3022 replies to this topic

[IndigoRush]

I drink like 10 glasses of water as it is though. And yet, I never feel properly hydrated. It's pretty horrible.
Always have this dry taste in my mouth.
There are so many theories behind everything.
I think Accutane may caused sjogren's in some people.
Auto-immune diseases can arrive after the immune system has been overworked.

As for exercise, I'm doing badminton tonight.
Love it, but I also used to go to the gym. It wasn't a cure for me.
I'd be surprised after 6 years and all these side effects, whether I could get better.

He (SClippers) had been suffering for only a year or so..
And his biggest problem seemed to be hair loss.
It was probably just luck.
I hate to say it, but I can't see any other reason.

I've tried so, so, so hard to have my own revelation.
Always reading books on self-development, meditation, nutrition and whatever else.
I've tried to fight the side effects, and the solitary lifestyle Accutane forces you into, by going out and meeting people.
It's not helped my anxiety.
I normally feel like I just want to hide away when I'm in public.

Don't forget James (Jmsil) will find out his telomere results in a couple of weeks or so.
That'll give us some answers.
It'll be interesting to find out his biological age.

I believe in the mind, but I see this as such a struggle now.
Willpower isn't enough, and the motivation is lacking most of the time because I don't have the energy.

I dunno..
Maybe we will find out the answers some day.
Meanwhile, we need to do our best with coping.
We can control certain things.

We can choose what we do with our time.
How we fill our minds.
What job we work in.
What goals we set ourselves.
What we eat.

Etc

[JosephBuchignani]

I disagree with the hell to heaven concept. In my experience, any elevation in cortisol leads to severe symptom ramp-up. The key is ultra-low-stress living on a consistent basis.

[Maynerd]

For those with symptoms of IBS - http://holisticgastroenterology.com/
And the dysbiosis thing I mentioned ( similar to IBS) could be a factor why you have dry eyes ( not enough imunoglobulin).

Interesting take on the immunoglobulin, we need to assume our bodies are dry in every way including mucous membranes and any other slimy thing.
Good article here about immunoglobulin, mentions vit A and E. Apparently lycopene as well as E can increase immunoglobulin levels.
http://www.sevobserver.com/index.php?option=com_k2&view=item&id=8028:boosting-immunoglobulin-levels-through-nutrition&Itemid=45

I think the dry eyes aspect is more closely related to hyaluronic acid though. I understand @indigo's plan to stop supplements but HA is one that I would stick with regardless.

[Merry Mary]

Hi everyone

I didn't find "enough" time yet to read in this forum but I read your statement, Joseph Buchignani, and I can, at the moment, agree with it.

[IndigoRush]

Maynerd... Did HA help you? Even that didn't do anything for me. I used doctors best.

[hitman87]

I've been a Accutane user for 8 years and recently stopped for good. I was off Accutane because I took antibiotics for an infection. After the antibiotics/infection I started Accutane again. This time I got terrible stomach pains for the first time ever. This included a lot of burping/farting and a very full/weird feeling on the left side under my ribcage. I've been to the docter and got echo's/pictures taken. It seems I have some form of obstipation. Well, I can go to the bathroom and everything seems rather normal, but somehow there is accumulation. I drink a lot now (never did ), work out almost every day and eat a fiber rich diet. The weird full/weird feeling gets a lot less, but If I don't work out for one day, it gets back. It seems to get chronic.

Is there anyone who has the same problems and what do you do to make it less of a problem? I can go to the bathroom, but in the morning I take two shits after each other with a timespan of about 45 to 60 minutes. First one more solid, second one not. This already seems weird to me, because I can't seem to loose the fecal matter in one bathroom visit.

I'm really down about this, because with this issue I tried something new against my acne with amazing results. It seems that zinc solves about 90% of my skin problems. I still have acne, but far less active. I take the picolinate 22mg zinc from Solgar, only one a day. This for me is a major breaktrough, that after 8 years of accutane I found something that seems almost as effective as this terrible drug. Downside now is that I suffer from the obstipation problems...

