3018 replies to this topic

[theGreyhound]

I'm sorry to hear that

I seem to have a lot of reactive hypoglycemia since taking Accutane (not sure if it's the cause or not but that's when it started) and I finally identified it as such with my doctor this past fall. I'm eating strategically now so that I feel better. Luckily the doctor said that there are no signs to indicate I'm heading towards having diabetes though.

It's quite heritable is it not? Does anyone else in your family have it?

[Chico Esposito]

I'm sorry to hear that Oilgirl my mother is also type 1 diabetic, she got it at 26. I've heard good things about the paleo / primal blueprint diets in relation to diabetes. Your blood sugar levels are kept more stable by all accounts, but diabetics do need to eat a certain amount of carbs per day so their sugar levels don't get too low. I know if it was me i'd try a paleo or primal blueprint style approach and moniter my blood sugar levels daily, if they were too low i'd up my carb intake until the blood sugar was in normal range. The insulin plays a part in all this too, taking insulin will drop blood sugar levels.....i've heard of people that have lowered their insulin dose over time because they control their blood sugar levels with their diet, not suggesting they ever came off insulin but they did lower their required dose. Good luck Oilgirl i really wish you all of the luck in the world on this.

[JosephBuchignani]

You know i've always thought there is a bile component in all this. Try as i might i've never been able to get my stools back to normal colour and i find it hard to eat nuts, olive oil, avocado's and other sources of monounsaturated fat. I still think the bile has something to do with the gi problems and the inability to remove these fat soluble toxins from the body, but after taking many liver tinctures and herbs i never got resolution to those problems. After which you think it cant possibly be right, but i'm sure the liver has something to do with the cause and effect.. of these long term problems.

Some people on here think i'm just a quack talking about how the accutane is still in our bodys lol.........i don't mind what people think, i welcome the different theory's from all sides. I did alot of research on anabolic steroids and their damage to the liver, it's not as random as it sounds. Anabolic steroids are fat soluble hormones, these fat soluble hormones are removed via the same liver pathway as accutane, in fact the liver binds synthetic steroids with glucuronic acid in the same way that it binds accutane. It's plausible to make the suggestion that the same down regulation of bile acid transport could happen, between both substances...understanding their both liver intensive drugs.

This could in part explain the inability to remove the accutane from the body and some of the digestive effects. The accutane would be stored in the fat cells which would explain the rationale behind the hypervitaminosis A side effects. It would also explain the reason why people react to retinol foods or foods high in beta carotene, it would explain the reaction to spicy foods, and the difficulty some people have absorbing fat in the diet.

Thats an explanation but it's not an answer, i don't know how to go about healing the liver, i've tried and failed.... the liver cant remove anything unless it's in the bloodstream, otherwise it's a waste of time and money. But pushing it back into the bloodstream has it's own problems if the liver is not capable of detoxifying it, so there in lies the problem.

Scraped the oysters and bought a zinc supp instead (probably for the best, the less retinol you consume the better), taking 30mg a day, Not expecting a resolution in any symptoms, although i'm hoping to build my bodies zinc levels for the retinol binding protein and the increase in stomach acid.

Have you tried TUDCA? I would highly recommend that. My stool is light and it changed the color and resulted in an improvement in health. I had to discontinue due to IBS sensitivity to the magnesium stearate in those pills. But I suspect a powerful answer lies there.

Anyway, I'm not doing any pills at the moment. I can be healthy without them, simply by following my steamed low fat meat and rice regimen. I need a period of stability to perfect and confirm the approach, and resolve the scallops issue once and for all, and also ensure a stable life footing in other areas. Can't afford to be sick from pill experimentation this month.

[jmsil]

But James, and I'm not having a go, you seem to constantly look at the worst case scenario with this.
It's up to you what you choose to believe, but you always promote negativity.
You pull out the news that Roche are in trouble, the day the story hits the paper.
While it's good that they're getting bad press, I really think you need to find something to enjoy.

Anyway, I'm sorry if I sound like a dick by saying that you need to lighten up, but you do.
I, probably like all of you, check this site pretty frequently.
I can't help feeling a sense of dread each time I see you (Jmsil) have posted a new comment.
I read it, and normally feel a sense of despair afterwards.

Indigo - Thanks for those lovely comments! I don't know if you're having a go at me, or giving me advice! Anyway, I'm sorry if some of the things I said haven't gone down well with you. As Luke said, I am just trying to be realistic for my situation, which may not apply to you. I'm just trying to look for answers.

Jmsil, I believe you are suffering from chronic malnutrition due to your vegetarianism and impaired digestion.

I've been tested and I'm only deficient in B6 and magnesium. All the other vitamins/minerals are fine.

