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Repairing the long-term damage from Accutane

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#1141 levianthan

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Posted 02 May 2012 - 11:42 PM

did he mention anything on how he treats sexual dysfunction?

#1142 humanstate

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Posted 03 May 2012 - 12:02 AM

It seems I wasn't clear enough last time, so I'll repeat:

I directly asked Dr. Snow via email if he was claiming to reverse 100% of Accutane side effects, including sexual dysfunction, skin issues, bone and joint issues, etc.

He replied, "Whole shebang."

For those with gastric trouble, Snow's mechanism of action makes 100% sense to me. I want to record it here, mostly for my own thoughts, but you may find it useful.

The initial problem is depopulation of the bacterial lining of the internal membranes - nasal, intestinal, gastric, bladder, whatever.

This leads to overgrowth of the wrong kinds of bacteria, causing an acidic environment that causes inflammation and tissue degeneration. From there, all problems become progressively worse.

The only solution is to repopulate the originally intended bacterial "mat".

When I have an episode, this is exactly what I feel is happening. I already know that stress alters the mucosal linings, making them more susceptible. I feel as if something burns its way through my guts over a couple of days. Then I recover.

When placed in Snow's paradigm, the exhaustion and pain and disturbed sleep make perfect sense. It's supposed to hurt. Something bad is happening.

I have no idea how Snow can cure non-gastro side effects, particularly those that don't involve mucosal linings. But based on his credibility with gastro matters, and his extensive practice, I'm inclined to believe him.


What we need is someone to try it. I would myself but I have no money at this point. The soonest I could have that money would probably be July... I hate the thought of having to wait that long.

#1143 JosephBuchignani

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Posted 03 May 2012 - 04:29 AM

@lev No he didn't, and I didn't search or ask about it.

If I'm the first to try here, that's fine by me. I think I'll be able to start earning for real pretty soon. Just getting organized at the moment. Some good prospects. Will start getting serious about it tomorrow.

#1144 accux

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Posted 03 May 2012 - 05:27 AM

Has anybody tried running a marathon or going under heavy exercise?
That might increase cortisol in the body in the short term but endurance exercises generally have a normalizing effect for hormones and neurotransmitters and triggers neurogenesis with BDNF.

Besides has anybody seen a urologist in the UK for sexual sides.
Anybody you could recommend?

Edited by accux, 03 May 2012 - 06:43 AM.


#1145 Tree1

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Posted 03 May 2012 - 06:53 AM

accux - long distance running hasnt done much for me, but I havent run a marathon so can't comment on that. Compound weights/sprints could help hormone balance which could be more beneficial.

I've seen a couple of urologists in the UK - absolute complete and utter fucking waste of time. They didnt have a clue, prescribed me viagra and told me 'its all in my head'. In my opinion, urology is the wrong department for this anyway - get a referral to an endo and get a full blood panel done and start from there

#1146 JosephBuchignani

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Posted 03 May 2012 - 08:16 AM

If the problem is bacterial then no scope can see it, no doctor can find it, and they will only deal with the downstream resulting issues.

Doctors know fuck all.

Edited by JosephBuchignani, 03 May 2012 - 08:18 AM.


#1147 humanstate

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Posted 03 May 2012 - 09:26 AM

If the problem is bacterial then no scope can see it, no doctor can find it, and they will only deal with the downstream resulting issues.

Doctors know f--- all.


It's funny when I say medical doctors are idiots and people laugh at me!

#1148 IndigoRush

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Posted 03 May 2012 - 11:38 AM

http://www.youtube.c...=1&feature=plcp

Hey Folks,
Hope you're having a good day.
Just a quick video for anyone who wants to watch it.

Take care

Stef

#1149 JosephBuchignani

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Posted 03 May 2012 - 12:49 PM

You should never tell the truth to stupid people. It upsets them unnecessarily.

That said, I like stupid people (socially, not on the internet). They're nice when not provoked, and a source of endless amusement.

#1150 Believe

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Posted 03 May 2012 - 02:44 PM

I have mentioned colostrum before and yes it works, but....

First, I tried liquid organic colostrum. I tried the following brands:

http://www.aponeo.de...W0LFXqMLAKqNkbH

http://www.aponeo.de...W0LFXqMLAKqNkbH

Very expensive but it works, almost perfect digestion, more energy, faster regeneration from exercise. I would love to drink a bottle every day.

