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Repairing the long-term damage from Accutane

vitamin d vitamin a vitamin e biotin garlic milk thistle depression

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#861 JosephBuchignani

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Posted 06 March 2012 - 07:25 PM

"All I can see for myself is a life of pain, misery and despair. I know it probably isn't good to say these things, but I can't lie. "




Read Schopenhauer and Nietzsche for a week, then buy a live fish and boil it live. eat and savor the circle of pain.

plus cycle tongkat ali
dark energy has uses

#862 Dubya_B

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Posted 06 March 2012 - 08:16 PM

@abcabc - If this was ankylosing spondalytis at least some of the old-timer accutane sufferers should be showing obvious, identifiable signs by now.

According to the wikipedia page:
"There is no direct test to diagnose AS. A clinical examination, MRI and X-ray studies of the spine, which show characteristic spinal changes and sacroiliitis, and a simple genetic marker blood test are the major diagnostic tools. A drawback of X-ray diagnosis is the signs and symptoms of AS have usually been established as long as 8–10 years prior to X-ray-evident changes occurring on a plain film X-ray, which means a delay of as long as 10 years before adequate therapies can be introduced."


@maynerd - hah, those med students probably won't forget something that awkward any time soon. Hopefully they will look into this poison a little more than your doctor did before they prescribe it to their future patients. Way to go.

@Joseph & Lukez, Thanks for the replies.

Lukez, you mentioned Kevin Pezzi's method of cycling finasteride to reverse the sexual sides of accutane. Are you aware of anyone who tried this and had it work long-term? I have heard of this before, but don't remember seeing any accounts of someone trying it, much less having success with it... Except for Dr. Pezzi claiming it works.

Using finasteride is like playing with fire IMO. There's a ton of guys having horrible and persistent sexual sides/depression/fatigue after using finasteride, some after taking only a few pills. Maybe think about cycling it as a last-ditch effort? I know a few of those guys tried the same thing to reverse their condition and it didn't work long-term for any of them. One even said he was left substantially worse after trying it. Doesn't seem worth going from bad to potentially worse for the sake of a short-lived recovery.

Take care everyone.

#863 oli girl

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Posted 06 March 2012 - 09:24 PM

Acutally there is a blood test for AS, it is called HLA-B27, however just b/c you have this gene doesn't always mean you will developed AS. If you think about though and read through Roche's side effects for Accutane, bone growth and spine problems are listed. So It could in some people possible cause this, esspecially if you carry the gene. Alot of suffer present and past have siatic problems all the time from Accutane.
http://www.spondylit...g/about/as.aspx
Dubya- The RagFourm was re created, back in 2009 the Orginal forum had over 5,000 members and very detailed, some suffers lost over 2,000 of thier posts, polls, studies etc.... People are tired and didn't feel like reposting, however some of the OLD RAG FOURM is archived.
Also there is a thread on here about sexual dysfunction and a member posted certian tests etc that he finally got an answer too, he went to Mayo and all over...I'll find the thread and post it later for you guys.

Indigo- Hold in there man, I know it's hard. I remember almost 4yrs ago and thinking the world was ending and I was going to die. I agree with what the others have said to you.

Hope all is well with everyone!

Edited by oli girl, 06 March 2012 - 09:26 PM.


#864 Lukez

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Posted 06 March 2012 - 10:56 PM

Fascinating, how to drain it?


After boiling your ingredients for a few hours, put it in the fridge. The fat congeals at the lower temperature while the liquid remains liquid.

Scrape the fat off with a spoon and drain the rest through cheesecloth and sieve.

Sometimes butcher's shops have good quality stock.

Lukez, you mentioned Kevin Pezzi's method of cycling finasteride to reverse the sexual sides of accutane. Are you aware of anyone who tried this and had it work long-term?


Alas, no. I'm aware of the problems with finasteride so I am hesitating greatly. None of those approaches are very comforting, even if they do make some sense to me.

I seem to be out of options and those classes of stronger drugs seem to be all that is left. I haven't decided yet. We'll see.