Thats an explanation but it's not an answer, i don't know how to go about healing the liver, i've tried and failed.... the liver cant remove anything unless it's in the bloodstream, otherwise it's a waste of time and money. But pushing it back into the bloodstream has it's own problems if the liver is not capable of detoxifying it, so there in lies the problem.

What I am concerned about is just what you said, Chico- we have our explanation but we still need an answer. So far our leads are zinc and bile, hopefully we can do something with that.

This is all I was really saying in my few posts, that I've also tried the liver/bile tinctures extensively and they don't seem to work, and that the theory still needs answers to find a solution. I'm just saying I'm not going to get carried away (with anything) until something has been proven to work.

using phrases out of context (eg ‘it’s a chemo drug’) and distorting the truth will stop a lot of people getting treatment

It is a cancer/chemotherapy drug. Some of you may have already seen this on another forum, but the link below shows Accutane - listed on a chemotherapy website!

http://www.chemocare...IO/accutane.asp

I'm sorry if this has been mentioned before, but I've found out that a new, special (and expensive) blood test has become available in the last few months (in the UK at least) which tells you if you have telomere shortening. From what I've read, it gives you a detailed analysis, tells you if your telomere length is critically short (or however short it is) and tells you your biological age very accurately. Here's the link:

http://www.independe...e-2284639.html#

This would surely once and for all confirm if we have had our telomere length's critically shortened since taking Accutane, and giving us some proper answers, or ruling it out.

Edited by jmsil, 14 February 2012 - 12:31 PM.

[JosephBuchignani]

Lol. Just one deficiency is plenty to do you in. And don't think for a second that any present test can detect all deficiencies. Eat meat or fail to thrive, period.

[IndigoRush]

Quit with the steamed meat and white rice talk haha.
It's ridiculous.

Interesting about the telomere-related blood test, but surely Nathan would have used this by now, if it's been around for months?
It'd be good to cross that off as a possibility.
You going to get the test, James?

Fuckin' hell.
That's all I can afford to say tonight.
BUSY AS.

Bye.

[TheKnowing]

It is a cancer/chemotherapy drug. Some of you may have already seen this on another forum, but the link below shows Accutane - listed on a chemotherapy website!
surely once and for all confirm if we have had our telomere length's critically shortened since taking Accutane, and giving us some proper answers, or ruling it out.

I know but this doesn't make it dangereous, viagra is thought to help cancer patients - it is not any more/less harmful since this revelation, the fact that accutane was developed to treat cancer doesn't make the slightest difference.

[Davis Rachel]

Edited by Davis Rachel, 14 February 2012 - 10:49 PM.

[Maynerd]

Ok, we seriously need to cut out the posts that don't relate specifically to healing those who have been hurt by this drug. I personally try to limit my posts because we could be losing really smart ppl who could help us out but don't want to read through 40 pages of errant fights, or comments from those who think taking chemo for acne is a good or sane thing, etc... for fuck sakes.

By the way Davis, you might want to consider taking great care of your body and read through our posts and learn how to heal yourself even though all you are currently feeling is dry skin as some of the side effects are latent.

So guys, is there a way to get some additional moderation or perhaps we should move the discussion elsewhere that is public yet moderated?

[humanstate]

I don't understand why multiple people have come on this thread to try and convince us accutane is not a harmful drug. It's very frustrating and insulting. Those people can't even imagine what the side/direct effects of accutane do to you physically and mentally.
Please shut up. I don't care if you think this drug isn't bad. If thats what you think I don't want to hear it. So many things have happened to me that were never supposed to!
Unless you're contributing to our recovery get out.

Does anyone know of anything that helps brain fog or memory?
Mine is pretty bad. I'll do things and almost immediately forget it.

Today I did an infrared sauna treatment. It felt wonderful. I can't really say that it's helped me physically because I've only done it once, but I do feel better mentally. I found myself smiling more today. It was kinda strange. I also felt very zen during the treatment.

For the past few days I didn't eat bread, sugar or sugar containing fruits/veggies.
Not sure if that puts you in ketosis...

I hope everyone is surviving and sorry Oligirl I send my wishes of good health your way.

[Davis Rachel]

If you refer previous video on that ACCUTANE DIARY, you will find that. There were serious side effects, and after that things got better!!! So i just wanted to show people that second side of the coin.

[oli girl]

I'm sorry to hear that

I seem to have a lot of reactive hypoglycemia since taking Accutane (not sure if it's the cause or not but that's when it started) and I finally identified it as such with my doctor this past fall. I'm eating strategically now so that I feel better. Luckily the doctor said that there are no signs to indicate I'm heading towards having diabetes though.

It's quite heritable is it not? Does anyone else in your family have it?