I researched colostrum in quite some detail and it is a fabulous supplement. As the liquid is real expensive, I gave the best selling colostrum powder from iherb (Symbiotics) a shot, unfortunately it did not give me the same benefits.

#1151 Dubya_B

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Posted 03 May 2012 - 03:43 PM

You should never tell the truth to stupid people. It upsets them unnecessarily.

That said, I like stupid people (socially, not on the internet). They're nice when not provoked, and a source of endless amusement.

Well, sorry if this upsets you, but your Dr Snow is nearly the definition of a quack.

I directly asked Dr. Snow via email if he was claiming to reverse 100% of Accutane side effects, including sexual dysfunction, skin issues, bone and joint issues, etc.

He replied, "Whole shebang."

Honestly, this guy tele-diagnoses everyone with the same imbalance of gut flora (IBD from accutane is strongly believed to be auto-immune in nature, not bacterial) and claims an outlandish success rate?
http://holisticgastroenterology.com/
"My GI Regeneration Method will completely cure your IBD within 90-120 days. All of my clients see improvement in the 1st 30 days. 95% of my clients are healed in 3 months. My method leads to permanent improvement. You do not need to travel to my office. All of my appointments are done via telephone or Skype as I do not need to examine you. I just need you to tell me your history."

Lets see what some of his patients have to say: http://www.ibsgroup....g/page__st__180
A pretty piss-poor track record compared to what he claims, don't you think?

Some of us don't even have gastro issues. If he claims %100 that my sexual dysfunction will be cured, will %100 percent of my hard-earned money be returned if the treatment fails? Will he cure my junk and my mind by getting rid of bad bacteria in my intestines that he detected via the tone of my voice over the phone? Ridiculous!

I'd have more faith in this Al Snow curing me: http://en.wikipedia.org/wiki/Al_Snow

Hope you were amused.

Edited by Dubya_B, 03 May 2012 - 03:52 PM.


#1152 Lukez

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Posted 03 May 2012 - 05:25 PM

Great quote from one of his patients:

This treatment is going towards one of many failed attempts to cure my IBS. This however is by far the most expensive one. I would eastimate the cost to around 600$.


So many people preying on desperate sick people. That is sick itself. Just like with accutane.

For what it's worth, I've found what IBS I had to be treated by simple MSM at 2 grams a day, with gelatin added to broths daily. And sauerkraut once per day.

I did not find that the other symptoms from accutane went away once the IBS was resolved.

#1153 JosephBuchignani

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Posted 03 May 2012 - 07:13 PM

Dubya B, legitimate skepticism does not make you an idiot.

I read the thread with interest and found that those who were actually following the protocol were reporting success. Siea was not using refrigerated probiotics. Someone else was trying to mimic it without consulting with Dr. Snow. Neither counts.

If you have a better smoking gun link, I'd love to see it.

I could be disastrously wrong. I haven't shelled out any cash yet or completed my reading and research. This is more of a gut instinct thing. He patterns after other geniuses who have influenced my life.

They're always found on the fringe because the mainstream automatically rejects the revolutionary.

#1154 Lukez

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Posted 03 May 2012 - 07:45 PM

There's nothing wrong with trying it out.

My preference is each person here try an approach for confirmation every time something is said to work. For example, idebenone or proviron or Dr. Snow's protocol.

Then we report back on what is discovered.

I may try idebenone in a week or two. Someone in Europea where it's more easily accessed should try proviron to see whether there is merit to levianthan's report for more than one person.

#1155 oli girl

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Posted 03 May 2012 - 07:56 PM

Just thought I post this recent study, I know we all know the damage Accutane does on the eyes, just thought I'd post it though

http://www.reuters.c...Name=healthNews


Though other health problems that Accutane can cause, can also wreck havoc on the eyes

#1156 jmsil

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Posted 04 May 2012 - 12:03 AM

"It's a relatively dangerous drug," he said. "The best way to avoid these side effects is if you do not take the drug at all."

Well it sure has ruined my eyes. Thanks for the link Oli Girl - it's always good to read about the new studies they do on the drug.