#865 humanstate

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Posted 06 March 2012 - 11:28 PM

I found a very informative video about digestion and thought I should share it.



It talks about betaine hcl, l glutamine, the liver and other stuff too.

#866 Mr Ketogenic

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Posted 07 March 2012 - 01:13 AM

Indigo/Lamarr

Thanks for the insights into Calcium D-Glucamine (I believe that was it) and not using Omega 3. Since taking Omega 3 I've also noticed new symptoms / increased joint pain in the legs.

I'm 22 years old, life was golden until accutane. Took only 2 weeks of the stuff and had personality changes / psych effects. After bastardizing myself as a "psychotic" friend for two weeks, I've lost my beautiful girlfriend and several close friends. Panick attacks and mental confusion still exist at random. Dryness, GI constipation is the least of my worries at this point. Chronic fatigue is the worst aspect. I even met with the co-invintor of accutane who resides in my hometown in Ohio, but most doctors have been useless. However, I have found one.

I was diagnosed with extreme adrenal exhaustion as a result of traumatic stress when taking accutane. Thus, I have experienced all symptoms of reactive hypoglycemia. After extensive blood tests- yes, Vitamin A is through the roof. I've dropped out of college for the last two years since taking accutane- remember my head filling up with heat around my brain upon the first pill. I believe was stress- and the stress it puts on the body is apparent.

I think many post-accutaners like myself struggle to rid ourselves of the ailments because we don't change our stress levels and are not willing to drastically change our diet. I tried anti-depressant this and that, reuptake and all that, and nothing helped. What did- a ketogenic diet. I'm one month ketogenic, and my accutane symptoms have dramatically decreased. I'll even say, I feel "comfortable" 4 days out of the week. However, I've also cut out all stress and currently live a sedentary life, as directed by the doctor I see.

Im embracing this diet/rest as a "healing season" for all the general stress accutane put on my system. I no longer have vision loss, and my blood sugar spikes and adrenal spike-induced panic attacks have subsided. Joint pain in my legs seems to be chilling out. Anxiety is still a battle- but GABA calm 3x is a good offensie approach. My ability to recall words and information is improving since accutane's retardative effects. I still feel like I'm functioning at 30%, but it's much better than where I was post-accutane. I was so worried someone was going to send me off to a loony hospital-- seriously an over night difference I'm still trying to rationalize and work through.

God bless you guys for this forum and determination to figure this stuff out. I'll check back / post back with any progress here. Btw, yes to dandelion and "adrenal relief" supplements. For me, glucose makes everything worse, proteins and amino acids help much. Also- no caffeine, alcohol, and take a few weeks away from any sexual activity to give tour adrenals a rest. That's not ideal, surely, but the easy way out doesn't lead to healing.

Cheers

#867 JosephBuchignani

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Posted 07 March 2012 - 02:17 AM

"However, I've also cut out all stress and currently live a sedentary life, as directed by the doctor I see."

This stress angle is huge. Not only did I break down after a high stress lifestyle for a year, but I could only recover after 1. adopting a similar sedentary lifestyle and 2. eliminating circadian stress by regularizing sleep.

#868 aWorldWithoutAcne

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Posted 07 March 2012 - 12:24 PM

People can say what they want about Accutane.

I spent almost a decade treating Acne with topical treatments and oral anti-biotics and for the large part it was all in vain. I still had moderate to serve Acne in my early twenties, then along came a nine-month course of Accutane which totally cleared my skin. It wiped away a decade of shit and changed my life.

However, the Acne did come back after a year but it was a lot milder, and now I am currently on 20mg a day, which I plan to take for only 3 months to put my skin right. Yes … the side-effects are harsh and the drug is not entirely safe, but there’s nothing else out there like it when it comes to clearing Acne; it’s the closest thing to a cure.

Having said all this, I wish I never had Acne, totally fucked up my life.

#869 oli girl

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Posted 08 March 2012 - 03:47 PM

People can say what they want about Accutane.