[Maynerd]

Maynerd... Did HA help you? Even that didn't do anything for me. I used doctors best.

I used to drink so much water and I felt like it was just running through me not sticking to anything. Then I took ha from jarrow and I felt like my body was holding water better, at least I didn't have the desire to constantly drink water. That was a long time ago and I still didn't realize how bad tane had actually messed me up so I didn't take anything for the tane as I was in a state of denial about the bad effects. Anyways, I definitely notice that my skin feels a little softer or less dry. It feels more normal. Im currently taking source naturals and my eyes have felt slightly less dry and I have been getting way less eye floaters the past two days which is a week after starting use. There are differences in brands and such so I waited a long time to buy my newest bottle of ha so I could research to make sure I was taking the right one but then after not being able to fully figure it out I had to go with source cuz it at least gets good reviews on amazon. I takee 1 pill before bed and one in the morning. Each pill=100units. Its not the miracle we're looking for but I agree with bill sardi on this one, i think its important for maintenance. Btw I want to purchase his ebook on ha but it is so expensive for an e book maybe someday. Hope this is understandable, im texting from my cell.

Sorry for your troubles @hitman87. What dose were you on for such a long time? You might want to try slippery elm and/or marshmallow as we have already talked about to greasen up your villi. I think we can learn from these extreme cases. It is interesting because I read this article by a naturopath who thinks the tane is compacted in our stomachs and that is why we get ibd. She recommends enema flushing. it could be stuck or it could have made our stomachs dry and therefore the food we ingest on a regular basis gets stuck easily. I wish we could do some rat studies of our own.

Edited by Maynerd, 23 March 2012 - 04:04 PM.

[Lukez]

You might want to try slippery elm and/or marshmallow as we have already talked about to greasen up your villi

Has anyone actually tried this for a reasonable period of time, enough to get past the initial enthusiasm that it might be helpful phase? What were the results?

[Maynerd]

You might want to try slippery elm and/or marshmallow as we have already talked about to greasen up your villi

Has anyone actually tried this for a reasonable period of time, enough to get past the initial enthusiasm that it might be helpful phase? What were the results?

I've only been at it for a couple days and have been gaining positive results ass far as the productivity of bms are concerned. Many herbalists are fans of it. But that's all I know from my end so far.

[IndigoRush]

You might want to try slippery elm and/or marshmallow as we have already talked about to greasen up your villi

Has anyone actually tried this for a reasonable period of time, enough to get past the initial enthusiasm that it might be helpful phase? What were the results?

I've only been at it for a couple days and have been gaining positive results ass far as the productivity of bms are concerned. Many herbalists are fans of it. But that's all I know from my end so far.

I spot two puns, haha

[jmsil]

Hi Ed. I also drink lots of water... 5 pints (2.5 litres) per day. I sometimes can feel/look better for drinking more, but I rarely do because I don't want to become dependant on drinking so much water. 2.5 litres a day should be more than enough.

Thanks for the advice before, Indigo. My family are going away on holiday next week, but I don't want to go. I just can't help the way I feel/am. My Dad is acting as though I'm going, and my Mum and sister are telling me to go, because my Dad will worry about me if I stay at home. I'm in a real crap situation.

It's a shame the documentary won't be a Roaccutane exclusive, Indigo, but it would still be a big step forward even if it isn't mentioned for long. Like you said, you need to say that people taking the drug are undergoing chemotherapy for cancer without being told, and that users can suffer from an unexplained decline in health. When Accutane is mentioned in the newspapers, it only mentions depression and birth defects to an unborn baby, and these are only a fraction of the side effects.

There have been a lot of new theories posted on here lately, and to be honest, it's doing my head in. This drug has been out for 30 years now, and STILL no one knows how it works. Does no one care?

I'm also due to have a regular blood test soon, and the idea is to pick up the results of this along with the telomere results. As the telomere test was done privately, I couldn't get both done at the same time. 2.5 years ago, for the first time, both my white blood cell count was low, and my liver was slightly out of range. 6 months after this I had another blood test, and my white blood count was even lower, and my liver further out of range. God knows what it's going to be like 2 years on.