Nope nobody in the my family has type 1 diabetes. Even went soo far back to a few generations (my family are good historians). I am sure it's the Accutane I am not the first one who been dx after taking it at such a age it is not commonly seen. I am sure being that Accutane caused sjrogren's and autoimmune thyroid that it was only time..... Yeah keep good care of the hypoglycemia and if you read your insert of Accutane it does state it can alter blood sugar, but many docs don't add glucouse for thier monthly labs.

I'm sorry to hear that Oilgirl my mother is also type 1 diabetic, she got it at 26. I've heard good things about the paleo / primal blueprint diets in relation to diabetes. Your blood sugar levels are kept more stable by all accounts, but diabetics do need to eat a certain amount of carbs per day so their sugar levels don't get too low. I know if it was me i'd try a paleo or primal blueprint style approach and moniter my blood sugar levels daily, if they were too low i'd up my carb intake until the blood sugar was in normal range. The insulin plays a part in all this too, taking insulin will drop blood sugar levels.....i've heard of people that have lowered their insulin dose over time because they control their blood sugar levels with their diet, not suggesting they ever came off insulin but they did lower their required dose. Good luck Oilgirl i really wish you all of the luck in the world on this.

Thanks Chico I did get a book on the Paleo Diet. My diet wasn't horrible to begin with and I was thin too, but I have lost muscle and alot weight from this. My eyes are still dry from the sjorgren's, but much better since starting the insulin. I am still taking Vitamins that they say are good for type 2 diabetics though I am type 1 etc....

How are you doing?

Jsmil- You better be supplementing with a good B6 & Magnesium my friend. being defiecent in B6 can cause a host of issues.

[jmsil]

Jsmil- You better be supplementing with a good B6 & Magnesium my friend. being defiecent in B6 can cause a host of issues.

*sigh*... I'm sure it can... The thing is, I take Dr Schulze's SuperFood Plus every day, and the B6 per serving is 12.20 mg, which is 610% of the RDA! Don't know how else to fix this.

Interesting about the telomere-related blood test, but surely Nathan would have used this by now, if it's been around for months?
It'd be good to cross that off as a possibility.
You going to get the test, James?

Yeah, I would like it done. That link/article was from May last year, and said it would be available by the end of the year (2011), so I just need to make sure there weren't any delays. I also need to find out how/where I can get this specific blood test taken.

I don't know about Nathan. Maybe he doesn't know about it? the article said the blood is sent to labs in Spain, whereby it accepts blood from some other European countries for this new testing. You'd think the US would be up to speed also, but who knows. Maybe someone here from America can find out if the test is possible.You'd like to think if Nathan had the test done, he would of posted the results either way. Then again, I don't know if Nathan posts his progress online.

I'm struggling to find out much info about this online so I've emailed the company behind the test just now, and hopefully they will get back.

[IndigoRush]

Grrrr.

Never had any problem with customs fee's through iHerb before.
Normally, when I buy stuff using the $4 shipping, it goes straight through Royal Mail without problems.
Today though, I got one of three parcels through the post.
Actually, no I didn't.
I got a slip saying I need to pay £14.58 in order to have my order delivered.
The items only came to £35!
Takes the piss.
£8 of the fee is 'handling'.
What - you mean touching the fucking box and putting it in a van.
C*nts.

Sorry.
Just felt like a rant.
Fingers crossed the other two orders don't get picked up by the money-grabbing government.
However, I'm generally not a lucky person.

While I'm at it, I am sick of people commenting on here and my Accutane videos saying I'm 'taking things out of context' or whatever.
Seriously, fuck off you ignorant ass-holes.

That's all kids!

[theGreyhound]

While I'm at it, I am sick of people commenting on here and my Accutane videos saying I'm 'taking things out of context' or whatever.
Seriously, fuck off you ignorant ass-holes.

That's all kids!

So you only want to get better if its on YOUR own terms. The government is bad, all healthcare practitioners are bad, and now anyone who disagrees with you is.

This thread only brings me down when I come to check it, and nobody will listen to my advice about what has healed me up almost entirely. I'll even post a checklist of questions and nobody will take the time to go through it. Anyways, you guys all seem intent on finding your own answers and doing it all on your own terms. I won't be participating in it anymore.

Best of luck to you all!

Edited by andrewharv, 15 February 2012 - 02:52 PM.

[Chico Esposito]

This thread only brings me down when I come to check it, and nobody will listen to my advice about what has healed me up almost entirely. I'll even post a checklist of questions and nobody will take the time to go through it. Anyways, you guys all seem intent on finding your own answers and doing it all on your own terms. I won't be participating in it anymore.

So what problems did you suffer from? a detailed description of the side effects and the course of action you undertook to alleviate them. Also have they gone entirely?

I know you talked about hypoglycemia which is low blood sugar, what kind of diet have you been put on. Also what "energy work" have you used and what did it alleviate specifically?