I spent almost a decade treating Acne with topical treatments and oral anti-biotics and for the large part it was all in vain. I still had moderate to serve Acne in my early twenties, then along came a nine-month course of Accutane which totally cleared my skin. It wiped away a decade of shit and changed my life.

However, the Acne did come back after a year but it was a lot milder, and now I am currently on 20mg a day, which I plan to take for only 3 months to put my skin right. Yes … the side-effects are harsh and the drug is not entirely safe, but there’s nothing else out there like it when it comes to clearing Acne; it’s the closest thing to a cure.

Having said all this, I wish I never had Acne, totally fucked up my life.


Yes, People can say what they want about Accutane. If you noticed the title is for Long Term Suffers From Accutane, NOT sucess stories! By the way you never know what course will hit you 1st, 2nd or possibly the 3rd, but when it does you'll know....

#870 Tree1

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Posted 08 March 2012 - 04:33 PM

Hi guys, just been reading through these posts and after suffering for 4.5 years from accutane side effects I really feel for all you as many of you seem to have had a similar experience to me.

My story - Took Roaccutane (70mg per day) in 2007 for seven weeks. Suffered from severe deperession, so ceased taking the drug immediately. A few days after stopping the drug my libido vanished - complete loss of nocturnal/morning and spontaneous erections, along with a change in the shape and feel of my flaccid penis. Pretty fucking horrible.

After about 6 months of CBT, hypnotherapy (and some low dose prozac that I binned after a couple of months through fear of it worsening my ED problems), I managed to get the depression under control and could return to work. Although I suffered from dips in mood, things gradually got better over time to a point where my mental state was more or less back to normal.

However, my libido problems did not improve at all during this time. There seemed to be no clear hormonal explanation - I had a number of hormone tests and all my hormones were 'in range.'

For the first couple of years I tried so many different herbs/vitamins and minerals to try and boost my libido. Some of these would work for a day or so and then my body would adjust to them and they effects would dimish. I got most of my ideas on how to potentially tackle this through the propeciahelp.com website - those guys have an almost identical side effect profile to us. Two of the most notable treatments I have used for sexual dysfunction are a device called the Blakoe Ring and Vitamin D - but unfortunately both have led to undesirable side effects...

Google the blakoe ring - it sounds literally bonkers, but it worked for me. The problem was it sent my Testosterone through the roof and I started to develop mild gyno as my T converted to E, so I had to stop using this. Herbal AIs (aromotise inhibitors) did nothing to stop this process and im not willing to take pharmaceutical AIs. I got blood tests done at the time and my estrogen had increased considerably - its now gone back to normal thankfully, but the gyno has remained. The ring is made of zinc and copper rods - I think zinc and copper are pretty useful supplements to take, but it seems the ring was too much for me.

Vitamin D is another complex supplement for me - blood tests have shown I am very low (which seems to be a common link between us all). Supplementing relatively low dose Vit D helped sex drive slightly for around a month, but about a month into taking Vit D I suffered from horrific brain fog that I have been unable to shake to this day.I dont want to scare ppl off taking Vit D - we are all different and it seems to help some people but I can only speak honestly about my experiences and it seems to have somehow worsened my mental state. I have now been suffering from severe brain fog for nearly 1.5 years, despite stopping the vitamin d and it's so bad I have had to be signed off work. The brain fog is entirely different to the original depression i suffered - i have real trouble speaking, my memory is awful and I suffer terrible anxiety when I am with people.

On to a more positive note, the one thing i have found that helps, with no side effects, is diet. You guys seem to be pretty clued up on diet. I started a strict paleo diet about 1 year ago to try and combat the brain fog - about 2/3 wks in I noticed grease started to be deposited on my face for the first time since taking roaccutane, and ever so slightly my libido was returning. This opened my eyes to the role diet could be playing in all this. After reading shedloads about diet and the benefit of raw food I shifted to a raw vegan diet (primarily in an attempt to treat my brain fog) and have subsequently seen signs of further increased libido. Diet has got me to probably 30%-40% of my previous sexual potentcy - that might seem small progress but for anyone suffering severly from all of this you will know how important it is to cling on to any progress at all.

