013 - 12:20 AM

http://www.acne.org/...after-accutane/

 

the truth in pictures.



#31 Livetoregret

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  • Gender:Female
  • Location:SYDNEY, AUSTRALIA
  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 15 February 2013 - 12:06 AM

Im going to make a video about my skin, hair and other side effects and I will post it or link it on here .

I have decided that I am pursuing legal action against both the prescribing dermatologist for negligence and Roche as well.

 

Im a fighter and I will not let this ruin me even if it does become my life story.

 

Thank you for your support. 

 

S.



#32 londoncat8

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Posted 15 February 2013 - 06:53 PM

Im going to make a video about my skin, hair and other side effects and I will post it or link it on here .

I have decided that I am pursuing legal action against both the prescribing dermatologist for negligence and Roche as well.

 

Im a fighter and I will not let this ruin me even if it does become my life story.

 

Thank you for your support. 

 

S.

Do not let them get away!:) Power to you!



#33 Livetoregret

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  • Gender:Female
  • Location:SYDNEY, AUSTRALIA
  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 16 February 2013 - 03:56 AM

I've thought about PRP - but the isotretenoin is also suspended in plasma so I'm very unsure it could possibly cause more damage ..


i would suggest some vitamin D3 as well. Honestly it sounds you have tried many measures. I wouldn't be scared of facial fillers but i do understand your hesitation. BTW they have come out with stem cell injections, extracted from your own blood, that are injected into your face. My doctor calls it PRP Stem Cell therapy, its fairly new but its 100% natural and the purpose of it is to heal using your own body and when the area is injected, the number of fibroplasts (what makes the collagen) INCREASES. so you are increasing your fibroplasts and getting a boost in healing and collagen that is permanent. There was a segment last week on the news on how a doctor healed someones heart using stem cell therapy from their own tissue and the healing is remarkable. They use it on burn patients and i was amazed at how the scars heal with healthy plump tissue. I may consider having it done on my cheeks where i have acne marks. It works continuously to plump up the skin.
 
If i were you, i would really take this up in court - also, how come 1 year on accutane???????



#34 Sasch83

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Posted 16 February 2013 - 08:11 AM

Im going to make a video about my skin, hair and other side effects and I will post it or link it on here .

I have decided that I am pursuing legal action against both the prescribing dermatologist for negligence and Roche as well.

 

Im a fighter and I will not let this ruin me even if it does become my life story.

 

Thank you for your support. 

 

S.

 

Good for you!  Your derm definitely did not follow protocal based on the information you've been given up.  You'll definitely have some trouble with suing Roche as they have posted warnings about the drug.  But you won't know the outcome until you try.

 

Hope everything works out



#35 Mahweeoh

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Posted 17 February 2013 - 06:13 PM

While I don't want to downplay your symptoms ( I'm sure you feel bad ) I really don't see what's wrong with your pictures. You look better than I do and I haven't taken Accutane. I also have thin skin on my hand ( one of the pictures you took ) and that doesn't look bad....some of us Caucasian females just have that. My hand looks identical to yours, unless that was a before picture. 



#36 Livetoregret

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  • Gender:Female
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  • Interests:finished taking Roaccutane December 2010.
    Takin this drug has been the worst decision I have ever made and I have regretted it every day since.
    Doseage: 60:40 mg alternating daily for 11/12 months
    Sideffects:None till course was over.
    Now - SEVERE dry/brittle hair.
    HAIRLOSS - lost at least 70% and continues...acne came back in July, worse than I ever suffered from it. I now have back, chest, neck & cheeks that are covered.
    So now Im bone dry with no natural hydration with horrific acne. As a 31 YO woman with now destroyed skin & hair.
    My side effects include: Chronic Dry mouth
    Severe dry,tight,dehydrated, ashy,mottled,discolored (yellow & red),wrinkled,scarred poorly healing skin
    Facial fat atrophy - fatloss. Hollow eyes & cheeks
  • Joined: 22-October 12

Posted 17 February 2013 - 06:26 PM

While I don't want to downplay your symptoms ( I'm sure you feel bad ) I really don't see what's wrong with your pictures. You look better than I do and I haven't taken Accutane. I also have thin skin on my hand ( one of the pictures you took ) and that doesn't look bad....some of us Caucasian females just have that. My hand looks identical to yours, unless that was a before picture. 

When you have watched your skin & hair deteriorate rapidly after taking accutane, you want to make it known.

 

 

Developing Reynauds and red blotches over your entire body is not normal I suggest you get it checked out



#37 aspirin

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Posted 18 February 2013 - 01:55 AM

Your skin looked really good in the before pictures, how come you were prescribed Accutane? I am going on a second dose of Accutane right now, but it's because I have the most severe acne I've ever had. I wouldn't take it if I had moderate acne, but it seems to be prescribed to a lot of people with just a few pimples. The pictures are grainy so it is hard to see things like dryness and you also appear to have more hair than I do. Was your doctor a derm or a GP? It's weird they would prescribe you 40mg for a year, I thought they only do that length of time with low dose Accutane. I think you should also include the doctor that prescribed you the Accutane in your lawsuit :/

 

Anyways, I hope you are able to find something to alleviate your symptoms. Have you tried Chinese traditional medicine (accupuncture, massage)?



#38 Sweetea

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Posted 13 April 2013 - 01:52 AM

I never used to scar and I'd go at my face like crazy. Now I will try so hard to wait like 2 months for a pimple to do its thing and it will leave a dent anyway :'( 

I know the benzol peroxide and antibiotics caused most of this, and of course a major hormonal imbalance due to years of diane-35... Ugh only a few months ago I'd heal with maybe a fading red mark,  but I dent now. I know it changed the way my skin heals(and texture). It's really the only thing I've done different.


I don't even want to know what I will look like 10-20 yr from now... I've lost my baby face, I'm 23, and last year people could hardly believe I was over 20, now I get mistaken for 30. Yea... Funny how fast sh*t went downhill. Can't stand running into people in daylight, or brightly lit places, and feel like now I have to work out 10x as hard and make 10x the money to compensate for my skin.  I will never forget how i panicked the time i applied make up and for the first time in my life it made my face look way worse... I constantly think when people notice my skin they think I'm a junkie I've done hard drugs, etc and now I have to prove them wrong... Not thinking about dating although I'd love to, but the thought of waking up in the morning, sun shining, together at close proximity worries me...

Anyway that is my rant lol I hope u know u are not alone :)

Edited by Sweetea, 18 April 2014 - 03:47 AM.


#39 Sweetea

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Posted 13 April 2013 - 02:08 AM

I just took a look at your pics, u are gorgeous!

Edited by Sweetea, 18 November 2013 - 08:04 AM.


#40 Accutainted

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Posted 12 September 2013 - 04:51 AM

I know exactly what livetoregret is saying. I took roaccutane in aus in 2005 for 6mnths. Im not sure if my dose was 80 or 60mg a day but whatever it was it destroyed my life. I had the usual side effects whilst on roaccutane but about a year after treatment the skin on my arms and legs started to be covered in a light dusting of dry skin and then shortly after the skin on my face started to become extremely dry. The texture and composition of my skin has completely changed, 8yrs later my skin, eyes, lips, sinuses and hair continue to get drier and drier. I have suffered a strange type of diffuse hair shedding and the remainder of my hair feels dead like straw. My acne wasnt even that bad to begin with. I just wish i was told about the true dangers of this poison. I have so many health problems because of roaccutane. Biggest mistake of my life.

Edited by Accutainted, 12 September 2013 - 04:53 AM.





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