Your getting angry that no-one listens to your advice but you've only implied certain things, without stating anything concrete. Can you explain explicitly what helped you in detail, as it may help other's in a similar situation. A backstory might be beneficial as well in relation to how long you've had side effects and what things have you tried in the past that have failed. Cheers Andrew.

P.s i answered your questions if you look back a page or two.

Edited by Chico Esposito, 15 February 2012 - 06:21 PM.

[JosephBuchignani]

*sigh*... I'm sure it can... The thing is, I take Dr Schulze's SuperFood Plus every day, and the B6 per serving is 12.20 mg, which is 610% of the RDA! Don't know how else to fix this.

I think you have to get injections. or just eat meat/seafood.

[oli girl]

Acutally, There is a lab that does the telemore testing and Nathan or Morgan posted it I think on topix and rag fourm. Also, it really isn't going to any good for any of you to have the testing done. Someone would have to check it before Accutane & then after Accutane. I believe there are a few that have had this test, but they were already damaged by Accutane.

Jsmil- I have 250 mcg of B6 that I just started and I read for anyone who comes on this thread and has fibro or nerve issues that Vit B 1 (thiamine) in benfotiamine form use to be used to treat neuropathy and nerve issues that is until they came out with lyrica.

Anyway I just started both b6 & B1 in that form and will let you guys know. Jsmil obviously you need to take a little more, maybe a seperate pill.

[switch124]

Does anyone know of anything that helps brain fog or memory?

Personally, I've found that certain foods induce brain fog. For me its typically, eggs, dairy, and debatably tomatoes and pineapple. I did a ELISA (allergy test) a few months ago and found out I was allergic to tomatoes but strangely not to eggs or pineapple, I'm also not lactose intolerant (I avoid dairy anyway).

I'm a pretty firm believer that brain fog is an immune reaction, i.e., when I eat foods that typically give me brain fog they do so immediately after I eat them, not hours later when they're being digested or absorbed. This, however, leads to the argument that brain fog is actually a psychological disorder of some sorts, but I disagree.

Really, I can't give you any definite answers or recommendations. Still, I can tell you what I've been trying and some of the connections I've made.

Foremost, you should keep a food journal and really narrow down which foods cause the worst or at all or any.
Secondly, immune reactions likely stem from some long-term internal exposure, caused by leaky gut (or its hereditary, or you've been predisposed by hereditary attributes, or it could be a number of different things, here's where it gets gray). Regardless, its pretty commonly assumed that if you suffer from brain fog you also have leaky gut and thus curing the leaky gut should in turn improve your symptom of brain fog. Here's a link to some symptoms, really I just googled it so feel free to do the same I have no relation to this website:

http://www.leakygutcure.com/blog/leaky-gut-syndrome-symptoms/

Anyway, products that I can recommend for leaky gut are basically the same products I recommend in an earlier post, Standard Process Dermatrophin, any strong probiotic (remember the more strains the better), also you can try IntestiNEW (an L-glutamine supplement, personally I don't take it because it makes me breakout so be careful), really there isn't a shortage of supplement suggestions for leaky gut have a look around acne.org.

When you're actually suffering from brain fog there are very few things I've found that help

1) exercise (best thing I can suggest, 20-30, get your heart rate up)
2) drink water (maybe this is just placebo but hell it can't hurt)
3) sleep it off

I have to go now but I've also been thinking about circulation as exercise helps so Niacin, cayan pepper may also help idk. Also, Neurotrophin PMG another Standard Process product may help, I haven't experienced any major improvement whilst taking it tho.

Best of Luck

[jmsil]

Regarding some posts discouraging what some of us are saying about Accutane - we are entitled to our opinions just as much as anyone else. We will say what we want. People considering Accutane would have to go out of their way and do research to find this thread, and if anything said here is enough to prevent just one young person going through chronic, life-long health problems then good. Acne pales in comparison.

Thanks for the info Oli Girl - 250 mcg is an insane amount of B6 when you think it is over 6000% of the RDA!

I've found a UK website also selling B6 at 250 mcg so I'll order some and give it a go too. I definitely feel I have nerve issues and this may explain it.

Nathan has said he takes a product called Miracle Mineral Solution MMS that has "given me my life back" and "can live a normal life and not be constantly distracted by the side effects". I'm sure others here would of heard about this product by Nathan, and if anyone here has tried it, it would be good to know if it has helped at all?

Also, something I mentioned few weeks back, I did an IgG Food Allergy Test (blood test) earlier this week, costing £250, which I think is the same Chico did. I remember reading about ELISA but can't remember how it differs, or if it's actually the same thing. Anyway, I'll get the results in a week, and I'll post them here when I do.