I now see diet as the building block for my treatment - after 4.5 years of this shit I've given up on a complete recovery but If I can get to 75% of where I was pre-tane sexually and mentally i'll be over the fucking moon. Unfortunately my brain fog is still terrible - if anyone has had any success in treating this I would love to know.

I've become more interested in the diet/auto-immune angle in treating these side effects due to the improvements I've seen from my diet and I am currently seeing an immunologist in London. He has run a battery of vitamin/mineral/hormonal and neurotransmitter tests on me and has found that I have high histamine and low Diamine Oxidase (DAO is he enzyme responsible for getting rid of histamine out of the body). He belives roaccutane caused this imbalance and this is the root cause of all my brain fog/sexaul issues - high histamine can certanly cause brain fog, but I am not so sure it can cause complete annihalition of the sexual functioning....he has put me on some treatment so I will see how that goes - will keep you updated but no progress so far.

My strategy for the future is to focus on raw foods, excercise, meditation and selective supplementation backed up by blood tests. However, I don't really trust supplements anymore - most are such poor quality and to this date after 4.5 years I am yet to find one that consistently helps me.

I am determined to get to a point where i can at least function again, I will not give up until Ive got there. I think it is vitally important we come together to exchange ideas on this - congrats on initiating this thread chaps...

Sorry for the massive post - i'll keep tabs on this thread from now on..

Take care

#871 IndigoRush

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Posted 08 March 2012 - 05:53 PM

Welcome to the new guy..

19 people now follow this thread... That's quite a lot!
Keep getting new faces in here lately.

Haven't been reading much lately, but I'm still finding a lot of good information in the thyroid book.
Makes this thing seem a lot easier, and explains a lot.
I really need to cut out stress..

Still loving Badminton and it always get's my anger out, and makes me feel good after.
But when I'm at work, or arguing with my girlfriend, it's hard not to let my mood slip into 'fuck.fuck.shit.fuck.'

If you have hypothyroidism, it's likely that you have a lack of dopamine/serotonin, because thyroid affects neurotransmitters.
This would explain our paranoia/anxiety that seems uncontrollable, and abnormal.
It also would explain why we don't 'feel' much, emotional wise, when other people are concerned.
For example, when my Grandad died (around September last year) I didn't really cry, or feel anything.
I hate that.
I'm sure I mentioned it at the time.
Of course I love him and wish he was back, but things like that just don't affect me.
It's like I'm dead inside and it's horrible.

But yeah..
I think it'd be interesting to see how your guys thyroid/adrenals were functioning.
Bloodtests are shit...
Even when they do work, they probably won't tell you when something is wrong.
Worth getting, if you're in the UK, because they're free.
But ask for the paperwork, and see where you are in the range.
They won't tell you anything is wrong unless you're out of their (generous) range.

It seems this drug is just a shock to the system.

I find it odd that I had a sex drive for a year and half after this drug, before it collapsed.
Thryoid/adrenals are key in libido.
I know both of mine aren't working well/are exhausted, so that's the focus point for me.

Peace my amigos.

Tree dude, where are you from in the UK?
I'm still hoping I can meet up with another 'Accutaner' in real life.
Just to feel less alone in this battle.

Stef

#872 JosephBuchignani

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Posted 08 March 2012 - 10:01 PM

tree vit d should be taken in morning only. when were you taking it?

#873 Dubya_B

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Posted 08 March 2012 - 11:51 PM

@Oli girl -
I'm aware that bone growth and spine problems are associated with accutane use, but would be hesitant to blame those or any other side effects on ankylosing spondalytis being caused by accutane. My point is that AFAIK no accutane sufferer has been diagnosed with that condition, which according to the wikipedia article, should show obvious clinical signs after 10 years. I mean, at least a few of us who have been suffering for over ten years should have had a diagnosis by now if this was true.

The guy you mentioned going to the Mayo clinic is same guy I mentioned who said he had some success with HRT Posted Image Said he's doing better in his last post.

