3193 replies to this topic

[Maynerd]

I am having really good results (as a few others have noted some success) with the Dermatrophin PMG. Finally my face has stopped peeling everyday for the most part and the combination of the pmg with hyaluronic acid as well as biotin is making my skin feel more normal but I believe the derm pmg was the kicker. I switched from source back to Jarrow as far as Hyaluronic acid goes because I prefer taking my supps in either powder or capsule form and I must report I do like the Jarrow more (Been on Jarrow for 5 days only one noticible eye floater in the past 2 days, no soreness!).


I have been thinking about taking creatine for a few months but I haven't decided if I want to take it yet, I need to do more research. I do know that creatine hcl seems to be utilized more effeciently by your body and would therefore likely be easier on your organs. The Con-crete would be a good form of hcl. On the other hand the monohydrates will increase water retention which seems like something we could use. I just found out that creatine increases DHT levels. I've already been trying my best to drink around a gallon of water a day. Would need to get closer to 1.5 w creatine and closer to 2 with creatine and sauna at the same time. I am hesitant of the creatine tho, need to do more research to become comfortable.


Found this: http://ebooks.whnliv.../LipidDetox.pdf


Found what he said about potassium to be interesting. Probably a good idea with sauna use anyways. Also found interesting what he said about replacing bad fats with good fats such as lecithin which I plan on ordering. Getting the kind from sunflower sources rather than soy sources.


I've been thinking in terms of repairing vitamin A metabolic pathways lately. For example, Keratynocytes are involved in Vit A synthesis and also hyaluronic acid utilization among other things. They need vitamin D and selenium/selenoprotiens to work properly selenoproteins can be found in algae and astaxanthin (a caratenoid that does not convert to vit a). I am probably going to buy a micronutrient supplement soon. I think that's where Joseph is correct w his wacky diet, which I might try sometime as a short term kind of break for my system (like a fast) but wouldn't consider it longterm.


Anyway here is the full section from my physio book on vitamin A for anyone ready to tread through the tedious jargon. It covers everything from deficieny to hypervitaminosis. I challenge the genious out there to synthesize this knowledge and repair us. I feel like I'm forgetting something in this post but the first time I tried to post this one my comp freaked and it was erased bleh.

https://docs.google....k5Wak1rRW8/edit

Edited by Maynerd, 17 April 2012 - 12:54 PM.

[IndigoRush]

Hi Maynerd,

When you say you have noticed only one eye floater in the last 2 days, do you mean you normally have more?
I have a few that I can see in daylight, or a well lit room, and good God are they annoying!
I'm still worried about my gums receding because it appears worse on a couple of teeth.
Seriously, it feels like I'm running out of time. I feel like my health is declining at a rapid rate.

I've been using my sauna twice a day since my first mention of it. That's probably 10 days, I dunno.
No sign of it helping at all.
I'm not really sure how long I'm meant to expect for results.
I did hear on another Accutane post (on some other site) that some dude had been using an IFR sauna for years after accutane and it didn't help side effects, but he said it was good for health in general.

I went to the pub with my friends yesterday and felt shit.
I was in one of those brain-not-functioning moods and couldn't manage to string a sentence together.
I was also missing my girlfriend terribly... Well, she was my girlfriend.
It's her birthday today, and I can't be there.

I went to my Music open day and ended up singing in a band for one song.
I didn't feel nervous. It was good, and I think it'd help me feel happier if I did that instead of office work.
Still need to do my audition, which is in a couple of weeks, and need to save up as it's £1400 a year. Time to get a job again, before I end up wasting away.
When we were watching the other band play, I suddenly got a terrible pain in my head.
I hate that I assume I'm dying every time something like that happens.
It was a one-off in the end, but hurt like hell.

I've heard that 97.5% of supplements are useless and not absorbed.
I don't have money to buy anymore at the moment.

When I get a job, which hopefully I do (at least part time) soon, I'll arrange to get my vitamin/mineral levels checked out.
I do know that chemotherapy, as well as stress cause a deficiency in Magnesium, so it might be wise to take this a couple of times a day in a good form.
Still feels a bit like guesswork though.
Sick of taking lots of supplements and getting no results.
We need to remember that many of these will be banned in the next few years.
It's something that was put into place last year in the UK, and America will follow suite.

