AccutaneInMyBrain

Complete Accutane Journey & Tips

65 posts in this topic

Hello again everybody. This is probably going to be the last update I do considering it's now been 3 years since I started Accutane and I don't think any other side effects are going to present themselves at this point. (It should be known, however, that I do get nostalgic so don't be too surprised if I show up in this post at some point...)

This isn't a usual update with my current side effects or progress, it's pretty much all out there already. Instead, I wanted to thank everybody that took the time to read this post. I spent a lot of time on it because I know how much acne can impact somebody's life and it was unfortunately a very large important part of my life for a long time.

I created this post because I just wanted to reach out to or help at least one person that is dealing with the same things I was. After looking at this post today, I was shocked to see almost 20,000 views as well as all the comments and responses I'v received from people. I never would have thought that it would have even reached that many people. And I really do love getting the feedback and responses from you guys, it makes this real and I appreciate it. I hope everybody I've talked to has conquered acne and found peace with themselves in one way or another, you guys were all very nice, appreciative, and supportive and again it all did mean a lot.

Good luck to everybody on their own journey.

Goodbye for now.

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Hi, I just started taking Accutane. I am just on my third day so yeah, I'm a newbie.

I am inspired by your post and by everyone's comments and encouragement. I hope we'll all be successful in getting rid of the acne.

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Hello! Thank you so much for this very informative post!!

I actually just started & am on my 2nd week of Myorisan (generic)

Idk if you still get on this but I wanted to ask some questions on the long term side effects.

How severe are your dry eyes/lips?

What happened with your stomach & how common is that?

Have you have any breakouts since you've been off accutane?

Have all your box scars faded away?

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Hi,

I'm on 20mg/day in Month 5. I saw signifiant improvement in mid Month 4, however in the past week I've been breaking out, although not as badly pre-accutane. It seems like the existing whiteheads are getting inflamed and coming to a head now, but I've also been breaking out in places that were previously already clear.

Does anyone have similar experience? I'm afraid that my skin would continue to deteriorate. I thought being so far along in my treatment I would stop breaking out. The little confidence I gained when my skin improved is at an all-time low again.

Please share if you have anything that could help me out!

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Hi,

i have only just recently started taking 80mg/day and I'm on my 10 month. Only 3 months left for course of oratane. My skin previously was very sensitive to the sun, but in the first couple of months of taking oratane i could feel even the street lamps burning me, and it wasn't evident till i got home most nights, as i felt that was the best time to walk (to keep my fitness in check), that i realised i was even sensitive to the street lamps. Although, my derma had me on prednisone an anti-inflammatory, and bactrim an antibacterrial drug, to null the initial effects of oratane in the first couple of weeks at the beginning due to having severe acne all over my face, neck, shoulders, back, chest, lower back, butt cheeks, and in places that im not going to mention. But since taking oratane i have seen a massive improvement, sure enough i still have just a minor amount of scarring, i am more than keen to see what its going to be like after i finish taking oratane. However i too regret not taking it sooner, it has changed my life for the better. All i hope is that the scarring, which is predominantly surface, and boxcar scarring, all heals up. I had a friend mention to me that rosehip oil is an utter miracle and it really is. It has helped my skin considerably regain its elasticity, and reduce the amount of scarring across my face and shoulders, and i still havent finished my course of oratane as of yet. I repeat 10 months in, 3 months to go.

@AccutaneInMyBrain: I really hope i experience the same effects post-oratane as you have man. So keen, all down hill from here.

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Hello! Thank you so much for this very informative post!!

I actually just started & am on my 2nd week of Myorisan (generic)

Idk if you still get on this but I wanted to ask some questions on the long term side effects.

How severe are your dry eyes/lips?

What happened with your stomach & how common is that?

Have you have any breakouts since you've been off accutane?

Have all your box scars faded away?

How severe are your dry eyes/lips?

Only bad when I wear contacts for my eyes. Besides that unnoticeable. The lips get chapped in cold weather immediately but otherwise just a little dry most of the time.

What happened with your stomach & how common is that?

I ended up forming 2 very small and premature ulcers in my stomach, and it is basically nonexistent in side effects percentages with accutane. Could have been genetical, but who knows, the timing is very fishy with a 19 year old getting 2 ulcers after 3 months of Accutane...

Have you have any breakouts since you've been off accutane?