That fkn sucks what happened with the old RagForum, we would probably be much better of at the moment if it was still around, never got to see it except for a few of those archived pages. I don't mean to put anyone down, but the new ragforum seems pretty lifeless, and all the ads make it feel less welcoming, plus the same thing is liable to happen if the host goes under unless there are people keeping a backup of the site now. It would be unimaginable for everyone to have to re-type years worth of posts. Still have to say new ragforum seems like a better option than everyone posting on acne.org. Every post would be more organized/accessible there, plus fewer of these idiots who have their heads buried up their asses would show up to crap on us for hating on accutane.
BTW- It's admirable that you've devoted so much time to helping other's who have been screwed-over by accutane. Over a thousand posts worth. Thanks.

@Tree1-
I'm in the same boat as you man, hundreds of blood tests and pretty much everything in range with a few exceptions, still have sexual/mental problems despite that.

Had lowish testosterone on the first few tests after this $hit started. Got tested last year and T, Free T, DHT, and E2 were perfect, Adiol-G was near bottom of the range though, but I had felt worse then than in 2002 when my T and Free T were much lower. My thyroid tests always come back fine / Cortisol and DHEA-S always a little high / prolactin used to be high but has dropped in the past few years / FSH always low but LH always mid-range/ 24hr urinary steroid profile was all out of whack, but I have always been sketchy about the validity of that test. Various forms of TRT haven't helped at all with the exception of a slight boost in mood that only lasted for a couple weeks after beginning androderm, and a few strange returns to near-normalcy sexually and emotionally that lasted for a few hours each after using 3-4 androderm patches at once. Clomid didn't make me feel any different and I swear tamoxifen has left me a little worse-off after taking it for around a month 2 years ago. Was on bromocriptine for about 4-5 years, which seemed to make a noticeable difference for some reason even though prolactin was not super high, maybe it's becuase it is a dopamine agonist? Tried bromocriptine again a couple years ago and didn't seem to have the same effect as before. Sucks that you got gyno from boosting T, maybe andractim could help?

@Indigo-
It is difficult to say which is worse...
The sexual sides are embarrasing, emasculating, humiliating, and infuriating, along with the worry that I will not be able to have children... I finally found someone and was pretty much forced into explaining everthing to her a few days after we met. That was about 2 1/2 years ago. After enduring: my suicidal rants, a few long and probably inappropriate explanations about how it's impossible for me to feel real love, lust, and connection like any other man would, explosive rage over what this chemo drug did to me, telling her she would be better if with someone else, and a lot of other $hit that comes along with all this, she actually asked me if I wanted to marry her and I agreed.
Living like a hermit for almost a decade just to avoid a little embarrasment sucked. All I'm saying is that it seems like you have a good girl right now. Don't screw things up unless she gives you a good reason to.

The emotional blunting makes you feel non-human, unmotivated, anti-social at times, and seems almost impossible for others to understand as something different than run-of-the-mill depression. My grandfather passed away about a year and a half after I crashed and I was also barely able to feel any grief at that time. I couldn't cry although I was very close with him. It was an un-real experience. It took time but the emotions returned somewhat and have come and gone to varying degrees (both highs and lows lasting a few months to a couple years) over the past 13 years for me, and have never gone back to that "blank" state they were in after I crashed. I'm not sure if you have those "fluctuations" in emotional intensity too, but don't assume it can't possibly get any better, even after a few years.

And... What is really crazy is that I just read one of your other posts and wanted to say I had the "exact" same experience. I was checking my junk out a couple weeks after the libido disappeared and found a "small lumpy mass", and freaked out that it might be testicular cancer since I basically still felt like I was in the process of dying at the time. I'll probably never know whether I once had epididymitis or not since I was too scared back then to see a doctor. It could have developed when I crashed or that could have been the first time the lump was noticed (didn't pay much attention to my balls before that, they just hang there after all). Had tests done to see what it was a couple years ago after a doctor agreed that it was a little strange. Ultrasound found nothing unusual except for a small benign cyst (a lot of guys have them). What was odd was that the ultrasound report said something like "29 y.o. male with epididymitis"? Maybe it said that because epididymitis is what the doctor was looking for? In any case it hasn't gotten any bigger in 13 years, was never painful, had another test that would have shown an infection in my reproductive tract come back negative, and judging by blood tests my nuts are working ok even though I don't feel like they are.