It angers me, because they know exactly what they're doing.
100% RDA of Vitamin C is 60mg and that's bollocks.
Vitamin C has been shown in studies to fight cancer, and yet cancer research advise people against using it.
Every disease is a business to these greedy fuckbags.
They need to be exposed for the liars they are.
There is due a paradigm shift, because people are getting more ill from drugs.
Drugs create illness.

They give chemotherapy and radiation to people with cancer, but those cause cancer.
In a hundred years time, I believe people will say 'What a bunch of fucking idiots. Why did they poison peoples bodies and radiation. Why didn't they fix the cause'.

My Cat has gone fucking senile or something this last week.
Won't shut the hell up.
He meows and you let him in and then he's near the door again wanting to go out.
What's the point in a cat?! Jesus.

I still feel unsure about whether we have excess vitamin A (hypervitaminonis) or if Accutane has over-rided the pathways for Vitamin A.
It's like... We have the symptoms of lacking Vitamin A.
Eyesight problems, muscous membrane problems.
And yet, we're not all blind because of this drug.
I have heard others becoming blind after/during Accutane though.

[Mickyemouse]

I did a blog post about Creatine
http://consdale.co.uk -- Including some medical references might be useful for you.
Stef: Hang in there dude, give yourself something to look forward to!
Think of the documentary

Edited by Mickyemouse, 14 April 2012 - 12:28 PM.

[gatorwolf6]

Maynerd, good find, I will have to try that Dermatrophin PMG. My face/arms/legs will not stop flaking even if I drink over a gallon of water a day.

[Maynerd]

Indigo, I notice mine when I'm outside and I look at the blue sky, happens a lot when driving. I started noticing them a few months ago and they started getting progressively worse at an alarming rate. On Easter I played kickball and within the three hours I must've seen around 100. Scary shit. As far as teeth go I'm getting gum grafting soon cuz my 2 k-9s have a lot of the root showing.

This is an important and difficult question to answer "I still feel unsure about whether we have excess vitamin A (hypervitaminonis) or if Accutane has over-rided the pathways for Vitamin A.
It's like... We have the symptoms of lacking Vitamin A".


Gator, it was actually switch124 who recommended derm pmg and nickryan who reported good results after that.

Still need somebody to show me how to post a pdf...

[Riones]

Hello all!

I've had my share of rather persistant side-effects from accutane, and for the sake of my mental health, I'd like to share my story with the people on this forum. Reading some of these stories has made me unusually nervous and anxious, and thus I'd like to open up a little to help myself (and possibly others).

I took accutane (Roaccutan, not a generic one) three years ago, with my dose being 30mg a day. During the treatment I got the usual side-effects, like dry eyes, dry lips and dry skin, which, while annoying, weren't in any way serious. After all, I was told that the side-effects should go away a couple of months after I have finished my course. Three months from starting accutane, a bit before my seventeenth birthday, I noticed an extremely strange thing about myself. During one afternoon, I nearly completely lost my desire to have sex, or anything related. In addition, I had difficulties keeping erections, the glans of my penis felt numb, and I couldn't feel almost anything if I tried to masturbate. Orgasms were nearly gone as well. I also experienced some sort of emotional bluntness, as I was unable to feel happiness or sadness like before.

I quit taking Roaccutan immediately after contacting my doctor, who said also that my symptoms were caused by something other than accutane. I went from doctor to doctor, trying to find help, and I did get some. While I didn't (at the time) regain much sexual function, I did manage to calm down, and continue "normal" life. I saw a psychiatrist for a while, and took a low dosage course of citalopram, which didn't help that much. 6 months after the start of my problems, I decided to see what happens if I forget about it and wait.

Now, three years after I started my course, I think I have regained some sexual function. Getting erections is much easier than before, and occasionally I can have surprisingly strong libido. My penis feels almost as numb as it did back then, but overall I have improved both in sensitivity and getting orgasms.

Personally I think that my problems are caused by accutane aggravating a hereditary vulnerability to depression. When I feel good, everything is manageable, but when I feel anxious or nervous about my future like now, my problems worsen. I am planning to see a doctor again soon, and try to get some help regarding my mental health, which I think has a significant role in all this. Reading the post by Antisexaccutane gave me hope that I can regain enough sexual function to enjoy sexual relationships in the future at least a little more.

I hope that everyone here can find help for their problems, both mental and physical ones!

[IndigoRush]

I want to reiterate that it's very important we stay strong, and determined to beat this.
While in my sauna, I'll often repeat in my head 'I WILL get better. I WILL be healthy once more'.
It's a hard thing to prove, but there is a lot of evidence supporting that our minds can determine what happens in our bodies.
The more we stress, which of course can be difficult to avoid, the more nutrients we use up.
Therefore, the more likely we are to become deficient and then (I believe, after reading Never Fear Cancer Again) get further problems.