[IndigoRush]

Hi Ed. I also drink lots of water... 5 pints (2.5 litres) per day. I sometimes can feel/look better for drinking more, but I rarely do because I don't want to become dependant on drinking so much water. 2.5 litres a day should be more than enough.

Thanks for the advice before, Indigo. My family are going away on holiday next week, but I don't want to go. I just can't help the way I feel/am. My Dad is acting as though I'm going, and my Mum and sister are telling me to go, because my Dad will worry about me if I stay at home. I'm in a real crap situation.

It's a shame the documentary won't be a Roaccutane exclusive, Indigo, but it would still be a big step forward even if it isn't mentioned for long. Like you said, you need to say that people taking the drug are undergoing chemotherapy for cancer without being told, and that users can suffer from an unexplained decline in health. When Accutane is mentioned in the newspapers, it only mentions depression and birth defects to an unborn baby, and these are only a fraction of the side effects.

There have been a lot of new theories posted on here lately, and to be honest, it's doing my head in. This drug has been out for 30 years now, and STILL no one knows how it works. Does no one care?

I'm also due to have a regular blood test soon, and the idea is to pick up the results of this along with the telomere results. As the telomere test was done privately, I couldn't get both done at the same time. 2.5 years ago, for the first time, both my white blood cell count was low, and my liver was slightly out of range. 6 months after this I had another blood test, and my white blood count was even lower, and my liver further out of range. God knows what it's going to be like 2 years on.

Hey James.
Hang in there as best you can.
Where are your family off to on Holiday?
I'd love a Holiday, but I understand how you don't think it'd be good for you and that you'll perhaps ruin the holiday for others.
I say go though, just to have a change of scenery.

For the last 4 days, I've had a constant twitch/spasm in my right arm... Starting to think that it's not going anywhere.
I noticed after playing Badminton on Thursday.
My worst fear is that it's Multiple Sclerosis, an autoimmune disease... It's just hard not to think of the worst case scenario when it's been there for 4 days, despite making an effort to rest it and sleep more.

Apart from that though, I don't have any other apparant problems.
It's very odd to look at. It looks as if my arm will burst open.

James - What is your diet like at the moment?
For a week now, I've avoided gluten. I wouldn't say I feel any different yet, but I don't seem to get bloated after meals, and I believe it's possible that, given time, my digestion could improve and I may start absorbing nutrients properly (assuming that I'm not at the moment).

Everyone, I would like to recommend a really good book I'm reading.
'Never Fear Cancer Again'.
Seriously - If everyone read this there would be a collapse in the health industry.
Do you know that doctor's tell cancer patients 'Food has nothing to do with cancer'. Some hand sweets out at reception.
The truth is obvious.
Cancer was rare until our diet's got messed up.
Most people think they are healthy by buying a bag of apples and potatoes, and picking up a cereal with 'added vitamins'.

The author claims that Modern medicine nearly killed him.
It points out how the statistics (i.e. how effective chemo/radiation are) surrounding cancer treatment are messed around with to make them look good.
Jesus - There's no end to the destruction modern medicine brings about.
Many people actually die because the chemo/radiation destroys the immune system - which is the best chance of surviving cancer.

I'm a third of my way through the book though.
The Author ended up with Sjogren's and other problems after taking antibiotics for too long, but claims to be 100% healthy now.
I know it sounds bold to say cancer and other serious diseases can be cured, but they're only listed as 'Uncurable' because drugs don't fix them.

If we do everything to support good health, we will get healthier.
I used to think 'Fuck it. It doesn't matter if I eat chocolate, or whatever. My body is screwed. Nothing makes a difference'.

Everytime you eat a food, it either creates health, or it creates disease.
The book's premise is:

There is only 1 disease - Cellular Malfunction. Cancer, Diabetes - you name it - are just a result of that.
There are only 2 causes of cellular malfunction - Toxicity and Deficiency. Stress is included in those, because it makes both happen.