Wondered if you felt any pain along with the infection?

Edited by Dubya_B, 09 March 2012 - 12:11 AM.


#874 Tree1

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Posted 09 March 2012 - 02:43 AM

Stefan - Im in London, happy to discuss any of this anytime

Joseph - I wasn't aware vit d should only be taken in the morning - what is the rationale/evidence for this? I reckon 99% of the time I took it in the morning anyway, as I always take my supps in the morning when waking.

Dubya - cheers for the pointer on andractim, however tbh I'm very relucatant to take any more pharmaceutical drugs. My Gyno isnt that severe to look at so Im just going to forget about it for the time being, Ive been checked over by an endrinocologist who said everything is more or less ok with the gyno. I'm waiting on another blood test however just to make sure my estrogen is back down for sure. I forgot to mention in my above post Ive been suffering from pretty heavy hair loss as well for the last 2years - this has definently been exacerbated by my T boosting regime.

With regards to the diet changes - I must emphasise for me I only started to see improvement if I very strictly adhered to the diet plans. When i first tried the paleo diet a few years back I still had the odd bit of rice/some gluten free cookies a few times a week (what a dickhead!), and I didnt see much benefit at all. After reading the 'primal blueprint' I gave it another shot and it was only when i existed off meat, veggies and fruit that I saw some sexual improvement.

The same goes for the 'raw' diet - the I did it 100% for 6 weeks before xmas (which is fucking tough) and a couple of times I woke woth morning erections for the first time in 4.5 years. The effects come and go tbh - but the more cooked foods i introduce I have a feeling it limits the effects of the diet - it is very hard to track progess exactly but I do feel the diet has moved me on in all this. My auto immune specialist has now put me on a high raw 80% alkaline diet - basically 60-80% of my diet is from raw food the rest from some cooked vegan food and the odd bit of fish/meat, lots of green juice/smoothies. He has advised me to centre my diet around leafy green veg, eating twice as much veg than fruit.

The high raw (50-80%) diet seems more realistic to stick to long term, Im a skinny chap and going 100% raw makes it very difficult to get all the required calories to enable me to excercise. For me, excecise is very important. The jury is still out for me on whether it can directly help with roaccutane sides, but I find simply doing excercise very theraputic and helps me take out my anger over all of this. It's important to find hobbies/interests throughout all of this to keep you sane, excercise defintently helps me. My social life used to be incredible, but I barely go out now because m whole social life was centred around boozing, thats off the agenda for a while. But in the grand scheme of things, I can deal with not going out and i know I feel better when sitcking with my diet.

So my current regime is:

- High raw diet, juices/smoothies
- 30mg Zinc/2mg Copper per day (for sex drive). Very important to get good quality zinc with copper in it, if not copper will be depleted. - x3 Spirulina tabs (my b12 is a little low)
- As much excecise as I can do
- Meditation

Cheers guys

#875 JosephBuchignani

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Posted 09 March 2012 - 04:38 AM

Joseph - I wasn't aware vit d should only be taken in the morning - what is the rationale/evidence for this? I reckon 99% of the time I took it in the morning anyway, as I always take my supps in the morning when waking.


Seth Roberts found it resets your Circadian. Take it in the morning and it won't shift you late or early. Metabolism will peak around noon.

It's like a big dose of sunlight. Upstream from taking melatonin. Makes you awake during day, sleepy at night.

By the way, I tried canned tuna last Sunday and it flattened me until today. Too much fat, I guess. 2-3%. Only other thing it had in it was water.

But yeah, my diet works, I'm back to normal now.

He said as he burned his tongue on the steamed chicken breast.

#876 aWorldWithoutAcne

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Posted 09 March 2012 - 05:02 AM


People can say what they want about Accutane.