Maynerd, I googled gum grafting... Doesn't sound fun! But hey, what else is there? I won't be acting on that yet, but I do fear that it's evitable.
I'm only 21... I don't think you can do much to actually reverse the process.
I'm also doing all the right things in terms of dental hygiene.
I DO NOT want to lose my teeth!
The few that have some receding make those teeth look bad, and I spent £4000 on straight teeth!
My teeth are one of the few things I get compliments for.
That won't be the case if they all disappear.

On another topic, I had a normal poop today.
And woke up with an erection.
My, how open our little chats are.
Anyone stumbling across this by accident would think 'What the f!?'

It's nothing to jump up and down about, but it certainly puts my day in the right place to begin with.
I don't know what to read now.
Just finished the cancer book, and now I've started Andreas Moritz' book 'Timeless secrets of health and rejuvenation'.
It's meant to be good.
I have so many non-health/self-help related books though.. I might start the second Hunger Games book soon.

After 2 weeks of avoiding gluten, it didn't make a difference to me, however as it's a known irritatent, I will continue to avoid gluten most of the time.
Got sick of oatmeal in the morning, so now have a gluten-free chocolate balls one. Tasty!
My lunch is normally half a pack - a pack of sliced meat (not the really cheap shit) and I usually go for sweet cure pork loin.
I have this with some salad.
I'm trying not to spend much money at the moment because obviously I don't have income.

I think a lot of things we can do are free anyway.
Exercise. A good amount of sleep. Relaxation.
Next time my cock'n'bollocks aren't working, I'll try to think 'Don't worry about it. Do something else'.

Stress will just slow down any healing we may have.

Me and my girlfriend are working things out, so luckily I haven't lost something really important to my life.

Should have my meeting with the documentary guys in a couple of weeks, if not late next week.
I'll update you all on that.

It's a fairly nice day, so I think I'll have a walk.
I wish I could feel like this more. Other times I just don't seem to have the energy or willpower.
Best make the most of it, aye?

Stef

[Believe]

I was on accutane in 2003 and I am still recovering. I came across Stef on youtube where he said in one of his videos that he is still hanging around at the org, so I had to check it out and give my two cents.

A short recap of my situation:

My symptoms pretty much coincide with yours, whereas some have improved over time, I will tell you what helped later. I have tried and experimentet a lot.

Doctors in most cases were not able to help or contribure in any way, I will spare you the details... would be a different story. Unlike to your case my acne came back pretty fast after getting off of the drug and it became far worse actually. My skin lost its ability to rejuvenate altogether for a quite long period of time and I am talking about the whole upper body where the skin had simply dried up. I did not suffer from depression or anything the like, but my state of health was rapidly decreasing after getting of the drug. To this day my eyesight decreases steadily, I had to start wearing glasses shortly after getting of accutane. Besides the common sideeffects I suffered severe cartilage damage in my knees, which cut my career as a basketball player short. My knees have not and probably will never fully recover, exercises involving running are a no go for me.

As I mentioned, the drug did not cure me! Quite the opposite, as my health declined, my acne grew and at the same time I became extremely sensitive to stress and got tired and fatigued ever more quickly. My situation became so bad that in 2006 I realised that should I not be able to turn myself around I would soon be for a lack of a better word be "disabled". Some months after getting off the drug I also started passing gas, like all day nonstop, it was embarrassing and lasted until around 2006. This is when I went gluten free. In 2006/2007 I made the turnaround with juice fasting and liver flushes mainly, see tips below.

A friend of mine who initialy recommended the doc to me who put me on the drug went on two cycles of the drug and was never cured either. Instead this once very smart guy became extremely fatigued and started to suffer from paranoia. He had to quit his studies and has become unemployable. He recently tried suicide, because of an altercation he had with his dad about him not being able to start a real life and get a job. After the injuries he suffered from the suicide attempt he will probably never be the same again.

Now, coming to the positive part of the post: Focusing on the past does not help, we got to look forward and make the best of it.

Mentally I handle the repercussions from the drug by focusing on the positive experiences I have had because of the struggle. That is mainly, the things that I have learned, the route my life has taken because of it. I am not religious, but things happen for a reason, what does not kill you makes you stronger, this is what I try to live by.