It then explores the six pathways to either health or disease.
I'm currently still on pathway one - Nutrition.
Regardless of if cutting Gluten helps me feel better, I think I'll avoid it anyway. It's pretty easy to, and makes me more focused on eating foods that are natural and good for me. Also, Gluten has to be eliminated for hypothyroidism (and worsens other autoimmune diseases) if the cause is hashimoto's. Given time, I think this could bring me back to a healthy state.

One of the pathways is medicine, so I'm hoping it'll go into repairing the body after harsh drugs.
The book cost me £7 something, on the Kindle. It seems to be the best health book I've read so far.

Hope everyone is doing okay.
I hope the friggin' twitching goes away.
I seem to have it in my upper left eyelid too!

Peace.

[JosephBuchignani]

Hey guys,

So stress is definitely a huge trigger, and that's what I was missing when trying to nail down my optimal diet by solely tracking food input. Sleep deprivation and circadian disruption are the biggest stress sources. Meal timing works.

I stopped scallops after getting a false positive due to the stress thing. At the time I was worried I'd develope leg cramps due to mineral deficiency. Well that freaking happened, so badly that I now have a limp. Ouch.

I had to pull an all nighter, which contributed to the cramps' severity.

So I'm back on the scallops as of today.

[Dubya_B]

Someone pointed me to a thread on Dr. Crislers forum that was recently opened for Accutane victims suffering from hypogonadal symptoms.
http://www.musclecha...Accutane-Thread
I haven't spent much time there before today, but it looks like a pretty impressive site so far. Thousands of HRT discussions posted there.

[jmsil]

Sorry Indigo, I was going to post a proper reply, but looks like I've been forced to go so I don't have time. It's obvious my Dad's been crying, and when that happens, I can't say no. Off in a few hours then. Life sucks. Bye.

Edited by jmsil, 26 March 2012 - 03:11 AM.

[JosephBuchignani]

Consistent with previous experience, the addition of scallops has had transformative results. Brain fog and low energy and slow recovery times seem to have vanished, along with the cramps. As long as IBS vanishes too, this is a "final solution" for me, something that will take me to the robustness needed for something approximating full time work, with tolerance for the occasional travel or all nighter, even.

WIthout scallops, I have to take extreme care with meal timing and stress because recovery times are much slower, and energy is cut in at least half, and eventually cramps develop, especially during stress.

[John Doez]

Hello guys,

Have any of you experienced pimples/pustules breakout (face area) day or two after any sexual activity (including wet dreams)? I havent had such problem before accutane but now this shit is making me really miserable. Thanks for help. (and yes I have tried zinc and other supplements - they are not working)

[Lukez]

As long as IBS vanishes too, this is a "final solution" for me, something that will take me to the robustness needed

Joseph, you're going around in circles.

You need to realize that this is accutane's damage.

[lukuz]

Hi Ed. I also drink lots of water... 5 pints (2.5 litres) per day. I sometimes can feel/look better for drinking more, but I rarely do because I don't want to become dependant on drinking so much water. 2.5 litres a day should be more than enough.

Thanks for the advice before, Indigo. My family are going away on holiday next week, but I don't want to go. I just can't help the way I feel/am. My Dad is acting as though I'm going, and my Mum and sister are telling me to go, because my Dad will worry about me if I stay at home. I'm in a real crap situation.

It's a shame the documentary won't be a Roaccutane exclusive, Indigo, but it would still be a big step forward even if it isn't mentioned for long. Like you said, you need to say that people taking the drug are undergoing chemotherapy for cancer without being told, and that users can suffer from an unexplained decline in health. When Accutane is mentioned in the newspapers, it only mentions depression and birth defects to an unborn baby, and these are only a fraction of the side effects.

There have been a lot of new theories posted on here lately, and to be honest, it's doing my head in. This drug has been out for 30 years now, and STILL no one knows how it works. Does no one care?