I spent almost a decade treating Acne with topical treatments and oral anti-biotics and for the large part it was all in vain. I still had moderate to serve Acne in my early twenties, then along came a nine-month course of Accutane which totally cleared my skin. It wiped away a decade of shit and changed my life.

However, the Acne did come back after a year but it was a lot milder, and now I am currently on 20mg a day, which I plan to take for only 3 months to put my skin right. Yes … the side-effects are harsh and the drug is not entirely safe, but there’s nothing else out there like it when it comes to clearing Acne; it’s the closest thing to a cure.

Having said all this, I wish I never had Acne, totally fucked up my life.


Yes, People can say what they want about Accutane. If you noticed the title is for Long Term Suffers From Accutane, NOT sucess stories! By the way you never know what course will hit you 1st, 2nd or possibly the 3rd, but when it does you'll know....


My story is far from a success and I have problems, too, but I don't think moaning and talking the drug down is the right way to deal with them. I also suggest you change your tone next time you decide on replying to me.

#877 thefrenchguy

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Posted 09 March 2012 - 11:56 AM

To those who have libido loss :
I took the drug 2 weeks and stopped after and I noticed that as my skin was getting oily again my libido came naturally back.
First, I didn't thought it was related but now I'm quite sure but I'm affraid that these problems will come back.
So there's may be a link between both
When the side-effects vanish do they come back ?

#878 IndigoRush

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Posted 10 March 2012 - 10:50 AM

http://www.youtube.c...feature=mh_lolz

New song mo-fo's.

#879 rivladoo

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Posted 10 March 2012 - 09:27 PM

Hello,

I took accutane multiple times in highschool and now I am stuck with severe muscle weakness and stomach problems (mostly reflux). Anyways I am not gonna go on and tell you all negative effects as they are similar to what I have read here, I wanted to ask if anyone has heard about low serotonin levels in the brain caused by accutane? Serotonin is responsible for muscle function , digestion and mood, which seems to relate to all the problems. Muscle weakness could be the cause of joint pain in so many of us. I found 2 forum posts about serotonin, and one person suggested 5-htp and the other person suggested apo-tryptophan.

I tried both and my muscle weakness varied like crazy when i was taking both pills.

Before taking these pills i could barely walk, didn't have a lot of pain but my legs just didn't respond and I had to struggle and put a lot of energy into making my legs move. The pills didn't instantly make me better, but I had some moments where my legs felt like 100% and it made me realize how my legs SHOULD feel, which was kind of scary to know how I've been living until now.

From what I have read I understand that serotonin is responsible for muscle contractions, which could explain the joint problems. Since muscles don't contract properly it puts pressure on the joints, but this is just my theory.

Let me know what you guys think about serotonin and accutane, and if you heard anything about it.

#880 IndigoRush

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Posted 11 March 2012 - 11:23 AM

Another new chap!
http://www.drlam.com..._conditions.asp

Adrenal Fatigue is really fitting the picture for EVERY problem I have, except maybe dry-eyes.
Link above explains that it can cause Serotonin deficiency, and this was also mentioned in the book I'm reading.
I think the adrenals and thyroid are going to be affected by everyone going through these side effects.
They are sensitive to changes, and Accutane can really create a shock to the system.

It'd be interesting to see your results if y'all were tested (with a saliva test) for adrenal fatigue.
I've ordered some adaptogens (such as Ashwagandha and Panax Ginseng) to see if they help me to deal with stresses better.
Lovely day today though, for a change.
Really nice to get outside in the Sunshine.
Now reading The Hunger Games before the film comes out :)

Hope everyone is doing alright.
I stand by that you should read the thyroid book I mentioned.
Explains a lot, i.e. why some Accutaner's benefit from Biotin, and why things like B12 and Vitamin D can be deficient.
Might make the situation a lot easier too.
If it just means focusing on healing the adrenals and thyroid.
I'm currently taking things that will help bile production, i.e. Beet root, dandelion and milk thistle, so there's nothing else I can do in that area.
I'm upping my protein intake and will start taking Glutamine to rebuild my stomach (as that's probably an issue).

Ciao.




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