I didn't post this yesterday, because I was too "flippin angry". The hospital phoned yesterday, so the results/report would be now in, you would think? No. It's even worse than that. I don't want to go into details, but long story short - "they" have cocked-up. They are saying they run out of samples or something, therefore the test cannot be completed, and have offered either a full refund or to make an appointment to give more blood again. So yes, I make it over a 7 week wait (which should of only been 3-4 weeks) for absolutely nothing. My possible proof that Accutane has aged me has gone out the window. I've had to wait over double the amount of time it should of took, and it makes you wonder if they ever has these "fax problems" and if they were ever waiting for this report at all. I'm not sure if I can go through the effort of going to get another blood test and then wait this long again. How do I know they won't do this again? So sorry to anyone who was awaiting these results as much as I was...

#1157 Dubya_B

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Posted 04 May 2012 - 12:04 AM

Joseph, my apologies for dragging you into such a condescending argument with someone such as myself, but I am a bit surprised that your hyper-intelligent intuition didn't catch the obvious signs of medical quackery being thrown up by Dr Snow's website and comments.

#1- Claiming his methods can cure anything and everything that's wrong with you: He told you that he could cure (not treat, but cure) %100 percent of accutane's side effects, something no other doctor has been known to do. Has he ever even treated an accutane victim before? He seems to make this cojecture based on nothing and with no special insight into accutane's methods of action. Does this Gastroenterologist have extensive experience in healing sexual dysfunction, depression, nervous system disorders, joint issues, etc...? Not according to all of the information on him. Wild baseless claim, and it is one huge steaming pile of BS. Just plain wrong.

#2- From his site:
"1. All Inflammatory Bowel Conditions are the same.

2. They are just different degrees of damage to the same tissue.

3. They are not diseases or syndromes.

4. They are manmade.

5. They have the same cause and the same cure.

6. There is only one cause.

7. There is only one cure.

8. Your doctor cannot fix it.

9. I can."

Yes, he claims to have special knowledge of digestive disorders which has yet to be uncovered by conventional medicine, or backed-up by scientific evidence, and he is the only one who can cure you. There's a big red flag.


#3-"My GI Regeneration Method will completely cure your IBD within 90-120 days. All of my clients see improvement in the 1st 30 days. 95% of my clients are healed in 3 months. My method leads to permanent improvement."

Guaranteed speedy, miraculous, and pain-free cure. There's your third sign. Anyone who doesn't see improvement in the first thirty days must be doing it wrong. LOL


Are you saying %100 of those who didn't have success with Dr Snow's method did it wrong? ...and tell me how many who followed the protocol were actually "cured."


I can't offer-up any definite answers Joseph, but if your comfortable being lied to by psuedo-doctors looking for easy profit, then I suppose you'll find unreliable answers for your health problems rather than none.

Edited by Dubya_B, 04 May 2012 - 12:13 AM.


#1158 JosephBuchignani

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Posted 04 May 2012 - 02:37 AM

Yes, Dubya, he claims to have experience treating Accutane patients. Yes, he claims 100% cure rate for those who follow his protocol correctly.

I said I was inclined to believe he can reverse all Accutane damage. I am obviously more confident in his ability to fix gastro issues. Regarding the former, I have merely presented his claim, without expectation that it will be believed. Now the claim has been heard and I am satisfied.

He is either a quack or sitting on a magic cure. We will know soon enough.

Happy to oblige, Modesto. You are hereby formally advised to avert your eyes in my presence at all times.

#1159 Tree1

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Posted 04 May 2012 - 06:14 AM

Lukez - can you advise what side effects idebenone has been known to help with? Cheers

#1160 Believe

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Posted 04 May 2012 - 01:24 PM

still nobody here has answered my question regarding IgA, who else has low levels of IgA?

As the topic of colostrum has come up it makes sense to ask this question again, because a lack of IgA was one of the main reasons why I tried colostrum. IgA is one of the most essential substances to maintain the body's equilibrium and fight off invaders from the outside. Colostrum contains IgA as well as IgG, but do the research yourself...

If we were to find out that accutane causes long term IgA deficiencies it would be a major breakthrough, because it is linked to a lot of the symtoms we have like pink eye, IBS, leaky gut, blody nose/sinusitis... Actually once you have an IgA deficiency you pretty much suffer from an auto-immune disorder... A lot of people with gluten sensitivities have low levels of IgA as well.





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