I'm also due to have a regular blood test soon, and the idea is to pick up the results of this along with the telomere results. As the telomere test was done privately, I couldn't get both done at the same time. 2.5 years ago, for the first time, both my white blood cell count was low, and my liver was slightly out of range. 6 months after this I had another blood test, and my white blood count was even lower, and my liver further out of range. God knows what it's going to be like 2 years on.

Hey James.
Hang in there as best you can.
Where are your family off to on Holiday?
I'd love a Holiday, but I understand how you don't think it'd be good for you and that you'll perhaps ruin the holiday for others.
I say go though, just to have a change of scenery.

For the last 4 days, I've had a constant twitch/spasm in my right arm... Starting to think that it's not going anywhere.
I noticed after playing Badminton on Thursday.
My worst fear is that it's Multiple Sclerosis, an autoimmune disease... It's just hard not to think of the worst case scenario when it's been there for 4 days, despite making an effort to rest it and sleep more.

Apart from that though, I don't have any other apparant problems.
It's very odd to look at. It looks as if my arm will burst open.

James - What is your diet like at the moment?
For a week now, I've avoided gluten. I wouldn't say I feel any different yet, but I don't seem to get bloated after meals, and I believe it's possible that, given time, my digestion could improve and I may start absorbing nutrients properly (assuming that I'm not at the moment).

Everyone, I would like to recommend a really good book I'm reading.
'Never Fear Cancer Again'.
Seriously - If everyone read this there would be a collapse in the health industry.
Do you know that doctor's tell cancer patients 'Food has nothing to do with cancer'. Some hand sweets out at reception.
The truth is obvious.
Cancer was rare until our diet's got messed up.
Most people think they are healthy by buying a bag of apples and potatoes, and picking up a cereal with 'added vitamins'.

The author claims that Modern medicine nearly killed him.
It points out how the statistics (i.e. how effective chemo/radiation are) surrounding cancer treatment are messed around with to make them look good.
Jesus - There's no end to the destruction modern medicine brings about.
Many people actually die because the chemo/radiation destroys the immune system - which is the best chance of surviving cancer.

I'm a third of my way through the book though.
The Author ended up with Sjogren's and other problems after taking antibiotics for too long, but claims to be 100% healthy now.
I know it sounds bold to say cancer and other serious diseases can be cured, but they're only listed as 'Uncurable' because drugs don't fix them.

If we do everything to support good health, we will get healthier.
I used to think 'Fuck it. It doesn't matter if I eat chocolate, or whatever. My body is screwed. Nothing makes a difference'.

Everytime you eat a food, it either creates health, or it creates disease.
The book's premise is:

There is only 1 disease - Cellular Malfunction. Cancer, Diabetes - you name it - are just a result of that.
There are only 2 causes of cellular malfunction - Toxicity and Deficiency. Stress is included in those, because it makes both happen.

It then explores the six pathways to either health or disease.
I'm currently still on pathway one - Nutrition.
Regardless of if cutting Gluten helps me feel better, I think I'll avoid it anyway. It's pretty easy to, and makes me more focused on eating foods that are natural and good for me. Also, Gluten has to be eliminated for hypothyroidism (and worsens other autoimmune diseases) if the cause is hashimoto's. Given time, I think this could bring me back to a healthy state.

One of the pathways is medicine, so I'm hoping it'll go into repairing the body after harsh drugs.
The book cost me £7 something, on the Kindle. It seems to be the best health book I've read so far.

Hope everyone is doing okay.
I hope the friggin' twitching goes away.
I seem to have it in my upper left eyelid too!

Peace.

Have you ever been called a hypochondriac?

[JosephBuchignani]

As long as IBS vanishes too, this is a "final solution" for me, something that will take me to the robustness needed

Joseph, you're going around in circles. You need to realize that this is accutane's damage.

Negative. I was going around in circles when I didn't realize stress was a trigger. Now I'm recovered from a weekend all nighter and business trip on Tuesday morning, whereas normally a weekend business trip (without all nighter) would take me until Thursday or Friday to recover.

Plus, my energy level and libido is higher than it would've been on Friday, already.

Repetition can either signal circularity or productive refinement.