Not breakouts, but I get a few pimples sometimes that will appear on my neck or lower jaw. The best part about post-Accutane me though is that when I do get a pimple, I'm not even tempted to pop it because I know it will be gone and dried out in less than a day (its really nice!).

Have all your box scars faded away?

Yes.

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I'm so happy for you! I know how you feel. You're story has definitely given my som hope. I'm at week 8/20 & my initial breakout was by far the worst acne I have ever had. My acne without accutane had never been that bad. Everyone stared & I got the occasional "omg what's wrong with your face?!?". I got over it. Now I have a forehead that has redness & scars that look & are hopefully temporary. I'm just worried they won't go away:/ and for side effects, I honestly can say that it doesn't bother me that much. I find it very manageable.

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So... I'm going to be honest here. I didn't even want to come back and write this post but I figured I should...  

At the end of the day, accutane was not worth the risks for me.  It has been 4 years since I started my Accutane regimen and I can tell you it was not worth it. Symptoms I thought would eventually subside never did, and have actually gotten worse recently. My lips, eyes, skin, and hair are still so incredibly dry every day that I do not feel like I used to.  I'm constantly trying to hydrate my body (internally & externally) with little help. Not one of my grandparents ever had hair loss yet I'm experiencing significant hair loss at 25 years old. Significant hair loss. The things I have learned about what accutane really does worries me: permanent telomere shortening (meaning potential shortened lifespan), changed vitamin A signaling for life (for everybody), retinoid receptor malfunction for life, the list goes on. I've had stomach problems that have only gotten worse. Endocrinal problems and two ulcers. Keep in mind I was a 100% healthy individual before this. Believe me when I say I would rather have acne right now than deal with the very real problems accutane has given me... not the superficial problems that acne used to. It's ironic that years ago on this same post I said that my only regret with accutane was not taking it sooner... seems like I spoke a little too soon. 

I'm not saying to not take it, but just be aware of the very real permanent long-term side effects that it could possibly cause and weigh the factors against each other. This is not a casual medication to jump in to...

Edited by AccutaneInMyBrain

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On January 18, 2016 at 11:02:58 PM, AccutaneInMyBrain said:

So... I'm going to be honest here. I didn't even want to come back and write this post but I figured I should...  

Just don't take accutane. It's not worth the risks.  It has been 4 years since I started my Accutane regimen and I can tell you it was not worth it. Symptoms I thought would eventually subside never did, and have actually gotten worse recently. My lips, eyes, skin, and hair are still so incredibly dry every day that I do not feel like I used to.  I'm constantly trying to hydrate my body (internally & externally) with little help. Not one of my grandparents ever had hair loss yet I'm experiencing significant hair loss at 25 years old. Significant hair loss. The things I have learned about what accutane really does sickens me: permanent telomere shortening (meaning literal shortened lifespan), changed vitamin A signaling for life, retinoid receptor malfunction for life, the list goes on. I've had stomach problems that have only gotten worse. Endocrinal problems and two ulcers. Keep in mind I was a 100% healthy, hydrated, and happy individual before I took accutane; I'm not anymore.

Please believe me when I say I would rather have acne right now than deal with the very real problems accutane has given me... not the superficial problems that acne used to. I remember walking around in high school and college with people judging me by my skin every day. I remember how much it truly hurt me. It hurt a lot. I cried and wanted to stay in my room all day so nobody would see me. Nobody would judge me or have to look at me. I know how much it hurts. I know that sometimes I considered suicide a better option than the hand I was dealt in life; I still remember how that feels. That's why you have to trust me when I tell you: find friends that value you for who you are, don't try to please anybody, and don't sacrifice your long-term health for short-term gain. My dad used to tell me that last one. I brushed it off as a "dad thing" that he had to say. As with most things in life... dad was right.

It's ironic that years ago on this same post I said that my only regret with accutane was not taking it sooner... I find it fitting that now my only regret is even considering it as an option in the first place.


  Edited by Jones4545

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3 hours ago, Jones4545 said:

Oh buddy,

I'm really sorry to hear that you are going through these health problems. I just read through your whole thread and there is soo much positive information and thoughts in it. I would like to refer you back to your first post about how people only stick around to talk about the negative side.

I am not discounting the side effects that you are still feeling or saying that you would have dealt with them anyways, but....things do happen like you've said yourself in this thread. For example, my dad, he was completely bald by 28, nobody in our family has ever been bald, he never took accutane. You speak of superficial side effects and then mention balding, isnt that what balding is, a superficial side effect. Thats just an example, and I've personally had stomach ulcers before I took accutane.