Tips: Below some things which have really worked wonders for me.

1. Taking zinc-picolinate 50 mg per day, half an hour before bedtime, increases sex drive and sperm count, reduces inflammation
2. Taking magnesium and potassium citrate, be careful with potassium you got to know what you are doing otherwise you may suffer cardiac arrest
3. Drinking 2 to 3 freshly squeezed lemons in the morning on empty stomach
4. Gluten free diet, you will only experience the benefits if you go 100%, cheating every 2 or 3 weeks will do you no good.
5. No industrial sugar
6. Brazil nuts, I take those for selenium, they are better than any selenium supplement, eat about 50g per day
7. Sauna, the fitness club I go to has a sauna, try to go there 2 times a week for two to three sessions each 15 minutes + cool down
8. Liverflushing in combination with hydro colon theraphy: This is the most potent tip on the list, but unfortunately it is nothing you can simply incorporate in your daily routine like a lifestile change. The only times I have been completely normal again - no dry eyes, more energy, normal digestion, no dandruff, calmed my mind - was after 2-3 sessions of liverflushing in a row, each about 2 weeks apart. Unfortunately after about 3 month things start slowly going back to "normal" again. What happens is that the magnesium sulfate, which is also prescribed to people with a magnesium deficiency, stimulates all your organs, this is at least one reason it works. The green stones you flush out are certainly no liver stones, they are produced by the olive oil in combination with bile secreted from the gall bladders.
9. Rowing, it stimulates all your organs underneath you abs and helps digestion. It is like giving yourself a good massage.
10. juice/smoothy fasting, almost forgot it, don't starve yourself!!
11. fresh organic liquid colostrum, it works and helps a lot, but too expensive for me, at least here in Germany
12. red beets, avocado, papaya, raw foods
13. all the things you take commonly for a holistic treatment of IBS or the like, for example enzymes or detoxifiers help, cost a lot of money...
14. If you want to go a step further than gluten free, try to eliminate starchy foods (special carbohydrate diet), instead eat a diet high in protein, fats and fruits and veggies. It is called ketogenic diet, good for building muscle

Edited by Believe, 16 April 2012 - 03:58 PM.

[JosephBuchignani]

I was never able to fit travel into my life. At least, not this particular work travel circuit. The location forced sleep deprivation. It appeared to be a nice apartment, but in reality was noisy in the morning, uncomfortable bed, poor light shielding. And I had to go every week. So I was either sick or recovering 90% of the time, just from that weekly sleep deprivation. Terrible.

Well that obligation is concluded and I won't be renewing it. So now I have every major stressor eliminated. I've just gotta get over the effects of the trip I took last weekend (the last one), and I'll be home free.

Lesson: Avoid sleep deprivation like the plague.

[Believe]

Lesson: Avoid sleep deprivation like the plague.

that would be number 15. I used to take ZMA and it would increase the quality of my sleep dramatically. Nowadays I just stick to taking magnesium and zinc while at the same time eating a lot of bananas for vitamin B6 and it does the trick

[JosephBuchignani]

Good stuff. I get all of those by eating scallops daily.

[Believe]

What I forgot to ask yesterday:

Has anyone else around here low immunoglobulin A (IgA) and/or high copper levels since getting off the drug?

[IndigoRush]

Welcome to 'Believe'.
Good to have you on board.

Speaking of 'On Board', I saw Titanic in 3D last night.
My favourite film of all time. Amazing.

I recently received an email on YouTube from someone telling me to try Hemp Seeds and Hemp Seed OIl.
It's helped some of their issues, including hair loss and headaches.
I'm sure we've mentioned it before at some point, but I've not tried it myself and it was cheap enough to buy so I've got some.
It seems to have some decent benefits, including hormonal balance.

http://hemphealer.wo...can-repair-dna/

I'll let you know if I notice anything.

Stay strong.
I've gotta get myself a job again!
It's weird being at home during the week when everyone else is at work/college

Stef

[Believe]

companies like to make money, why not have Roche develop a protocol to reverse the side effects of accutane, there is certainly money to be made...

[oli girl]

What I forgot to ask yesterday:

Has anyone else around here low immunoglobulin A (IgA) and/or high copper levels since getting off the drug?

I know I did! I will dig up my results. I know that it was probably about 4 months after my Accutane poison. It's been about 4yrs ago. Thanks for your posts. By the way my bones & joints (knee also) were destroyed also in fact I ran 3 miles a day before Accutane that is just a dream now, what do you do for them?

Well, to let everyone know I have been keeping my sugar levels in check, however still loosing weight & muscle, they seem to think nothing of it and claim my diet is too extreme...I guess we will see. It really amazes me how many issues, diseases this drug gave me and I am still alive....

Jsmil - did you just have a blood test of the telemores? I am not sure if your going to get a bad answer since there is nothing to compare prior to Accutane. I believe in studies of Cancer pts that how they were tested before and then after.

Hope all is well w/ everyone

[Maynerd]

Ok, here it is the in depth bio/physio analysis of Vitamin A for anyone interested. Sorry it's sideways and not the clearest read, if you download it you should be able to flip it right ways up. Interesting how it talks about how hypervitaminosis makes keratin less cohesive, creates increases in prostaglandin release which can be remedied by aspirin, and how it causes hypoprothrombinemia which can be relieved by supplemental vitamin K. Beware it mentions accutane without mentioning ill effects.

https://docs.google....k5Wak1rRW8/edit

Furthermore, I noticed about 15 floaters today so HA isn't a miracle but I feel better on it.

@Believe, it is probably because if there are cures it they will be just that, cures plural and not just one pill. Our bodies are dynamic systems so even though we took one thing we messed up a whole network which is why we should not expect a cure to come from one thing or overnight. And they won't have luck getting a multiple pills through the AMA. Dr. Mary Ruwart speaks of those difficulties as a former drug developer if you are interested. Oh and they can't patent organic compounds which is where our healing will come from.


Oh and stef I hear grafting is pretty bad when they transplant your own gums but a lot better if they use pig or some kind of foreign substance.

Edited by Maynerd, 16 April 2012 - 09:22 PM.

[JosephBuchignani]

What I forgot to ask yesterday:

Has anyone else around here low immunoglobulin A (IgA) and/or high copper levels since getting off the drug?

I know I did! I will dig up my results. I know that it was probably about 4 months after my Accutane poison. It's been about 4yrs ago. Thanks for your posts. By the way my bones & joints (knee also) were destroyed also in fact I ran 3 miles a day before Accutane that is just a dream now, what do you do for them?

Well, to let everyone know I have been keeping my sugar levels in check, however still loosing weight & muscle, they seem to think nothing of it and claim my diet is too extreme...I guess we will see. It really amazes me how many issues, diseases this drug gave me and I am still alive....

Jsmil - did you just have a blood test of the telemores? I am not sure if your going to get a bad answer since there is nothing to compare prior to Accutane. I believe in studies of Cancer pts that how they were tested before and then after.

Hope all is well w/ everyone

Oli Girl, I've experienced most forms of self-induced starvation firsthand. Why don't you post your diet and I'll see if I can pinpoint the trouble.

Also, bone and joint trouble = supplement with K2, as another poster here just mentioned here. Butter oil works great. See Richard Nikoley's posts on Vit K2.

[Believe]

industrial sugar has been a major problem for me too, whereas eating fruits are no problem at all.

instead of running i recommend rowing cycling and swimming. anything that is not too harsh on your joints.

[Believe]

I just read a little more of what has been posted in this thread thus far and came to the conclusion that the people posting here lack the scientific background to understand the deeper workings and long term effects of the drug. That is why I would recommend having this thread cross posted at the wholistic forum here at the org, because this is the only forum where I have come across a whole bunch of users who have the expert knowledge in the field of biochemistry and medicine and who will understand the deeper workings, many of whom have already tried accutane and suffer from the side effects as well and could make a big contribution here.

[jmsil]

Oli Girl - I haven't got the telomere test results back yet. Even today they are still having problems faxing over the results or something from the hospital to the doctor's surgery. But the results are in, just a case of when I'll get them! I even think the normal blood tests I only did last Thursday are already in, so I'll get those at the same time.

About comparing the results before and after, I don't think it's such a big deal. Yes it would be good, but this test, from what I'm led to believe, as I'm also led to believe it's been sent to Spain as this was mentioned in the phone call to my hospital (and Life Length are in Spain), and according to articles about bringing regular Life Length telomere tests to the UK, it says results should include biological age. As before I took Accutane I was healthy without problems, and looked my age (and no known family history of early declining health from what I know) there is no reason to believe I would of also been my biological age. So if I get my results back and this test says I'm much older then the actual age I am now, then that's good enough evidence for me. The results hopefully go into more detail, but until I get the results back, I can only speculate.