Your thread has been read over 30,000 times and has probably helped countless people get through their accutane experience. 99.99% of them will never suffer negative side effects after their course, and everyone is well aware that there are long term possible side effects. 

All im saying is that you had a really positive thread going and adding this last post really casts a negative shadow on the whole thread. Read the last post by SaMa1997, right before you posted this. She says you have given her hope. I wouldnt take that away from people. Acne ruins peoples lives, and accutane has literally saves millions of lives. 

Jones,

I appreciate you reading this entire thread and your articulate response. When I started this thread, it was to relate to people and help them through their experience, and hopefully to positively impact at least one person. The fact that this has over 30,000 views does make me very happy that people have read this and hopefully some have positively benefitted from it.

But... the most important thing I wanted to do was to relay the truth.  As I said at the end of my first post, I never thought there was a completely honest guide that I could relate to, and I supplied what I thought was one. Nothing has changed; and, if the positions were flipped and I were the one reading this for advice, I would most definitely want to know any bad long-term side effects that came up.  It is not my responsibility to make people's decisions for them regarding accutane or to give them hope; it is my responsibility to give you the entire truth so that you could make an informed decision for yourself.  To not include my long term negative side effects (which are related) would be doing an injustice to anybody that reads this thread.

Again, thank you for reading my thread. I sincerely do appreciate your thoughts.

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18 hours ago, AccutaneInMyBrain said:

Jones,

I appreciate you reading this entire thread and your articulate response. When I started this thread, it was to relate to people and help them through their experience, and hopefully to positively impact at least one person. The fact that this has over 30,000 views does make me very happy that people have read this and hopefully some have positively benefitted from it.

But... the most important thing I wanted to do was to relay the truth.  As I said at the end of my first post, I never thought there was a completely honest guide that I could relate to, and I supplied what I thought was one. Nothing has changed; and, if the positions were flipped and I were the one reading this for advice, I would most definitely want to know any bad long-term side effects that came up.  It is not my responsibility to make people's decisions for them regarding accutane or to give them hope; it is my responsibility to give you the entire truth so that you could make an informed decision for yourself.  To not include my long term negative side effects (which are related) would be doing an injustice to anybody that reads this thread.

Again, thank you for reading my thread. I sincerely do appreciate your thoughts.

  Edited by Jones4545

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     Thank you so much for posting all of this! I just started Accutane and honestly wasn't sure what to expect progress-wise. Like many people here, I had somehow managed to convince myself that my acne will never get better and that it will continue to negatively affect my life as it has for so many years.  Seeing yours and others' stories gives me positivity and patience, for which I am very grateful.  

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Thank you for your response leviosa, positivity and patience are certainly a must in dealing with the emotional effects of acne. I hope your journey went smoothly and successfully.

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Hey man, about to start accutane in about 5 days. Recently came across your thread and I must say, I really appreciate the fact that you're taking time out of your day to inform people about the drug. I can definitely relate to the mental effects of having acne, although mine is pretty mild (yet so persistent)..

Anyway I appreciate the encouragement and am sorry to hear that you're experiencing these long term sides.

The feeling you described after being clear gets me so excited. I can't wait to experience that.

Hopefully you get to see this post, thanks again!


 


My Accutane Log (Started 9/13/2016)
http://www.acne.org/messageboard/topic/362620-tretinoins-accutane-log-2016-mild-acne/

Need help or assistance with anything forum related or acne/emotional effects of acne related? 
Don't hesitate to send me a private message. I am ALWAYS willing to help out.

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On 9/4/2016 at 0:03 AM, Tretinoin said:

Hey man, about to start accutane in about 5 days. Recently came across your thread and I must say, I really appreciate the fact that you're taking time out of your day to inform people about the drug. I can definitely relate to the mental effects of having acne, although mine is pretty mild (yet so persistent)..

Anyway I appreciate the encouragement and am sorry to hear that you're experiencing these long term sides.

The feeling you described after being clear gets me so excited. I can't wait to experience that.

Hopefully you get to see this post, thanks again!


 


I appreciate you reading it. And yeah I come back from time to time to check out the thread out of curiosity now.  I hope everything is going well for you, I know you're in the middle of it now so hopefully everything is going smoothly.  Just try to keep it out of your mind and try to live a normal life as much as possible.

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